June 2014 Moms

Latest updates on baby Isaac

jenandbrettjenandbrett member
edited April 2014 in June 2014 Moms
I'm sorry it's been so long since my last update.  (Read here for the original postings: https://forums.thebump.com/discussion/12230904/feb-7-update-please-pray-for-my-son-20-wk-ultrasound/p1). Honestly, we have simply been going for the heartbeat check every week.  Isaac is still with us and I am currently 33 weeks.  There has been a lot of cyst growth in his kidneys which, although expected, is not a good sign. It indicates further deterioration of the kidneys.  His head growth is on schedule, but both his arms and legs have been stunted. This, too, is expected. They were not able to get a measurement of his abdomen because of how scrunched up he is.  They are estimating his weight at 3 pounds 15 ounces, but that includes all of the fluid gathered throughout his body.  We are still essentially waiting for him to pass in utero or at birth.  It's a very difficult place to find ourselves, but we have incredible peace in the midst of the pain.  And we aren't ruling out a miracle of course!

DH and I are doing well. We are still living with a wide range of emotions on a daily basis. I was really touched at our last appointment seeing his hand cradling his face. He looked so peaceful, and I hope he is. I am including the picture we received of this.  All you are looking for is his head and arm/hand. His head is almost horizontal resting on top of his hand. We still feel God's peace and can easily recognize that He is in this journey with us.  As long as we remember to live in today and not focus on things that could cause pain in the future, Gods grace is more than sufficient. 

Thank you to everyone who has checked in with me to see how he is doing.  I truly appreciate you guys!
Trigger Warning (LC and loss) -- 
Married May 2008 
Beautiful daughter Alyssa born April 23, 2011 
Precious son Isaac born at 34 weeks in April 27, 2014 with Potters Syndrome Type 4 and Down Syndrome - trusted into the arms of Jesus after 3 hours.
Pregnant again! Due August 8, 2015 please be healthy, little one!

  (results on 2/4/15 showed no Down's and it's a girl!) Lilypie Maternity tickers
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Re: Latest updates on baby Isaac

  • Thank you for updating us. So sorry you are having to go through this. T&Ps.
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  • Hugs to you.....
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  • Hugs and prayers to you!
  • I can't imagine how incredibly difficult this must be, but you're facing it with such strength and grace.  Lots of hugs and prayers to you and your family.

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  • I am praying for you. Sounds like you are being really strong through this. I'm so sorry you have to go through this.
  • Big hugs for you!!! I am so incredibly sorry! You have amazing strength and ya'll are the perfect people to be his parents! T&Ps!!!!
  • So sorry for all you are going through. T&P for you, your H, and Isaac.
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  • I am so sorry to hear this. I can't imagine what you as parents are going through but you have amazing strength. I too was wondering about you recently. So many hugs and prayers to you and your family.
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  • Many continued thoughts and prayers!
  • Hugs to you. My thoughts and prayers are with you, your husband and baby Isaac. You are so incredibly strong and brave. Thinking of you x
  • Thank you for sharing his picture with us and I'm sorry you are having to deal with this.  Sending lots of thoughts and hugs to your family.
  • Keeping you and your family in my thoughts& prayers, I can't imagine what you're going thru, ((hugs))

    #1 DD June 2009
    #2 DS July 2011
    #3 DD June
    2014
    CP December 2015
    M/C 8/2016
    Rainbow & Babe #4 EDD 7.28.18





      



  • Hugs and prayers for you and baby Isaac.
  • I am so sorry to hear all of this. thank you for sharing the amazing picture of your precious Isaac. know that my family will be praying for yours and I hope you can continue to find peace in this time of uncertainty.
  • Im sorry to hear that you are going through this but you are definitely still in my t&p`s
  • So so sorry for you but so glad you are finding peace in the midst of this. Isaac is precious.
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    Emery Elizabeth
    Due Date: June 5, 2014

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  • I am so sorry to hear this but I am glad that you continue to have faith. I have a good friend going through this same thing right now and she is also trying to stay strong and keep her faith. 
    Munchkin born 11/22/11
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    Pipsqueak born 6/9/14
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  • Praying for His comfort for you!
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  • I'm so sorry you are experiencing this. Continued prayers for your and DHs comfort an strength, and for a miracle for baby Isaac.
    Married my Sweetie 8/21/04
    BFP 10/8/2013
    Miss Camryn Marie arrived 6/20/2014

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  • That is such a sweet picture of Isaac, thank you for sharing! Lots of prayers and hugs to you guys.
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  • That is too sweet! I love his sweet face <3 /you continue to be in my prayers.

