Low AMH Level - Page 111 — The Bump
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Low AMH Level

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Re: Low AMH Level

  • emmasemmemmasemm
    1000 Comments 500 Love Its Second Anniversary First Answer
    member
    @bakerstreetboys did you start your estrogen patches?

    @hopefuljj how did you go with the saline sono?

    @makana11 @lucyb82
    So AMH doesn’t really change much normally short term. Maybe either your vitamin D was or is low? It does affect results. And a swing of + or - 0.3 or so basically can be lab variation and nothing on its own to notice.
    You should also always only look at AMH in conjunction with day 3 FSH, E2 and AFC.
    Also here we are “team do the treatment that is right for you”, it’s not only a place for people using own eggs.

    AFM well in the spirit of the roadblocks that everyone seems to have to go through we have a new one...
    ERA went smoothly but Hysteroscopy took more than an hour.
    There are two polyps but he had to stop trying to remove one as it bled too much and so he left the other one and i will need it doing under full anesthesia and without being on clexane... 
    Our biggest problem however is a fibroid. After the Hysteroscopy they also spent another hour doing 3D ultrasounds. Between the Hysteroscopy and the 3D scans they cannot be sure if it is actually invading the uterine cavity or if it is just pushing on the wall of the uterus and making it misshapen. 
    So now I have to try to find a specialist surgeon to do some more testing (probably more scans and an MRI) and then decide what to do. He’s concerned it might not only negatively impact implantation but also make a miscarriage more likely or increase risk of early delivery or stillbirth... 
    Trying to get in the next 2 weeks to see a surgeon first time but naturally not only feeling very sore after yesterday but also really fed up at yet another delay and complication.
    DH even asked me last night about where in the world would we need to move to in order to use a surrogate and how much would it cost... (it’s not legal here)
    I mean that’s the reason we did the Hysteroscopy to double check so we don’t waste our hard fought for embryos... but just this once it would have been great if it had been a waste of money!!! 

    Me 40 DH 42
    Married 12/2016
    TTC #1 since 04/2015
    AMA, DOR (AMH 0.65, AFC 2-4) and autoimmune issues (RA, APS, LA+), low TSH, adenomyosis
    Sep17 IVF1 - 1ER, 1F, 1ET, BFN
    Nov17 IVF2 - 1ER, 0F
    Jan18 IVF3 - 3ER, 1F, 1ET, BFN
    Feb18 - second opinion and additional testing
    Apr18 IVF4 - cancelled (E2 too high)
    May/Jun18 IVF4 - 4ER, 0M, 1F, 1 frozen day 3 (not best quality)
    Jun/Jul18 IVF5 - 5 ER, 3M, 2F, 2 frozen day 3 (not best quality)
    Jul/Aug18 IVF6 - 4ER, 3M, 2F, 2 frozen day 3 (good quality)
    Aug/Sep18 IVF7 - cancelled (cyst)
    Sep/Oct18 IVF7 - 3ER, 3M, 2F, 2 frozen Day 3 (excellent quality)
    Oct18 IVF8 - Cancelled (cyst and too low TSH)
    Oct18-Jan19 bringing TSH under control
    Feb19 ERA and hysteroscopy
    Mar19 Investigation for fibroid and adenomyosis
    Apr19 adenomyosis confirmed, polyps removed
    Next - FET planned for Jun19
    Sep17 - Pergoveris 10-17 Sep, Orgalutran 15-18 Sep, Ovitrelle 18 Sep, ER 20 Sep for 2 follies, 1 mature egg, fertilized, ET 1x 2d 4-cell embryo 22/09, 05/10 BFN
    Nov17 IVF2 - Pergoveris 2-14 Nov, Orgalutran 5-14 Nov, Ovitrelle 15 Nov, ER 17 Nov for 3 follies, 1 mature egg, did not fertilize
    Jan18 IVF3 - Pergoveris 30 Dec - 8 Jan, Orgalutran 5-8 Jan, Ovitrelle 9 Jan, ER 11 Jan 3 eggs, 2 mature, 1 fertilized, ET 1x 4d 12-cell embryo 15/01, 24/01 BFN
    May/Jun18 IVF4 - Rekovelle 25-29 May, Menogon 30May - 2Jun, Zomacton 25 27 29 31 May and 2Jun, Cetrotide 30May - 3Jun, Gonasi 3Jun, ER 5Jun 4 eggs, none mature, two matured overnight, 1 fertilized with ICSI, Frozen day 3 but not good quality
    Jun/Jul18 IVF5 - Rekovelle 21-24 June, Menogon 25Jun-3Jul, Puregon 4-5Jul, Zomacton 21 23 25 27 29 Jun, Cetrotide 25Jun-5Jul, Gonasi 6Jul, ER 8Jul 5 eggs, 3 mature, 2 fertilized with ICSI, 2 frozen day 3 but not good quality
    Jul/Aug18 IVF6 - Rekovelle 26-29 Jul, Menogon 30Jul-7Aug, Buserelin 26Jul-7Aug, Zomacton 26 28 30 Jul 1 3 Aug, Gonasi 7Aug, ER 9Aug 4 eggs, 3 mature, 2 fertilized (normal IVF), 2 frozen day 3 good quality
    Sep/Oct18 IVF7 - Menogon 19-30Sep, Buserelin 19-30Sep, Zomacton 19 21 23 25 27 Sep, Ovitrelle 1 Oct, ER 3 eggs, 3 mature, 2 fertilized with ICSI, 2 frozen day 3 excellent quality 

