Asking for support re. Olivers health

kbowman78

Hi ladies,
Now that things have settled down I wanted to tell you about Oliver. When i was in recovery from my c section, the NICU nurse came and informed us that Oliver had signs of Down Syndrome. The diagnosis has since been confirmed.
We did not know ahead of time so this was quite shocking and devastating news to hear at the time. He has some heart problems and other medical issues related to the diagnosis.
This has been such a roller coaster of emotions. I am completely in love with this child and while the diagnosis scares us, i would not trade his life for anything. He is perfect in our eyes. I'm scared for the future but we are trying to focus on one day at a time. This is really just very emotional, but i will say it has so far brought DH and i closer together and we have learned things about each others character that have amazed us. I just wanted to share and ask for your support. I'm hopeful that he will thrive and amaze us in ways we did not expect.thanks

remote_girl

I can't even imagine all the emotions you must be going through - all the support in the world to you and you family...

myrall

Lots of love to you and your family. We're here to support you!!

MSquires100

Many many thoughts and much support!  The sheer emotions you guys are experiencing, I can't even imagine.  Regardless of what / who you believe in, I have always believed that everything in our lives happen for a reason.  We may not know or understand it at the immediate moment we learn of bad news or during a trying time, but it has happened to teach us something either about ourself or about life. 

You and your sweet family are in my thoughts - like you said, take each day one at a time.  I have no doubt that sweet little Oliver will amaze you with so much!

mrsd0907

First off, congrats, I can't wait to see pictures of Oliver! As hard as it may be, try to forget about the diagnosis for right now and enjoy that sweet baby. I highly recommend Kelle Hampton's book, Bloom. I've been where you are, twice in fact, and I know how hard it is. Both of my boys have special needs (Fragile X Syndrome) and nothing can prepare you to hear that your child isn't perfect. If you need anything or want to just chat or vent, please feel free to email me at ckdram at yahoo dot com. Regardless of any diagnosis, you will all be fine. Big hugs, Momma! ~ Rachel

auburnbride2be

I am sorry to hear you are going through this. I am sure you will find great support on this board and others. There are so many amazing women here and people willing to help each other through whatever situations arise. I can't imagine how hard this must be for you and your family.

Mrs.Guz

I can't even begin to imagine the emotional roller coaster you have been on. Hugs to you. Praying that you have a strong support system. And we're always here.

dleigh2020

Sending you tons of positive thoughts and support your way. 

seahorse102410

Many prayers to you and your family.

JulesDiane

**huge hugs**

I can't even imagine how emotional all of this is for you and your family. Many thoughts and prayers for you, your family, and especially, Oliver. I don't know how much help I can be, but Brynn had a couple heart surgeries at 8 days old (for a VSD (hole in her heart) and coarctation of the aorta). If you want to talk about any of the heart things, I would be happy to talk to you about how things went for the surgeries at Eggleston.

BottomStar

Oliver is truly such a lucky little boy to have such amazing parents, and I know he is already such a blessing to your family and will continue to be so.  I will certainly keep your family in my thoughts and prayers.

yellowtulips80

You are in our prayers

kep

Congratulations on your new son! I am sure he is adorable! Much love and many prayers for you and your DH as you navigate this journey. I agree--he is blessed to have such loving and caring parents. XOXO

MrsL1022

Huge hugs, prayer, love and support coming your way. Oliver is blessedntonhave such strong loving parents. I can't imagine allmofnthe emotions you must be feeling. Thinking of you and your family can't wait to see pics of sweet baby Oliver. 

Daisy22

Congrats and he is lucky to have such caring loving parents. Praying for strength and comfort as you go through the next little bit navigate what is ahead for y'all. 

ebearwife

Congratulations to you and your family on the amazing gift of Oliver.  I hope to meet him in person one day.  In the immediate future I will be praying for your family and the doctors as you address and treat the heart concerns.

