@offtoneverland First off ((hugs)). Second, the one thing that stalls most babies is eating. It's not that she's not hungry, it's that her body is working extra hard right now. She is expending a lot of her calories to recover from birth and major surgery. This makes her extra sleepy. I mean I'm 3 weeks out from my c section and I'm still not 100%. Bottle feeding and BF take a lot of work. A lot. Imagine trying to recover from your c section and be expected to learn a new skill at the same time. You would be exhausted too. That is what is happening, she is recovering and trying to learn a new skill. It's a lot that is being asked of her.
I know you are ready for her to be home, I know how tiresome all of this is. Trust me. It took everything I had not to cry and scream in frustration some days. Remember that everything in NICU runs on the baby's schedule not ours, as much as that sucks. I can't tell you how frustrated and jealous and hurt I would be when a much younger baby would be able to do things M couldn't. Those are hard days. I can say this tho, the 21 days we spent in NICU, were well worth it. M is thriving, literally. His ped's words, not mine. While it took much, much longer than anyone expected, Dr and nurses alike, it has allowed him to be healthy now. I wouldn't trade those long days for anything, because I dont worry (as much) about him now. When you are feeling overwhelmed and frustrated, just PM me. I know exactly how you feel. I'm here for you. I promise this doesnt last forever despite the hours feeling like days and the days feeling like years.
@wildrainbow Thank you. I really needed to hear that. It's been 15 days and it still seems like we're going to be here forever. My mom and sister are visiting next week and I was so hopeful we'd be home by then, but it's really not looking like that will happen, and I'm so disappointed. But you're right that the main importance is her health, and that's all that matters. It's reassuring to hear that a lot of babies struggle with eating too, because I felt like she should be able to pick it up by now. You're right that she still has a lot of recovering to do, so I'll try to manage my expectations. It's just so frustrating being here still when she doesn't need any medical help anymore. She just needs to eat! And I want her to hurry so we can all be home. I have trouble sometimes with jealousy. Lots of other moms have taken their babies home and it hurts to see cute pics of them and hear them talking about their babies being up all night eating. I would give anything for that! But that's my own problem and I need to keep it in check. Anyways. Thank you for being here for me and letting me vent.
@offtoneverland everything @wildrainbow said i also heard from my girls’ nicu nurses, too. there are tricks to get a sleepy baby to eat more, like open their clothes to the air to wake them up a bit, or tickle their chins. i will say that i felt like we went from “we’ll be here forever” to “oh geez we’re getting out; i’m not ready!” in the blink of an eye. so, Sydney could surprise everyone and be out in time for your family’s visit, fingers crossed.
@offtoneverland With Tristan it was like one day the light bulb just went on. The nurse said that it common for that to happen, suddenly it just clicks. One day he was eating less than half of his feeds by mouth and the next he ate 100% of his feeds by mouth (and then the next day pulled out his own NG tube because apparently he was like "I'm good I don't need this anymore"). I hope it clicks for Sydney super soon!
Infertility Journey (in spoiler because it's way too long and child/loss mentioned)
Married: 08/09/2013; TTC #2 Me: 31, possible PCOS and Septate Uterus (Septum removed in November 2017) DH: 31, MFI (Low Count and Low Motility) July 2017 - IUI #1 - Letrozole 2.5 mg, no trigger, Prometrium 100 mg 2x a day - BFN August 2017 - IUI #2 - Letrozole 2.5 mg, no trigger, Prometrium 100 mg 2x a day - BFN September 2017 - IUI #3 - Letrozole 2.5 mg, no trigger, Prometrium 100 mg 2x a day - BFN November 2017 - Uterine Septum removed December 2017 - IVF Consultation January 2018 - IVF #1 - Retrieval 1/24 - 2 Day 3 embryos (1 transferred fresh, 1 frozen) and 2 Day 5 embryos frozen February 2018 - Fresh Transfer - Transfer 1/27 (1 day 3 embryo) - BFN March 2018 - FET #1 - Transfer 3/2 (1 day 5 embryo) - BFP! 1st beta (10dp5dt) - 101; 2nd beta (17dp5dt) - 3061! Due 11/18/2018 March 2018 - Remaining embryos lost in malfunction.
October 8, 2018 - Son born at 34 weeks and a day due to preeclampsia and HELLP syndrome. Spent 13 days in the NICU.
June 2019 - IVF #2 - Cancelled - Cyst on Ovary July 2019 - IVF #2 Take 2 - Retrieval 8/1 - 5 Day 5 embryos frozen August 2019 - FET #1 - Cancelled - No Trilaminar Lining September 2019 - FET #1 - Transfer 9/25 (1 day 5 embryo) - Chemical Pregnancy - 1st beta (9dp5dt): 110; 2nd beta (14dp5dt): 357; 3rd beta (16dp5dt): 188; 4th beta (23dp5dt): 7 November 2019 - FET #2 - Transfer 11/6 (1 day 5 embryo) - BFN December 2019 - FET #3 - Transfer 12/11 (1 day 5 embryo) - BFP! - 1st beta (8dp5dt): 102; 2nd beta (15dp5dt): 2636! Due 08/28/2020
August 13, 2020 - Son born at 37 weeks an 6 days due to failed BPP (Gestational Diabetes).
