Cycling Out of State Is Wearing On Me... — The Bump
Infertility Veterans

Cycling Out of State Is Wearing On Me...

I went for my first out-of-state consult in December 2011 and have been cycling out of state ever since. I feel like I have to beg to get tests and b/w done by doctors who aren't "treating" me. I feel like I'm annoying or bothering them from their "real" patients. Plus having to explain why I have to travel vs cycling locally is wearing on me. It's like being in No-Man's Land. I was told today I need to get another sonohysterogram in a few weeks since I had a "uterine procedure" last week. Beta was 18 yesterday and my OB said it was good enough. Umm, not for the RE.... I just don't have any more left to fight people to get tests done --"why do you need that again", "that's not why you aren't getting pg", "we don't know if insurance will cover it" ... I moved last summer and the miscarriage debacle taught me that I need a gyn in my current city and not an hour away. It was an act of congress to get an appt with anyone!! I feel like a junkie who has prescriptions filled at 10 different doctors... "Who did the last saline sono"----need to call someone else this time to avoid the "looks". Just venting..

TTC #1 since 8/1/10; Me:41 and BRCA1+, DH:46
DOR (FSH 24.3)/ terrible egg quality ; homozygous MTHFR c677t
5 IUI's: 2/11 to 6/11 and 1/12= BFN
OE IVF#1-4 8/11-6/12= all BFN
DE IVF#1 11/12 bad embryos= BFN
DE IVF #2 2/13 BFP/Beta hell: m/c 5w6d
CFNBC 7 months, not doing well; decided on guarantee program at RBA w/frozen DE
DE IVF #3 1/14  ET 4BB; BFP;M/C 5w1d, incomplete m/c; MVA extraction in ER 7w1d

DE FET#1 ET 3/1714; BFP, beta 1 3/27= 197, beta 2 3/31= 1586, beta 3 4/7= 13879!!
First u/s= Twins with HBs at 6w2d! We are Team Pink x 2!!

K & K born 11/21/14 at 38wks 4 days

imageimage

SAIF/PAIF Welcome


http://waitingforraintostop.wordpress.com

Re: Cycling Out of State Is Wearing On Me...

  • At first I tried to go through a local OB for out of state monitoring, and it felt like a battle between doctors trying to call the shots. I eventually figured out that it was easier to have the lab, testing, and ultrasound requests sent directly from out of state dr to the lab, hospital, or dedicated ultrasound facility rather than going through a local doctor. I did need an OB for an updated PAP, but that was it. It's good to have a local doctor you can call for emergencies, but I'd just try to have RBA handle all the testing requisitions to the actual testing facilities who aren't going to question everything. I know my clinic had staff just to help out of state and international patients coordinate services and care -- hopefully RBA has something like this too, so all the coordination isn't on you?

    This adds just another layer of hair pulling. I'm sorry :(

    Married 8/2008. IVF with PGD March 2013.
    3/22 ER: 25R, 20M, 15F. 9 genetically normal, and 3 survived to Day 5
    3/27 ET: transferred 1 embryo, beta 9dp5dt=163, 12dp5dt=639
    4/25 1st ultrasound at 7 weeks = identical twins with heartbeats?!!!
    PPROM at 31w, delivery at 32 weeks of two beautiful girls
    image
  • I am so sorry you are having trouble. My OB who is local became my point person whatever needed to be ordered her sec did. If the insurance would cover it they ordered it and I had all my blood done at their office or the assoc hospital. Purple is right, however if they won't so that get in with an OB or gyn. If you are near Dedham Ma I can give you the name.
    6 m/c
    Anovulatory cycles, increased Synthroid Diagnosed Sep 2010
    Natural cycle Dec 2010 BFP M/C 6 1/2 Weeks, D&E Jan 2011
    1 Clomid/Ovidrel BFN May 2011
    Natural cycle Aug 2011 BFP M/C 4 Weeks
    1 IUI Sept 2011 BFP M/c 7 weeks
    Provera Dec 2011 BFP M/C 3 Weeks
    DQ ALPHA HLA MATCH, High NK Cells Diagnosed Dec 2011
    IVF March 2012 BFP m/c 4weeks 5 days (IL, Prednisone)
    IVF#2w/DS July 2012 MEGA FAILURE BFN (IL, Dexamethasone)
    Diagnosed No real HLA Match, DQ Beta Triad, High TNF, Low NK Cells
    Oct 2012 Natural Cycle m/c 4wks (Lovenox, Prednisone) 
    Went to Beer Center- high tnf, low lad, implantation failure
    Nov/Dec 2012 LIT Treatment
    Dec 12 Humira
    Jan 2013 BFP
    Humira,LIT,Prednisone, Lovenox, IVIG, Baby Aspirin
    Miracle Born August 2013 Premature

