Thanks for the info I was able to find a support group on Facebook for this. I do feel her move but not nearly and much as I did with my son. I'm sorry for her loss and am also curious how much time we will have with our little angel or if God will give us our miracle. I hate not knowing what to expect or if I will even make it full term. We had the option to terminate but wanted are hoping that somehow some way the doctors are wrong. She is breached right now and bc I have no fluid the doctor said she probable won't turn around so I am also praying that I do not have to have a c section. Thanks for the support and advice.
Thanks to everyone for their thoughts and prayers. This is a situation I wouldn't even wish on my worst enemy. I didn't want to post on the loss board bc my baby is still alive and I am not sure how appropriate it would be to post there since it was for mothers who had already lost their Angels. Not that I was hoping that someone else was in or had been in this situation but I was hoping to get some feedback on what to expect if someone had. I had never even heard of this until our daughter was diagnosed and the research I found tells all about the disease but nothing on what to expect during or after pregnancy. Thanks again to all for your support. I was in shock when I found out about this as I never in a million years expected to hear this kind of news. All of my family has always had healthy pregnancies and well to be honest I just never thought something like this would happen to me and my husband. I would hear stories of mothers losing their Angels and my heart would go out to them and I would think I can't even begin to imagine what they are going through and it's even worse now that I am experiencing it. Not sure how I will take this on the day I finally get to meet her.
I had my 20 week scan recently and was told both my baby's kidneys don't work..they r filled with cysts and I was told my baby would probably die sometime over the next few weeks or if carried to term will only live a few hours once born..my amniotic fluid is extremely low so the baby's lungs wont be strong enough..I know how you feel..its the worse feeling in the world and I wish there was something I could do to save my baby..
Re: Bilateral MCDK