MrsKLB

I'm not on here much anymore but have been checking back just to hear an update from you! Congratulations on your new baby boy!! I agree with everyone else that he us blessed to have been given to such great parents. I know it won't always be easy, and sometimes you won't feel as emotionally capable of handling all of this, but you can and you will because you are his mother. I can't wait to see pictures! Hugs!

mingaling2

Congratulations on baby Oliver!  He is luck to have such a wonderful family, and he is sure to be a great blessing in your lives. 

Louise06

Congratulations on your little boy! The name Oliver is adorable. I will keep him my thoughts and prayers. I hope that his health issues are mild and treatable. The Special Needs board on the bump is great and there are several moms with DS kids.

Louise06

Here is a link to a blog by one of the posters on the SN board her DD has DS:

https://www.meetinglauren.blogspot.com/?m=1

Sorry I couldn't make a clicky, I'm bfp.

frlcb

Lots and lots of prayers and hugs

Kerrin

I can't even imagine the shock of hearing that and being totally unprepared.  In time you will figure out what to do and how to fufill his needs.  But for now, just love on that sweet boy and enjoy him. Our next door neighbor had the same experience.  Their son required a heart surgury and is doing very well.  He's just the sweetest child.  I hope that you are able to find the guidence you need to navigate this journey, and I suspect it will be most rewarding for everyone involved.   Big hugs to you and we are all here to help out where ever we can.

K&P414

Your love for him pours out of your post.  He is a lucky little guy!  You all are in my thoughts and prayers.

cookielady

Welcome Oliver!  There is nothing that I can say that hasn't already been said so eloquently by others.  So, "ditto" the rest of them.  Love to all and we're here to support anyway we can.

slwprincess

I know this is a roller coaster and I'm not going to pretend its gonna be easy. ive shared before that my nephew is extremely developmentally delayed and severely autistic. It was a surprise he was premature and had many conplications at birth. They arent sure exactly what caused it and that was hard to accept in itself. His actual medical diagnosis is "mentally retarded". as hard as that word is to say, it's him and we had to accept it. Can I tell you something? That boy that 15 year old boy is one of the greatest joys and blessings in my family. His sweet face absolutely lights up the room. watching him play with my gavin on our family cruise was one of my top 10 moments last year. They went WILD together! The challenges you face will be hard, but I encourage you to step back and focus on the positive whenever you can. It's sounds like you are already doing that! Congratulations on your sweet boy... Soak it up and enjoy every second.

rara855

mrsd0907:

First off, congrats, I can't wait to see pictures of Oliver! As hard as it may be, try to forget about the diagnosis for right now and enjoy that sweet baby. I highly recommend Kelle Hampton's book, Bloom. I've been where you are, twice in fact, and I know how hard it is. Both of my boys have special needs Fragile X Syndrome and nothing can prepare you to hear that your child isn't perfect. If you need anything or want to just chat or vent, please feel free to email me at ckdram at yahoo dot com. Regardless of any diagnosis, you will all be fine. Big hugs, Momma! Rachel

I actually have this book and would love to send it to you. Let me know your address and I will send it your way.

Congrats on your precious boy. I have no doubt you guys will thrive as a family together. Sending prayers for sure.

Mrs. Theobald

Sending love and support your way!!

AugustaBride04

Congrats on Oliver!  Sending lots of thoughts, prayers, and support your way. I can't even begin to imagine the emotions you are dealing with. It sounds like he has wonderful parents that will look over him and take great care of him.  I know it must be hard, but try to enjoy that precious baby boy now and soak up all of that sweet newborn stage.

EmmaMom

I've never been much more than a lurker in the past, and something made me check in today and I saw your post.  We were in your exact shoes on 9/15/11.  Completely shocked so I totally understand your emotions right now.  Please email me if you'd like to talk.  Hang in there - I PROMISE it will be better than okay!  

vrussell07@gmail.com 

care99

You are in my thoughts and prayers.  Take things one day at a time and enjoy the blessing that he is.  

ally-cat

Congratulations on sweet little Oliver!  He is such a lucky little guy to have you as his mama!  Lots of prayers to your family..