    Yours doesn't have to be a sad story



    image
    image


    Lilypie - (ugiy)


  • I have an appt 3/5 with a new gyn who is local and I will ask if she will run tests when I need them. Several places I called would not even let me past the front desk and wanted to give me an annual appt next October and blocked me as soon as I said what I needed... 

    Thnx luv-Dedham is too far. I'm in Worcester.. My old gyn in Prov is same distance as Dedham and that's too far when you feel l like sh!t!!

    TTC #1 since 8/1/10; Me:41 and BRCA1+, DH:46
    DOR (FSH 24.3)/ terrible egg quality ; homozygous MTHFR c677t
    5 IUI's: 2/11 to 6/11 and 1/12= BFN
    OE IVF#1-4 8/11-6/12= all BFN
    DE IVF#1 11/12 bad embryos= BFN
    DE IVF #2 2/13 BFP/Beta hell: m/c 5w6d
    CFNBC 7 months, not doing well; decided on guarantee program at RBA w/frozen DE
    DE IVF #3 1/14  ET 4BB; BFP;M/C 5w1d, incomplete m/c; MVA extraction in ER 7w1d

    DE FET#1 ET 3/1714; BFP, beta 1 3/27= 197, beta 2 3/31= 1586, beta 3 4/7= 13879!!
    First u/s= Twins with HBs at 6w2d! We are Team Pink x 2!!

    K & K born 11/21/14 at 38wks 4 days

    imageimage

    SAIF/PAIF Welcome


    http://waitingforraintostop.wordpress.com

  • ****ticker****

    I'm in worcester too. Who is your new GYN?
    Me:35,  DH: 39   
    TTC since March 2011. All bloodword, SA & HSG are normal.  
    8/12: Clomid & TI - BFN 
    10/12: Colmid & TI - BFN 
    3/13:  Clomid, Trigger & IUI - BFN 
    4/13: Gonal F, Trigger & IUI: BFN  
    6/13: IVF #1 (1AA blast & 1BB blast) = BFN 
    8/13: FET #1= BFN
    10/13: FET #2= BFP!!!

    BabyFruit Ticker  image
  • ****ticker**** I'm in worcester too. Who is your new GYN?

    I made an appt with Womens Health of Central MA-- Dr De.ldon- S altin. Who do you see? I know it's stupid but my DH is partial to UMASs and doesn't want me to have a St V's doc in the unlikely event I need an actual OB...

    TTC #1 since 8/1/10; Me:41 and BRCA1+, DH:46
    DOR (FSH 24.3)/ terrible egg quality ; homozygous MTHFR c677t
    5 IUI's: 2/11 to 6/11 and 1/12= BFN
    OE IVF#1-4 8/11-6/12= all BFN
    DE IVF#1 11/12 bad embryos= BFN
    DE IVF #2 2/13 BFP/Beta hell: m/c 5w6d
    CFNBC 7 months, not doing well; decided on guarantee program at RBA w/frozen DE
    DE IVF #3 1/14  ET 4BB; BFP;M/C 5w1d, incomplete m/c; MVA extraction in ER 7w1d

    DE FET#1 ET 3/1714; BFP, beta 1 3/27= 197, beta 2 3/31= 1586, beta 3 4/7= 13879!!
    First u/s= Twins with HBs at 6w2d! We are Team Pink x 2!!

