Low AMH Level

andreamm31

@Hopeful_mom girl, I swear, my life is always like this.   Nothing can just be easy.   But I know she will be 100% worth every tear, every sadness, and every drop of blood.  Let's just hope she is over giving me a heart attack,  until she is a teenager. Haha. 

@mbradfo2 yes, that's how I'm feeling.   I think it will resolve without lovenox on board and praying we have smooth sailing from here on out.  Im definetly celebrating this small victory and now mentally preparing for my next milestone at 8 weeks. just taking it one step at a time.   I've never had any success with all my IVF journey so this is huge!!!  Seeing so many of you ladies back after having your successes gives me hope and helps me see it is possible. 

tangerine32

Catching up on several days of updates:
@lucyb1954 so many congratulations to you!
@andreamm31 I'm glad things are looking good! The bleeding had to be so startling. I'm glad you're OK and that she's burrowed in there!
@Hopeful_mom I will be sending positive thoughts your way! Double, double!

I was supposed to start a second round of stims about 12 days ago but when I went for my suppression check, I had a huge leading follicle alongside six or seven little guys. We cancelled the cycle and triggered. (My RE said only the leading follicle would disappear and she hoped that the other follicles would stick around -- I didn't really understand how that would happen but I am hoping it works?) My period should come this weekend and we'll hope to give it another go.
I am putting a lot of hope into the 6-7 AFC, an improvement from the 4 AFC during my diagnostic testing!

hopefuljj

@andreamm31- !!!!!!!! What an update! So thrilled to read it!!!!!!!! I’m over here doing my cautiously thrilled for you dance:)

@hopeful_mom I know we already had a chat but I know so many at this point that have had success with a beta starting low but I know how scary it is.  Thinking of you and hoping with all I’ve got that I’ll be adding you to that list of success. 

@mbradfo2 on the edge of my seat for you!  So glad you have some distractions before test time!

@Imajin99 I’m sorry you weren’t able to get all the measurements but I’m happy your husband will get to go with you to the hospital scan!!!!  Very excited to hear about the sex!!!!!  I hope everything goes ok at the diabetes clinic, I’m sorry you have to deal with that.

On my phone so can’t do a spoiler box (unless I can, if so can come one tell me how???). @lucyb1954 you are doing so great!!!!!!!    I can remember the day I finally had success with a carrier.  Sierra was 6lbs so I tried all these wraps my sister dropped off, the ka’tan ended up working for me and I was over the MOON!  but then 2 days later she decided she hated it. Hahahaha!!!!!!!   So we kept trying and many weeks later we finally settled into it, but at that point I started using a regular carrier because she weighed more.     Ooof and as for the colic and gas, make sure your pediatrician is on the look out for milk protein allergy because that’s what we were dealing with but addressing it did solve the colic problem.  Very much hoping that’s not the case for you, but mentioning it since it seems to be common especially an issue with babies on formula.  Most babies seem to be crazy gassy as their digestive systems get sorted out but if you do see anything that looks like mucus or blood in the poop, make sure to tell your peed cuz it could be a MPA (milk protein allergy) which they usually outgrow by 1 year.

[Deleted User]

@hopefuljj *lurking* if you tap the third icon over from the left, it looks like a weird backwards P / paragraph sign.  There's a drop-down for spoiler.  So you can either highlight the text first, then choose spoiler from the drop-down.  Or choose spoiler and it will just make a grey box you can type in. ;)

c-town18

Hopeful_mom - Yup, my first beta was 33 or 34, can't remember which, at 9dp5dt (I don't include the transfer date when I count that just fyi).  I thought I was F-ed and spent the next two days obsessing over online posts about low betas.  Well lo and behold, it doubled and all is good here at 38 weeks.  

mbradfo2

@Hopeful_mom
hehe, I feel the same way reading @andreamm31 's updates! 

