Low AMH Level

emmasemm · April 2018

@jamieh2000 as tough a decision as that was, I’m sure your embies will be thankful for a nice fluffy stripy lining in a few months!

AFM well the best laid plans of mice and men...
I had my baseline US. Two follies on left but my left ovary seems not to move but to be super glued to my uterus! And kind of half behind it... we always had follies there but never eggs so now we have a few extra questions... possibly a fibroid...
My right had nothing to show, but it is only day 2 and it never had much to show on day 3 or 4 previously so I’m not surprised.
Then it took three nurses 40 minutes to get blood from me. They only stabbed me twice, but I guess all my blood is in my Ute and not in my veins!
I took the scan away with me and sent it to the clinic.
Then we had a lightening storm this afternoon. With power cut and phones off. Upshot being still no bloodwork results! I’m hoping I can get them in the morning and then send them to the RE - but an extra night wondering if my FSH is too high or not... so no idea if we start tomorrow or not...
The RE did call tonight so I had a chance to ask a few more questions.
But, yep, another day of waiting here too.

hopefuljj · April 2018

@JamieH2000 lady I think you made the right call. I know so many ladies that have been told to hold off for trilaminar lining so I really think you made the right call. I’m so so sorry for the delay. I’ll be here with you just waiting. No results yet, they said 2-3 weeks. Just passed 2 weeks now.

hopefuljj · April 2018

Also, way to go uterus!!!! That sure was some incredible growth!!!!

Hopeful_mom · April 2018

@JamieH2000 ugh so sorry Lady! I echo what these lovely ladies have already said! It truly just sux!! I give u credit for canceling im sure that must've been a hard decision especially with ur lining getting al plump like that!! I know it's gonna happen hang in there!!

@emmasemm I swear at this point I just thinking you're fibbing, a power outtage, come on already!! I kno you're not but can't one day go smoothly!! Remember try not to worry at baseline I feel like they just check to see what's going on usually for me follies they saw were left over and new ones would grow. More in spoiler for u

i also thought of u as I'm explaining to my OB why I think I need a csection so my poor vag can sit this one out

@hopefuljj eagerly waiting here with the rest of the gang!!

@Ilky thanks

JamieH2000 · April 2018

@emmasemm- Thanks girl. I am hoping its only a 5 week delay, so I really should be able to be patient i guess 5 weeks wouldn't be anything it hadn't already been like 33 months! hahaha. Omg, a power outage on top of everything you have already dealt with? I swear we should all write a book together. Hoping that you got good news about your FSH by now since its almost the evening in Germany. Crossing my fingers you are starting injections tonight!!!

@hopefuljj- I know right? The lining decided to miraculously thicken up, but not quiteeee right enough to move forward. It sure is an emotional rollercoaster since I thought for a few hours we were gonna move forward again. I know this will just be a blip on the whole journey, assuming it goes smoothly next month and we finalyyyy have success. Gosh i really hope those ERA results come in today! Did you decide to do the Lupron depot after this?

@hopeful_mom- thanks chica. It was not an easy decision, but I didn't really feel like it was much of a choice, even though she said it was. Just trying to focus on the positive of a delay- if it works, I would be due in Feb instead of Jan, which means I would get one more month of summer mat leave (since we get 6 months here- though its not all paid or anything). Just trying to look on the bright side, tho its been hard! Can't believe how close you are! We may not get to be bump buddies, but i know you will still be cheering us on even while you have a crying newborn keeping you up all night

moly416 · April 2018

Update: Out of 9 embryos, only 3 made it to 5 day blasts: 5AA, 5AB and a 5BA. They’re being sent for PGS. I was hoping for at least 4. But I told DH that I’m happy it’s not zero like last time.

emmasemm · April 2018

Add me to the delay/cancellation club.

So my FSH is 17 which alone would not have stopped us (as I’m in the 15-17 range each month).

But bigger problem was my E2 was 92. On. Day. 2.