@offtoneverland - you have every right to feel the way you do. It’s hard and it sucks and it’s not fair especially when it was completely unplanned. I’ve watched parents work thru the same feelings, and I know I’d feel the same if my baby was in the nicu. @wildrainbow is completely right, as much as it sucks she’s recovering from surgery and so her energy is being used for that right now. I really hope she is able to eat and go home soon. I think about you guys a lot. I was telling DH about Sydney and how it seems so unfair because you are such a sweet person (not that anyone deserves to go through that). Continued prayers for you, Sydney, and your family.
*TW*
Me:35 DH:35 Dx: PCOS DS1 born 11/2014 DS2 born 11/2018 3 previous losses Rainbow babydue 12/2021 - Team Green
@highsteaks@wildrainbow@mockingjay1@marfi236 Thank you all so much for the words of support. It really helps me a lot. I had been feeling pretty good and optimistic until today when I started to feel so defeated that we'll be in the NICU for freaking ever. Sydney does well on some bottles, then she'll not do very well on the next bottles and it's so frustrating. But you guys are right that she is resting and recovering, so she needs all the rest she can get. Today she ate about 45ccs from her bottle of 70ccs, which is the most she's taken so far I think. I also got her to latch during another feeding for about 8 minutes, and it was a really good latch, so that was exciting! I'm slightly confused about breastfeeding though, because they say she needs about 30ccs of breastmilk after a "good" breastfeeding, so it seems like backwards progress to even try breastfeeding since 30ccs goes down her tube afterward. We did find out some good news today--we're moving out of the ICU onto the infant floor, so...progress! I'm wondering if maybe they'll be a bit more lenient with eating on the infant floor since the babies there are more stable. We'll see. I just need to stop thinking of timelines in my head and realize we'll be here for the time being. She's healthy, and that's really what matters in the end. @marfi236 Thank you for letting me know about Tristan's eating. Right now Sydney's taking about 20% of her feeds via bottle, so it's hard to not think we'll be here forever. I'm hoping and praying she gets the hang of it one day (and soon!) just like Tristan did.
@offtoneverland the hospital did not send over the actual renal ultrasound pics, so the nephrologist was just going off of their notes. there was some swelling in the good kidney at the ultrasound immediately after birth, and the same swelling noted at the 2.5 week ultrasound. emilia will go back to the nephrologist in three months, and will have another renal ultrasound just prior. then probably a contrast dye test after that appointment to see if there is reflux. she’ll stay on low dose antibiotics until we can confirm that there isn’t reflux. he also said if there is reflux, that she’ll likely outgrow it at some point. as far as medicine and solid food (when we get there) we don’t have to do anything differently than we’ll do with her twin. we’ll have to request a urinalysis when she has a fever to make sure she doesn’t have a urinary tract infection—any infection can scar/damage the good kidney’s tissue. i think that was most of the important points.
Guys! It's been a crazy day. First, Sydney pulled out her NG tube all by herself while she was sleeping. Next, the doctor came in and said they're transferring us to another hospital mid next week because they specialize in teaching babies to eat. Then, Sydney drank her whole bottle. Then 3 hours later she finished the next bottle. So maybe we're actually getting out of here soon!! I'm so hoping we don't have to be transferred to another hospital next week.
@highsteaks I wonder if the dye test is a VCUG? that's what Sydney had to diagnose her hydronephrosis. Thank you for all the information! That's great to know she may outgrow it. Also great to know that solid food and medicine can all be the same as for a normal kid. I'm glad the appointment went well!
@offtoneverland happy to hear Sydney is eating so well today! fingers crossed that her diacharge is going to be sooner than you expect! and yes, it’s a VCUG test (i was just too tired to remember the letters in order). the doc wants to wait until she’s big enough that her birth hospital can handle the catheterization. if we wanted to do it asap, we’d have to drive 2.5 hours to the pediatric hospital at UVA; but i’m good with waiting.
@wildrainbow I'm doing okay. Sydney did well on her bottles for about a day and then stopped drinking them all again, so she got the NG tube back. I didn't handle it very well yesterday and cried all day at the hospital. Today I sent MH to the hospital and it will be my first day not seeing Sydney, but I really couldn't deal with any more disappointment and I was starting to just feel really angry about everything. I had been getting so hopeful that she'd be on her way home by now, but she's not and I'm really heartbroken. Tomorrow will be 3 weeks. I feel guilty because I should be thankful that she's healthy and fine, and I am, but I'm tired of hospitals and I want her home with us. But instead they're transferring her to another hospital today or tomorrow and who knows how long we'll be there. I never realized that they could keep babies for so long who don't need any medical help. She's not even hooked up to anything anymore aside from the NG tube and the oxygen monitor on her foot, but they take that off during the day. So it feels so silly to have her in a hospital just to teach her to drink her bottles. I mean, I get it. She needs to eat and be healthy. But babies are sent home from the hospital with their moms every day when they don't yet know how to eat and I'm jealous that we can't do that too. I've been lounging around the house today cleaning, watching TV, and eating lots of leftover Halloween candy. I feel bad that I won't see Sydney today, but I also really needed a day to myself.
