May 2017 Moms

Possible Growth Restriction/Skeletal Dysplasia UPDATE

24

Re: Possible Growth Restriction/Skeletal Dysplasia UPDATE

  • I'm so sorry you guys are going through this!!  The unknown would drive me nuts as I would just want to know what I should be planning for.  I hope the appointment today goes well!
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  • schnitz9 said:

    @hp_momma I'm sorry you're going through this. Being in limbo is terrifying and so frustrating. I have growth scan next week since my doc is starting to expect IUGR as well.  At our anatomy scan the baby was measuring at where he should have been for 18 weeks, but was still a little on the smaller side. Since then they have become concerned since im still loosing weight at 27 weeks and my fundal height is behind so they wanna take a look.  They did the same thing to me when I was pregnant with my son 2 years ago and he is a perfectly healthy 2 year old.  He's just as the ped says "on the petite side". He's currently at 2 years in the 10% for height.  My husband is only 5'8" and I'm only 5'3" so it kinda makes sense.

    It's positive to see that while yes the baby is still measuring small the % is still the same and not getting worse.  I was told that that is actually a good thing last time.  Hoping all goes well and you little nugget is just petite like my little guy.....we are all here for support and I'm glad you're sharing your story with us

    Thank you for sharing your story and I'm sorry your having to go through the uncertainty too! I keep trying to remind myself how nice it is to see LO at so many ultrasounds where usually I would have seen him for the last time at 20wks! 

    DH is 6ft and I'm 5'8 so it's a little out of the ordinary that we would have little peanuts, but my grandma also reminded me recently that my 6'5 dad was born tiny at only 6lbs! My DD1 is around 40% for height at 5yrs but DD2 is quite the peanut at 9%! It's actually something that we have been following with her pediatrician, so in the back of my head I'm wondering if this LO is along the same lines as his sister or if there is some underlying genetic condition between both of them. 
    Married 03.09.09
    Sweet Baby H 12.21.11
    Sassy Baby P 03.26.14
    Little Brother Due 05.22.17
  • @hp_momma , I know this is definitely not the same situation that you are dealing with, but during my pregnancy with DS, at every US all of his parts were measuring very average, but his abdomen measured in the 98th percentile. The doctors were concerned (leading to me having to do multiple glucose tests because GD can cause that), but they could never put their finger on a diagnosis. He was born and his abdomen was definitely a little big, but now at 2.5 years old, everything has averaged out and it seems like it was just the way his body developed. Now, pregnant with DD, at every ultrasound her abdomen is also measuring large (around 95th percentile) while everything else is average. Sometimes I think that these precise ultrasounds can pick up on "problems" that turn out to be nothing or just minor blips on the developmental rada...I sincerely hope that is the case for you, but if not, it sounds like you are in good hands! <3 
    Babysizer Cravings Pregnancy Tracker
  • I'm sorry you're going through this. Thinking of you and hoping today goes well. 
  • Oh no! Sending lots of hope and positive thoughts your way! I'm so sorry you've got this to worry about. If you need anything, let us know!!

    Married:09/14/13 
    Baby 1-Born: 7/29/15
    Baby 2 - Due: 5/4/17
  • Sounds like a positive update to me! :) 




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  • Glad to hear that growth is looking positive!! 
  • @hp_momma Good to hear from you. Sounds like a reassuring ultrasound despite the uncertainty! Keep up the good work growing that little one <3

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  • Sounds positive! Fingers crossed he continues to grow! 
  • Yay!! I'm so happy to hear this update! Hopefully it reduces the stress a bit between now and your next ultrasound! 
    Babysizer Cravings Pregnancy Tracker
  • That sounds like a great update!  Glad little one made it to 10%ile!!!  Hoping the current trajectory continues :)
  • @hp_momma just saw your update.  That's great news! Hope the good growth continues!
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  • Sounds like you got positive news today! That's amazing! Grow baby grow!
  • That all sounds like wonderful news!! 
  • Hooray for good news! 
    Babysizer Geeky Pregnancy Tracker
  • Yay, sounds like good news! Hope all continues to go well :)

    #1 DD Aug 2014 @39weeks via CS

    #2 Due May 2,2017 hopeful VBAC

  • Excellent news! Glad to hear
  • Good news, I'm glad to hear it!
  • Yay! Glad to hear you got some good news today!!
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  • I'm sorry you have to go through this stressful uncertainty, but happy for the positive update!

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  • I'm glad there's a positive update. I'm so sorry you're facing scary unknowns though. Big creepy internet hugs. Please keep us updated!
    TTC1: May 2015
    Primary IF May 2016; Failed HSG; Scheduled Lap Sept. 2016
    BFP: August 22, 2016/EDD: April 29, 2017
    DD: May 1, 2017
    TTC2: June 2019
    CP September 2019
    Lap and repeat HSG scheduled December 2019
    BFP: November 24, 2019/EDD: August 2, 2020
  • Yesterday the pediatric geneticist called me to introduce himself and then today a representative from the NICU called me to schedule a time for me to meet the neonatologist and tour the NICU. Both of these phone calls were apparently "referrals" from my MFM doctor that I didn't know where coming. 

