NT/NIPT Discussion Thread - Page 2 — The Bump
October 2019 Moms

NT/NIPT Discussion Thread

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Re: NT/NIPT Discussion Thread

  • cmbt2cmbt2
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    emily1052 said:
    Just an FYI, the out of pocket cost for my NIPT (Panorama) is $650.  
    Luckily my insurance covers it but thought the info might be helpful for some of you. 
    When you call them, they drop the price. Something about being unable to charge that full amount if you call to pay within 30 days
    BFP #1 3/07, EDD 11/12/07, MMC 5/7/07
    ~~~  ~~~  ~~~
    BFP #2 5/4/14, EDD 1/15/15, DS1 1/19/15
    BFP #3 8/19/16, EDD 4/30/17, DS2 4/25/17
    BFP #4 12/22/18, EDD 9/6/19 - CP 12/29/18
    BFP #5 1/18/19, EDD 10/3/19, It’s a Girl!
    ~~~  ~~~  ~~~
    High Risk Dx (6/14):  Homozygous MTHFR C677T, protein C & S deficiencies
    emily1052
  • May I ask what these abbreviations stand for? I think I know the NT, but I'm not positive. I did scan to see if it was answered, but maybe I overlooked it.
    Lilypie Pregnancy tickers
  • cmbt2cmbt2
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    meagan-t said:
    May I ask what these abbreviations stand for? I think I know the NT, but I'm not positive. I did scan to see if it was answered, but maybe I overlooked it.
    NT- Nuchal translucency, ultrasound screen usually with blood work
    NIPT- non invasive prenatal test. The tests that draw the mother’s blood and looks for fetal cells within to do genetic screens
    CVS- chorionic villus sampling, invasive test that draws cells from the placenta and makes genetic determinations 
    BFP #1 3/07, EDD 11/12/07, MMC 5/7/07
    ~~~  ~~~  ~~~
    BFP #2 5/4/14, EDD 1/15/15, DS1 1/19/15
    BFP #3 8/19/16, EDD 4/30/17, DS2 4/25/17
    BFP #4 12/22/18, EDD 9/6/19 - CP 12/29/18
    BFP #5 1/18/19, EDD 10/3/19, It’s a Girl!
    ~~~  ~~~  ~~~
    High Risk Dx (6/14):  Homozygous MTHFR C677T, protein C & S deficiencies
    meagan-tandromedacorrine2
  • @geminigirl16 I agree completely. Do all the testing! Get all the peace of mind! :) I’m doing the same thing. This time we’re doing NIPT in addition to chorionic villus sampling . The CVS is to test for CHARGE syndrome. Our first baby had CHARGE. And unfortunately, NIPT doesn’t screen for CHARGE.

    I’m trying to understand your doctor’s recommendations... NIPT (non invasive prenatal testing) is a blood screen. What kind of blood test is she scheduling in addition to that?
  • cmbt2cmbt2
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    @geminigirl16 I agree completely. Do all the testing! Get all the peace of mind! :) I’m doing the same thing. This time we’re doing NIPT in addition to chorionic villus sampling . The CVS is to test for CHARGE syndrome. Our first baby had CHARGE. And unfortunately, NIPT doesn’t screen for CHARGE.

    I’m trying to understand your doctor’s recommendations... NIPT (non invasive prenatal testing) is a blood screen. What kind of blood test is she scheduling in addition to that?
    Going to be me and say it sounded to me like it was the general NT bloodwork 🤷🏼‍♀️ 
    BFP #1 3/07, EDD 11/12/07, MMC 5/7/07
    ~~~  ~~~  ~~~
    BFP #2 5/4/14, EDD 1/15/15, DS1 1/19/15
    BFP #3 8/19/16, EDD 4/30/17, DS2 4/25/17
    BFP #4 12/22/18, EDD 9/6/19 - CP 12/29/18
    BFP #5 1/18/19, EDD 10/3/19, It’s a Girl!
    ~~~  ~~~  ~~~
    High Risk Dx (6/14):  Homozygous MTHFR C677T, protein C & S deficiencies
  • I feel so behind, I had a blood draw at my 9+2 appointment last week and they asked me about screening for Trisomy and Downsyndrome, I have a special U/S scheduled for it in 2 weeks but I  somehow didn't realize that that and NT were the same thing. I'm joining this thread now and plan to read up more on this testing and alternatives.

    Thanks for sharing ladies and so sorry to the moms here who lost their babies :(
    andromedacorrine2
  • @PleaseSendPicklesNow I assume that it is the regular blood work that they generally do like @cmbt2 mentioned although I have no idea what that is since I’ve never done it before. My NIPT was one vial and that was it! I really wasn’t expecting her to change her recommendations with this pregnancy and may still push for the NIPT regardless of the NT results.  

