March 2020 Moms

NIPT Tests/Discussion/Questions/Results

12357

Re: NIPT Tests/Discussion/Questions/Results

  • @malidocious @silverhope @emilylove25 @treetop19 thanks for your responses. That makes me feel so much better. I know that chances are everything is fine with a good NT scan, I just get nervous and feel like I should have more info if I can. Glad to see I'm not the only one who isn't getting NIPT testing.
    Me (31) & DH (32)
    Married 9/27/2014
    DD Born 6/23/16
    Baby #2 Due 3/7/20
  • @emmasemm so glad to hear your had great results!!

    Blood test happening soon and I’m nervous! They come to my house thought which is really cool. They will be here between 6-8pm and it’s only 6pm and I’m already shakey. Hoping the next two weeks fly by!
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  • @heyahelmett CONGRATULATIONS!!!! That’s amazing!!! 
  • momoftoddlersmomoftoddlers member
    edited August 2019
    Had my NT scan yesterday and everything looked good. 😁 NIPT results probably won’t be in until late next week bc of the holiday (Had the blood test Monday). 
  • @laurenm2123 I’m not doing NIPT either. My insurance doesn’t cover it unless you’re 35+ or high risk and I’ve read some billing horror stories about people being quoted a certain price for out of pocket costs and ending up with a 900 dollar bill. I’ll have a NT scan mid September. 
  • orbmakerorbmaker member
    edited September 2019
    I’m waiting for my counsyl/myriad results. Does anyone know if when the portal says the results are under ”clinician review,” they’re referring to your clinician? Or are they talking about one of their clinicians? The estimated results day is Sept 5. I guess I’m just curious if my midwives already have access...
  • SP128SP128 member
    edited September 2019
    @orbmaker
    For me my doctors office called me 4 days before my counsyl/myriad portal said it had my results. Oh and mine never said it was under review.... but would give the last updated day. It was updated daily 
    ***TW***
    Me: 36  DH:35
    Married: 7/10/2016
    TTC#1 - May 2016
    BFP 9/6/2016 - Missed MC 10/20/2016  
    BFP 5/5/2017  - CP
    IVF #1 - June 2017  - Transferred 1 fresh 4 AA embryo.  7/9 Beta #1 - 161 
    <3 Adam <3 Born on 3/18/18




     
  • @orbmaker I used the same company. I couldn’t see anything online until after my doctor called to explain the results and then released them online. I got emails both times that results were in (couldn’t see them yet) and that they were released (could then see them). I believe there is a drop down menu on the right with “view results” or something similar and once they are released there is a button to push to see them. 
  • @aliray123 do you remember if the day they said your results would be ready was accurate? 
  • @treetop19 Yay for the great news--especially after the annoying wait and confusion!
    *TW*

    DD1 EDD 9/29/2015, Born 9/24/2015

    DS1 EDD 1/3/2018, Born 12/26/2017

    BFP #3 3/21/2019, EDD 11/29/2019, MMC/D&C 5/7/2019

    BFP #4 6/28/2019, EDD 3/12/2020 

  • @treetop19 YAS!!! So excited and relieved for you! Do some celebrating tonight!


    *Formerly LuND*
    Me: 35 | DH: 37
    TTC: 7/2016
    Low AMH, mild MFI
    BFP 7/29/17
    EDD: 4/5/18
    <3  DS born 4/4/18  <3
    BFP #2 7/2/19
    EDD 3/13/20