I feel 100 times better after taking a day off yesterday. I'm at the hospital cuddling my girl right now. The occupational therapist is coming by at noon to assess if we should be transported to the other hospital to help her learn to eat better or if we could be sent home with the NG tube. I'm nervous at the thought of going home with the tube, but I'll make it work if that's what we need to do to get her home.
@offtoneverland I'm glad you are better! Have the OT check her for a tongue or lip tie. That could be what is hindering her. Are you BF? If she does have one, you can get it cut and that should really help. I hope the OT has positive news for you!
@wildrainbow They already checked her mouth and tongue but I can ask again to make sure. She seems to drink well when she's hungry and awake, but I think the biggest issue seems to be that she just gets really sleepy. We've only tried breastfeeding a few times so far. I've mostly just stuck with the bottle because it was working well and I didn't want to hinder her by trying something new.
@offtoneverland just want to say don’t feek guilty! If you’re not taking care of YOU, you’re no good to her! Also I love you and lmk if you need anything
Thank you @ashkee05 and everyone else. The OT is going to have a speech therapist take a look at Sydney to assess if there are any problems with her swallow. She didn't seem concerned though. She said Sydney did a great job communicating to us when she was tired and didn't want anymore milk from the bottle. Really I think her biggest issue is just that she's still recovering and tired. I'm feeling much better and @wildrainbow -- the advice you gave me about wanting Sydney to come home healthy and thriving is really helping. The goal is to get her big and strong and healthy, so we'll do what it takes to get her there, even if it takes a while longer.
@offtoneverland I'm glad to see you took a day to get yourself back on track. As everyone has already said sydney just needs to heal and she's on that path. Keep your head up mama. She will be eating like a champ and you'll be able to put all of this behind you soon!
Sydney had a really great day. She pulled out her NG tube again this morning (and yesterday too...she hates it!) and they left it out for about half the day. The OT switched her to the slow flow nipple instead of the preemie nipple and she did wonderfully with it today. She was drinking almost all of her bottles, but was still unfortunately leaving about a half an ounce or less. Because of that, they put her tube back in this evening. However, now that she's eating more of her bottles, the doctor said she's going to look into fortifying the breastmilk. That way, Sydney can drink less volume but consume more calories. I'm sooooo hoping we can start that up tomorrow because I think she'll do really well with it, and I'm hoping we're one step closer to coming home.
Also, I invested in some of those velcro swaddles today to keep Sydney's arms down so she stops yanking her tube out!
@offtoneverland yay! great news! i’m surprised she was on a preemie nipple... is that slower than the slow flow and thus more work for her? emilia, who had her ng tube longer, had the slowest flow nipple for awhile because otherwise she’d leak all the milk out of her mouth, but when she was ready for the next flow up she started to eat much better.
@highsteaks She'd been using the slow flow nipple (the green one - are those colors standard in all NICUs?) for a few days, but then OT said she was struggling too much and switched her to the purple nipple - the super slow flow one. When we moved to the infant floor, the speech pathologist switched her to the Dr. Brown's preemie bottle, which is slower than the green nipple but faster than the purple. Then the OT said she was working too hard and switched her back to the green one. Kind of pissed at the nurse today though because she used the Dr. Brown's bottle this morning and Sydney only drank 40 out of 70ccs. I guess she didn't check to see which bottle to use.
@offtoneverland don’t know if they are standard, but the green ring was the slow flow at our nicu, and the blue was standard (0mo); they were enfamil nipples ith. i can definitely see why you’d be frustrated—that’s a lot of different people/groups weighing in on how to feed Sydney. I hope the new hospital will be better about consistency.
Well, one step forward and five steps back. She's back to barely even finishing half her bottles again so they can't fortify the breastmilk. Ughhhhhhh. We're going to be here forever.
@offtoneverland I'm sorry and definitely understand your frustration. Try to keep your head up and remember she's where she needs to be right now (as much as it sucks!). You won't be there forever, that I can promise you!
Thanks everyone! @ftm_jen You're right that she's where she needs to be but it's so frustrating sometimes, especially now with holidays coming up. But I need to remind myself of that.
Small update: They're letting S go 24 hours without the NG tube. Instead of feeds every 3 hours, they're going to feed her on demand (but not less than every 3 hours). Fingers crossed.
@offtoneverland I hope that works for her! Do they let you do skin to skin with her? I know for M it helped stimulate his appetite when he was slow on his bottles. ((Hugs))love. In case no one tells you, you are amazing and strong, even if it doesn't feel like it.
