It's tomorrow at 11. @pirateduck thank you for thinking of me. MH is going in all optimistic, but I really don't think I'll get anything good from the appointment. My betas retested Wednesday/Friday at 80100 and 80700 I've read things tend to plateau between 10-12 weeks but I would have been exactly 10 weeks for the first draw.
My husband and I were the same way when we went for our follow up last pregnancy. He was quite optimistic and convinced the first scan was a fluke of some sort, baby just too small to see properly, and I was all doom and gloom convinced things were over, which is odd because usually I am the optimistic one. I hope your appointment goes well and you finally get some clarity instead of just requests for more inconclusive tests. I hope you can get some sleep tonight and that your new specialist tomorrow is amazing and gives you the treatment you deserve.
@jhysmath Thinking of you! Is it creepy if I kind of want to wait for you at Dartmouth to give you a big hug? I won't, obviously... but the thought crossed my mind for a second.
**TW**
Me: 35 | H: 40 Married Sept. 2013 DS1: Nov 11, 2016 MMC: 11/16/18 (9w6d) CP: 2/3/19 (5w3d) BFP! 8/24/19 DS2: May 10, 2020
@shamrocandroll if I was going alone I might have needed that and begged for it. Thankfully MH will be with me this time. I'm hopeful that your mfm friend will say my ob is an idiot, but I feel at least I'll likely get closure tomorrow one way or another. If I get to be sick to my stomach for a couple more weeks and get a baby in the end I'll gladly do so, if not I want this to be over as soon as possible and hopefully get to enjoy Thanksgiving foods with out wanting to puke while I look at them.
Thank you all. The mfm says this is not a molar pregnancy and can be two things, one pretty common and doesn't really cause any concern is that the mass is blood collected on top of the placenta. If this is the case it will likely go away. The other she says is very rare but signs point to that more because the umbilical cord looks like it goes into this mass. That would be an acardiac twin, where the other twin never developed but is being a parasite requiring blood flow from the "pump" twin. This is obviously not good and the pump twin will not survive in most cases. If the second is the case and the pump twin is fine genetically they can go in later and try to freeze the connection but that has a chance of miscarriage and birth defects for the pump twin.
I'm doing the panorama test to defintely rule out triploidy, but I'm still in limbo. I'm going back to dartmouth after Thanksgiving for them to check again to see if it is an acardiac twin.
@jhysmath I'm glad you got to see a specialist, and got some answers, even though you are still kinda in limbo. It sounds like in both scenarios you have a chance of walking away with a healthy baby at the end of all this, though the odds are better with one scenario than the other. I hope by your next scan that it is clearer yet what is going on. Hang in there. I'm sure it feels like an eternity from now.
@jhysmath I'm so sorry you are still in limbo and that your waiting game continues. I hope the Panamora comes back clear and that everything still works out with this LO. I'm so glad you got a second opinion from the MFM. I'll be thinking of you!!
@jhysmath I am so glad that you decided to go with this additional appointment, even if you are still in limbo. I hope the next meeting is productive and can give you a plan moving forward even if it is moving you to another doctor that specializes even more in this.
@jhysmath I'm so glad you saw the MFM and I hope your Panorama results are good. FX so hard that the mass is just blood, but if not, it sounds like youre in good hands with the specialist. I'm sorry you're still in limbo; this must be so hard for you and YH. Please know that we're all here for you.
Eta: did they tell you how big the mass was? Hoping it's small. ❤❤
@jhysmath echoing everyone else here, not a clear answer but sounds like things could still work. We'll all be thinking of you and hoping you get some more clarity soon.
@jhysmath I'm so sorry things still aren't clear and you don't have defined answers.I hate that you have to wait so long. I truly hope things work out for the best for you and it's the more common first case scenario.
@jhysmath I’m glad you got some answers that sound like it could be positive, I wish it was more definitive for you. Hopefully your results on Friday will be clear
@jhysmath I am so sorry you're still in limbo, but really glad that both scenarios seem more optimistic than if it had been molar. I hope it's the first scenario, but if it's the second, then I'm glad to hear there's still a shot at a positive outcome! How are you feeling about it all over all? Better, the same, or worse? Big hugs!
**TW**
Me: 35 | H: 40 Married Sept. 2013 DS1: Nov 11, 2016 MMC: 11/16/18 (9w6d) CP: 2/3/19 (5w3d) BFP! 8/24/19 DS2: May 10, 2020
It's all still so weird. Doing my Dr Google research, if it is TRAP (the acronym for the acardiac twin syndrom ) doing nothing there's only a 25-50% chance of survival for the twin with a heart. Doing a procedure to cut off the mass twin increases survival anywhere from 67-90% but the procedure could cause miscarriage or deformities to the viable twin.
I feel like I'm just waiting away this pregnancy and can't enjoy it. I can't let myself connect because they might decide at the next appointment that there's too much of a risk or something and I'll lose the viable twin.
