I know this isn't much help, but in the TV Show, The Middle, the kid who plays Brick (Atticus Shafer) has OI. He's been in a few movies. https://www.imdb.com/name/nm2557831/ it just goes to show that… (View Post)
DS2 was our surprise. We got DS1's diagnosis the day after my BFP. This meant DS2 had a 50/50 chance of having the same issues (hypertonia, seizures, intellectual disability, etc).I spent most of my … (View Post)
DS1 accidentally turned of his toys just now while playing with it. When you turn a dial it plays some music and you have to keep turning it to keep it playing. He actually stood up, and handed me th… (View Post)
1) I'm so sorry you're going through this, especially at the holidays 2) The only person you can control in this is YOU. What do you want? Do you want her there? Do you want to foster that relationsh… (View Post)
I am so sorry. This happened with us and the IL's. They started telling us we weren't doing enough or going to the right doctors or hospitals for DS1 (he has special needs). We had to set boundaries.… (View Post)