@hopefuljj
I think if the gentle formulas and drops don't help much, milk allergy is the next thing I would look at. Yeah, it sucks, you sometimes have to give Alimentum, Nutramigen or the equivalent (and they aren't cheap), but it can make such a huge difference. DH works from home today so he's going to watch DD for a bit and I'll go drop off the toppers and then pick up some wrapping paper and some extras for her big day. I need to do a deep clean of her room before she gets all of her new toys on Friday and I'm sorta dreading that. If it's nice today, I'll probably fill the water side of her new sand table and get her in her swimsuit for some splashing. 

Hopeful_mom

mbradfo2 I love day care at your house   It's nice you'll be able to celebrate, we didn't last year and i'm not sure even in a few months that I'll be ready to!  How are you feeling?

@c-town18 thanks for confirming the internet wasn't cooperating when I was going down the rabbit hole.  I love that we're the same number or a digit off, I know tomorrow will be telling so just trying to really stay as positive as I can be over here!!  I even stopped testing as I don't think that will help me as this point and just cause more anxiety!  I can't believe you're 38 weeks already!  How are you feeling?  I have to imagine this go around was tougher with a toddler.

@andreamm31 I always say on this board we could write a book and everyone would be a different chapter...I think you could cover the entire book

JamieH2000

@hopeful_mom- ugh!! Come on embryo!! Keep growing strong. Sending you so many good vibes ans love for a high number tomorrow. I’m sure you are counting the hours, I am counting for you!!

@andreamm31- spotting is always scary! I had the same experience- spotting before my 6 week. It was an SCH and turned out ok. For some reason, they are much more common with IVF. I wish they would do a 7 week scan for you for peace of mind!!

@mbradfo2- thinking of you as well. The tww is no fun but having a birthday party is a good distraction!!!

mbradfo2

@Hopeful_mom FX for today! Let's see some nice doubling!!

@jamieh2000
@andreamm31

Yeah, I know sooo many ladies who had SCH in their successful IVF pregnancies. I do wish you were getting another scan next week!

AFM
Started feeling some dull cramps this morning that seem to come and go a bit, boobs are definitely more sore and I feel unusually tired -- dozed a little in the super soft rocker while DD watched her Paw Patrol. The reclining/footrest rocker we got for DD is the most comfortable chair in the house -- we're redecorating our living room and DH is ordering a second one to go in there because I insisted lol. 

Hopeful_mom

@mbradfo2 sounds very promising!! 

Update in spoiler...

AFM: I can't tell you how anxious I have been till I got the call...ugh beta torture!  This lil one is in but taking its time, today's beta is 50.9, exactly a 50% increase....obviously not ideal in doubling but its doing something.  So i go back on Friday we're hopefully will be the boost we're all looking for!  Back to beta purgatory! 

[Deleted User]

Ah! @Hopeful_mom I'm sorry it was not more resounding, but you are pregnant!!! ❤️❤️❤️🙏🙏🙏 Sending all the love your way!

JamieH2000

@hopeful_mom- I’m so sorry for the beta limbo torture. It’s the worst

c-town18

Hopeful_mom - Ugh, sorry you're in beta limbo.  Hang in there girl.  Hoping for good news for you on Friday!  

andreamm31

@Hopeful_mom During my last beta debacle, I went through a bunch of boards and found soooo many stories of women who had low betas to start that didnt double appropriately initially, but then they did and they ended in live births.  50% increase is something!  Keep the faith girlie during this purgatory.  Praying so hard for you that baby is just taking her sweet time and still waking up from being frozen.  

@mbradfo2 those sound like some good signs to me!  Have you tried testing yet? Im ok with waiting on the testing.  luckily the bleeding is now mostly brown, old stuff....so I feel wayyyyyy better about that.   you and @Hopeful_mom  are too funny....I didnt realize my updates were that exciting hahaha. Im ready to be the boring person on here!