So I went for an urgent second US this afternoon and no sign of cysts or anything that might be causing it - except the two follies are already measuring 9mm. On day 3. So the high estrogen is probably due to them.

What the f**k ovaries???

Just to note, I’ve taken no medication so far this cycle. This is all natural.
We will have a follow up with the doctor on Tuesday to discuss strategies for next cycle.
But right now I feel like curling up and hiding.
And I have to finish and submit my thesis by end of Monday.

JamieH2000 · April 2018

@emmasemm- nooo that is so frustrating! Cancellations are the worst (second only to BFN I guess) Could they not try to get the two follicles to grow still? or it won't work because of the high FSH? I think its normal to recruit early follicles with DOR. Would it be possible to try estrogen priming? Both times I did it I started estrogen patches a few days after confirmed ovulation. I also did 3 shots of ganirelax on days like 20-22 I believe. Its called the Schoyer protocol. Its supposed to suppress you just enough to prevent lead follicles. I'm so sorry this is happening when you have to finish your thesis. That is just brutal

moly416 · April 2018

@emmasemm I’m sorry to hear that. During my first baseline scan, there seemed to be a follicle at 11.5 mm so I also got worried that they’d cancel that cycle. However, they checked all my previous US and realized it’s always been there, so they concluded it’s a cyst. Any chance those are cysts and they’ve always been that size?

Hopeful_mom · April 2018

@moly416 congrats on ur good looking blasts hope they all come back normal!!

@emmasemm seriously wth body!! High fsh usually wasn't a problem for me but I do remember having some E2 I'm surprised they're canceling so early on. Delays suck all around enjoy some wine while finally finishing up that thesis!! Excited u can at least be done with that!!

@JamieH2000 of course I'll always be cheering u on! Even through the full 9, we all need some
crying babies

I did have my niece screaming her head off this morning not wanting to go to school boy was that fun

Ilky · April 2018

@emmanemm ugh! so sorry to hear this! I dealt with high FSH as well and I know it sucks! Did your Dr. say anything that you can do to address it for next time? For me we just cancelled those cycles and I wasnt on any med either. Sorry you are going through this dear. Sending you hugs...

adc0417 · April 2018

@emmasemm That’s terrible!!! Something similar happened to me before where my FSH was within acceptable range but my E2 was high for some unknown reason and they cancelled the cycle before it even began. All I can say is I’m so sorry this is happening. Just hang in there!

emmasemm · April 2018

@jamieh2000 @adc0417 @ilky @moly416 @hopeful_mom

Thanks for all the support ladies.
I’m expecting to talk Estrogen priming, but that’s a great hint @jamieh2000 about the Schoyer protocol thanks!
Definitely not cysts.

We know my FSH is never going to be great. And my AFC is in the toilet.
And I know it’s smart not to start when your E2 is too high already, but after waiting three cycles to get all the extra testing etc done with the new RE we were really looking forward to getting going again. And at my age with my AFC taking now 4 months off is a big proportion of my remaining eggs wasted.

But on the other hand I had to pull several all nighters the last few days to get my thesis finished, and so in hindsight it was probably a good thing I wasn’t trying to grow follies right now.

WTF call tomorrow. Will see what he says.

JamieH2000 · April 2018

@emmasemm- The waiting in this process is just unbelievable. So many ups and downs, especially with DOR. I'm hopeful your RE will suggest or at least be open to estrogen priming. it can really help lower FSH and prevent lead follicles. Congrats on being done with the thesis! That is a huge accomplishment! Keep us posted on your WTF apt and I'm gonna hope this is a short quick cycle and the next one will be good to go!

mich_elle · April 2018

***lurking***
GL with your call today @emmasemm and with finishing your thesis (((hugs)))

hopefuljj · May 2018

@emmasemm ugh lady:( I’m so sorry. F delays!