    I'm feeling very overwhelmed. Every conversation we've had with the MFM doctor has been one of three scenarios; skeletal dysplasia, IUGR, or absolutely nothing wrong. I've had multiple conversations about how I more than likely will deliver around 38-39wks. I feel blindsided. Like he either isn't telling us the whole picture and there is more that we should be worried about or he is being super overly cautious. All of these phone calls, upcoming appointments, ultrasounds, NSTs are making me feel very stressed and I'm not sure what I'm supposed to be thinking. Am I supposed to be more worried than I am? Is the likelyhood that something is wrong higher probability than what I think is going on? Why do I need to meet with the NICU if I should deliver around 38wks? 

    DH is an optimist and keeps saying "there is probably nothing wrong with the baby" and that the doctor is just "typical overly cautious military". I know it's partly his defense of trying to push the negative thoughts away but I feel like it's mostly on my shoulders. Plus he's getting ready to leave for weeks and it literally will just be me at the appointments/meetings. 

    Sorry for the vent session and AWing myself, I just needed to write it all down and get it all out to relieve some stress. 
    Married 03.09.09
    Sweet Baby H 12.21.11
    Sassy Baby P 03.26.14
    Little Brother Due 05.22.17
  • @hp_momma sorry you're going through all of this! I can imagine how stressed you must feel and even though your H is trying to stay positive (mine does this too) you still feel like you're carrying it all on your shoulders. Hang in there and you vent all you want! 




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  • mdlorenz said:
    @hp_momma I hear you about feeling overwhelmed. I've found that the extra consults can help make the unknowns less scary. Knowing what to expect with the worst case scenario in mind may end up being unnecessary but might save some of the grief if that scenario does occur and you weren't at least a little prepared. Not to say how you should feel about all of this by any means. Solidarity hugs, mama!
    The unknown makes it so overwhelming. But I think your right that it may ease some of my stress if I know what to expect in the worst case scenario. When the NICU representative today called she said I should prepare a list of questions to ask the neonatologist. I have no idea even what to ask when I don't know the scenario, which I think made me more overwhelmed. 
    Married 03.09.09
    Sweet Baby H 12.21.11
    Sassy Baby P 03.26.14
    Little Brother Due 05.22.17
  • @hp_momma I am totally with you about not knowing what the heck to ask about. DH is not in the medical field so he's usually the one with the best questions. Essentially, he wants to know 1) what their best guess is about what is going on, 2) how we got here, and 3) what comes next. Having MFM and neo lay out those basics helped him / us a lot (e.g. MFM went all the way back to how twins form to postulate how we ended up with one very average baby and one really struggling baby, then got into where the evidence is about how to manage what we think is going on, and how that affects other decisions [or prior wishes] like mode of delivery, timing of delivery, etc; neo met with us on day 1 of admission and went head to toe talking about how our babies might need support and what items would need to be "checked off" before they can graduate). 

    So so sorry to hear you'll be flying solo for appts. Not easy in any case. 

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  • I know I'm not quite in your league but I'm having the uncertainty feelings as well. This vague limbo waiting for the bad stuff to happen. Had a Dr's appointment every day or night last week till Saturday. Definitely hoping you get dome answers soon for your lo. I do remember when I was in the army they just love to dole out tests and consults. That's a plus to civilian medicine who are stingy or less inclusive. I'm glad to hear nothing wrong is an option and fx that you lo ends up in that category 
  • @hp_momma Not quite sure how military medicine works, but is there a way you can call or email your doctor to inquire about the reason(s) for the referrals? It might ease your mind a bit hearing it directly from the source... 

    Sending lots of good vibes your way and hoping you're able to de-stress a bit tonight. 

    DS1 7/24/15

    DS2 5/7/17

  • I'm so sorry you're going through all of this and I hope that we get good news about you and your LO soon. Hang in there!

    When I was pregnant with DD we got and IUGR diagnosis because she was measuring small. I had to go into the high risk center 2 times a week for monitoring, had to change my diet to pack in more protien and felt overall miserable because she's my rainbow baby and I was terrified about not knowing what to expect. Fast forward to now I have a very tiny almost 2 year old with a spunky personality who was wrongly diagnosed because it turns out a low percentage (I can't remember what) of babies diagnosed with IUGR actally really have a growth restriction. According to DD's pediatrician, she's just petite, but perfectly healthy.
  • If the MFM is at training someone should be covering his TCONs (when you leave a message via the scheduler or nurse). Also if they have you guys using Relay Health and the doc is on there someone should be covering those while he is out at well. Either way someone should get back to you within 3 days. 

    May '17 labor memes
  • @hp_momma sorry for the surprising consults!  I would be worried that I should be more stressed too but hopefully like PPs said they are just being cautious and are trying to help ease your mind.  Since DH is going to be away for several of your appointments is there any chance you have someone you could take with you to either help you listen or to come up with more questions?  Obviously I have no idea what DH schedule is like but is it possible for him to face time for the appointments if ok with the provider? It helps so much to have a second set of ears when learning about stressful situations.  Hoping these appointments will help you know what to expect in worst case scenario.  
  • Crossing my fingers that means good news!
    Married 6/5/14 in Ireland
    1st Baby 5/12/17, Henry
  • Hopefully that means good news!!
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