I had a level 2 ultrasound yesterday and my baby girl looks perfect except for having a little excess fluid in her kidneys. The doctor indicated that this is fairly common and typically corrects itself, but then told me that this is a soft market for Down Syndrome. Since I'm 34, she encouraged me to get the Mat 21 testing done (I have opted out of this testing up until now, I'm 23 weeks). I won't get the results back for a week. Has anyone else had an ultrasound d that revealed fluid in the kidneys? I've read it's more common in boys than girls which makes me even more scared.
@KerrieHarms I found out at my a/s that my baby has fluid on his kidneys too. Did they give you a number? His is only at a 4. 3 and less is considered normal. My OB suggested we do the Mat21 too but we declined. I don't know what your LO's level is but very often this resolves on its own. We will be going back in for another scan at 32 weeks to see if it is resolved then. If it isn't resolved by then he will need ultrasounds after birth and it could mean surgery a few months after birth or possibly downs. My OB said that this is the lowest level marker for downs though. Some OB's really think of it as more coincidential than a marker. I'm sorry you got this news too. I'm sorry I don't really have advice. Research and meeting with my OB helped but unfortunately it is more of a wait and see thing and nothing can really be done at this point.
@KerrieHarms I am also 34, also having a girl. At 20wks, her kidneys were measuring 5mm and I was told that under 4mm is normal. Everything else on the u/s looked normal. I had done the NIPT and NT u/s a few weeks prior, and that had all come back low risk. My doc didn't even mention the potential link to Downs, and when I asked (thanks google) she said that the kidney measurement is the lowest marker and since all of the other markers had measured normal it was highly unlikely for us.
Like @mrs35 I have another anatomy scan scheduled for 32wks to check the kidneys. My doc thought there is a decent chance that the kidneys will resolve themselves by then. If not, we will get a high detail u/s at mfm and a preparatory visit with a pediatric urologist. Then baby will get an ultrasound with the urologist before we leave the hospital and again at 1 month. Again, good odds that it will be a minor issue and just monitored. Worst case scenario would be surgery.
I certainly empathize with what you are going through. "Wait and see" is so not fun. Hoping for a good result on your blood test!
@optbaby2017 thank you so much for sharing your similar situation! I keep going back and forth between convincing myself this is all okay and the kidneys will resolve on there own as they seem to do in most cases... to convincing myself of the worst. I didn't have any other markers either, so hopefully there is nothing to worry about. Still waiting on those test results and trying to stay off google!
@mrs35 thank you for sharing, too! I actually wish I would've declined the mat21 again. I feel like I've been a little pressured to do it from the beginning since I'm older. Just praying now that it's done that the results bring me some peace of mind.
I finally got my Mat21 results back and everything is within the "normal" range!!!!! I can't tell you how relieved I am. Thank you all for your kind words and support. If you ever have the extra fluid in the kidneys in future pregnancies or if you come across any other women who receive this news, please pass along that it is very very common and that it is a controversial marker for Down syndrome and many doctors do not even consider it to be one, especially when there are no other markers. I wish you all the best in the rest of your pregnancies and hope we all have smooth safe deliveries and healthy babies!
Re: Fluid in Kidneys
Like @mrs35 I have another anatomy scan scheduled for 32wks to check the kidneys. My doc thought there is a decent chance that the kidneys will resolve themselves by then. If not, we will get a high detail u/s at mfm and a preparatory visit with a pediatric urologist. Then baby will get an ultrasound with the urologist before we leave the hospital and again at 1 month. Again, good odds that it will be a minor issue and just monitored. Worst case scenario would be surgery.
I certainly empathize with what you are going through. "Wait and see" is so not fun. Hoping for a good result on your blood test!