I second what Jamie said because I always did estrogen priming to avoid early recruitment as well. My priming started in the previous cycle as well, by CD 3 baseline I would have taken about 6-7 days of estrace pills 3 times a day. Keeps that FSH waaaay down. @moly416 great results with 3 day 5’s!!! Wow!! Let the PGS testing wait begin! AFM - ERA results are in and I am pre-receptive and the recommendation on the report is to transfer with 1 extra day of Progesterone. So a day later. I mean.....obviously I’m not surprised. Lol. I don’t ever get results that come back normal or average. So I’ve been paralyzed with the decision of doing a couple months of Lupron or just rolling into my long FET protocol.....I need to decide when AF arrives which should be in about 10-15 days. Every time I decide I have the overwhelming feeling that I decided wrong so I change my mind. It’s a constant flip flop over here. I can’t I hear the glandular developmental arrest results...and if I think about the Endo I likely have it makes sense to do it but I just...don’t.want.to. So I’ll just be over here quietly going crazy:). Love to all.

JamieH2000 · May 2018

@hopefuljj- soo glad you trusted your gut and got the ERA! I hear you- why can't any results just be normal for once?! But so happy you got this info before transfer. The Lupron decision is so hard! Its a personal one so there isn't really a wrong answer. I guess if it was me i would try one transfer before doing Lupron. Mainly because you don't know for sure if you have endo, but also its not totally clear on if or how much endo really effects implantation. Lots of ladies with endo just do IVF and have success. I think it also depends on the degree of endo and there is no way to know that without a lap. I almost wonder if it would be less risky/quicker to do a lap instead of the Lupron for months. Big decisions are so hard and I will be sending prayers for clarity for you!

Ilky · May 2018

@hopefuljj I didn't need to do ERA but I hear you, you just want to be normal like every one else, but I guess on one hand its good to get an answer why it didnt work before. An answer is better than unknown I feel like. How many embryos do you have left? I agree with Jamie there are hundreds of women with endo who has successfully got pregnant. What does your RE say about it?

moly416 · May 2018

PGS results are in: 2 normal embryos out of 3!

Now off to FET! This is the part I'm dreading because I know for sure DH won't help with the PIO. After my ER, I asked the nurse if my doctor prescribes suppositories or PIO...and she said they do a combination. But honestly, if PIO works better, I'd rather just suck it up and do that daily.

@hopefuljj I get ya. The people at the clinic make the whole process sound so easy and uncomplicated. They don't really discuss such hurdles and leaves us totally unprepared when we end up facing it. I'm glad I found this forum, it has been more informative when it comes to the DETAILS.

emmasemm · May 2018

@hopefuljj ohhhh that’s so great you got your result! And soooooo pleased you followed your gut and pushed for the ERA. I guess when your FET will be depends if you decide to do the three months of Lupron first...
I would probably rather do the lap than the Lupron personally, but either or none all have risks...

@moly416 awesome news!

AFM talked to the RE today and feeling much better about it all. He wants me on progesterone and estrogen shortly after ovulation, so we can prime up to the start of the next cycle. It was really nice as he actually talked to me like I know what I’m talking about. Also we’re going to up my DHEA (I’ve only been on 10mg per day) as he said it’s not likely to harm anything and if we’re lucky it helps. Maybe not for this next cycle but by the one after.
And if the estrogen priming of an antagonist cycle doesn’t work, then we will talk about MDL for the next round.
Overall I’m pleased he’s talking to me like an adult and willing to mix things up.
I have to say I spent the weekend with little hope, but now I have a tiny glimmer again.

Ilky · May 2018

@moly416 yay, good news! 2 embryos are amazing! My husband had to leave me this week to go see his father who is getting very ill so I had to do my own PIO shots. Honestly, they were not as hard as I expected. One time I had my coworker gave me a shot and it hurt so I continue to give my own shots. there are some youtube videos that might help. Good luck!