     

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    9 angels in heaven-3 in my arms and 1 in the NICU                                                                                                                                    
    Mono/di twin girls: Josephine born to heaven and Evangeline born Earthside at 25w

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  • Thank you for the update. I will be praying for your family and baby Isaac.


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  • That is a beautiful picture of baby Isaac...you, Isaac, and the rest of your family continue to be in my thoughts and prayers.
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  • You will be in my prayers and thoughts and I wish peace for you and your family and beautiful baby Issac!
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    Tristan Phillip - 2 wks
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  • Keeping you and your family in my thoughts. So sorry you're having to go through this.
    Son: Jackson, 11/02/06, stillborn due to PPROM and IUGR. Over the next ten years we had 9 miscarriages from 8-14 weeks. On May 18, 2016 my daughter, Ridley, was born. We're OADNBC.
  • What a tough ordeal. I pray for you and your family.
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  • kd&cdkd&cd member
    T&Ps to you & DH. He looks content that's for sure. I'm sorry you are going through this
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     Oct 16/13. BFP @ 11 dpo

    Oct 21/13. Beta 360 @ 16 dpo

    Oct 23/13. Beta 749 @ 18 dpo

    Nov 24/13. Saw HB (141bpm) & baby wiggle around via ultrasound @ 9w5d due date changed to June 23!!

    Dec 6/13. Heard HB (122bpm) via Doppler at OB @ 11w3d

    Jan 9/14. Heard HB (124bpm) via Doppler at OB @ 16w3d irregular beat

    Jan 29/14. DH felt kicks for first time @ 19w3d

    Feb 2/14. Saw baby via ultrasound (quick scan in ER) @ 19w6d

    Feb 6/14. Heard HB (126-134bpm) via Doppler @ 20w3d normal beat

    Feb 15/14. AS - baby looked great (measured 1w small) and would NOT let us see sex! @ 21w5d 

    Feb 20/14  3D US - its a GIRL!!!!! @ 22w3d

    Feb 27/14. Repeat AS for more pics, HB 124bpm  @ 23w3d

    Mar 6/14. Heard HB (130bpm) via Doppler @ 24w3d

     

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  • Thinking of you.
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    BFP 3.8.16  EDD 11.20.16

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  • Couldn't make it through your update without crying. Praying for peace and strength for you all. I know he feels the enormous amount of love every day and you are making his life, however long it may be, beautiful.
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  • What a sweet boy.  Praying for you. 
    DD- Born 03/09/2010
    DS- Born 01/21/2012
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  • Hoping for a miracle for you.  Your grace in handling such a difficult situation is inspiring.  Keeping all of you in my thoughts.  Such a sweet picture of Isaac.
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  • You are truly an inspiration. You and your family are in my thoughts and prayers.


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  • Thank you for the update.  I was still just lurking when you first posted about your precious baby, but I remember your story very clearly.  I am so sorry that you are going through this very difficult trial, but I am happy to hear that you and your husband have been able to find peace in it.  I will continue to pray for strength and peace for you, your baby, and your family during this time.  Peace.

    DD born 6.13.11 at 37w5d

    DS born 5.23.12 at 36w5d

    BFP 6.9.13|heartbeat of 128bpm 7weeks|7.23.13 ultrasound revealed no heartbeat|natural m/c and d&c 7.25.13

    DS born 5.20.14 at 38 weeks

    All are welcome

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  • Saying prayers for your family's comfort and peace

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  • Thank you for the update. You and your LO will contenue to be in my prayers.
  • Awe, he's so precious! Keeping you and your family in my thoughts and prayers.

     Me (36) + DH(35) = Married 9yrs!
    BFP #1 May 2010! mc @11weeks blighted ovum, natural mc.
    BFP #2 Sept 2010! mc @9 weeks, natural mc. Diagnosed with Prothrombin Gene Mutation or Factor II (hetro)-baby asprin while ttc, Found out the hard way that I am deathly allergic to aspirin- OB put me on Heparin injections.
    BFP #3 July 2011 with DS (whom was diagnosed with bilateral trans-radial limb deficiency at 20 week A/S-with no answers why) born 4-12-12.
    BFP #4 March 2013! Early mc @6weeks.
    BFP #5 Sept 2013 EDD June 5th, DS#2 born 5-31-14
    BFP #6 April 2015 EDD December 21st Lilypie Pregnancy tickers   

     
                                                                             
            
  • I can't even imagine what you're going through, you are so strong!  T&P!

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    <3

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  • Sending hugs and lots of prayers to you and your family!
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