    K & K born 11/21/14 at 38wks 4 days

    imageimage

    SAIF/PAIF Welcome


    http://waitingforraintostop.wordpress.com

  • WORCESTER
    338 Plantation Street
    Worcester MA 01604
    (508) 438-0150
    Boston MFM

    They are very open to the beer center if you ever need them
    6 m/c
    Anovulatory cycles, increased Synthroid Diagnosed Sep 2010
    Natural cycle Dec 2010 BFP M/C 6 1/2 Weeks, D&E Jan 2011
    1 Clomid/Ovidrel BFN May 2011
    Natural cycle Aug 2011 BFP M/C 4 Weeks
    1 IUI Sept 2011 BFP M/c 7 weeks
    Provera Dec 2011 BFP M/C 3 Weeks
    DQ ALPHA HLA MATCH, High NK Cells Diagnosed Dec 2011
    IVF March 2012 BFP m/c 4weeks 5 days (IL, Prednisone)
    IVF#2w/DS July 2012 MEGA FAILURE BFN (IL, Dexamethasone)
    Diagnosed No real HLA Match, DQ Beta Triad, High TNF, Low NK Cells
    Oct 2012 Natural Cycle m/c 4wks (Lovenox, Prednisone) 
    Went to Beer Center- high tnf, low lad, implantation failure
    Nov/Dec 2012 LIT Treatment
    Dec 12 Humira
    Jan 2013 BFP
    Humira,LIT,Prednisone, Lovenox, IVIG, Baby Aspirin
    Miracle Born August 2013 Premature

    Yours doesn't have to be a sad story



    image
    image


    Lilypie - (ugiy)


  • luvboston said:

    WORCESTER
    338 Plantation Street
    Worcester MA 01604
    (508) 438-0150
    Boston MFM

    They are very open to the beer center if you ever need them

    Did you only go there once you were pg?

    TTC #1 since 8/1/10; Me:41 and BRCA1+, DH:46
    DOR (FSH 24.3)/ terrible egg quality ; homozygous MTHFR c677t
    5 IUI's: 2/11 to 6/11 and 1/12= BFN
    OE IVF#1-4 8/11-6/12= all BFN
    DE IVF#1 11/12 bad embryos= BFN
    DE IVF #2 2/13 BFP/Beta hell: m/c 5w6d
    CFNBC 7 months, not doing well; decided on guarantee program at RBA w/frozen DE
    DE IVF #3 1/14  ET 4BB; BFP;M/C 5w1d, incomplete m/c; MVA extraction in ER 7w1d

    DE FET#1 ET 3/1714; BFP, beta 1 3/27= 197, beta 2 3/31= 1586, beta 3 4/7= 13879!!
    First u/s= Twins with HBs at 6w2d! We are Team Pink x 2!!

    K & K born 11/21/14 at 38wks 4 days

    imageimage

    SAIF/PAIF Welcome


    http://waitingforraintostop.wordpress.com

  • I LOVE the Reliant group!!!! Great group of people there. I am not in love with the st. V's docs.
    I go to a private UMASS group, "central mass OB/GYN".
    Me:35,  DH: 39   
    TTC since March 2011. All bloodword, SA & HSG are normal.  
    8/12: Clomid & TI - BFN 
    10/12: Colmid & TI - BFN 
    3/13:  Clomid, Trigger & IUI - BFN 
    4/13: Gonal F, Trigger & IUI: BFN  
    6/13: IVF #1 (1AA blast & 1BB blast) = BFN 
    8/13: FET #1= BFN
    10/13: FET #2= BFP!!!

