May 2017 Moms

Possible Growth Restriction/Skeletal Dysplasia UPDATE

13

Re: Possible Growth Restriction/Skeletal Dysplasia UPDATE

  • Hopefully that means good news! It's just too bad they haven't done a better job of communicating with you.
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  • Fingers crossed for you @hp_momma! Maybe one of his nurses or whoever was covering for him put the referrals in when he left for that training or whatever and he cancelled it when he got back and saw? 

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  • Thinking of you! Hope Friday goes well <3

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  • edited March 2017
    How strange but also hoping that means good news! Do you have an appointment with the doc coming up?
    ETA. I'm special and didnt read Friday... hope you get good news!
  • SKZWSKZW member
    Canceling the tour sounds like a step in the right direction! Good luck Friday!
  • Hoping it was good news.  I was wondering how you were doing....
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  • Well that does sound positive! so hoping your friday appt goes well!
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  • Fingers crossed for you! Is there any way he'd discuss it over the phone? Friday seems so far away!
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  • Fingers crossed it's good news! It sounds positive!

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  • I hope that's a good sign and wishing you a good appointment this Friday.

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    02.2013 - loss at 6 wks

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    03.2017 - DD

  • FX for you!!

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  • That sounds pretty positive to me!! I hope you get some answers on Friday! 
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  • edited March 2017
    @hp_momma have you ever asked to be referred to Seattle Children's for further diagnosis?  All of my care there has been paid for by the navy.  I'm just wondering if they referred you there could you get some real answers?  I know I got some really good information and care when I was sent there for my little one.  Those doctors really know what they're talking about.  

    Sorry lurking from June 
  • vrj0522vrj0522 member
    edited March 2017
    FX for good news during your appointment on Friday!
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  • Wearmi1 said:
    @hp_momma have you ever asked to be referred to Seattle Children's for further diagnosis?  All of my care there has been paid for by the navy.  I'm just wondering if they referred you there could you get some real answers?  I know I got some really good information and care when I was sent there for my little one.  Those doctors really know what they're talking about.  

    Sorry lurking from June 
    Are you kidding me? 

    I'm about to go all "girl hold my earrings". 

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  • By all means hold your earrings.  I've spoken to her before we're in the same geographic area and she's seen some of my posts about what I've gone through with my baby.  
  • @Wearmi1 is cool in my book, she's a reg in June. No harm in showing support here as well instead of being limited to only her month


  • I think @WombThereItIs is frustrated by the dig at Military doctors inferred in @Wearmi1 comment 
  • @bacorrea well I've been in the Navy 16 years.  I've MORE than experienced the military healthcare system. 
  • Wearmi1 said:
    @bacorrea well I've been in the Navy 16 years.  I've MORE than experienced the military healthcare system. 
    Thanks for your service! 
    I'm not here to argue. Just clarifying. I've had amazing medical care through the military and crappy medical care. Same in the civilian world. It's not all cut and dry. 
  • I'm not here to argue either.  My baby has a brain issue. I was referred to children's for more adequate care and diagnosis.  
  • @bacorrea Thanks for clarifying if that ends up being the case. I don't see any dig personally, but then again I have no experience/knowledge though I have been fascinated by some of the discussions that have occurred revolving around military life/healthcare. My first thought was the fact that she was not the first June person to come over to May today, and it's been brought up in random.


  • Wearmi1 said:
    I'm not here to argue either.  My baby has a brain issue. I was referred to children's for more adequate care and diagnosis.  
    I hope you're getting the care you need for your baby! Best wishes to you and your family.
  • FX for you as well. Looking forward to your update on Friday.

    DS1 7/24/15

    DS2 5/7/17

  • Definitely sounds like a positive update!  FX that you get some good news on Friday.
  • FX for good news on Friday! Please keep us updated :) 

    #1 DD Aug 2014 @39weeks via CS

    #2 Due May 2,2017 hopeful VBAC

  • @hp_momma You have a great attitude and that'll help tremendously. I'm sorry you and your family are going through this, but it sounds like you're seeking and getting the care and answers you need. Thinking about you!!
  • Hoping you had a good appointment today! 
  • @hp_momma I'm so happy you got good news at your appointment! FX numbers and kidneys continue to improve.
  • oh my, how adorable is he?!
    Married 6/5/14 in Ireland
    1st Baby 5/12/17, Henry
  • So happy for you and this awesome news!! 
  • What a great update! I hope things continue to look up! I'm glad you got clarification on the whole nicu tour thingas well.


  • Hooray for a great appointment!!  That's awesome!
  • I love your update! So glad everything went well!
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    BFP #5 8/19/2016 DS2 born 4/29/2017
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  • So happy to hear the news and to see that adorable little face!
  • How wonderful!! Glad the appointment went well!
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