@offtoneverland It's weird to me that they don't fortify the breast milk all the time. Even when Tristan was only getting milk through the tube it was still fortified. First it was fortified to 22 cal then to 24 cal. Even with him being home 120 ml of milk a day is fortified (until he's 8 lbs). Hopefully she does well today!
Infertility Journey (in spoiler because it's way too long and child/loss mentioned)
Married: 08/09/2013; TTC #2 Me: 31, possible PCOS and Septate Uterus (Septum removed in November 2017) DH: 31, MFI (Low Count and Low Motility) July 2017 - IUI #1 - Letrozole 2.5 mg, no trigger, Prometrium 100 mg 2x a day - BFN August 2017 - IUI #2 - Letrozole 2.5 mg, no trigger, Prometrium 100 mg 2x a day - BFN September 2017 - IUI #3 - Letrozole 2.5 mg, no trigger, Prometrium 100 mg 2x a day - BFN November 2017 - Uterine Septum removed December 2017 - IVF Consultation January 2018 - IVF #1 - Retrieval 1/24 - 2 Day 3 embryos (1 transferred fresh, 1 frozen) and 2 Day 5 embryos frozen February 2018 - Fresh Transfer - Transfer 1/27 (1 day 3 embryo) - BFN March 2018 - FET #1 - Transfer 3/2 (1 day 5 embryo) - BFP! 1st beta (10dp5dt) - 101; 2nd beta (17dp5dt) - 3061! Due 11/18/2018 March 2018 - Remaining embryos lost in malfunction.
October 8, 2018 - Son born at 34 weeks and a day due to preeclampsia and HELLP syndrome. Spent 13 days in the NICU.
June 2019 - IVF #2 - Cancelled - Cyst on Ovary July 2019 - IVF #2 Take 2 - Retrieval 8/1 - 5 Day 5 embryos frozen August 2019 - FET #1 - Cancelled - No Trilaminar Lining September 2019 - FET #1 - Transfer 9/25 (1 day 5 embryo) - Chemical Pregnancy - 1st beta (9dp5dt): 110; 2nd beta (14dp5dt): 357; 3rd beta (16dp5dt): 188; 4th beta (23dp5dt): 7 November 2019 - FET #2 - Transfer 11/6 (1 day 5 embryo) - BFN December 2019 - FET #3 - Transfer 12/11 (1 day 5 embryo) - BFP! - 1st beta (8dp5dt): 102; 2nd beta (15dp5dt): 2636! Due 08/28/2020
August 13, 2020 - Son born at 37 weeks an 6 days due to failed BPP (Gestational Diabetes).
The doctor just called me and guess what? They're sending Sydney home tomorrow with her NG tube! Omg omg omg! I can't even believe it! They're going to teach us today and tomorrow how to use the tube. Now I have to go to Target to buy everything to get ready!
Thank you so much! I just can't believe it. The nurse went over some of the NG tube stuff with us today and showed us how to place it and check it's correct. Tomorrow they'll take out the tube and have us place it to make sure we can do it. I'm pretty nervous but the nurse said it's easy. She also said it can take a while to get all the medical equipment ordered and verified with insurance, so not to be too disappointed if we can't actually take her home tomorrow. But we're meeting with the doctors during rounds early tomorrow and will get it all figured out. I'm just happy at this point to *finally* have an estimated discharge date after all this time.
@offtoneverland OMG! That's so exciting!! I'm so happy for you!!
Infertility Journey (in spoiler because it's way too long and child/loss mentioned)
Married: 08/09/2013; TTC #2 Me: 31, possible PCOS and Septate Uterus (Septum removed in November 2017) DH: 31, MFI (Low Count and Low Motility) July 2017 - IUI #1 - Letrozole 2.5 mg, no trigger, Prometrium 100 mg 2x a day - BFN August 2017 - IUI #2 - Letrozole 2.5 mg, no trigger, Prometrium 100 mg 2x a day - BFN September 2017 - IUI #3 - Letrozole 2.5 mg, no trigger, Prometrium 100 mg 2x a day - BFN November 2017 - Uterine Septum removed December 2017 - IVF Consultation January 2018 - IVF #1 - Retrieval 1/24 - 2 Day 3 embryos (1 transferred fresh, 1 frozen) and 2 Day 5 embryos frozen February 2018 - Fresh Transfer - Transfer 1/27 (1 day 3 embryo) - BFN March 2018 - FET #1 - Transfer 3/2 (1 day 5 embryo) - BFP! 1st beta (10dp5dt) - 101; 2nd beta (17dp5dt) - 3061! Due 11/18/2018 March 2018 - Remaining embryos lost in malfunction.
October 8, 2018 - Son born at 34 weeks and a day due to preeclampsia and HELLP syndrome. Spent 13 days in the NICU.
