Hi ladies, I don't know who to turn to anymore. LO has been on O2 since birth. (He was 41 weeks, so not a premie.) We have seen numerous specialists as to why he isn't getting better. But We seem to be pawned off to the next Dr.
I'm just looking to see if any moms have had a LO with an illness and how you are dealing with it? I'm so frustrated and sad and just want him to be healthy.
Thank you
Re: Coping Support
Sorry you guys are going through this, my LO had surgery this past week (it was comparatively minor) but damn, medical issues with a baby are terrifying. Prayers for both of you.
I wish I had more information to offer, but know that my thoughts are with you and your LO. Please come anytime to share your frustrations or just get a virtual hug
My first child had obstructive sleep apnoea and laryngealomachia (sp?) we had a very frustrating 11 months until he had surgery - he is doing brilliantly now. But it was so scary for a long time- no experience with O2 - mine was on steroids. But things changed for the better for us once we got into a professor specialising in ENT - I'm sure you have probably seen one, but perhaps you could get a second opinion from one with a particular interest in children's breathing issues.
My dr did warn us that unless your child isn't growing, most ENT surgeons are reluctant to operate on a baby - so that's what we had to wait for.
My heart goes out to you - I know it's so frustrating and upsetting to have an unwell baby
Good luck!
To date we have done an echo, blood work, chest X-ray, sleep study, seen a pulmonary specialist and and ENT. We have been to children's twice.
We have an option to do a cat scan and a bronoscipy. We aren't keen on doing those because we have to put him under.
But we are at the end of our rope.
Thank you so much again!! This has cheered me up!!
Our little guys OSA improved six fold by having that done (he also needed something done to voice box/ windpipe)
Not gonna lie- it was hard (hard doesn't even cover it) but he is thriving now
If there's anything you want to know feel free to pm me- the process might be a bit different as I'm in Australia but I'm happy to answer anything
Oh and insist on a hearing test when it can be done - one of our pedi kept pushing and I fought against it because I was adamant my son could hear me just fine and daycare said no way has he got hearing issues.... Well moderate hearing loss in both ears to the point where it would have impacted on speech and development- so I'm thankful that dr insisted, we were able to have that fixed during the same surgery
- sorry long rambling post
I thought this would be the best spot to put this but I always think of you and your LO.
I'm super excited to hear about the oxygen being reduced.. Does that mean the doctors have figured out what was causing him the issues?