  • @treetop19 Great news!!!!  So happy for you! :)
  • I had my NIPT today. The nurse said the results are pretty quick - maybe by the end of week but definitely by early next week. It's through LabCorp/Materniti21. 
  • orbmakerorbmaker member
    edited September 2019
    @aliray123 I had mine drawn last Monday and the next afternoon I got an email that said specimen was received and 9/3/today was the estimate for results. But it was a holiday weekend and at some point results day switched to 9/5. Just feeling mildly paranoid that it’s taking longer because of abnormal results or something. 
  • @orbmaker Had mine drawn last Monday too. My doctor said they take about a week, but with the holiday I’m not expecting them til tomorrow or Thursday. 
  • @orbmaker I had my blood draw last Tuesday morning, they got my sample wed, and I’m still waiting. I’m using Invitae this time. Last time was Counsyl and I think it took 10 days. 
  • Anyone have Unitedhealthcare? How long before you got authorization? I'm still waiting for authorization to book my NIPT and I'm already 10 weeks three days. I'm getting really anxious. 
  • @Madamemerle I don’t have United Healthcare but I got my NIPT draw at 12+6 so you still have time! NT scan is more time sensitive
  • @Madamemerle I have UHC choice plus plan and I took my NIPT test last week. I didn’t check before if it was covered. Let’s hope it is.😅 I’ll keep an eye out on my UHC app for any updates on charges and keep you posted.
  • @treetop19 @jenEP so happy for your positive results!!! Yay!

    ugh so I got my blood draw done at 10w2d with harmony and they said to be sure that I was 10 weeks and according to my first dating ultrasound at 6w2d that was my timeline. I was pretty confident and based on my ovulation sticks (lol) due date of March 25th was on the ball.

    I did a second dating ultrasound to be more precise at 8w2d that pushed my due date to March 28, 2020. I didn’t know this until I had my midwife appointment yesterday. So as it turns out, I did my NIPT blood draw at 9w6d unknowingly. Now I’m worried I’ll have to re-draw even though the harmony nurse said he rarely has to re-draw. 

    I'm wondering if anyone had had a similar experience or if anyone has any thoughts on the due dates being pushed back. My midwife said there may have not been enough data in my blood at that point so she suspects a re-draw is not unlikely in my case. I just dont want to delay getting the results as 10 day wait is hard to be patient for as-is. 
  • @dunder_mifflin as you know I had to redo my draw and it really increased my anxiety.
    I did the draw at 10+2 when I measured 10+5 hence they were confident I would have enough...
    But I had also had a lot of blood draws in the previous 2 weeks and an Intralipid infusion which they said could have reduced the % fetal cfDNA in my blood.
    Additionally redraws are more common early if you’re overweight apparently.