June 2019 - IVF #2 - Cancelled - Cyst on Ovary July 2019 - IVF #2 Take 2 - Retrieval 8/1 - 5 Day 5 embryos frozen August 2019 - FET #1 - Cancelled - No Trilaminar Lining September 2019 - FET #1 - Transfer 9/25 (1 day 5 embryo) - Chemical Pregnancy - 1st beta (9dp5dt): 110; 2nd beta (14dp5dt): 357; 3rd beta (16dp5dt): 188; 4th beta (23dp5dt): 7 November 2019 - FET #2 - Transfer 11/6 (1 day 5 embryo) - BFN December 2019 - FET #3 - Transfer 12/11 (1 day 5 embryo) - BFP! - 1st beta (8dp5dt): 102; 2nd beta (15dp5dt): 2636! Due 08/28/2020
August 13, 2020 - Son born at 37 weeks an 6 days due to failed BPP (Gestational Diabetes).
We're finally home! We were released last night from the hospital and we couldn't be happier. We got all set up with Sydney's medical equipment for her NG tube but she's finished the first 4 bottles since she's been home! What?! I can't believe it. We'll see if it continues, though I'm trying not to get my hopes up. If anything, at least it shows that she's making tons of progress.
She seems to have pretty bad reflux so she's taking Zantac for it. Hoping it helps! On top of that she has 3 other medications she has to take daily so I'm a bit stressed thinking of all we have to do, but I know we'll find our rhythm. We are just so thrilled to be home!
So Sydney has been taking all of her bottles for almost the last 48 hours. We talked to her pediatrician yesterday and took out the NG tube. The home nurse is coming to do a weight check on Monday morning and we'll see it looks. Sydney was 8lbs 3oz yesterday so the pedi said she wants to see about 8lbs 5oz on Monday.
I'm wondering if all Sydney needed all along was to come home! I still can't believe she's eating so well. She even slept pretty decently last night too, so we're feeling pretty lucky.
that is so wonderful to hear @offtoneverland! not surprised one bit that she’s doing much better in the comfort of home. glad that it sounds like you all are getting a bit of rest. yay baby Sydney!
People think we become mothers when we give birth but the truth is we become mothers the moment we start calling our babies to us in our thoughts, dreams and prayers. Some paths are short and some are so long that you can easily forget where you were headed.
How I feel all of the time. My 7 Year Journey ***Tw in spoiler***
IVF IVF #1 - September 2018; Follistim, Menopur, Cetrotide & Lupron/HCG combo trigger; PGS; ICSI Back on Levothyroxine FET #1 - October 2018; cancelled, all PGS aneuploid FET #1 - November 30th, transferred anyway Wondfo BFP 5dp5dt, CB Digi 6dpt, 1st Beta on 7dpt 93 2nd Beta on 10dpt 510!
TTC #1 since 2011. Tried for 5 years before we knew there was a one year rule. Diag w/MS 2016; w/PCOS & IF 2017 New RE 2018; PCOS diagnosis taken away, IF due to ovary adhesions, but prev. RE insists PCOS IF
IUI IUI #1 July 2017 w/100mg Clo+trigger; BFN; benched w/big cysts IUI #2 October 2017 w/50mg Clo+trigger; BFN; benched w/big cysts IUI #3 February 2018 w/5mg Femara+trigger; low P BFP February; mc March; Subclinical hypothyroid started Levothyroxine IUI #4 March 2018 w/7.5mg Femara+trigger; BFN Medicated cycle & TI April 2018 w/7.5mg Femara+trigger; BFN Tried several cycles on our own; all BFN
Re: The NICU Thread
I know you are ready for her to be home, I know how tiresome all of this is. Trust me. It took everything I had not to cry and scream in frustration some days. Remember that everything in NICU runs on the baby's schedule not ours, as much as that sucks. I can't tell you how frustrated and jealous and hurt I would be when a much younger baby would be able to do things M couldn't. Those are hard days. I can say this tho, the 21 days we spent in NICU, were well worth it. M is thriving, literally. His ped's words, not mine. While it took much, much longer than anyone expected, Dr and nurses alike, it has allowed him to be healthy now. I wouldn't trade those long days for anything, because I dont worry (as much) about him now. When you are feeling overwhelmed and frustrated, just PM me. I know exactly how you feel. I'm here for you. I promise this doesnt last forever despite the hours feeling like days and the days feeling like years.
I have trouble sometimes with jealousy. Lots of other moms have taken their babies home and it hurts to see cute pics of them and hear them talking about their babies being up all night eating. I would give anything for that! But that's my own problem and I need to keep it in check.
Anyways. Thank you for being here for me and letting me vent.
DD1: 8/2014
TTC #2: 6/2017
BFP 8/3/2017 | CP 8/4
BFP 10/16/2017 | CP 10/21
BFP 12/18/2017 | CP 12/28
BFP 2/15/2018 | EDD: November 2nd | It's a girl!