    I am sorry about your experience with CHARGE. I am hoping that you have good results with all your tests. 
    PleaseSendPicklesNow
  • They took four vials for my NIPT draw and two of the vials were pretty big. I did the Panorama with Horizon. 
    Me: 34 DH: 49 Married October 2015
    TTC #1 since July 2018
    galentineemily1052
  • cmbt2cmbt2
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    elle-0409 said:
    They took four vials for my NIPT draw and two of the vials were pretty big. I did the Panorama with Horizon. 
    The big ones were likely for the carrier screen. I remember they drew quite a bit when I had it done with DS1.
    BFP #1 3/07, EDD 11/12/07, MMC 5/7/07
    ~~~  ~~~  ~~~
    BFP #2 5/4/14, EDD 1/15/15, DS1 1/19/15
    BFP #3 8/19/16, EDD 4/30/17, DS2 4/25/17
    BFP #4 12/22/18, EDD 9/6/19 - CP 12/29/18
    BFP #5 1/18/19, EDD 10/3/19, It’s a Girl!
    ~~~  ~~~  ~~~
    High Risk Dx (6/14):  Homozygous MTHFR C677T, protein C & S deficiencies
    elle-0409
  • Well crap, @elle-0409! Sorry you had to give so much!
    elle-0409
  • @galentine LOL! No worries. I’m treating myself to a decaf iced coffee now. 
    Me: 34 DH: 49 Married October 2015
    TTC #1 since July 2018
    galentinestephanie123456
  • @emily1052 Congrats!! That’s such a huge sigh of relief! So, so happy for you. ❤️❤️
    Me: 34 DH: 49 Married October 2015
    TTC #1 since July 2018
    emily1052
  • @elle-0409 And @galentine I got my results back in 7 days.  I actually called because I didn’t want to wait all weekend.  Hope you both get yours back just as quickly! 
    galentineelle-0409
  • @emily1052, what did you end up deciding about the NT scan?
  • galentine said:
    @emily1052, what did you end up deciding about the NT scan?
    We decided not to schedule one, yet.  We have our 12 week appointment on Thursday and will ask all my questions.  However we feel pretty good with our odds from the bloodwork results.  I’ll let you know if anything changes after our appointment.  
    How are you holding up waiting on your results? 
    galentine
  • galentinegalentine
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    edited March 19
    @emily1052, I'm pretty anxious. I'm obsessively checking the status of my test (as if it will switch from "processing" to "lab review" since I last checked it 5 minutes ago 🙄). The results are expected to be returned to me on Saturday, although I'm tempted to call my provider Friday to see if they have the results yet.
  • @galentine I felt the same exact way.  I had my blood drawn on Friday and called the following Friday and my results were in.  If I were you, I’d definitely be calling Friday.  
    It’s nice that you were able to follow the processing!  I didn’t get a case number so I couldn’t.  Fingers crossed you get the results Friday and everything is low risk! 
    galentine
  • Hey all!! FTM here and will most likely be doing the NIPT test next week. Question-is it recommended to do NIPT prior to the NT scan? I’m getting all these tests mixed up and for the life of me can’t remember what my doctor said  :# so much information and it’s so overwhelming! Thanks
  • cmbt2cmbt2
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    fit-mom2b said:
    Hey all!! FTM here and will most likely be doing the NIPT test next week. Question-is it recommended to do NIPT prior to the NT scan? I’m getting all these tests mixed up and for the life of me can’t remember what my doctor said  :# so much information and it’s so overwhelming! Thanks
    They’re generally done same day if you do both
    BFP #1 3/07, EDD 11/12/07, MMC 5/7/07
    ~~~  ~~~  ~~~
    BFP #2 5/4/14, EDD 1/15/15, DS1 1/19/15
    BFP #3 8/19/16, EDD 4/30/17, DS2 4/25/17
    BFP #4 12/22/18, EDD 9/6/19 - CP 12/29/18
    BFP #5 1/18/19, EDD 10/3/19, It’s a Girl!
    ~~~  ~~~  ~~~
    High Risk Dx (6/14):  Homozygous MTHFR C677T, protein C & S deficiencies
  • @cmbt2 thanks! Apparently the NT is done offsite and the NIPT is done at my OB, so I wasn’t sure when to do what 🙈 Appreciate the help!
  • @fit-mom2b I did my NIPT blood work last Friday and will have my NT done this Friday. I chose to do them on different days because, like you, they are not performed in the same location. Plus, I knew that I could get the NIPT done as early as 10 weeks, (though I waited until 11). Good luck!
    Me: 34 DH: 49 Married October 2015
    TTC #1 since July 2018
    fit-mom2b
  • @elle-0409 Thanks so much!!! I appreciate it ❤️
    elle-0409
  • I had my Panorama test done last Thursday and I’m eagerly awaiting my results. I should hear hopefully hear back before the end of the week. The wait is grueling. 
    emily1052elle-0409cooaladolly
  • @galentine yay!!!  Looking forward to the update!!! 
    galentine
  • @galentine OH MY GOSH!!!!! I'm dying!! Update us, please! <3 <3 <3
    Me: 34 DH: 49 Married October 2015
    TTC #1 since July 2018
    emily1052galentine
  • galentine said:
    All results came back low risk! I did not even realize how anxious I had been waiting for the results until I was crying tears of relief. ❤❤❤
    Yay!!!  I’m so happy for you and your growing family!!  Now I’ll be (im)patiently waiting for you to reviel the sex 😂 even if we have to wait another 6 months.
    galentinenovicemamacooaladolly
  • @galentine YAAAAYYYYY!!!! I’m so happy for you!!!! 🎉🎊🎉🎊
    Me: 34 DH: 49 Married October 2015
    TTC #1 since July 2018
    galentine
  • Such good news @galentine! Now you can hopefully ease into that second tri and coast on through!
    Me: 41 / Fiance: 35 =  One DS, one dog & two kitties... Engaged 5/23/2015, TTC since January 2015
    First BFP: 1/17/16 (18 dpo) = EDD 9/21/16 (MMC; Betas 136 on 2/1 & 103 on 2/3)
    Second BFP: 6/24/16 (16 dpo) (CP confirmed by blood test)