@hopefuljj thanks girlie!  I love how you just get it and know that a cautiously thrilled for me dance is the most appropriate for these super scary early times.  Some of my coworkers now know Im early preggo and if they start getting too excited, Im like.....whoa!  We are cautiously optimistic but we got a long way to go!   We are celebrating appt to appt. hahaha

@JamieH2000 how long did your SCH keep bugging you for?? I feel like its starting to clot off as Im mostly just getting old stuff when I wipe....thank god!  Plus im literally doing nothing!  Netflix and naps on my days off.  Lazy doesn't even describe my days lately.  But im soaking it up.  Been thinking about you a lot.  Hoping you are getting close.

@tangerine32 ughhh Im sorry girl. Why cant our bodies just cooperate???  Hopefully this next time will be better and give your body time to recruit a few more follies.  Thats already amazing your AFC went up to 6 or 7 from 4.  I had definetly read about a few girls with low AFC that had better numbers on subsequent retrievals so maybe this little hiccup happened for a reason?  I was devastated with my lead follicle cycle getting canceled, but I think mostly because I was pissed I wasted so much money on meds.  Losing money just kills me.  Sounds like yours was before you even started, so hopefully it didnt waste any expensive meds!

@c-town18  home stretch lady!!  So dang excited for you!  

@ladyp0tter update

She had her 2nd NIPT done because the first one was inconclusive and this one came back the same way.  She is beyond bummed.  They are having her see a geneticist.  They think because she was on lovenox and with IVF pregnancies, sometimes it affects results.  I wasn't aware that PGS isn't always perfectly accurate and the NIPT dives a bit deeper (as she says).  The doctor thinks on her scan that its a girl, but she was hoping for confirmation before her anatomy scan.  She had put both a boy and girl in.  She will be 17 weeks this weekend.  I told her you girls were all rooting for her and she appreciated it!  I personally think it will be really really cute for us to have half sisters the same age.  And our girls will only be 10 weeks apart.  

Hopeful_mom

no good news below

AFM: I'm out literally went up one point to 52.  Its like I took the test and the baby hit the road right after.  I'm so frustrated!  Not sure what's worse getting the negative or going through this torture.  The fact that it was PGS and implanted but stopped is just killing me!  Dr said we can do an ERA and endosee.  Endosee is new to me.  Honestly I don't think they're going to show anything. 

andreamm31

@Hopeful_mom. I'm so sorry girl.  I know how this feels,  my last transfer was the same way. I just don't understand why these healthy embryos start implanting then stop?? And why don't these doctors have answers??? I've been thinking about you all day and praying for you.  Have you done an ERA before?? Mine showed I needed an extra 24 hours of progesterone, so it may show something?  I'm not sure what that other test is though.  Seems like your timing is mostly right because it did start implanting.... maybe it just needs an extra something to continue implanting, like I needed the Prednisone for it to be successful?? Ughhhh, im just so sorry.   Sending you hugs girl.  Go drink a big ol glass of wine. 

Imajin99

@Hopeful_mom So sorry to hear about that, was really hoping this was going to stick for you.
AFM: not very good and need advice

Went back today for the detailed ultrasound and they spent 2 hours and long story short they told me my baby girl (found out the gender) is missing part of her right leg from the knee downwards. I was not expecting this news at all I know they did no see things in the last one but I had a scan at 15+6 weeks and 3 at the OBGYN.  In fact my appointment at the OBGYN on Wednesday she comments on here are her two legs and feet.  We spoke with her this afternoon and she indicated she probably didn't examine it that closely and since this scan was at the hospital and the tech brought in a Dr that tried searching she thinks this is the case.  Also since I had 2 negative NIPT they want me to meet with genetic counsellor and do an amino since this could be sign of something else.  Wishful thinking...have you ever seen them make a mistake?  If there is another chromosomal issue what are my options at 20 weeks   my heart is broken.

c-town18

Hopeful_mom - I'm so sorry.  I have no answers for why this happens but I'm thinking of you.  

