I'm sorry it's been so long since my last update. (Read here for the original postings:
https://forums.thebump.com/discussion/12230904/feb-7-update-please-pray-for-my-son-20-wk-ultrasound/p1). Honestly, we have simply been going for the heartbeat check every week. Isaac is still with us and I am currently 33 weeks. There has been a lot of cyst growth in his kidneys which, although expected, is not a good sign. It indicates further deterioration of the kidneys. His head growth is on schedule, but both his arms and legs have been stunted. This, too, is expected. They were not able to get a measurement of his abdomen because of how scrunched up he is. They are estimating his weight at 3 pounds 15 ounces, but that includes all of the fluid gathered throughout his body. We are still essentially waiting for him to pass in utero or at birth. It's a very difficult place to find ourselves, but we have incredible peace in the midst of the pain. And we aren't ruling out a miracle of course!
DH and I are doing well. We are still living with a wide range of emotions on a daily basis. I was really touched at our last appointment seeing his hand cradling his face. He looked so peaceful, and I hope he is. I am including the picture we received of this. All you are looking for is his head and arm/hand. His head is almost horizontal resting on top of his hand.
We still feel God's peace and can easily recognize that He is in this journey with us. As long as we remember to live in today and not focus on things that could cause pain in the future, Gods grace is more than sufficient.
Thank you to everyone who has checked in with me to see how he is doing. I truly appreciate you guys!
Trigger Warning (LC and loss) --
Married May 2008
Beautiful daughter Alyssa born April 23, 2011
Precious son Isaac born at 34 weeks in April 27, 2014 with Potters Syndrome Type 4 and Down Syndrome - trusted into the arms of Jesus after 3 hours.
Pregnant again! Due August 8, 2015 please be healthy, little one!
(results on 2/4/15 showed no Down's and it's a girl!)

Re: Latest updates on baby Isaac
I'm not new. I just hate The Bump.
#3 DD June 2014
CP December 2015
M/C 8/2016
Rainbow & Babe #4 EDD 7.28.18
Pipsqueak born 6/9/14
BFP 10/8/2013
Miss Camryn Marie arrived 6/20/2014
9 angels in heaven-3 in my arms and 1 in the NICU
Mono/di twin girls: Josephine born to heaven and Evangeline born Earthside at 25w
Oct 21/13. Beta 360 @ 16 dpo
Oct 23/13. Beta 749 @ 18 dpo
Nov 24/13. Saw HB (141bpm) & baby wiggle around via ultrasound @ 9w5d due date changed to June 23!!
Dec 6/13. Heard HB (122bpm) via Doppler at OB @ 11w3d
Jan 9/14. Heard HB (124bpm) via Doppler at OB @ 16w3d irregular beat
Jan 29/14. DH felt kicks for first time @ 19w3d
Feb 2/14. Saw baby via ultrasound (quick scan in ER) @ 19w6d
Feb 6/14. Heard HB (126-134bpm) via Doppler @ 20w3d normal beat
Feb 15/14. AS - baby looked great (measured 1w small) and would NOT let us see sex! @ 21w5d
Feb 20/14 3D US - its a GIRL!!!!! @ 22w3d
Feb 27/14. Repeat AS for more pics, HB 124bpm @ 23w3d
Mar 6/14. Heard HB (130bpm) via Doppler @ 24w3d
BFP 3.8.16 EDD 11.20.16
DD born 6.13.11 at 37w5d
DS born 5.23.12 at 36w5d
BFP 6.9.13|heartbeat of 128bpm 7weeks|7.23.13 ultrasound revealed no heartbeat|natural m/c and d&c 7.25.13
DS born 5.20.14 at 38 weeks
All are welcome
Me (36) + DH(35) = Married 9yrs!