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March 2017 Moms
alexxapplepiee-2
member
Twin to Twin Transfusion Syndrome *TW*
alexxapplepiee-2
member
Hello all,
I've been struggling with posting this and not posting it but since right now I need prayers, I've decided to post.
Little back story before anything, I'm currently 16 weeks pregnant with identical twins. They both had their own separate amniotic sacs but share the placenta.
Anyway, Friday we had our big ultrasound appointment and a doctors appointment to check on them and do all of the necessary measuring. Everything was going normal as far as I was concerned, 2 heartbeats and everything. Then the Ultrasound Tech said "I'm having trouble finding a membrane." We didn't have this issue at all 8 weeks ago. She then proceeded with everything normally and even got a positive gender ID on twin B, we're having boys! I saw that they we're boys even before she said it and DH was over the moon. Twin B was sitting kind of high with a higher heart rate then his brother but she didn't act like anything. I knew something wasn't right by the way she kept saying "The doctor is going to go over all of this with you." DH and I sat in the waiting room and text his parents and mine to tell them that we needed to start buying stuff for little boys. Finally, after what seemed like forever, we got called back again for the doctors visit now. She walks in the room smiling and asking me how I'm feeling. Once small talk was done she said those words that no woman or her husband ever wants to hear "I wishI had better news..." It appears that we are showing signs of Twin-to-Twin Transfusion. My sweet Twin A has close to no amniotic fluid in his sac at all and is measuring a week behind his brother, his bladder hasn't developed and his kicking we saw in the ultrasound was because he has no room. Twin B has a heart rate because he is getting all of the blood and could eventually have a heart attack due to this, he has a lot of amniotic fluid. She then proceeded to tell us they have a 30% survival rate because it was caught so early. She consulted with the MFM doctor around our town and he doesn't want our case. He said it's too severe and is sending us to Tampa. Monday they will call with the referral to the doctor in Tampa and we will go see all of our options.
I'm sorry if this is completely all over the place but it's basically my brain right now. I know that there is still hope with this doctor and they have at least 3 options to try but the doctor kept repeating the 30% survival and that the odds are low. My heart has never felt so broken and I've never felt so powerless in my entire life. I jsut need prayers and positive thoughts that we get into this doctor by Tuesday and that this doctor doesn't have a morbid prognosis for my babies.
I've been struggling with posting this and not posting it but since right now I need prayers, I've decided to post.
Little back story before anything, I'm currently 16 weeks pregnant with identical twins. They both had their own separate amniotic sacs but share the placenta.
Anyway, Friday we had our big ultrasound appointment and a doctors appointment to check on them and do all of the necessary measuring. Everything was going normal as far as I was concerned, 2 heartbeats and everything. Then the Ultrasound Tech said "I'm having trouble finding a membrane." We didn't have this issue at all 8 weeks ago. She then proceeded with everything normally and even got a positive gender ID on twin B, we're having boys! I saw that they we're boys even before she said it and DH was over the moon. Twin B was sitting kind of high with a higher heart rate then his brother but she didn't act like anything. I knew something wasn't right by the way she kept saying "The doctor is going to go over all of this with you." DH and I sat in the waiting room and text his parents and mine to tell them that we needed to start buying stuff for little boys. Finally, after what seemed like forever, we got called back again for the doctors visit now. She walks in the room smiling and asking me how I'm feeling. Once small talk was done she said those words that no woman or her husband ever wants to hear "I wishI had better news..." It appears that we are showing signs of Twin-to-Twin Transfusion. My sweet Twin A has close to no amniotic fluid in his sac at all and is measuring a week behind his brother, his bladder hasn't developed and his kicking we saw in the ultrasound was because he has no room. Twin B has a heart rate because he is getting all of the blood and could eventually have a heart attack due to this, he has a lot of amniotic fluid. She then proceeded to tell us they have a 30% survival rate because it was caught so early. She consulted with the MFM doctor around our town and he doesn't want our case. He said it's too severe and is sending us to Tampa. Monday they will call with the referral to the doctor in Tampa and we will go see all of our options.
I'm sorry if this is completely all over the place but it's basically my brain right now. I know that there is still hope with this doctor and they have at least 3 options to try but the doctor kept repeating the 30% survival and that the odds are low. My heart has never felt so broken and I've never felt so powerless in my entire life. I jsut need prayers and positive thoughts that we get into this doctor by Tuesday and that this doctor doesn't have a morbid prognosis for my babies.
Re: Twin to Twin Transfusion Syndrome *TW*
My thoughts are with you, the boys and your family. I'm so sorry. We experienced TTT in the family, but was caught WAY too late. 30% is still enough for hope and doctors are absolutely amazing at the miracles they can accomplish. Hugs from across the country.
Me: 29, DH: 34
married to M since 6.13.09
T - 3.3.14
A - 2.24.17
EDD: 3/13/17
Married: 8/2005.
BFP: 6/22/2016 EDD: 3/4/2017.
SaveSaveBFP#1 1/21/14 ended in loss DNC 3/5/14
BFP#2 7/2014 Baby Girl born 4/15/15
BFP#3 2/10/2016 natural mc 2/27/2016
BFP#4 6/25/2016 Due 3/2/2017
baby #4 due March '17!
DH: 37
DD: 03/17/17
DS: 12/06/19