    Fav Quote: The greatest thing you'll ever learn is just to love and be loved in return

    dreamscapes_
  • I’m supposing that donor eggs aren’t legal if surrogates aren’t— I’m sorry. Donor eggs will be on the table of options for me depending on how this process goes. Good news for me is that I ovulated last month and had a good uterine lining and my FSH was way down. New doctor laid out a suite of options for me including Clomid and IUIs. I was so glad to not be written off again. I think she said my vitamin d levels were normal but I’ll look again at the test results. I’m sorry @emmasemm that you have to go through all this surgery stuff. I’m having trouble managing my anxious brain and I’m sure that it gets exponentially harder with setbacks like that. 
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  • Oh @emmasemm!!!! I am so so sorry!!! I can not believe there is another setback/time delay.  You have been so patient for so very long!  I could honestly scream on your behalf.  I am just so sorry.   Sidebar... Using a surrogate is also illegal in NY but people go to Jersey (but donor egg is absolutely Legal).  You can use a known surrogate, but you can’t pay someone to do it, because New York declares the one who grew the baby to be the biological mother.  The genetic mother is of course whoever produced the egg though.  But that is going to change soon, because make same sex couples! They need the option for paid surrogate. Anyway, I digress, I sure hope you get in with a specialist and your uterus can be sorted out ASAP.  How are you feeling?  Still achy from the hysto??  I know this isn’t super helpful, but my sister got pregnant right after her full anesthesia hysto to remove a fibroid! Like literally the next month and that is how my beautiful niece came to be.  
    Me: Hashimoto Autoimune Disease
    Homozygous MTHFR Cr677
    DOR - AMH  .27 High FSH (don't even know how high)
    2 iui's to start - BFN 
    IVF 1 -3 made it do day 5!    2 5AA 1 6BB  PGS results =  all abnormal :(
    IVF 2 - stimmed for 19 days. insanity. Had 5 follicles that looked mature but only 2 contained mature eggs the others were empty.  Nothing made it to day 5
    IVF 3 - added in HGH - 4 mature follicles (had some empties again) 3 made it to day 5/6 for PGS (held for testing with next retrieval
    IVF 4 - Upped my dosage for the first time - Canceled 11 days into sims - looked like 1 follicle and we were afraid it was empty
    IVF 5 - Canceled -  looked like 1 follicle and we were afraid it was empty
    IVF 6 - 3 mature, 2 fertalized 1 made it to day 5 and sent for PGS

    Sent in IVF round 3 and 6 (4 embryos) for PGS testing and got 2 normal embryos!!!  1Boy and 1Girl. Took a little over a year to get those two embryos so demanded all sorts of test prior to attempting transfer. Did EFT, ERA and NK Cells testing.

    FET#1 - Intralipid drips, Prednisone, and did a depot lupron shot before starting the FET protocol
    Chemical pregnancy
    FET#2 - PGS normal boy - BFN
    Natural pregnancy - cycle following the FET2????   Miscarriage at 8 weeks.  viability scan had shown an enlarged yolk sac so I had been warned that it was likely not chromosonally normal :(
    emmasemmHopeful_mom
  • @lucyb1954 That’s great that you have a doctor who is willing to offer you different options. 
    @emmasemm Noooo!  I can’t believe you’ve run into another roadblock!  I hope you get in to see a surgeon quickly and that you’re feeling less sore. 

    AFM, estrogen patches start tomorrow and injections will start on day 2. My RE added in another medication this time; a pill that I can’t remember the name of, but is essentially a low dose of steroids. 


    emmasemmImajin99
  • I didn’t realize surrogacy and donor egg laws changed state to state! I’m new at this. @bakerstreetboys what do the steroids help with?
    Hopeful_mom
  • @Imajin99 How are you doing?  I've been thinking about you (in a non-creepy way).
    @lucyb1954 the steroids are a hail Mary, can't hurt so let's try them approach.


  • @bakerstreetboys prednisone? Glad to see you getting started :)
    Me: Hashimoto Autoimune Disease
    Homozygous MTHFR Cr677
    DOR - AMH  .27 High FSH (don't even know how high)
    2 iui's to start - BFN 
    IVF 1 -3 made it do day 5!    2 5AA 1 6BB  PGS results =  all abnormal :(
    IVF 2 - stimmed for 19 days. insanity. Had 5 follicles that looked mature but only 2 contained mature eggs the others were empty.  Nothing made it to day 5
    IVF 3 - added in HGH - 4 mature follicles (had some empties again) 3 made it to day 5/6 for PGS (held for testing with next retrieval
    IVF 4 - Upped my dosage for the first time - Canceled 11 days into sims - looked like 1 follicle and we were afraid it was empty
    IVF 5 - Canceled -  looked like 1 follicle and we were afraid it was empty
    IVF 6 - 3 mature, 2 fertalized 1 made it to day 5 and sent for PGS

    Sent in IVF round 3 and 6 (4 embryos) for PGS testing and got 2 normal embryos!!!  1Boy and 1Girl. Took a little over a year to get those two embryos so demanded all sorts of test prior to attempting transfer. Did EFT, ERA and NK Cells testing.

    FET#1 - Intralipid drips, Prednisone, and did a depot lupron shot before starting the FET protocol
    Chemical pregnancy
    FET#2 - PGS normal boy - BFN
    Natural pregnancy - cycle following the FET2????   Miscarriage at 8 weeks.  viability scan had shown an enlarged yolk sac so I had been warned that it was likely not chromosonally normal :(
  • edited March 3
    @hopefuljj Haha, I would have remembered that one because my dog was on it!  The one they prescribed me is called Decadron. Although maybe it’s a Prednisone derivative....

    ETA: saved before I finished writing... @hopefuljj How are you doing?


  • How do you all deal with the emotional side of this? I am sometimes so despondent and scared and sometimes hopeful and most of the time kind of obsessive. It’s all so much to take in. 
  • makana11makana11
    10 Comments Name Dropper Photogenic
    member
    For me, I pray. I re-read Hannah’s story. Whenever doubts creep up, I look up nursery decor on Pinterest. I try to imagine it happening, so the Universe will deliver it. Ask. Believe. Receive. That’s how I cope. I hope you find some peace soon. 😘
  • What is Hannah’s story @makana11
  • makana11makana11
    10 Comments Name Dropper Photogenic
    member
    @lucyb1954 My Hannah reference is from the Bible. She was barren, but prayed and prayed for a son. She never gave up and finally, she had one (and more!).  It’s the source of the quote you may often see... “For this child I prayed”. It’s at the beginning of Samuel. Reading her story encourages me. 
  • @lucyb1954 It's honestly really hard for me. Possible TW in the spoiler.