Imajin99 - I don't know the likelihood that the scan could be wrong; are you thinking of getting a second opinion?  Remind me of what chromosomal testing you have done so far.  Any idea what your doctor thinks an amnio might show? I'm sorry you're going through this and I support you no matter what you decide. You may want to google Aimee Mullins though and check out some of her Ted Talks, she's amazing and I'm obsessed with her.   

andreamm31

@lmajin99 I would for sure ask for a second opinion and have another scan.   Maybe she's bent in a way that it's obscured? I wouldn't proceed with an amnio until you have a second scan to confirm. Im with you on the wishful thinking.   I'm so sorry you are going through this.   My heart just sank reading your post.  Praying it's just a mistake, but if it is not,  then we are all here to support you.  I just can't even imagine after everything you have been through.   Praying there are no other chromosomal abnormalities. Sending you so much love and a virtual hug.   

JamieH2000

@hopeful_mom- I’ll say it again on here, sending you alllll the love. I wish I had good answers for peace after a failed cycle but I haven’t figured it out myself. Grieve, hug baby girl and try to find the strength to keep going on this horrible
rollercoaster once you are ready.

@lmajin99- girl, I’m sending so many virtual hugs. Did you have your AS done at a special location that does all AS? My hospital has all AS done at MFM and has them reviewed by the MFM. If something like this would be found, we would be referred to the local (amazing) Children’s Hospital Fetal concerns center to discuss next steps. Is there something like that in your area? I would want to deal with ONLY the best specialists who have seen these types of results before.
I am NO expert, but I would also want another scan, and would be hesitant on the amino. I’m not sure that all physical issues reallt come from a genetic issue. For example, lots of heart issues could never be found in genetic testing. I think unfortunately things can go wrong during development for physical things, but chromosomally are fine. That would be the ideal situation I think? Of course, I would be so upset about the leg, but if you could be reassured everything else is ok, hopefully that would bring you hope and peace? Sending you so much love 

[Deleted User]

@Hopeful_mom
<div class=" Spoiler">I'm so, so sorry. (((hugs))) I know there's nothing you can really say right now to make it better.  ❤️❤️❤️❤️❤️</div>
@Imajin99
<div class=" Spoiler">There is so much amazing support here on this thread, and I wanted to throw some more onto the heap.<img src="https://us.v-cdn.net/5020794/uploads/editor/le/3n4dxz4gr6ji.gif" alt=""></div><div class=" Spoiler">I would agree with Jamie that even if the scan may be accurate about baby girl's leg, I don't think that necessarily means there are larger chromosomal issues at stake.  Hang in there.  Try not to think the worst, although I'm sure that's practically impossible.  Will be sending you love and hoping for some not so scary updates soon ... 💕💕💕💕💕</div>

Imajin99

@BusinessWife @jamieh2000 @andreamm31 @c-town18

Thank-you for your words and comments. I am still trying to digest everything as it is the weekend and cannot do anything more. I was referred to the Fetal Genetics clinic but did not get a call yesterday.  Hoping that I can go in as soon as possible and ask for a 2nd opinion/scan.  I still cannot get over that after 3 scans at fertility clinic, 3 scans at OBGYN, 1 scan at the hospital when I went to the ER, 2 detailed scans at 16 weeks and 20 weeks that not one person commented on this potential issue. However, I have moved away from wishful thinking and know that potential reality and the choices we may have to make very quickly.  My mind keeps going back to my recording from the OBGYN on Wednesday where she is like of look at the baby's fists, oh there is two legs, oh and two feet...

