Hey ladies, I am 24 so pretty young based on the spreadsheet (I think I only saw one person younger than me). Trying to determine which prenatal testing we do. My office offers NTS and NIPT, along with Cystic Fibrosis screening for me. I think I could go elsewhere to get sequential scans done if I wanted to (I know there's a few that I got flyers for, can't remember the names). Just wondering which ones you ladies are doing, if any, if you're low risk? I'm so confused on all of it!
Re: Young FTM - What prenatal testing are you doing?
Kade Wayne born July 23, 2015
MC in February 2017
MC in November 2017
Oliver Dean (Ollie) due December 17, 2018
Kade Wayne born July 23, 2015
MC in February 2017
MC in November 2017
Oliver Dean (Ollie) due December 17, 2018
As for your situation, I say go for it if you are that concerned about a genetic disorder. I hope your husband understands that not every down syndrome child is severly disabled. Many function normally. What would he do if your child passed all the testing yet had some thing cognitively wrong that doesn't show up until a year or two after the baby is born? You wouldn't love your baby any less! There's lots of different scenarios and you just hope you're doing the best for your baby.
Kade Wayne born July 23, 2015
MC in February 2017
MC in November 2017
Oliver Dean (Ollie) due December 17, 2018
It's a very personal choice to go through this testing because sometimes the more you look, the more you find. Talk it through with your husband and Doctor to find your comfort level.
Good luck!
Together: January 2002
Married: May 2008
Baby: August 2017
Clearly we like to rush along at lightning speed...
I honestly have not talked to my doctor about testing yet and I also have no idea of what tests need to be done, i wish i had got a flyer with all of that. Hopefully on my second visit. My first visit was more to make sure i am in fact pregnant.
I plan to have every non invasive test done. Not to change my mind about my baby if there is in fact something wrong with him/her but to prepare mentally, emotionally and begin learning about everything that can be done to better sooth and raise my angel!
I dont think anyone is ready for baby that is special, dont take your hubby's words by heart he is probably just frightened by the idea of all difficulties that a special baby brings! Sometimes it is easy to forget that that dame baby will bring plenty of smiles and that s/he qont be in the hospital all day everyday as many may assume.
But hey i am a young first mom from brazil/texas.
***TW in Siggy***
Me: 34 / DH: 33
Married: Nov 2011
TTC #1: Jan 2013, BFP Sept 2013, DD: June 2014
TTC #2: Aug 2016, BFP Nov 2016, DS: August 2017
Genetic testing is a really hard choice to make, which I wasn't expecting!
I would just have an honest conversation with your Dr., and let them advise you. My motivation has always been knowing the sex though, so I might be the wrong one to ask!
For me, knowing just allows me to better prepare, might change the pediatrician I choose or daycare, I can look for therapists early if needed. I have worked with special needs kids and they are amazing but it can be super overwhelming. If I can know and plan a bit then I feel like I can better focus on my baby when it comes and not be as overwhelmed with decisions I wasn't ready to make. I know I could end up in that situation anyway, but I still want to know what I can.
1 infant loss
8/17: Our daughter was born
8/18: Our daughter kicked open heart surgery ass
2/19: We lost our son to Prader-Willi/Paradoxical Vocal Cord/ Noonans at 6wks old
4/26/2020: EDD for baby #3!!!
11 more weeks until my next (and last) ultrasound, unless something goes obviously wrong. I guess I should be relieved that my doc isn't worried at all about me, but from all the books and message boards I was expecting more tests to be standard for everyone.
@bumpybump do you mean u/s? I don't know what a/s is. Anatomy scan? Sorry, lightbulb I think lol
@jessicer I totally agree with the CF screening. We were going to do it but then DH said "even if you are a carrier, I am not going to divorce you and find someone who doesn't have that risk" there's nothing you can do about that, but a baby with severe chromosomal issues is avoidable on the next pregnancy. But you are so right, who would have thought this would be so difficult?!?!
I have decided I don't want to do any testing but DH still is interested. I told him he can call the office and decide whether NTS or NIPT is right for us and he can call insurance to find out costs. I will have my blood draw but that's all the work I am doing. I'm stressed enough about keeping food down right now that I don't need or want this on my plate too lol
***TW in Siggy***
Me: 34 / DH: 33
Married: Nov 2011
TTC #1: Jan 2013, BFP Sept 2013, DD: June 2014
TTC #2: Aug 2016, BFP Nov 2016, DS: August 2017
**TRIGGER WARNING- Termination mentioned**
both CF and SMA are terminal and horrifying, so if we ended up being carriers for those and the baby tested positive, I would have considered termination. I'm not scared of developmental delays or anything like that. But, I've seen the horrible deaths of CF sufferers and I just...couldn't allow my child to suffer like that.
Fortunately, everything turned out well and that's not a discussion.
Wife. Mom. Doula. Photographer.