    Right now, I'm fifteen days late and have had several bfn's, but no symptoms of PMS, so I have no idea what's going on. I haven't been late in over a decade. I work in a call center for a retail company that deals with a lot of pregnant women buying things for their babies, and it's so hard when some of them go on and on about a tiny ding on a piece of furniture that was delivered and I'm sitting there thinking "At least you have a baby on the way and are able to be buying this stuff, I'd love to be worried about things not matching or a tiny scratch". Or the grandparents who call in and gush about how it's the first grandbaby. I have a lot of envy over the symbol fact that these people were able to procreate successfully. I try and mitigate it by finding cute things on our site between calls and sending them to my pregnant work friends to look at and gush over. We have some super adorable stuff on our site. Sometimes it helps, sometimes it doesn't. Then there are the days where I load everything I'd have to buy into a cart and look at the total, lol.


    Me: 35 | DH: 35
    Married: 9.17.16
    Diminished ovarian reserve
    Hopeful_mom
  • Omg I LOLed at your shopping cart strategy! I’m totally off of social media at this point, I can’t really bear to see all my friends already onto baby 2 when I’m struggling for 1. My sister got pregnant on “accident “ twice (although I suspect it was on purpose on her part) and she’s incredibly irresponsible yet here I am, waiting til I had a good job and a partner... the irony kinda kills me sometimes. As for your other situation- did you ovulate this month?
    dreamscapes_
  • @lucyb1954 Yeah, I mainly just scroll past it when I see it on social media. My sister's first was a complete accident, and then 11 years later, she got pregnant with her second right after my wedding.

    As far as I could tell, I did (ovulation pain and EWCM). I don't use OPKs because they don't work for me, so they'd just be a waste of money. I also don't temp anymore, since the layout of our bedroom makes it difficult for me to reach my thermometer without leaning over my husband and waking him up. FF is predicting that my next cycle should start next Thursday, so I guess I'll have an answer one way or the other by the end of next week. I've already got a doctor's appointment set up for the 27th.
    Me: 35 | DH: 35
    Married: 9.17.16
    Diminished ovarian reserve
    emmasemm
  • Yeah those ovulation tests never work for me either and I’ve never understood why. My doc will confirm ovulation but the tests always give me negatives. 
    dreamscapes_
  • It’s a good thing I got a second opinion who ordered some genetic testing. My low AMH is due to the fact I carry Fragile X syndrome. Anyone else here have experience with this? The bad news just keeps on coming for me 😢
  • emmasemmemmasemm
    1000 Comments 500 Love Its Second Anniversary First Answer
    member
    @lucyb1954 oh I’m sorry to hear you have that diagnosis, but it’s also good you found out now. 
    I know another person on the bump, though who wasn’t on this thread, who has found success via IVF with PGD
    @adirat ;
    You could also try to shoot her a pm 

    Me 40 DH 42
    Married 12/2016
    TTC #1 since 04/2015
    AMA, DOR (AMH 0.65, AFC 2-4) and autoimmune issues (RA, APS, LA+), low TSH, adenomyosis
    Sep17 IVF1 - 1ER, 1F, 1ET, BFN
    Nov17 IVF2 - 1ER, 0F
    Jan18 IVF3 - 3ER, 1F, 1ET, BFN
    Feb18 - second opinion and additional testing
    Apr18 IVF4 - cancelled (E2 too high)
    May/Jun18 IVF4 - 4ER, 0M, 1F, 1 frozen day 3 (not best quality)
    Jun/Jul18 IVF5 - 5 ER, 3M, 2F, 2 frozen day 3 (not best quality)
    Jul/Aug18 IVF6 - 4ER, 3M, 2F, 2 frozen day 3 (good quality)
    Aug/Sep18 IVF7 - cancelled (cyst)
    Sep/Oct18 IVF7 - 3ER, 3M, 2F, 2 frozen Day 3 (excellent quality)
    Oct18 IVF8 - Cancelled (cyst and too low TSH)
    Oct18-Jan19 bringing TSH under control
    Feb19 ERA and hysteroscopy
    Mar19 Investigation for fibroid and adenomyosis
    Apr19 adenomyosis confirmed, polyps removed
    Next - FET planned for Jun19
    Sep17 - Pergoveris 10-17 Sep, Orgalutran 15-18 Sep, Ovitrelle 18 Sep, ER 20 Sep for 2 follies, 1 mature egg, fertilized, ET 1x 2d 4-cell embryo 22/09, 05/10 BFN
    Nov17 IVF2 - Pergoveris 2-14 Nov, Orgalutran 5-14 Nov, Ovitrelle 15 Nov, ER 17 Nov for 3 follies, 1 mature egg, did not fertilize
    Jan18 IVF3 - Pergoveris 30 Dec - 8 Jan, Orgalutran 5-8 Jan, Ovitrelle 9 Jan, ER 11 Jan 3 eggs, 2 mature, 1 fertilized, ET 1x 4d 12-cell embryo 15/01, 24/01 BFN
    May/Jun18 IVF4 - Rekovelle 25-29 May, Menogon 30May - 2Jun, Zomacton 25 27 29 31 May and 2Jun, Cetrotide 30May - 3Jun, Gonasi 3Jun, ER 5Jun 4 eggs, none mature, two matured overnight, 1 fertilized with ICSI, Frozen day 3 but not good quality
    Jun/Jul18 IVF5 - Rekovelle 21-24 June, Menogon 25Jun-3Jul, Puregon 4-5Jul, Zomacton 21 23 25 27 29 Jun, Cetrotide 25Jun-5Jul, Gonasi 6Jul, ER 8Jul 5 eggs, 3 mature, 2 fertilized with ICSI, 2 frozen day 3 but not good quality
    Jul/Aug18 IVF6 - Rekovelle 26-29 Jul, Menogon 30Jul-7Aug, Buserelin 26Jul-7Aug, Zomacton 26 28 30 Jul 1 3 Aug, Gonasi 7Aug, ER 9Aug 4 eggs, 3 mature, 2 fertilized (normal IVF), 2 frozen day 3 good quality
    Sep/Oct18 IVF7 - Menogon 19-30Sep, Buserelin 19-30Sep, Zomacton 19 21 23 25 27 Sep, Ovitrelle 1 Oct, ER 3 eggs, 3 mature, 2 fertilized with ICSI, 2 frozen day 3 excellent quality 

    Fav Quote: The greatest thing you'll ever learn is just to love and be loved in return

  • @emmasemm thank you, you’re an amazing font of knowledge. Virtual hug! How are you? Did you get surgery scheduled?
    Hopeful_mom
  • Imajin99Imajin99
    100 Love Its 100 Comments Second Anniversary Name Dropper
    member
    ___Trigger Warning___ (pregnancy and loss mentioned)

    @bakerstreetboys Thank you for thinking of me, how is the stimming coming along? During my last cycle they introduced the prednisone for me as well.  Hope the protocol change will lead to some good results.