DD2: 10/2018
Me: 31, possible PCOS and Septate Uterus (Septum removed in November 2017)
DH: 31, MFI (Low Count and Low Motility)
July 2017 - IUI #1 - Letrozole 2.5 mg, no trigger, Prometrium 100 mg 2x a day - BFN
August 2017 - IUI #2 - Letrozole 2.5 mg, no trigger, Prometrium 100 mg 2x a day - BFN
September 2017 - IUI #3 - Letrozole 2.5 mg, no trigger, Prometrium 100 mg 2x a day - BFN
November 2017 - Uterine Septum removed
December 2017 - IVF Consultation
January 2018 - IVF #1 - Retrieval 1/24 - 2 Day 3 embryos (1 transferred fresh, 1 frozen) and 2 Day 5 embryos frozen
February 2018 - Fresh Transfer - Transfer 1/27 (1 day 3 embryo) - BFN
March 2018 - FET #1 - Transfer 3/2 (1 day 5 embryo) - BFP! 1st beta (10dp5dt) - 101; 2nd beta (17dp5dt) - 3061! Due 11/18/2018
March 2018 - Remaining embryos lost in malfunction.
October 8, 2018 - Son born at 34 weeks and a day due to preeclampsia and HELLP syndrome. Spent 13 days in the NICU.
June 2019 - IVF #2 - Cancelled - Cyst on Ovary
July 2019 - IVF #2 Take 2 - Retrieval 8/1 - 5 Day 5 embryos frozen
August 2019 - FET #1 - Cancelled - No Trilaminar Lining
September 2019 - FET #1 - Transfer 9/25 (1 day 5 embryo) - Chemical Pregnancy - 1st beta (9dp5dt): 110; 2nd beta (14dp5dt): 357; 3rd beta (16dp5dt): 188; 4th beta (23dp5dt): 7
November 2019 - FET #2 - Transfer 11/6 (1 day 5 embryo) - BFN
December 2019 - FET #3 - Transfer 12/11 (1 day 5 embryo) - BFP! - 1st beta (8dp5dt): 102; 2nd beta (15dp5dt): 2636! Due 08/28/2020
August 13, 2020 - Son born at 37 weeks an 6 days due to failed BPP (Gestational Diabetes).
Dx: PCOS
DS1 born 11/2014
DS2 born 11/2018
3 previous losses
Rainbow baby due 12/2021 - Team Green
We did find out some good news today--we're moving out of the ICU onto the infant floor, so...progress! I'm wondering if maybe they'll be a bit more lenient with eating on the infant floor since the babies there are more stable. We'll see. I just need to stop thinking of timelines in my head and realize we'll be here for the time being. She's healthy, and that's really what matters in the end.
@marfi236 Thank you for letting me know about Tristan's eating. Right now Sydney's taking about 20% of her feeds via bottle, so it's hard to not think we'll be here forever. I'm hoping and praying she gets the hang of it one day (and soon!) just like Tristan did.
DD1: 8/2014
TTC #2: 6/2017
BFP 8/3/2017 | CP 8/4
BFP 10/16/2017 | CP 10/21
BFP 12/18/2017 | CP 12/28
BFP 2/15/2018 | EDD: November 2nd | It's a girl!
DD2: 10/2018
@highsteaks I wonder if the dye test is a VCUG? that's what Sydney had to diagnose her hydronephrosis. Thank you for all the information! That's great to know she may outgrow it. Also great to know that solid food and medicine can all be the same as for a normal kid. I'm glad the appointment went well!
DD1: 8/2014
TTC #2: 6/2017
BFP 8/3/2017 | CP 8/4
BFP 10/16/2017 | CP 10/21
BFP 12/18/2017 | CP 12/28
BFP 2/15/2018 | EDD: November 2nd | It's a girl!
DD2: 10/2018
I feel guilty because I should be thankful that she's healthy and fine, and I am, but I'm tired of hospitals and I want her home with us. But instead they're transferring her to another hospital today or tomorrow and who knows how long we'll be there. I never realized that they could keep babies for so long who don't need any medical help. She's not even hooked up to anything anymore aside from the NG tube and the oxygen monitor on her foot, but they take that off during the day. So it feels so silly to have her in a hospital just to teach her to drink her bottles. I mean, I get it. She needs to eat and be healthy. But babies are sent home from the hospital with their moms every day when they don't yet know how to eat and I'm jealous that we can't do that too.
I've been lounging around the house today cleaning, watching TV, and eating lots of leftover Halloween candy. I feel bad that I won't see Sydney today, but I also really needed a day to myself.
DD1: 8/2014
TTC #2: 6/2017
BFP 8/3/2017 | CP 8/4
BFP 10/16/2017 | CP 10/21
BFP 12/18/2017 | CP 12/28
BFP 2/15/2018 | EDD: November 2nd | It's a girl!
DD2: 10/2018
DD1: 8/2014
TTC #2: 6/2017
BFP 8/3/2017 | CP 8/4
BFP 10/16/2017 | CP 10/21
BFP 12/18/2017 | CP 12/28
BFP 2/15/2018 | EDD: November 2nd | It's a girl!
DD2: 10/2018
We've only tried breastfeeding a few times so far. I've mostly just stuck with the bottle because it was working well and I didn't want to hinder her by trying something new.