    BabyFruit Ticker  image
  • No went for a couple of consults I could have had her for my reg doc I go to their other location.
    6 m/c
    Anovulatory cycles, increased Synthroid Diagnosed Sep 2010
    Natural cycle Dec 2010 BFP M/C 6 1/2 Weeks, D&E Jan 2011
    1 Clomid/Ovidrel BFN May 2011
    Natural cycle Aug 2011 BFP M/C 4 Weeks
    1 IUI Sept 2011 BFP M/c 7 weeks
    Provera Dec 2011 BFP M/C 3 Weeks
    DQ ALPHA HLA MATCH, High NK Cells Diagnosed Dec 2011
    IVF March 2012 BFP m/c 4weeks 5 days (IL, Prednisone)
    IVF#2w/DS July 2012 MEGA FAILURE BFN (IL, Dexamethasone)
    Diagnosed No real HLA Match, DQ Beta Triad, High TNF, Low NK Cells
    Oct 2012 Natural Cycle m/c 4wks (Lovenox, Prednisone) 
    Went to Beer Center- high tnf, low lad, implantation failure
    Nov/Dec 2012 LIT Treatment
    Dec 12 Humira
    Jan 2013 BFP
    Humira,LIT,Prednisone, Lovenox, IVIG, Baby Aspirin
    Miracle Born August 2013 Premature

    Yours doesn't have to be a sad story



    image
    image


    Lilypie - (ugiy)


  • When I was cycling out of state I did my monitoring at one of the local hospitals (the one I worked at).  My RE would write my RX.  I'd call out-patient radiology and they would do the procedures.  I had all my blood work drawn in the out-patient lab.  I don't remember having any issues.  GL finding someone to do your sono!!  
    ::: Married June 2003:::
    TTC #1 since: Aug. 2008
    Me: 34, DOR, MTHFR-A1298C (heterozygous), decreased blood flow to uterus, Mild Endo
    DH: 38, Balanced translocation 5&10, unexplained MFI, normal SA and SCSA
    Tx History: IUI 1&2= BFN
    IVF# 1 W/ICSI= BFN
    IVF# 2: cancelled d/t no response
    IVF# 3= 1 egg retrieved=immature/not viable
    IVF# 4= c/p
    ***CCRM ODWU***
    Found DHs BT and Me-decreased blood flow to uterus
    Recommended DE IVF w/PGD, incorporate electro-acupuncture. Decided to cycle locally
    ***New RE***
    DE IVF# 1(cycle #6) w/pgd, (freeze all): 30R, 23M, 15F, slow/poor embryo development, 4 biopsied, 1 Normal "Norm"; DE IVF w/PGD, incorporate electro-acupuncture. 
    IVF# 6: (OE/DS) cancelled
    IVF# 7: (OE/DS) 1R, 1M, 1F, arrested day 5
    Plan-DE IVF# 2 (cycle #8): DE/DS in May 2015

    http://icanhazbabyz.blogspot.com/
    imageimage image 
  • luvboston said:
    No went for a couple of consults I could have had her for my reg doc I go to their other location.

    Sorry- let me clarify my question-- did you go to the practice (any location) for a consult for your losses or did you only go to them after you were pg with your LO?? How did they work w/the Beer Center? I don't think my losses are immune but "just" cruddy embryos but I haven't had any immune testing so it's just a guess.

    TTC #1 since 8/1/10; Me:41 and BRCA1+, DH:46
    DOR (FSH 24.3)/ terrible egg quality ; homozygous MTHFR c677t
    5 IUI's: 2/11 to 6/11 and 1/12= BFN
    OE IVF#1-4 8/11-6/12= all BFN
    DE IVF#1 11/12 bad embryos= BFN
    DE IVF #2 2/13 BFP/Beta hell: m/c 5w6d
    CFNBC 7 months, not doing well; decided on guarantee program at RBA w/frozen DE
    DE IVF #3 1/14  ET 4BB; BFP;M/C 5w1d, incomplete m/c; MVA extraction in ER 7w1d

    DE FET#1 ET 3/1714; BFP, beta 1 3/27= 197, beta 2 3/31= 1586, beta 3 4/7= 13879!!
    First u/s= Twins with HBs at 6w2d! We are Team Pink x 2!!