    Unfortunately, I miscarried the pregnancy before the 2nd scan at 8 weeks.  Just been dealing with the grief of this all but RE was so hopeful for next steps and next round. Will take me time to come to terms with this.

    Hope everyone else is doing well and wishing all of us strong ladies a very happy international women's day!

    ME:39 DOR DH:41 No issues Trying since March 2015

    IUI #1-4:  Menopur injectable  - BFNs

    2018 IVF #1-3 converted to IUI due to poor response & drop in E2 - BFN

    2019 IVF #4 converted to IUI due to poor response  BFP - M/C @ 8 weeks

    emmasemmdreamscapes_
  • @Imajin99 I'm so sorry that it ended that way for you.  It's so hard to deal with.  It's encouraging that your RE is hopeful though.  Take time and take care of yourself.
    Today is my day one, so I'll start stims again tomorrow.  I'm not feeling super hopeful; my AFC was only 5, but we're still willing to take a chance and try again.

    @emmasemm Have you scheduled with the surgeon yet?  I hope you're doing ok.
    @lucyb1954 I'm sorry that you got that diagnosis; it's so hard to get more bad news when you're already struggling.  I hope that you're working with a doctor who has some options for you.


    emmasemmImajin99
  • @lucyb1954 thanks - we see the specialist in a few weeks. And I benefitted so much from others sharing their knowledge. So it only feels right to do the same. My RE has offered me a job if I want to swap into a career as a Dr ;-)

    @imajin99 I’m so sorry - move to next steps whenever it feels right for you 

    @bakerstreetboys how are the stims going?

    @hopefuljj how are you? Did you decide on next steps now?

    AFM
    So the MRI today was interesting. They made me get up and empty my bladder again twice. With my IV in for the contrast... And I was total more than an hour to get all views they wanted. Longest one I’ve had. Luckily I’m not claustrophobic!!! 
    Results were interesting - yes I have a fibroid and it’s a pretty big one. As big as a normal bladder. And yes it’s on the “fundus” of my uterus. But no view showed it causing a misshapen uterus... and not invading the lining... however there were also a few unclear views. And he said it’s so big if I’m standing (or half sitting in the ultrasound chair) it might give a different view. He doesn’t think it should impact falling PG (as if it’s so easy to “fall”) but said would need closely watching in the last months of any pregnancy and I might need to deliver early. Plus it explains why I need to pee a lot as it is squashing my bladder to approx half normal size. He recommended to leave it until we’ve finished with family building. But said see what the expert at the fibroid centre says in a few weeks.
    On a side note I now realized I have more than 1000 images of my uterus and ovaries from 2D and 3D ultrasounds, plus Hysteroscopy photos and now MRI pictures too. Thinking I should open them as an art exhibition ;-)

    Thinking of my old buddies @jamieh2000 and @hopeful_mom too 

    Me 40 DH 42
    Married 12/2016
    TTC #1 since 04/2015
    AMA, DOR (AMH 0.65, AFC 2-4) and autoimmune issues (RA, APS, LA+), low TSH, adenomyosis
    Sep17 IVF1 - 1ER, 1F, 1ET, BFN
    Nov17 IVF2 - 1ER, 0F
    Jan18 IVF3 - 3ER, 1F, 1ET, BFN
    Feb18 - second opinion and additional testing
    Apr18 IVF4 - cancelled (E2 too high)
    May/Jun18 IVF4 - 4ER, 0M, 1F, 1 frozen day 3 (not best quality)
    Jun/Jul18 IVF5 - 5 ER, 3M, 2F, 2 frozen day 3 (not best quality)
    Jul/Aug18 IVF6 - 4ER, 3M, 2F, 2 frozen day 3 (good quality)
    Aug/Sep18 IVF7 - cancelled (cyst)
    Sep/Oct18 IVF7 - 3ER, 3M, 2F, 2 frozen Day 3 (excellent quality)
    Oct18 IVF8 - Cancelled (cyst and too low TSH)
    Oct18-Jan19 bringing TSH under control
    Feb19 ERA and hysteroscopy
    Mar19 Investigation for fibroid and adenomyosis
    Apr19 adenomyosis confirmed, polyps removed
    Next - FET planned for Jun19
    Sep17 - Pergoveris 10-17 Sep, Orgalutran 15-18 Sep, Ovitrelle 18 Sep, ER 20 Sep for 2 follies, 1 mature egg, fertilized, ET 1x 2d 4-cell embryo 22/09, 05/10 BFN
    Nov17 IVF2 - Pergoveris 2-14 Nov, Orgalutran 5-14 Nov, Ovitrelle 15 Nov, ER 17 Nov for 3 follies, 1 mature egg, did not fertilize
    Jan18 IVF3 - Pergoveris 30 Dec - 8 Jan, Orgalutran 5-8 Jan, Ovitrelle 9 Jan, ER 11 Jan 3 eggs, 2 mature, 1 fertilized, ET 1x 4d 12-cell embryo 15/01, 24/01 BFN
    May/Jun18 IVF4 - Rekovelle 25-29 May, Menogon 30May - 2Jun, Zomacton 25 27 29 31 May and 2Jun, Cetrotide 30May - 3Jun, Gonasi 3Jun, ER 5Jun 4 eggs, none mature, two matured overnight, 1 fertilized with ICSI, Frozen day 3 but not good quality
    Jun/Jul18 IVF5 - Rekovelle 21-24 June, Menogon 25Jun-3Jul, Puregon 4-5Jul, Zomacton 21 23 25 27 29 Jun, Cetrotide 25Jun-5Jul, Gonasi 6Jul, ER 8Jul 5 eggs, 3 mature, 2 fertilized with ICSI, 2 frozen day 3 but not good quality
    Jul/Aug18 IVF6 - Rekovelle 26-29 Jul, Menogon 30Jul-7Aug, Buserelin 26Jul-7Aug, Zomacton 26 28 30 Jul 1 3 Aug, Gonasi 7Aug, ER 9Aug 4 eggs, 3 mature, 2 fertilized (normal IVF), 2 frozen day 3 good quality
    Sep/Oct18 IVF7 - Menogon 19-30Sep, Buserelin 19-30Sep, Zomacton 19 21 23 25 27 Sep, Ovitrelle 1 Oct, ER 3 eggs, 3 mature, 2 fertilized with ICSI, 2 frozen day 3 excellent quality 