@c-town18

I had the quad screening but had missed the timeline for the NT scan so the genetic counsellor sent me for a scan at 15+6 and even though a lot of things were not seen on the report but it said no abnormalities issues detected. The reason things ran late as I had opted for the NIPT and had an inconclusive at 13 weeks; they did a repeat and that was inconclusive as well.

lucyb1954

@Imajin99 I know I emailed you, but just wanted to add on to the pile -- here for you whatever happens.

mbradfo2

@Imajin99

I can't even begin to imagine all of thoughts that must be going around in your head and how much anxiety you must have right now.   It's a possibility it was just obscured, obviously less likely if it was checked multiple times over the course of your scan. I think it's also likely that your OB was just saying "2 feet, 2 legs" somewhat off-handedly and not necessarily saying in a medical sense -- however, I find it surprising as well that none of this was noted in the previous scan at 15 weeks (and to some extent with the 1st trimester scans since with the ultrasound technology today, limb differences can be diagnosed fairly early but I'll allow that no one was likely looking for that in those scans). That being said, I think it's a positive that this appears to be an isolated issue and so I wouldn't jump to a genetic disorder at this point. Genetic disorders typically present as sets of defects so I would expect more than one to be seen during an in-depth scan, although you do have the history of the inconclusive NIPT which may raise the risk (although it is often associated with IVF treatment as well as GD, pre-E and other maternal complications rather than fetal issues). To me as an armchair diagnostician, my first thought goes to amniotic banding even though it's fairly rare -- little threads of the amnion separate or pull off the sac and wrap around parts of the fetus, causing growth restriction. Usually this affects digits, but a limb is totally possible. I would get further evaluation with a MFM and geneticist, and then decide if an amnio is what you want. Time is a concern at this point so I would hope that they can accomplish everything, including an amnio or fetal treatment if you want, fairly rapidly. Hopefully this is just a non-issue and you can move forward with some resolution in the next few weeks!

@andreamm31
Ugh, @ladyp0tteris not having an easy go of it. As I said to @Imajin99 ,  inconclusive NIPT is increasingly associated with potential maternal complications or IVF rather than fetal issues, perhaps because the cohort tends to be older than the typical OB population. It must be so frustrating to go through this. Sorta why I skipped the NIPT, honestly. It's still a little bit too new for me - it just became a thing in the past 10 years - and I prefer just relying on ultrasound and quad screens (although I skipped that too). Hope you are doing well enough and glad that it's been just older blood now!! Your next scan is a week from Monday, right?

@hopeful_mom

I'm so sorry you didn't get better results...this is always a loss. Hug your beautiful little girl and take the time you need to grieve.

AFM

I told @lucyb1954 but I got a positive HPT this AM and another this evening (honestly haven't had a chance to take pics of pee sticks lol I'll probably dig them out of the drawer later and obsess over progression - the line was there but somewhat faint this AM, and maybe a bit darker this evening. We've just been so busy between DD's birthday yesterday (she is still dragging around her birthday balloons and saying 'HAPPY BIRTHDAY!!' and asked for birthday cake at breakfast this morning) and then shopping this afternoon. I still haven't folded the laundry, sigh. And now I need to go get DD to clean up her room and get ready for bed. Feeling a little giddy/anxious/something over everything and not sure what to think, but as my RE likes to say, this is a good start. It's crazy to think that next year at this time I might have two little girls; already thinking about names which is silly (Elise is one of my top ones atm). But as we know, unfortunately, it's a long journey from BFP to baby...

I hope the tags worked in this; they were getting super wonky for me and I had to redo them a couple times!!!

[Deleted User]

@mbradfo2

<div class=" Spoiler">I had a good feeling for you when you mentioned your little bit of symptoms!!!!  LOL Congratulations!!! 🎉</div>

andreamm31

@mbradfo2 so pumped for you, cant wait for your beta Monday.  mine is the following Monday

Hopeful_mom

@Imajin99 How are you holding up?  Sending you so much love and hugs! My heart dropped reading your update!  I feel like by this time you're usually in the know of things like that.  You have already been given some wonderful advice, I'm hoping they made a mistake and she's just being difficult as she was with revealing the gender.  You definitely should get another opinion, and know we are here for you every step of the way.  I'm so sorry there's always a bump in the road!  Yay for pink!