DD1: 8/2014
TTC #2: 6/2017
BFP 8/3/2017 | CP 8/4
BFP 10/16/2017 | CP 10/21
BFP 12/18/2017 | CP 12/28
BFP 2/15/2018 | EDD: November 2nd | It's a girl!
DD2: 10/2018
I'm feeling much better and @wildrainbow -- the advice you gave me about wanting Sydney to come home healthy and thriving is really helping. The goal is to get her big and strong and healthy, so we'll do what it takes to get her there, even if it takes a while longer.
DD1: 8/2014
TTC #2: 6/2017
BFP 8/3/2017 | CP 8/4
BFP 10/16/2017 | CP 10/21
BFP 12/18/2017 | CP 12/28
BFP 2/15/2018 | EDD: November 2nd | It's a girl!
DD2: 10/2018
Also, I invested in some of those velcro swaddles today to keep Sydney's arms down so she stops yanking her tube out!
DD1: 8/2014
TTC #2: 6/2017
BFP 8/3/2017 | CP 8/4
BFP 10/16/2017 | CP 10/21
BFP 12/18/2017 | CP 12/28
BFP 2/15/2018 | EDD: November 2nd | It's a girl!
DD2: 10/2018
Kind of pissed at the nurse today though because she used the Dr. Brown's bottle this morning and Sydney only drank 40 out of 70ccs. I guess she didn't check to see which bottle to use.
DD1: 8/2014
TTC #2: 6/2017
BFP 8/3/2017 | CP 8/4
BFP 10/16/2017 | CP 10/21
BFP 12/18/2017 | CP 12/28
BFP 2/15/2018 | EDD: November 2nd | It's a girl!
DD2: 10/2018
DD1: 8/2014
TTC #2: 6/2017
BFP 8/3/2017 | CP 8/4
BFP 10/16/2017 | CP 10/21
BFP 12/18/2017 | CP 12/28
BFP 2/15/2018 | EDD: November 2nd | It's a girl!
DD2: 10/2018
Small update: They're letting S go 24 hours without the NG tube. Instead of feeds every 3 hours, they're going to feed her on demand (but not less than every 3 hours). Fingers crossed.
DD1: 8/2014
TTC #2: 6/2017
BFP 8/3/2017 | CP 8/4
BFP 10/16/2017 | CP 10/21
BFP 12/18/2017 | CP 12/28
BFP 2/15/2018 | EDD: November 2nd | It's a girl!
DD2: 10/2018
Me: 31, possible PCOS and Septate Uterus (Septum removed in November 2017)
DH: 31, MFI (Low Count and Low Motility)
July 2017 - IUI #1 - Letrozole 2.5 mg, no trigger, Prometrium 100 mg 2x a day - BFN
August 2017 - IUI #2 - Letrozole 2.5 mg, no trigger, Prometrium 100 mg 2x a day - BFN
September 2017 - IUI #3 - Letrozole 2.5 mg, no trigger, Prometrium 100 mg 2x a day - BFN
November 2017 - Uterine Septum removed
December 2017 - IVF Consultation
January 2018 - IVF #1 - Retrieval 1/24 - 2 Day 3 embryos (1 transferred fresh, 1 frozen) and 2 Day 5 embryos frozen
February 2018 - Fresh Transfer - Transfer 1/27 (1 day 3 embryo) - BFN
March 2018 - FET #1 - Transfer 3/2 (1 day 5 embryo) - BFP! 1st beta (10dp5dt) - 101; 2nd beta (17dp5dt) - 3061! Due 11/18/2018
March 2018 - Remaining embryos lost in malfunction.
October 8, 2018 - Son born at 34 weeks and a day due to preeclampsia and HELLP syndrome. Spent 13 days in the NICU.
June 2019 - IVF #2 - Cancelled - Cyst on Ovary
July 2019 - IVF #2 Take 2 - Retrieval 8/1 - 5 Day 5 embryos frozen
August 2019 - FET #1 - Cancelled - No Trilaminar Lining
September 2019 - FET #1 - Transfer 9/25 (1 day 5 embryo) - Chemical Pregnancy - 1st beta (9dp5dt): 110; 2nd beta (14dp5dt): 357; 3rd beta (16dp5dt): 188; 4th beta (23dp5dt): 7
November 2019 - FET #2 - Transfer 11/6 (1 day 5 embryo) - BFN
December 2019 - FET #3 - Transfer 12/11 (1 day 5 embryo) - BFP! - 1st beta (8dp5dt): 102; 2nd beta (15dp5dt): 2636! Due 08/28/2020
August 13, 2020 - Son born at 37 weeks an 6 days due to failed BPP (Gestational Diabetes).
DD1: 8/2014
TTC #2: 6/2017
BFP 8/3/2017 | CP 8/4
BFP 10/16/2017 | CP 10/21
BFP 12/18/2017 | CP 12/28
BFP 2/15/2018 | EDD: November 2nd | It's a girl!
DD2: 10/2018
that is the BESTEST news!!!!!!!! legit tears over here for you. it’s been so long and i’m so happy that she’s finally going home with you!