    Fav Quote: The greatest thing you'll ever learn is just to love and be loved in return

    Imajin99Hopeful_mom
  • @emmasemm Are you going to take the art exhibit international? ;)  I imagine it's very annoying to have the fibroid pushing on your bladder all the time!  I hope the expert has good news for you and that it doesn't impact your transfer.

    Stims are going ok; I had forgotten about the instant headache from Gonal-F though!  I'll go for an u/s and blood work on day 5 to see what's going on.  I don't expect that I'll have many follicles, but who knows.  I just need to find that one golden egg!

    @hopefulljj How are you doing?  


  • Hi Ladies..apologies for jumping in randomly but found this thread and I had a question. Waiting on a call from my new RE to discuss but thought ya'll might have some insight for me?

    So my new clinic offers a "fertile guarantee" program that we were going to apply for. A nurse got back to me last week and said I actually don't qualify because the blood work they have from my previous RE/last year has my AMH level at a .71 and it needs to be over 1 for the program.

    That was literally the first time we heard this, so it prompted me to do some Google research (now I feel like an idiot) and we discovered that's really low for my age - I'm 31. We were extremely upset that this wasn't brought up to us last year before we started an entire IVF cycle! Just kind of shocking???

    However - on egg retrieval day they got 23 eggs, 19 fertilized, 5 made it to day-5 blasts. From what I'm gathering online, a .71 indicates DOR...but we got 23 eggs. Does that seem to not add up? Although we only got 5 embryos...so could this be an indicator of egg quality then? We're just really confused and obviously worried now about this number. Yes it was a year ago so I'm hoping it has changed with the Vitamin D, CoQ10, etc. that I have been taking and I'm obviously asking for repeat blood work before our upcoming retrieval. I apologize if this is answered somewhere in the thread, but I haven't looked...just wanting some feedback if anyone can provide? We're clueless right now waiting to talk to the doctor. 
  • Hi @ellemarie7 ;

    Sorry your previous doctor hadn’t given you a result so you had the full picture.

    however! DOR is not diagnosed just by AMH - it is the trifecta of high FSH, low AMH and low AFC. 
    I would hazard a guess that your vitamin d was low and thus artificially lowered your AMH when it was tested last year.
    i would suggest your new RE retests all 4 of the above, also when they do your fsh on day 3 test your estrogen too (as it can artificially alter your fsh).

    If you retrieved 23 eggs you are not the normal DOR diagnosis.
    Also getting five embryos is a fab result. There is no “only” about that.

    Hope after re testing they will accept you. 

    Me 40 DH 42
    Married 12/2016
    TTC #1 since 04/2015
    AMA, DOR (AMH 0.65, AFC 2-4) and autoimmune issues (RA, APS, LA+), low TSH, adenomyosis
    Sep17 IVF1 - 1ER, 1F, 1ET, BFN
    Nov17 IVF2 - 1ER, 0F
    Jan18 IVF3 - 3ER, 1F, 1ET, BFN
    Feb18 - second opinion and additional testing
    Apr18 IVF4 - cancelled (E2 too high)
    May/Jun18 IVF4 - 4ER, 0M, 1F, 1 frozen day 3 (not best quality)
    Jun/Jul18 IVF5 - 5 ER, 3M, 2F, 2 frozen day 3 (not best quality)
    Jul/Aug18 IVF6 - 4ER, 3M, 2F, 2 frozen day 3 (good quality)
    Aug/Sep18 IVF7 - cancelled (cyst)
    Sep/Oct18 IVF7 - 3ER, 3M, 2F, 2 frozen Day 3 (excellent quality)
    Oct18 IVF8 - Cancelled (cyst and too low TSH)
    Oct18-Jan19 bringing TSH under control
    Feb19 ERA and hysteroscopy
    Mar19 Investigation for fibroid and adenomyosis
    Apr19 adenomyosis confirmed, polyps removed
    Next - FET planned for Jun19
    Sep17 - Pergoveris 10-17 Sep, Orgalutran 15-18 Sep, Ovitrelle 18 Sep, ER 20 Sep for 2 follies, 1 mature egg, fertilized, ET 1x 2d 4-cell embryo 22/09, 05/10 BFN
    Nov17 IVF2 - Pergoveris 2-14 Nov, Orgalutran 5-14 Nov, Ovitrelle 15 Nov, ER 17 Nov for 3 follies, 1 mature egg, did not fertilize
    Jan18 IVF3 - Pergoveris 30 Dec - 8 Jan, Orgalutran 5-8 Jan, Ovitrelle 9 Jan, ER 11 Jan 3 eggs, 2 mature, 1 fertilized, ET 1x 4d 12-cell embryo 15/01, 24/01 BFN
    May/Jun18 IVF4 - Rekovelle 25-29 May, Menogon 30May - 2Jun, Zomacton 25 27 29 31 May and 2Jun, Cetrotide 30May - 3Jun, Gonasi 3Jun, ER 5Jun 4 eggs, none mature, two matured overnight, 1 fertilized with ICSI, Frozen day 3 but not good quality
    Jun/Jul18 IVF5 - Rekovelle 21-24 June, Menogon 25Jun-3Jul, Puregon 4-5Jul, Zomacton 21 23 25 27 29 Jun, Cetrotide 25Jun-5Jul, Gonasi 6Jul, ER 8Jul 5 eggs, 3 mature, 2 fertilized with ICSI, 2 frozen day 3 but not good quality
    Jul/Aug18 IVF6 - Rekovelle 26-29 Jul, Menogon 30Jul-7Aug, Buserelin 26Jul-7Aug, Zomacton 26 28 30 Jul 1 3 Aug, Gonasi 7Aug, ER 9Aug 4 eggs, 3 mature, 2 fertilized (normal IVF), 2 frozen day 3 good quality
    Sep/Oct18 IVF7 - Menogon 19-30Sep, Buserelin 19-30Sep, Zomacton 19 21 23 25 27 Sep, Ovitrelle 1 Oct, ER 3 eggs, 3 mature, 2 fertilized with ICSI, 2 frozen day 3 excellent quality 