BFP #1- 12/26/2011- DS Born 9/7/12
BFP#2- 10/16/2014- DD Born 7/2/15
SURPRISE! BFP#3- 11/29/16- EDD 8/6/17
@Doulatog13 thanks for being open and honest about how you would react to positive test results. I've noticed on these boards most people are very conservative so it's nice to see you being so open about your options. I would do the same thing as you. Unfortunately $900 just for the CF screening for just ME isn't in our cards right now, so now we pray we are only given as much as we and the child can handle.
I was 25 when I gave birth to my 1st. Opted for no testing either.
They way we viewed it was that we would not have terminated so instead of enjoying my pregnancy I'd be researching and worrying the entire time which probably wouldn't help the little bug.
If my first child was born with something or we knew we were carriers for something, my mind might change, but for now we are okay with the unknown. Except for sex. I want to prepare for that.
Am I reading this right?? You don't need time to prepare for downs, but you need to prepare for the sex of the baby? what??
Lurking from May. How is knowing what clothes to buy and knowing what color to paint the nursery more important than the health of your baby? I say this with all do respect and kindness. Please everyone young and old, FTM or STM+10. The NIPT tests are NOT TO FIND OUT THE SEX OF YOUR BABY. They are to find out the likelihood of a potential chromosomal abnormality. In fact the only reason they test for the sex chromosome is because there are certain conditions that are sex based. It is so disheartening every time I see someone post how they do the testing to find out the sex of their baby or comment that that's all they care about. Please remember that this is a very diverse community. There are several women on these boards that find out horrible news during these tests and seeing some one write how they only care about finding out the sex of the baby is such a slap in the face to them. To me @matteagabrielle if you're OK with the unknown then you should be OK with not finding out the sex of your baby using a test that cost $5000 to do. If you still feel the way you feel however, might I suggest not voicing that in this forum out of respect for the other women.
Holy....
I took what she said in a totally different way! It's so rude for people to act like because she doesn't want to do any test, that she doesn't care about the health of her baby. No where does she say her babies health isn't important. She answered the question honestly. And I don't think she said she was going to do anything other then the 20 week scan to find out the babys gender. She actually said she would be having no testing so i assume she mean early testing. I think like alot of us she will wait until the 20 weeks to find out the gender, and i'm sure like the rest of us, if something comes up she will do what she needs to do to ensure the health of her baby.
People do find out horrible news through these test and thats heart breaking, and it gives them options. But other people don't want to know because it wouldn't matter to them. Respect that.
June lurker returning to her happy corner now....
BFP #1 6/13 DD 3/14
Mirena 10/14-5/16
BFP #2 9/2/16, CP confirmed 9/8/16
BFP #3 10/10/16 EDD 6/22/17
Clarifying for OP, I am definitely not saying you or other people should not test or that it is wrong to prepare or anything of the sort. I was just giving my opinion as to I didn't feel the need to and won't early test again this time. If any measurement are off during the anatomy scan then by all means we are going to prepare and do whatever additional things we need too as caring and loving parents as well as learn if it's a boy a girl and enjoy the things that come with that.
May17 Siggy Challenge
Labor
ETA: *TW*
I have a friend who found out her son had anencephaly at her A/S and carried him to term and gave birth knowing he may be stillborn, live for a few hours, days or months. She prayed for a miracle and kept trusting that God had a plan for her son and that he would ultimately heal him. Well, God gave her two whole days with her son who was labeled as "incompatible with life outside the womb" and those were the two most joyous days of her life. Yes she is still grieving and will be forever. She has two daughters now and often speaks of her son. He has touched so many lives and has truly enriched her and her family's connection and faith. You don't always understand someone else's position just by reading a small blurb they leave on a pregnancy forum. We come from many different walks of life. Let's respect each other and the decisions we feel are best for our children and our families.
@em1017 we are doing the same test. We found out that if we do the Cystic Fibrosis Trio scan through Progenity on the same day it will only be $99 OOP for both sets combined, so I am very happy to be finding out if I am a carrier for all future pregnancies. We are doing it for peace of mind as well, finding out the sex is a nice added bonus but we never let that play a factor in choosing between NTS and NIPT. It was all down to which is most accurate.
@middy411 I would be very frustrated if my doctor did that to me as well. We have been seeing midwives but are required to do a round of genetic counseling with one of the doctors before they draw my blood for the test. I am afraid he will pressure us to do even more testing but I am pretty firm about only doing non-invasive safe tests unless something comes back poorly. If I were told my baby was going to be born stillborn or have chromosomal abnormalities that would cause then to lose their life soon after being born, I think I would need to terminate as soon as I was told that. I couldn't imagine carrying to term to know that was going to happen. I'm glad your friend found peace in that moment though, and I think that's incredibly brave and strong of her to do.
I would've done the Harmony testing just because it's non-invasive. If something were to come up as a higher than normal risk, I don't know if we would continue for more testing. That just depends on what the percentage was, or if something definite had risen.
I don't judge women who choose to terminate. I honestly don't know what I would do in that situation, but I would at least like to have the choice.
Edit because writing is hard.
Anyway, what's the timeline on all this? I assume we get immediate feedback on the u/s but how long does it take to get blood work results?
eta: everything post emoji because apparently mobile tB hates emojis