We were planning on telling people at Thanksgiving as I'll be 12 weeks next week but now we've decided we'll hold off until Christmas. People at work keep questioning why we're both taking time off, so MH has decided I should just tell them the appointments are at dartmouth and they're for him and if they have questions ask him about it. Well up here when ever anyone hears dartmouth they think cancer as our area is a huge cancer cluster and people end up going down there for it.
Both the colleagues we have that had babies the same year we had dd announced they are having their second and now questions are up about us and we keep taking time off together so they're questioning it even more. I'd like tell people but I don't want to have to go through explaining everything every time or having to explain that it's over if it is over. I also don't want MIL to know because she'll cry and make it all about her which drives me absolutely crazy. (her friends husband died and she had the nerve to message her friend on Facebook telling her she was upset that she didn't tell her about his death and she had to hear about it from someone else, she also had a pity party and left dd's baby shower early because her mother, MIL, and MH's father were not there because they passed away 3 years earlier).
@jhysmath I’m just now getting here for the update. I’m so sorry you’re still in limbo. I’ll be hoping and praying for the best possible outcome for you, and that the Panorama will give some more clarity.
@jhysmath Sending positives thoughts your way! It must be such a frustrating situation, and to feel like you are just constantly waiting for the other shoe to drop. Hang in there lady!
@jhysmath I get that. How far is a drive is Dartmouth for you? If you get to a point of needing to be there for more than just one day at a time, look into David's House. I absolutely love their mission. They were founded on the idea of a little boy named David, who while being treated at Dartmouth used to hate seeing people with nowhere to stay while they or their loved ones were in treatment, and he told his parents he wanted to take them all back to stay with him at his house. You don't pay a cent to stay there. ❤️
ET fix typo
**TW**
Me: 35 | H: 40 Married Sept. 2013 DS1: Nov 11, 2016 MMC: 11/16/18 (9w6d) CP: 2/3/19 (5w3d) BFP! 8/24/19 DS2: May 10, 2020
@shamrocandroll it's only 2.5 hours it's just a lot of driving for those 20 minute appointment every week or every other week in the third trimester. I already drive 1.5 hours to be seen so it's not much more than that, just I hate driving.
@jhysmath I'm sorry you're still stuck in limbo, but thankfully there is still a chance. I'll be rooting for you and your lo, hopefully everything turns out fine!
Re: Tw still have no idea what's happening.
ETA: spelling
Married Sept. 2013
DS1: Nov 11, 2016
MMC: 11/16/18 (9w6d)
CP: 2/3/19 (5w3d)
BFP! 8/24/19
DS2: May 10, 2020
Married Sept. 2013
DS1: Nov 11, 2016
MMC: 11/16/18 (9w6d)
CP: 2/3/19 (5w3d)
BFP! 8/24/19
DS2: May 10, 2020
DD2 born 9/10/17
- BFP: 3/10/16 — Baby Girl born 11/20/16
TTC#2 April 2019BFP1 04/24/2015 EDD Dec 2015 MMC 10W5d;
BFP 2 09/25/2015 EDD June 2016 MMC 9wks;
BFP 3 03/22/2016 EDD Dec 6th 2016
I'm doing the panorama test to defintely rule out triploidy, but I'm still in limbo. I'm going back to dartmouth after Thanksgiving for them to check again to see if it is an acardiac twin.
DD2 born 9/10/17
- BFP: 3/10/16 — Baby Girl born 11/20/16
TTC#2 April 2019Eta: did they tell you how big the mass was? Hoping it's small. ❤❤
FTM
BFP: 9/5/19 ~ EDD 5/15/20
Married Sept. 2013
DS1: Nov 11, 2016
MMC: 11/16/18 (9w6d)
CP: 2/3/19 (5w3d)
BFP! 8/24/19
DS2: May 10, 2020
I feel like I'm just waiting away this pregnancy and can't enjoy it. I can't let myself connect because they might decide at the next appointment that there's too much of a risk or something and I'll lose the viable twin.
We were planning on telling people at Thanksgiving as I'll be 12 weeks next week but now we've decided we'll hold off until Christmas. People at work keep questioning why we're both taking time off, so MH has decided I should just tell them the appointments are at dartmouth and they're for him and if they have questions ask him about it. Well up here when ever anyone hears dartmouth they think cancer as our area is a huge cancer cluster and people end up going down there for it.
Both the colleagues we have that had babies the same year we had dd announced they are having their second and now questions are up about us and we keep taking time off together so they're questioning it even more. I'd like tell people but I don't want to have to go through explaining everything every time or having to explain that it's over if it is over. I also don't want MIL to know because she'll cry and make it all about her which drives me absolutely crazy. (her friends husband died and she had the nerve to message her friend on Facebook telling her she was upset that she didn't tell her about his death and she had to hear about it from someone else, she also had a pity party and left dd's baby shower early because her mother, MIL, and MH's father were not there because they passed away 3 years earlier).
ET fix typo
Married Sept. 2013
DS1: Nov 11, 2016
MMC: 11/16/18 (9w6d)
CP: 2/3/19 (5w3d)
BFP! 8/24/19
DS2: May 10, 2020