    Fav Quote: The greatest thing you'll ever learn is just to love and be loved in return

    ellemarie7Hopeful_mom
  • @emmasemm so no surgery? Yay! 
  • ellemarie7ellemarie7
    25 Love Its 10 Comments Name Dropper Photogenic
    member
    edited March 12
    @emmasemm thank you so much for the reply. And you are right about the 5 embryos <3 

    Very interesting, and it makes me feel a bit better. I believe they had said those other levels were "normal," so it sounds like your guess could be what happened. I was not on Vitamin D at that time! I am going to relay your recommendation to my new RE when I go in for updated blood-work hopefully soon. 

    We had three transfers last year (2, then 1, then 2 embryos) with a chemical, BFN, and chemical result. Just trying to gather all the information I can to ensure we're doing all we can, before we jump back in! I appreciate your feedback :) 
  • @ellemarie7 if you’re not DOR and not in a treatment cycle, feel free to do a post in the newbie intro thread on the TTGP board and then join the IF thread. Do read the rules first though as it’s quite a big board so the structure is important :-) 

    https://forums.thebump.com/categories/getting-pregnant

    @lucyb1954 yes we are hoping the specialist and my RE both agree! 

    Me 40 DH 42
    Married 12/2016
    TTC #1 since 04/2015
    AMA, DOR (AMH 0.65, AFC 2-4) and autoimmune issues (RA, APS, LA+), low TSH, adenomyosis
    Sep17 IVF1 - 1ER, 1F, 1ET, BFN
    Nov17 IVF2 - 1ER, 0F
    Jan18 IVF3 - 3ER, 1F, 1ET, BFN
    Feb18 - second opinion and additional testing
    Apr18 IVF4 - cancelled (E2 too high)
    May/Jun18 IVF4 - 4ER, 0M, 1F, 1 frozen day 3 (not best quality)
    Jun/Jul18 IVF5 - 5 ER, 3M, 2F, 2 frozen day 3 (not best quality)
    Jul/Aug18 IVF6 - 4ER, 3M, 2F, 2 frozen day 3 (good quality)
    Aug/Sep18 IVF7 - cancelled (cyst)
    Sep/Oct18 IVF7 - 3ER, 3M, 2F, 2 frozen Day 3 (excellent quality)
    Oct18 IVF8 - Cancelled (cyst and too low TSH)
    Oct18-Jan19 bringing TSH under control
    Feb19 ERA and hysteroscopy
    Mar19 Investigation for fibroid and adenomyosis
    Apr19 adenomyosis confirmed, polyps removed
    Next - FET planned for Jun19
    Sep17 - Pergoveris 10-17 Sep, Orgalutran 15-18 Sep, Ovitrelle 18 Sep, ER 20 Sep for 2 follies, 1 mature egg, fertilized, ET 1x 2d 4-cell embryo 22/09, 05/10 BFN
    Nov17 IVF2 - Pergoveris 2-14 Nov, Orgalutran 5-14 Nov, Ovitrelle 15 Nov, ER 17 Nov for 3 follies, 1 mature egg, did not fertilize
    Jan18 IVF3 - Pergoveris 30 Dec - 8 Jan, Orgalutran 5-8 Jan, Ovitrelle 9 Jan, ER 11 Jan 3 eggs, 2 mature, 1 fertilized, ET 1x 4d 12-cell embryo 15/01, 24/01 BFN
    May/Jun18 IVF4 - Rekovelle 25-29 May, Menogon 30May - 2Jun, Zomacton 25 27 29 31 May and 2Jun, Cetrotide 30May - 3Jun, Gonasi 3Jun, ER 5Jun 4 eggs, none mature, two matured overnight, 1 fertilized with ICSI, Frozen day 3 but not good quality
    Jun/Jul18 IVF5 - Rekovelle 21-24 June, Menogon 25Jun-3Jul, Puregon 4-5Jul, Zomacton 21 23 25 27 29 Jun, Cetrotide 25Jun-5Jul, Gonasi 6Jul, ER 8Jul 5 eggs, 3 mature, 2 fertilized with ICSI, 2 frozen day 3 but not good quality
    Jul/Aug18 IVF6 - Rekovelle 26-29 Jul, Menogon 30Jul-7Aug, Buserelin 26Jul-7Aug, Zomacton 26 28 30 Jul 1 3 Aug, Gonasi 7Aug, ER 9Aug 4 eggs, 3 mature, 2 fertilized (normal IVF), 2 frozen day 3 good quality
    Sep/Oct18 IVF7 - Menogon 19-30Sep, Buserelin 19-30Sep, Zomacton 19 21 23 25 27 Sep, Ovitrelle 1 Oct, ER 3 eggs, 3 mature, 2 fertilized with ICSI, 2 frozen day 3 excellent quality 