    Third BFP: 2/7/17 (13 dpo) = EDD 10/20/17 *** BORN 10/23 *** We got our Rainbow!


    And the newest... Fourth BFP :2/5/19 (15 dpo?) = EDD 10/14/19

         BabyGaga
    galentine
  • Does anyone else's insurance require a prior authorization for the Panorama or similar blood tests?  It wasn't even an option for me when I had my second son (he will be three in May) but I would really like to do the early blood test this time around.  I'm not sure if I would qualify under insurance since this is my 3rd pregnancy.  I don't have any known complications and I am under 35. 
  • cmbt2cmbt2
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    Does anyone else's insurance require a prior authorization for the Panorama or similar blood tests?  It wasn't even an option for me when I had my second son (he will be three in May) but I would really like to do the early blood test this time around.  I'm not sure if I would qualify under insurance since this is my 3rd pregnancy.  I don't have any known complications and I am under 35. 
    This is my situation with insurance, and I have yet to hear of anyone getting the approval. I pay out of pocket for it 
    BFP #1 3/07, EDD 11/12/07, MMC 5/7/07
    ~~~  ~~~  ~~~
    BFP #2 5/4/14, EDD 1/15/15, DS1 1/19/15
    BFP #3 8/19/16, EDD 4/30/17, DS2 4/25/17
    BFP #4 12/22/18, EDD 9/6/19 - CP 12/29/18
    BFP #5 1/18/19, EDD 10/3/19, It’s a Girl!
    ~~~  ~~~  ~~~
    High Risk Dx (6/14):  Homozygous MTHFR C677T, protein C & S deficiencies
  • @lmarie2009 I suspect mine will require it as it is genetic testing and they just changed their policy for that this year. But have not yet made it that far. Last time I called and asked about it they told me if my Dr deemed it medically necessary, it would be covered. Obviously every insurance is different but I think it would be difficult for your Dr to convince that in your situation.


    I finally tried to talk to DH about wanting to get it done. He didn't really seem to understand why (even with the loss history). I feel like he's mostly worried about me worrying for nothing, which I do understand. I'm so torn on which way to go.
  • @lmarie2009 I was under 35 my last pregnancy in 2017, not high risk, and my insurance covered 100%. I talked with the NIPT company first (don’t remember which one), they gave me the billing codes, and then I called my insurance company to ask what would be covered. I was pleasantly surprised. 

    This time around my doctor uses a different NIPT company. They said that after the blood is drawn, the company will contact my insurance and figure out how much I owe and then email me the quote. If I don’t want to pay that amount then I can tell them I don’t want them to run the test. 

    Bottom line: worth a phone call to panorama and your insurance company. The billed amount to my insurance last time was something crazy like $15000. 
    BabyFruit Ticker
  • Thanks All!

    @greenbean-2, I didn't think about calling the company for the billing codes!  I will try that!

    I appreciate everyone's help.
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