Bilateral MCDK

mavsgirl7741 · December 2014

I am just curious to know if there are any other mommies out there whose baby was diagnosed with bilateral MCDK. We found out at 22 weeks and were told that if we make it full term our baby girl would only live for a few hours before passing. I am also curious to know how often you feel your baby moving around? Just looking for anyone else going through this or even carrying a baby full term that they are saying will not make it once you give birth.

Aeml1985 · December 2014

Oh Hun I have no advice, I'm so sorry you are going through this.

ruemorgan · December 2014

No advice here, but plenty of T&Ps

dreyes4 · December 2014

No advice. But your in my T&Ps

AlinnJo · December 2014

I have no experience with this. I am so sorry you are going through this. You and your family are in my thoughts.

sweetmama17 · December 2014

T&P sweetie. I hope you can find someone to talk to.

chaysefaith · December 2014

I've never heard of this and I'm very sorry for what you are facing. I did lose my son at 20 weeks in my last pregnancy, but even that is nothing like what you will face. I'm sorry I don't have more advice to give.

I did want to let you know you may find some good support and advice on the loss boards.

Miscarriage and Pregnancy Loss board

Loss Board

However, please don't see this as a way to push you off on another board. You are more than welcome to stay here as long as you want, I just want you to have all of the options for support that this community can give you.

((Hugs))

ngolimento · December 2014

I am so so sorry you are facing this. I have no experience with full term issues, but my heart goes out to you. ((Hugs))

ac123185 · December 2014

I'm sorry I have no advice but my thoughts are with you and your family.

maddiee88 · December 2014

I am so sorry you are going through this. Please know my thoughts and prayers are with you and your family. I truly hope you have people around you for support

Ardmhs83 · December 2014

I am so sorry you are going through this. You are in my thoughts and prayers!

mandi195 · December 2014

All of the hugs, momma... so sorry you are going through this.

colleen4019 · December 2014

I'm so sorry you're experiencing this. My thoughts are with you.

Tazminian · December 2014

I'm so sorry to hear about your LO's diagnosis. I have no experience with what your going through. I'm will keep you and your family in my thoughts.

jess412love · December 2014

No experience with this but my T&P are with you and your family. I'm very sorry you are going through this. Hugs >:D<

corysgirls · December 2014

No experience but sending lots of love and prayers.

corysgirls · December 2014

I do know that my cousin was diagnosed in utero with multi cystic or polycystic kidneys but not dysplastic. She was followed the entire pregnancy and was expected to be very ill if she lived to birth. Somehow, the cysts all resolved by the time of her birth. There is actually a medical journal study done on her. She is now a healthy 8 year old. Not sure if that helps or not.

Unknown · December 2014

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MrsPope1770 · December 2014

I'm so sorry.

stepherly · December 2014

I have no experience, but I'm so sorry you're going through this. ((Hugs)) You and your family will be in my thoughts.

Bostonchelle · December 2014

No experience but sending T&Ps to you and your family.

breezie32 · December 2014

I am so sorry your sweet baby was given that diagnosis. I don't have experience with that specific diagnosis but my last child was given a fatal diagnosis and we carried him to term. It was the best decision I ever made. If you have specific questions or just want to chat I am available.

coleybug13 · December 2014

Although I have no experience with this, I wanted to say how truely sorry I am that you have to go through this. So many thoughts and prayers to you and your family.

mangomimosa · December 2014

Sending huge hugs to you & your family. I'm sorry this is happening & hope your time with your LO is peaceful & sweet.

Ladylec · December 2014

Breaks my heart to read this. I will be sending so much love and thoughts to your family and hoping that the time you do have with your LO is beautiful. I hope you are able to find some support and peace in all of this.

Skrittens · December 2014

I am so sorry. Sending hugs and thoughts and prayers your way.

Sugarplum0217 · December 2014

I don't have experience or advice just want to offer support. I am so sorry you are going through this. I will be thinking about you.

LadySnowblood · December 2014

I'm so sorry you're going through this. Sending lots of hugs, thoughts, and prayers.

akj166 · December 2014

So sorry you are going through this. Thoughts and Prayers to you and your family.

bdazzld · December 2014

I'm so sorry

T&Ps sent your way.

cesquer · December 2014

I am so sorry you are going through this. It is such a hard situation. Keeping your angel and you in my thoughts and prayers. You will get through this.

DragonflyDreaming · December 2014

So many hugs!! Thoughts and prayers for you, your family, and your little one. I'm really sorry you are going through this.

jacqueleen1 · December 2014

Oh I am so sorry to hear this. That is a very sad diagnosis. I have not personally been pregnant with a child with this, but I have seen it in my work. The fetus can still be active inside the womb. Again so sorry

estark03 · December 2014

I'm so sad for you and your family. I hope you're able to find peace. T&P's!

createmagic14 · December 2014

I'm so sorry you are going through this. I have no experience or advice, but sending my T&Ps.

Sstites26 · December 2014

Sending thoughts to you and your family.

AEmily · December 2014

No experience or advice. I'm sorry this is something you have to go through. My thoughts and prayers are with you.

jap618 · December 2014

I don't have any experience with this but I wanted to say I'm so sorry that you are going through this and ((hugs)).

I'm sending positive t&p your way.

As PP mentioned the Loss board is full of ladies that have unfortunately had later term losses. I don't know if it's appropriate for you to post there while pregnant so I would encourage you to reach out to the moderator via PM before introducing yourself.

rm2013 · December 2014

Im so sorry you are going through this! My heart goes out to you and your family, many hugs and T&Ps to you.

chaysefaith · December 2014

jap618 said:
As PP mentioned the Loss board is full of ladies that have unfortunately had later term losses. I don't know if it's appropriate for you to post there while pregnant so I would encourage you to reach out to the moderator via PM before introducing yourself.

Last I checked OP was reading the comments, and even if she's not and someone else in a similar position is, I just wanted to say that I double checked on the mod board before making the referral to the loss boards and the consensus is that it's ok to post now but please add a siggy warning if you have a ticker or anything else referencing your pregnancy.

jap618 · December 2014

chaysefaith said:

jap618 said:
As PP mentioned the Loss board is full of ladies that have unfortunately had later term losses. I don't know if it's appropriate for you to post there while pregnant so I would encourage you to reach out to the moderator via PM before introducing yourself.
Last I checked OP was reading the comments, and even if she's not and someone else in a similar position is, I just wanted to say that I double checked on the mod board before making the referral to the loss boards and the consensus is that it's ok to post now but please add a siggy warning if you have a ticker or anything else referencing your pregnancy.

Thank you! I wasn't sure and didn't want to send her somewhere prematurely.

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