@emmasemm I am so happy you have hope again! I forgot where you were located but if you like I can give you my DHEA tablets. I only used 4-5 tablets (out of 80 I think) and decided to not use them since I already had high DHEA levels. I can ship it to you if you would like.

hopefuljj · May 2018

Ladies I’m insane, I’ve decided to move to crowdsourcing because I can NOT decide...please take my poll and humor a crazy infertile lady:) https://docs.google.com/forms/d/e/1FAIpQLSd_XQcjU_S0XPgz9XmeGSQMs-2DxFV4s5UkTrNyolLKtCynIQ/viewform?usp=sf_link

hopefuljj · May 2018

@molly416 amaaaazing results!!!!

@emmasemm I am so grateful for your renewed hope:) even if it is just a glimmer. I have so much hope and faith this will work for you:)

hopefuljj · May 2018

@ilky I have 2 PGS normal embryos. Took a full year of IVF to get that. So the Lupron is mainly because I got results from the Yale EFT that said I have glandular developmental arrest. Which some research shows affects implantation but there is NOT much research!! So I just don’t know if I should be putting myself through that for something that may help? My RE pointed out it also helps clear up Endo temporarily which could help with implantation IF I have Endo. Because we just don’t know but she suspects I do have it. And it makes sense with my DOR and autoimmune issues. I flip flop from just doing a transfer to doing the long Lupron/menopause and just am driving myself crazy. So I have decided to crowdsource here with my form/poll above and on my Fertility App where I spend loads of my time and maybe the decision will be made for me? I can not imagine continuing to hold down my job while dealing with Lupron symptoms....good grief.

Sorry this is such rushed writing, meeting a friend for dinner:)

adc0417 · May 2018

@hopefuljj so glad you got your ERA results. Hoping you can figure things out and get the party started soon.

@moly416. That’s such great news!!

@emmasemm so happy you now have renewed hope. Really hoping the next cycle works out for you.

AFM, we decided to stick with the first donor as we couldn’t retrieve the second donors previous records and she’ll have to pre-screened from the beginning. Our donor is scheduled for May 30 screening day and so we are looking at a tentative cycle day in July. They would like me to be on BCP so they can sync my cycle with donors. On the other side, my RE doesn’t seem very hopeful but has another protocol up his sleeve if I want to try it. Again, it’ll be dependent on my day 2 fsh and this time no lupron and will take cetrotide instead. I’m not sure if I should try one more time with my OE or just go with DE. DH says that we still get the day 2 fsh and of its 10 or below, we go with OE cycle. So, let’s see. Sorry for all this juggling talks.

hopefuljj · May 2018

@adc0417 hey lady, so for donor cycle you do a fresh transfer? That’s very cool:) It’s a tough decision whether to give it one last go with OE before moving on...in what ways is the new protocol different? When would day 2 be approximately for you to see the FSH and decide? Thinking of you. Tough decisions stink.

emmasemm · May 2018

@hopefuljj ok so I’ve participated in your poll ;-)

@adc0417 personally I would do one last CD2 baseline FSH and if it’s no good then go on BCP and get synced with your donor. What were your previous day 2 FSH values? I mean if you’ve never been below 15, setting 10 is useless then you may as well just skip it. But if it was in the range 12-17 then saying below 14 would see you try to stim once more might be reasonable.

AFM
I have my adjusted protocol already - start progesterone once I ovulate, add in estrogen a few days later and then baseline in 3 weeks! It is a bit weird that the priming is the same as post fresh transfer protocol... but I guess I should be ok just in case I’m finally a SS hehehe
And I got the confirmation that my thesis was accepted this morning - roll on graduation in June!

capps42613 · May 2018

@hopefuljj I submitted my response assuming that you will transfer 1 embryo at a time? If it was, I would go ahead and try the transfer once and if it doesn't stick go with the long Lupron. Obviously this would Be a risk if you are hell bent on trying for 2 kids out of these 2 embryos. I hope that helped, whatever you decide, we have your back! I was only on Lupron for about a month I believe and the only symptom I can recall is Lupron headaches!

JamieH2000 · May 2018

@hopefuljj- my work comp doesn't like google docs for some reason, but I already gave you my vote. I hope it helps you decide!