    Keeping everything crossed you won’t need the redraw. I have friends who did it 9+4/5/6 who had no problem...
    Me 43 DH 45
    Married 12/2016
    TTC #1 since 04/2015
    AMA, DOR (AMH 0.65, AFC 2-4) and autoimmune issues (RA, APS), low TSH, adenomyosis
    7 retrievals, 3 transfers
    Jun19 FET BFP, due date 7th March 2020, DD born Feb20
    Sep17 IVF1 - 1ER, 1F, 1ET, BFN
    Nov17 IVF2 - 1ER, 0F
    Jan18 IVF3 - 3ER, 1F, 1ET, BFN
    Feb18 - second opinion and additional testing
    Apr18 IVF4 - cancelled (E2 too high)
    May/Jun18 IVF4 - 4ER, 0M, 1F, 1 frozen day 3 (not best quality)
    Jun/Jul18 IVF5 - 5 ER, 3M, 2F, 2 frozen day 3 (not best quality)
    Jul/Aug18 IVF6 - 4ER, 3M, 2F, 2 frozen day 3 (good quality)
    Aug/Sep18 IVF7 - cancelled (cyst)
    Sep/Oct18 IVF7 - 3ER, 3M, 2F, 2 frozen Day 3 (excellent quality)
    Oct18 IVF8 - Cancelled (cyst and too low TSH)
    Oct18-Jan19 bringing TSH under control
    Feb19 ERA and hysteroscopy
    Mar19 Investigation for fibroid and adenomyosis
    Apr19 adenomyosis confirmed, polyps removed
    Jun19 FET after 2 months Lupron, autoimmune protocol, transferred two day 3 frozen embryos
    Sep17 - Pergoveris 10-17 Sep, Orgalutran 15-18 Sep, Ovitrelle 18 Sep, ER 20 Sep for 2 follies, 1 mature egg, fertilized, ET 1x 2d 4-cell embryo 22/09, 05/10 BFN
    Nov17 IVF2 - Pergoveris 2-14 Nov, Orgalutran 5-14 Nov, Ovitrelle 15 Nov, ER 17 Nov for 3 follies, 1 mature egg, did not fertilize
    Jan18 IVF3 - Pergoveris 30 Dec - 8 Jan, Orgalutran 5-8 Jan, Ovitrelle 9 Jan, ER 11 Jan 3 eggs, 2 mature, 1 fertilized, ET 1x 4d 12-cell embryo 15/01, 24/01 BFN
    May/Jun18 IVF4 - Rekovelle 25-29 May, Menogon 30May - 2Jun, Zomacton 25 27 29 31 May and 2Jun, Cetrotide 30May - 3Jun, Gonasi 3Jun, ER 5Jun 4 eggs, none mature, two matured overnight, 1 fertilized with ICSI, Frozen day 3 but not good quality
    Jun/Jul18 IVF5 - Rekovelle 21-24 June, Menogon 25Jun-3Jul, Puregon 4-5Jul, Zomacton 21 23 25 27 29 Jun, Cetrotide 25Jun-5Jul, Gonasi 6Jul, ER 8Jul 5 eggs, 3 mature, 2 fertilized with ICSI, 2 frozen day 3 but not good quality
    Jul/Aug18 IVF6 - Rekovelle 26-29 Jul, Menogon 30Jul-7Aug, Buserelin 26Jul-7Aug, Zomacton 26 28 30 Jul 1 3 Aug, Gonasi 7Aug, ER 9Aug 4 eggs, 3 mature, 2 fertilized (normal IVF), 2 frozen day 3 good quality
    Sep/Oct18 IVF7 - Menogon 19-30Sep, Buserelin 19-30Sep, Zomacton 19 21 23 25 27 Sep, Ovitrelle 1 Oct, ER 3 eggs, 3 mature, 2 fertilized with ICSI, 2 frozen day 3 excellent quality 

    Fav Quote: The greatest thing you'll ever learn is just to love and be loved in return

  • Thanks @emmasemm for the response. That’s so annoying that happened to you! Your response was so helpful. I just called harmony and asked and they said they would consult with genetic counselor and get back to me. They may just re-draw automatically instead of having me wait and then do it, which is helpful. I’m fact i may just request it when they call me back just to avoid the whip hassle 
  • @Malidocious Congrats! Did you NIPT provide the sex? They usually test for the sex chromosomal disorders like Turner's plus give you the sex of the baby? 
  • @jenEP Not as far as I know.  My OB's office has been incredibly difficult when it comes to explaining their testing and why they do things the way they do them, which has been frustrating to say the least.  I don't think the blood work I got done at the doctor's this round provided the sex information.  This was blood work that accompanied the NT scan and tested for a handful of trisomies and Downs.  I have more blood work coming back from Myriad/Counsyl for muscular atrophy and things like that.  They mentioned that I could find out the sex with those results if I wanted to (which heck yes I do), but I have yet to receive those.  

    I only did the Sneak Peek because my OB's office was adamant that since I'm not AMA, I wasn't going to get any NIPT testing done.  Then when I was there last week, they ended up doing a lot more testing than they previously mentioned.  I'm confused about the whole thing, in case you couldn't tell!  Lol!
  • @malidocious, congrats! so exciting!
  • @Malidocious I see! Fingers crossed you get the other testing back soon!
  • @jenEP, yay to a boy.  :)  Being mom to a boy is definitely fun.
  • @chichiphin sending such good vibes for the NIPT! I can't believe they're making you wait until the 19th for the NT. That's just cruel!


    *Formerly LuND*
    Me: 35 | DH: 37
    TTC: 7/2016
    Low AMH, mild MFI
    BFP 7/29/17
    EDD: 4/5/18
    <3  DS born 4/4/18  <3
    BFP #2 7/2/19
    EDD 3/13/20


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