Ladies thanks for all the extra love, appreciate it, definitely having a hard time with it, emotionally, physically, mentally, financially - its just so much, and I know you can all relate...unfortunately! 

@mbradfo2

awesome!  I hope those lines keep getting darker, like I said everything you said sounded very promising!  Excited for your beta!! And you're getting a positive pretty earlier on too, its great!!

Imajin99

@hopeful_mom & @mbradfo2 Thank you for the kind words its been a emotional weekend but we were able to speak with our families and discuss what was told to us.  We also have copies of the reports and have gone through them on our own for a few other issues that we would like to be discussed.  Hope we are able to see the team tomorrow or Tuesday, we plan on calling tomorrow morning.  So many emotions, fear, grief, anger, denial.

@mbradfo2 Happy to see your news, good luck with the beta

@lucyb1954 Thank you for reaching out, I appreciate it.

mbradfo2

Just got back from the bloodwork...they usually call by 1 pm EST. Unfortunately the labs are done through a local hospital so I can't cheese the system and call Quest to get the results earlier. They also ran progesterone to make sure it's good. The nurses there are so awesome...DH had to go into work early and they let me bring DD in since it was before any patient appointments and entertained her while I did the draw. 

Hopeful_mom

@mbradfo2 its almost 3pm...just sayin

mbradfo2

@Hopeful_mom
LOL I was resting! My boobs have been super sore since yesterday and it was hard to find a good position to sleep. And I was so anxious since I didn't take any more tests after Sat. I actually missed the nurse's phone call and she didn't leave anything in her message, just to call her back which always makes me nervous. 

AFM

Beta was 156!!!! It was 128  with my daughter at 9dp6dpt and that was a twin pregnancy initially     My progesterone was 58 which seems really HIGH!!!! I get my second one drawn Wednesday so we'll see how this goes. I'm trying to temper my expectations since 2 of my 3 gestations so far resulted in miscarriage (counting the vanishing twin as one) but I keep thinking that this is a tested embie so that has to be good, right? 

mbradfo2

I don't know how I ended up with that huge blank space in my post...

Imajin99

@mbradfo2 Great news!! Congrats. Wishing you a nice good doubling on Wednesday.

[Deleted User]

Congratulations! @mbradfo2. Hope you have your sticky bean!!!

andreamm31

@mbradfo2. Awesome girl!!  So happy for you.  Praying for doubling for you!  

JamieH2000

@mbradfo2-  omg amazing!! Great beta!! Keep growing baby!!

@lmajin99- how are you doing? Were you able to get anymore info today? Been thinking of you!!

Hopeful_mom

@mbradfo2 ahhhh great beta congrats!  All symptoms pointed to such Here's to a great second!  And being PGS you would like it to give you some sense of reassurance yes!  I'm laughing that I was holding my phone the entire time waiting for the phone except when i put it down to go to the bathroom...go figure, they have perfect timing always!

@Imajin99 - thinking of you, how are you doing?

lucyb1954

@mbradfo2 yayyyyy!!!! Sending good thoughts for a good doubling on Wednesday 

@Imajin99 ❤️❤️❤️

Imajin99

Thanks everyone...

I have an appointment scheduled on Wednesday for the full day.  Repeat ultrasound for confirmation & then meeting with the fetal diagnostic team.  I was able to get a copy of the report and I have some other concerns as well on the measurement of the extremities which most on both left and right are showing less than 10%  in addition they indicated one part of the right arm looks normal in density and viewing however the measurement is below the 1%.  Will get more information on this as it was not  brought up that day but hopefully they will be able to see more at the ultrasound. I spoke with a genetics counsellor today that is part of the team who also had been in touch when my NIPT had failed and asked me to do the Quad which showed low risk.  She was really understanding and helpful and will see what happens now on Wednesday.

mbradfo2

@Imajin99

Oof. Hopefully you get some answers or at least some more clarity tomorrow. I'm so sorry you're having to go through this