@emmasemm- I'm glad your RE treats you good since you are SO knowledgable about everything, he better! Yay for having a good plan and hopefully the next weeks fly for both of us Also CONGRATS on the thesis. What an accomplishment! And i am sure a weight off your shoulders with everything else going on!

@adc0417- its so hard to make big choices like when to stop trying with your OE. I agree that if you can, it wouldn't hurt to see what your FSH is. I think it would still give you enough time to get on BC and sync up with your donor!

AFM- I start Lupron on Sunday and have my baseline in 1.5 weeks. Just hoping May goes quickly and there are no more delays!

hopefuljj · May 2018

Thanks for voting ladies:) @capps42613 I would def just transfer 1 and see what happens and likely not pick the sex because that is too stressful...I wish I didn’t even know the sex of the embryos. I wish More than anything I could get 2 babies out of these 2 embryos but I also know even doing everything under the sun, I still can’t really control this. I’ve gotten 25 responses on my poll between you ladies and my other group of gals:). 80% say transfer and 20% say do the long Lupron. I have not voted myself. Lol. And I have not added in my doctors vote or yours @JamieH2000 but maybe I should to get the full picture. This is making me feel so much better though, taking the decision out of my hands in a way. I emailed me RE to see if she thinks doing 1 month of Lupron would make any difference because I will do that but if not I just want to figure out moving towards FET once and for all. And whatever happens happens. In the meantime I just keep refreshing the poll on my phone browser because it’s been like a fun game!

@emmasemm CONGRATS on your thesis lady!!! That’s wonderful!!! And you’ve got a good plan in place to prime up for next cycle! I hope time flies by for both you and @jamieH2000.

JamieH2000 · May 2018

@hopefuljj- if you move forward with transfer, would you transfer with your next cycle?! Maybe we will be transfer buddies

adc0417 · May 2018

@hopefuljj I just voted too!!!

@emmasemm so happy that you got the next steps on your protocol and congrats on your thesis.

AFM I just got my AF. My last FSH was 11.6. So anything above that wouldn’t make sense to go forward, and honestly at this point, I don’t care anymore. I just want to reach my destination, as this journey has just been too long already.

hopefuljj · May 2018

@JamieH2000 oh man how I do want to be transfer buddies with you! So my FET protocol is a long one...and I’ve decides to do 1 month of Lupron and then roll into FET. I’m up to 29 votes on my poll. Damn. 82.8 % say go for FET!! So i talked to my RE and she was on board with me just doing a month of it and then my long FET protocol. That way I feel like I’m giving it a little bit of a shot and yet not doing a scary long time. I need to schedule a meeting with my nurse to figure out scheduling but it would likely mean transfer in July. So at least there is a plan again and hopefully no more false starts!

emmasemm · May 2018

@hopefuljj I think a month of Lupron and then transfer one is a great plan. But in the end you need to do what you are comfortable with.

@jamieh2000 your start will be here so soon now! Are you on a trip right now did I remember?

@adc0417 oh how I wish for an FSH under 12! But as we all know the blood work only gives an indication not a perfect prediction. In my three cycles with FSH 15-17 I always got eggs at retrieval. It would be much easier if the numbers would 100% tell you what the results would be, but sadly there are so many other factors and a bit of luck thrown in too.
I still think set yourself a reasonable number, make your peace with it and then go with it when it comes.

AFM got my prescription today, so taking that in Monday morning and hoping I can get the progesterone Tuesday as I think I’ll O then.
In other news I’ve started enjoying my first weekend post MBA - by going out looking at stones with DH. We’re doing our terrace and garden new, I’ve never seen so many different stones in my life. Stones for walls, for the terrace, for paths, for ornaments, for pillars... it’s like 50 shades of grey masonry style

Hopeful_mom · May 2018

@hopefuljj yay for results!! Thrilled I've got a plan, i voted for transfer

but I would've said one month of lupron is a great compromise!! So excited for u ladies to transfer!! @jamieh2000

@emmasemm I want to throw a party for u! Woohoo thesis done and accepted now onto the next adventure

hoping ur levels and eggs will cooperate!!