    K & K born 11/21/14 at 38wks 4 days

    imageimage

    SAIF/PAIF Welcome


    http://waitingforraintostop.wordpress.com

  • mm29 said:
    When I was cycling out of state I did my monitoring at one of the local hospitals (the one I worked at).  My RE would write my RX.  I'd call out-patient radiology and they would do the procedures.  I had all my blood work drawn in the out-patient lab.  I don't remember having any issues.  GL finding someone to do your sono!!  

    I can go to Quest for b/w and that's been ok this last cycle except for trying to get results. It never gets faxed and the RE had to track it down which doesn't work so well when you need it the same day. How could you get an appt with outpatient radiology for the last minute? You don't get notice for a lot of these things and you can't just walk in. KWIM? Like one place had these rules that they needed the RX by 3pm the day before or they won't do it. Sometimes you don't get the instructions by then or Im not home by 3 to print the orders/scan to the place. Anyway, Im just complaining. I've managed to do it for 2 + years but its annoying. It would be nice to just go to one office locally and actually see your RE...

    TTC #1 since 8/1/10; Me:41 and BRCA1+, DH:46
    DOR (FSH 24.3)/ terrible egg quality ; homozygous MTHFR c677t
    5 IUI's: 2/11 to 6/11 and 1/12= BFN
    OE IVF#1-4 8/11-6/12= all BFN
    DE IVF#1 11/12 bad embryos= BFN
    DE IVF #2 2/13 BFP/Beta hell: m/c 5w6d
    CFNBC 7 months, not doing well; decided on guarantee program at RBA w/frozen DE
    DE IVF #3 1/14  ET 4BB; BFP;M/C 5w1d, incomplete m/c; MVA extraction in ER 7w1d

    DE FET#1 ET 3/1714; BFP, beta 1 3/27= 197, beta 2 3/31= 1586, beta 3 4/7= 13879!!
    First u/s= Twins with HBs at 6w2d! We are Team Pink x 2!!

    K & K born 11/21/14 at 38wks 4 days

    imageimage

    SAIF/PAIF Welcome


    http://waitingforraintostop.wordpress.com

  • mm29 said:
    When I was cycling out of state I did my monitoring at one of the local hospitals (the one I worked at).  My RE would write my RX.  I'd call out-patient radiology and they would do the procedures.  I had all my blood work drawn in the out-patient lab.  I don't remember having any issues.  GL finding someone to do your sono!!  

    I can go to Quest for b/w and that's been ok this last cycle except for trying to get results. It never gets faxed and the RE had to track it down which doesn't work so well when you need it the same day. How could you get an appt with outpatient radiology for the last minute? You don't get notice for a lot of these things and you can't just walk in. KWIM? Like one place had these rules that they needed the RX by 3pm the day before or they won't do it. Sometimes you don't get the instructions by then or Im not home by 3 to print the orders/scan to the place. Anyway, Im just complaining. I've managed to do it for 2 + years but its annoying. It would be nice to just go to one office locally and actually see your RE...
    I would call out-pt radiology, they always had an apt within the week.  I do remember disliking cycling OOT a lot, for so many reasons. I hated not having DH around, I was bored, because I was too poor to go out and have fun.  Luckily I had my Aunt and a few cousins to keep me company.  
    ::: Married June 2003:::
    TTC #1 since: Aug. 2008
    Me: 34, DOR, MTHFR-A1298C (heterozygous), decreased blood flow to uterus, Mild Endo
    DH: 38, Balanced translocation 5&10, unexplained MFI, normal SA and SCSA
    Tx History: IUI 1&2= BFN
    IVF# 1 W/ICSI= BFN
    IVF# 2: cancelled d/t no response
    IVF# 3= 1 egg retrieved=immature/not viable
    IVF# 4= c/p
    ***CCRM ODWU***
    Found DHs BT and Me-decreased blood flow to uterus
    Recommended DE IVF w/PGD, incorporate electro-acupuncture. Decided to cycle locally
    ***New RE***
    DE IVF# 1(cycle #6) w/pgd, (freeze all): 30R, 23M, 15F, slow/poor embryo development, 4 biopsied, 1 Normal "Norm"; DE IVF w/PGD, incorporate electro-acupuncture. 
    IVF# 6: (OE/DS) cancelled
    IVF# 7: (OE/DS) 1R, 1M, 1F, arrested day 5
    Plan-DE IVF# 2 (cycle #8): DE/DS in May 2015