    Fav Quote: The greatest thing you'll ever learn is just to love and be loved in return

    ellemarie7
  • @ellemarie7
    I also had a surprise low AMH going into our first IVF cycle -- it had dropped from a normalish 2.6 to 0.62. Since everything else was normal, my RE didn't think it was significant. We got 10 eggs, 9 mature and 2 blasts. I think you still have every chance for success but I understand how disappointing the number can be!  I was also told by the lovely ladies here that it can fluctuate a bit and my vitamin D levels (which are always low despite supplements) can impact it. You have some lovely blasts so I'm praying that one of those will become your THB :-)
    ~~ Our Story in Spoiler! TW loss/child~~
    Fall 2012 -- started TTC
    Summer 2015 - no BFP yet, labs normal, referred to RE
    Fall 2015 - Summer 2016 - Further testing all normal. 3 IUI's -- BFN. Recommended move to IVF. Planned cycle for fall 2016.
    September 2016 - Surprise natural BFP. MMC @ 8 weeks. RE expressed confidence that we just needed the 'right' embryo.
    Fall 2016 - Spring 2017 -- Break from TTC
    June 2017 - Started IVF; egg retrieval for freeze all cycle. 9 mature eggs retrieved, 5 fertilized. 2 4BB embies on ice.
    August 2017 - FET transfer both embies. BFP.  Twin pregnancy confirmed by ultrasound. EDD 4/28/18
    September 2017 - Twin B stopped developing; Twin A doing perfectly! Graduated from RE @ 10 weeks
    March 2018 - Baby Girl born via C/S due to pre-eclampsia -- strong and healthy!


  • @emmasemm @mbradfo2 thank you both!! I actually have a year of IVF under my belt - unfortunately our first cycle with those five embryos did not result in a THB. I'm currently on the March IVF and April FET boards and hopeful!

    @mbradfo2 I'm thinking that might be the case for me as well....

    I have a phone appointment with my RE on Monday to discuss, so we'll see - and I'm doing repeat blood-work before I start stimming this month. Thank you both again for your feedback and insight, I appreciate it - and wish you both the best on your journeys as well <3 
  • edited March 14
    Feeling pretty defeated; after four days of stims, my estrogen level was just over 200 this morning. On day five of my last cycle, it was over 1000 and I started Cetrocide. I go back tomorrow for another draw. I’m wondering if I should cancel the cycle. Blah. 

    ETA I’m already at max dose of stims 😕


    emmasemm
  • @emmasemm- glad you got the MRI done and I hope the specialist has a firm reco for you soon! I’m glad it sounds like you could move forward right away, but it also makes me nervous that it could cause a baby to be delivered early (how early?!). Having a premie hasn’t been easy and he wasn’t even super early. But I’m guessing surgery would delay you a while :(
    History in Spoiler

    Age: 30 (same with DH). Together since 2006, Married June 2013 and TTC since August 2015
    Diagnosis: Mild Endo, DOR (AMH of 1.5), Poor Quality Eggs/embryos, Displaced Window of Implantation (ERA Post Receptive)
    March-May 2016: 1 TI and 2 IUIs- BFN 
    June 2016- Laproscopy- found/removed mild endo and confirmed only 1 normal healthy ovary.
    August 2016- IVF #1 with Antagonist Protocol- Cancelled (2 lead follies), converted to IUI- BFN
    Oct-Nov 2016- IVF #2 with Estrogen Priming Micro Lupron Protocol, 2 eggs retrieved, day 3 transfer of 1- BFN
    January 2017- New RE, IVF#3 with Estrogen Priming Antagonist Protocol, 12 eggs, 8 mature, 6 fertilized, 2 day 5 early blasts transferred (none to freeze :(), BFN
    May 2017- Sept 2017- Starting Donor Egg process! Waiting for donor to be available... and then she is pregnant at baseline :(
    Oct 2017- Donor #2: 25R, 22M,18F, 12 blasts frozen! Fresh transfer cancelled due to thin lining with fluid :(
    Nov 2017- Hysterscopy to remove polyp
    Dec 2017- DE FET #1 on 12/8 on 2 perfect blasts- BFN and devastated
    Jan-Mar 2018- ERA #1- Post receptive by 24 hours, ERA #2 RECEPTIVE with 4 days of Progesterone
    Apr 2018- DE FET cancelled for lining issues :(
    Jun 2018- DE FET #2 of two 1AA blasts- first BFP ever! Beta 10dp5dt- 378, Beta 14dp5dt- 2840, Beta 16dp5dt- 4035, beta 18dp5dt- 10916. Due on 2/20 with one baby after a vanishing twin
    Hopeful_mom
  • @bakerstreetboys sorry ur estrogen is low but it’s still early I wouldn’t cancel just yet.  You’re really just getting started, how many follicles do they see.  I’ve first done a full stemming cycle like 14/16 days before canceling. And some cycles didn’t progress really around day 9.  Hang in there.

    @emmasemm I swear  you should totally be on payroll for all this knowledge you have lady! A lil concerning on how large this fibroid sounds.  Is it too tough to have removed.  I have a very small one and it was fine during pregnancy thank gd BUT it also hasn’t grown in years and stayed in the same spot....not everyone sees it.  Now I have a friend that had a fibroid closer to the sac during her pregnancy and unfortunately for her the dang thing kept on growing with the baby and she ended up needing to have the baby early.  Her fibroid ended up being like the size of a grapefruit....they can feed of the blood and grow is my concern.  I pee all the time I don’t need any extra help from anything helping me go....sorry! Like @jaimeh2000 I’d be concerned about early delivery too.  Granted I don’t think your RE would want to gamble if he wasn’t certain either.  Glad things are moving well!  That’s also some photo album you’ve got there!! :) 
    History of TTC in spoiler box
    TTC since 2014
    Unexplained Infertility - but I am 40...Low AMH .30
    7 - IUI (50mg-150mg Clomid) Feb - August 2016 all BFN 
    IVF#1 August 2016 (Antagonist protocol 4/5 eggs) Cancelled cycle :( RE thought I would get at least 10.
    IVF#2 Sept 2016 (microdose luporn pro - disappearing follies, ONLY ONE, convert to IUI) BFN
    IVF#3 November 2016 (4 ER, 3 F,  3DT)-BFP  with TWINS // MC both at almost 10wks  :'( 
    IVF#4 March 2017 //EPP  (10 ER (1 wonky so 9 ER) 7F, 3B (5AB, (2)5BB) PGS tested- ALL abnormal  :'( 
    IVF#5 April 2017 // EPP (7 ER, 7F yes! 6B) 2/5 day 4/6 day - 2 PGS normal! yes!! :)
    IVF#6 May 2017 // Antagonist didn't have time for Estrogen Priming...(4 ER, 3 F, 3B) (5AB, (2) 5BB) 2 PGS normal, yes!! :)
    IVF#7 June 2017 // EPP praying this is it and then on to an FET!