@adc0417 moving on to DE is always a personal tough decision and when ur ready u will know it! It's great that you've been able
to start the process so you're ready to go regardless!!

@moly416 woohoo awesome results thrilled for u!! You're on ur way!!

adc0417 · May 2018

I’m in such a dilemma now and of course have these terrible period cramps. My FSH this am was 9.6, which is great. The dilemma is what do I tell my DE clinic now who want to put me on BCP to sync my cycle to donor. Ideally our donor will be ready to do the cycle 3rd week of June.

babyhopeful442 · May 2018

Hi everyone, I started following this thread when i was first diagnosed with low AMH last year and i'm so glad that there is this forum of hope and support. I just finished with my first IVF cycle's ER and I was so excited as all the supplements seemed to work and i had 10 follicles that were of mature size on U/S prior to retrieval only to be able to get 4 eggs out of them

I was so sad and disappointed since another cycle might not be in the cards financially for a while. I was wondering if anyone else has experienced empty follicle syndrome and if there's any way to prevent them? thank god my 4 eggs all fertilized and i'm waiting to hear back for my day 3 results on Monday. We had planned to do PGS testing, but now i'm scared to do anything to leave us with no embryos. @Hopeful_mom What was the protocol that you used to get your 4 PGS normal embryos? Was it antagonist with estrogen priming?

Hopeful_mom · May 2018

@babyhopeful442 congrats on making it to ER hope you get a great day 3 report! Did you consider doing a fresh transfer? I'm on my mobile not sure you have a signature but how old are you? That can be an advantage with having more normal embryos too.
For me the most normies I got from one cycle was 2. I did banking of 5 cycles where I got 5 normies where 2 of the cycles gave me nothing. I did antagonist protocol for all and some estrogen priming with acupuncture mixed through. I can't say which was the magical potion as I had success and failure with it all. To me it's really just that cycle that why I never took a month off between cycling.
Having empty follies is the worst I first experienced that later on not even knowing that was a thing. Looking forward to ur update!

babyhopeful442 · May 2018

@Hopeful_mom i'm not eligible for a fresh transfer as my lining is very thin (6mm). so it's 5 days or nothing

I'm 33. Did you also use menopur? i was reading about how menopur could cause empty follicles or there's not enough trigger shot? I used 10,000 pregnyl for my trigger and they even did blood work to make sure that i had a good amount of HCG in my system (780). I am also doing acupuncture and supplements, been doing them since november 2017. Was really hoping to get 9 mature eggs. My amh was 0.898 in sept/2017 and in april 2018 1.57. Was there any other protocols that you tried and worked? I think my RE wants to do low dose next time, if there is a next time. Meanwhile, i'm going to see if i can apply for compassionate care or maybe do another round at CNY as their IVF pricing is out of this world cheap.

Hopeful_mom · May 2018

@babyhopeful442 many live births happen on 5days too!! Good thing is that u r on the younger side so you can take a bit to do some research and see what type of grants are out there! Especially getting started I found there was more of an option. I was just too old and didn't have the time to wait and had to suck it up and charge away!
My protocol was always aggressive 300 of gonal f and 300 of menupar which is 4 vials. Added cetritide 1/2 way through the process when my levels showed I needed it or one follicle was dominate over the others. I believe my trigger was the same as you.
Antagonist I responded the best to, I did one cycle with microdose lupron and it was so bad I had to convert it to an iui! At times I felt like a guinea pig to try other protocols but again with my age and amh I really just wanted to go go go!!
i want to add its quality over quantity! I know it's exciting when we get more but it's doesn't always mean much! The one cycle i got 9 I ended with no normies and the cycle I got 3 eggs I ended with 2 normies....so you never can tell!!

Low AMH Level

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