    http://icanhazbabyz.blogspot.com/
    imageimage image 
    chrissy1013
  • It sucks to feel like you've been forgotten and have to do the legwork you're paying the clinic a ton of $$ to do for you. I got that a couple of times with my last clinic, but thankfully my OBGYN was very helpful. FX you find a dr who can help make things easier for you!

    ***signature & ticker warning***


    Me: 30 ~ Stage IV Endo ~ AMH .38 ~ AFC 8
    AMH .97 as of 4/2012! ~ AMH 1.63 as of 4/2013!?!
    Him: 29 ~ perfect swimmers

    Laparotomy w/partial oophorectomy 8/2009 to remove cysts/endo.
    Stopped BCP 4/2010.
    Multiple clomid rounds from 11/2010 to 6/2011. ~ All BFN
    IUI w/clomid 7/2011. IUI w/clomid & injectables 11/2011 & 1/2012. ~ All BFN
    IVF:EPP 5/2012 ~ (4R, 3M, 2F w/ICSI). Both embryos txfrd. ~ BFN
    BCP to manage endo from 10/2012 to 12/2012.
    FET w/donor embryos #1: 10/2013 Cancelled
    FET w/donor embryos #1.2: 11/2013 ~ ET of 2 beautiful blasts on 11/27.
    Beta 1: 503(12dp5dt) Beta 2: 1035(14dpt) Beta 3: 3001(16dpt) Beta 4: 8503(19dpt)
    Twins with an EDD of 8/15/14! Team Purple
    G&B born 6/30/14 at 33w3d via emergency c/s.

    If you're wondering about my avatar...it's a fried pickle chip shaped like a fetus!

    image

    image

  • luvboston said:

    No went for a couple of consults I could have had her for my reg doc I go to their other location.



    Sorry- let me clarify my question-- did you go to the practice (any location) for a consult for your losses or did you only go to them after you were pg with your LO?? How did they work w/the Beer Center? I don't think my losses are immune but "just" cruddy embryos but I haven't had any immune testing so it's just a guess.

    I went to the MFM after my 2nd loss but my doctors husband is an re so she takes some ivf patients who have lots of stuff going on. They emailed with the beer center to figure out what I needed them to do and then when I was pg they decided with beer how long to keep me on different meds and the MFM actually kept me on Lovenox past the time beer wanted.

    And of course did all the normal MFM stuff.
    6 m/c
    Anovulatory cycles, increased Synthroid Diagnosed Sep 2010
    Natural cycle Dec 2010 BFP M/C 6 1/2 Weeks, D&E Jan 2011
    1 Clomid/Ovidrel BFN May 2011
    Natural cycle Aug 2011 BFP M/C 4 Weeks
    1 IUI Sept 2011 BFP M/c 7 weeks
    Provera Dec 2011 BFP M/C 3 Weeks
    DQ ALPHA HLA MATCH, High NK Cells Diagnosed Dec 2011
    IVF March 2012 BFP m/c 4weeks 5 days (IL, Prednisone)
    IVF#2w/DS July 2012 MEGA FAILURE BFN (IL, Dexamethasone)
    Diagnosed No real HLA Match, DQ Beta Triad, High TNF, Low NK Cells
    Oct 2012 Natural Cycle m/c 4wks (Lovenox, Prednisone) 
    Went to Beer Center- high tnf, low lad, implantation failure
    Nov/Dec 2012 LIT Treatment
    Dec 12 Humira
    Jan 2013 BFP
    Humira,LIT,Prednisone, Lovenox, IVIG, Baby Aspirin
    Miracle Born August 2013 Premature

    Yours doesn't have to be a sad story



    image
    image


    Lilypie - (ugiy)


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