She also said it can take a while to get all the medical equipment ordered and verified with insurance, so not to be too disappointed if we can't actually take her home tomorrow. But we're meeting with the doctors during rounds early tomorrow and will get it all figured out. I'm just happy at this point to *finally* have an estimated discharge date after all this time.
DD1: 8/2014
TTC #2: 6/2017
BFP 8/3/2017 | CP 8/4
BFP 10/16/2017 | CP 10/21
BFP 12/18/2017 | CP 12/28
BFP 2/15/2018 | EDD: November 2nd | It's a girl!
DD2: 10/2018
Me: 31, possible PCOS and Septate Uterus (Septum removed in November 2017)
DH: 31, MFI (Low Count and Low Motility)
July 2017 - IUI #1 - Letrozole 2.5 mg, no trigger, Prometrium 100 mg 2x a day - BFN
August 2017 - IUI #2 - Letrozole 2.5 mg, no trigger, Prometrium 100 mg 2x a day - BFN
September 2017 - IUI #3 - Letrozole 2.5 mg, no trigger, Prometrium 100 mg 2x a day - BFN
November 2017 - Uterine Septum removed
December 2017 - IVF Consultation
January 2018 - IVF #1 - Retrieval 1/24 - 2 Day 3 embryos (1 transferred fresh, 1 frozen) and 2 Day 5 embryos frozen
February 2018 - Fresh Transfer - Transfer 1/27 (1 day 3 embryo) - BFN
March 2018 - FET #1 - Transfer 3/2 (1 day 5 embryo) - BFP! 1st beta (10dp5dt) - 101; 2nd beta (17dp5dt) - 3061! Due 11/18/2018
March 2018 - Remaining embryos lost in malfunction.
October 8, 2018 - Son born at 34 weeks and a day due to preeclampsia and HELLP syndrome. Spent 13 days in the NICU.
June 2019 - IVF #2 - Cancelled - Cyst on Ovary
July 2019 - IVF #2 Take 2 - Retrieval 8/1 - 5 Day 5 embryos frozen
August 2019 - FET #1 - Cancelled - No Trilaminar Lining
September 2019 - FET #1 - Transfer 9/25 (1 day 5 embryo) - Chemical Pregnancy - 1st beta (9dp5dt): 110; 2nd beta (14dp5dt): 357; 3rd beta (16dp5dt): 188; 4th beta (23dp5dt): 7
November 2019 - FET #2 - Transfer 11/6 (1 day 5 embryo) - BFN
December 2019 - FET #3 - Transfer 12/11 (1 day 5 embryo) - BFP! - 1st beta (8dp5dt): 102; 2nd beta (15dp5dt): 2636! Due 08/28/2020
August 13, 2020 - Son born at 37 weeks an 6 days due to failed BPP (Gestational Diabetes).
She seems to have pretty bad reflux so she's taking Zantac for it. Hoping it helps! On top of that she has 3 other medications she has to take daily so I'm a bit stressed thinking of all we have to do, but I know we'll find our rhythm. We are just so thrilled to be home!
DD1: 8/2014
TTC #2: 6/2017
BFP 8/3/2017 | CP 8/4
BFP 10/16/2017 | CP 10/21
BFP 12/18/2017 | CP 12/28
BFP 2/15/2018 | EDD: November 2nd | It's a girl!
DD2: 10/2018
I'm wondering if all Sydney needed all along was to come home! I still can't believe she's eating so well. She even slept pretty decently last night too, so we're feeling pretty lucky.
DD1: 8/2014
TTC #2: 6/2017
BFP 8/3/2017 | CP 8/4
BFP 10/16/2017 | CP 10/21
BFP 12/18/2017 | CP 12/28
BFP 2/15/2018 | EDD: November 2nd | It's a girl!
DD2: 10/2018
My 7 Year Journey ***Tw in spoiler***
IVF #1 - September 2018; Follistim, Menopur, Cetrotide & Lupron/HCG combo trigger; PGS; ICSI
Back on Levothyroxine
FET #1 - October 2018; cancelled, all PGS aneuploid
FET #1 - November 30th, transferred anyway
Wondfo BFP 5dp5dt, CB Digi 6dpt,
1st Beta on 7dpt 93
2nd Beta on 10dpt 510!
TTC #1 since 2011. Tried for 5 years before we knew there was a one year rule.
Diag w/MS 2016; w/PCOS & IF 2017
New RE 2018; PCOS diagnosis taken away, IF due to ovary adhesions, but prev. RE insists PCOS IF
IUI
IUI #1 July 2017 w/100mg Clo+trigger; BFN; benched w/big cysts
IUI #2 October 2017 w/50mg Clo+trigger; BFN; benched w/big cysts
IUI #3 February 2018 w/5mg Femara+trigger; low P
BFP February; mc March; Subclinical hypothyroid started Levothyroxine
IUI #4 March 2018 w/7.5mg Femara+trigger; BFN
Medicated cycle & TI April 2018 w/7.5mg Femara+trigger; BFN
Tried several cycles on our own; all BFN