  • @bakerstreetboys Hope tomorrow result shows an increase in estrogen. Have you had an ultrasound scan yet? Don’t give up hope. 

    ME:39 DOR DH:41 No issues Trying since March 2015

    IUI #1-4:  Menopur injectable  - BFNs

    2018 IVF #1-3 converted to IUI due to poor response & drop in E2 - BFN

    2019 IVF #4 converted to IUI due to poor response  BFP - M/C @ 8 weeks

  • edited March 15
    @Imajin99 and @Hopeful_mom Thanks for the encouraging words.  I had an u/s yesterday with the first blood draw, and they only saw one measurable follicle.  There are a few more little ones, but they're pretty tiny.  I did more blood work this morning, and go back tomorrow morning for another u/s.  
    How are you doing?

    ETA: only up to 396 today. Blood work again and u/s tomorrow 


    emmasemm
  • @bakerstreetboys I hope things start looking up for ya ❤️
    bakerstreetboys
  • @emassen at the very least you should get a really nice Shutterfly book made up honoring your uterus! My gosh, I wish you didn’t have to think about this fibroid at all but I’m glad it doesn’t seem to be causing and issue for transfer?? So am I following right, you need to wait for the fibroid center for a final day? Jeeeze Louise! Well I like to think that the whole “good things come to those who wait” saying is true but sometimes all the waiting just feels rediculous. @bakerstreetboys I’m sorry this cycle does not seem to be going very well:( I know how frustrating that can be:(
    Me: Hashimoto Autoimune Disease
    Homozygous MTHFR Cr677
    DOR - AMH  .27 High FSH (don't even know how high)
    2 iui's to start - BFN 
    IVF 1 -3 made it do day 5!    2 5AA 1 6BB  PGS results =  all abnormal :(
    IVF 2 - stimmed for 19 days. insanity. Had 5 follicles that looked mature but only 2 contained mature eggs the others were empty.  Nothing made it to day 5
    IVF 3 - added in HGH - 4 mature follicles (had some empties again) 3 made it to day 5/6 for PGS (held for testing with next retrieval
    IVF 4 - Upped my dosage for the first time - Canceled 11 days into sims - looked like 1 follicle and we were afraid it was empty
    IVF 5 - Canceled -  looked like 1 follicle and we were afraid it was empty
    IVF 6 - 3 mature, 2 fertalized 1 made it to day 5 and sent for PGS

    Sent in IVF round 3 and 6 (4 embryos) for PGS testing and got 2 normal embryos!!!  1Boy and 1Girl. Took a little over a year to get those two embryos so demanded all sorts of test prior to attempting transfer. Did EFT, ERA and NK Cells testing.

    FET#1 - Intralipid drips, Prednisone, and did a depot lupron shot before starting the FET protocol
    Chemical pregnancy
    FET#2 - PGS normal boy - BFN
    Natural pregnancy - cycle following the FET2????   Miscarriage at 8 weeks.  viability scan had shown an enlarged yolk sac so I had been warned that it was likely not chromosonally normal :(
  • Thinking of all of you and hope all is well. 

    AFM: nothing new, will let you know after I see RE about next steps.

    @bakerstreetboys How are you doing? Did the tiny ones catch up yet?

    ME:39 DOR DH:41 No issues Trying since March 2015

    IUI #1-4:  Menopur injectable  - BFNs

    2018 IVF #1-3 converted to IUI due to poor response & drop in E2 - BFN

    2019 IVF #4 converted to IUI due to poor response  BFP - M/C @ 8 weeks

    emmasemm
  • @Imajin99 Thank you for asking :)  At my appointment today, they guessed that we'd get 2 or 3, and I'm triggering tonight.  It's going to get complicated because our one frozen embryo is a day 5, and they can't transfer that with a day 3, so it will be very last minute as to whether we do a day 3 or 5 transfer!

    I hope you get to see your RE soon...there's so much waiting in this whole process.



    emmasemm
  • @bakerstreetboys good luck at retrieval!!!!
    Me: Hashimoto Autoimune Disease
    Homozygous MTHFR Cr677
    DOR - AMH  .27 High FSH (don't even know how high)
    2 iui's to start - BFN 
    IVF 1 -3 made it do day 5!    2 5AA 1 6BB  PGS results =  all abnormal :(
    IVF 2 - stimmed for 19 days. insanity. Had 5 follicles that looked mature but only 2 contained mature eggs the others were empty.  Nothing made it to day 5
    IVF 3 - added in HGH - 4 mature follicles (had some empties again) 3 made it to day 5/6 for PGS (held for testing with next retrieval
    IVF 4 - Upped my dosage for the first time - Canceled 11 days into sims - looked like 1 follicle and we were afraid it was empty
    IVF 5 - Canceled -  looked like 1 follicle and we were afraid it was empty
    IVF 6 - 3 mature, 2 fertalized 1 made it to day 5 and sent for PGS

    Sent in IVF round 3 and 6 (4 embryos) for PGS testing and got 2 normal embryos!!!  1Boy and 1Girl. Took a little over a year to get those two embryos so demanded all sorts of test prior to attempting transfer. Did EFT, ERA and NK Cells testing.

    FET#1 - Intralipid drips, Prednisone, and did a depot lupron shot before starting the FET protocol
    Chemical pregnancy
    FET#2 - PGS normal boy - BFN
    Natural pregnancy - cycle following the FET2????   Miscarriage at 8 weeks.  viability scan had shown an enlarged yolk sac so I had been warned that it was likely not chromosonally normal :(
    bakerstreetboys
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