Coping Support — The Bump
June 2015 Moms

Coping Support

Hi ladies, I don't know who to turn to anymore. LO has been on O2 since birth. (He was 41 weeks, so not a premie.) We have seen numerous specialists as to why he isn't getting better. But We seem to be pawned off to the next Dr.

I'm just looking to see if any moms have had a LO with an illness and how you are dealing with it? I'm so frustrated and sad and just want him to be healthy.
Thank you

MommaswizzKaLikeAWind

Re: Coping Support

  • I haven't had any experience with this, but I am keeping you and your little guy in my thoughts. May I ask why he is on oxygen?
  • No experience but want to offer you support. I hope you are able to find what you need here.
    virginiaunicorn11
  • @cait7425 thank you for your warm thoughts. They tell us he has obstructive sleep apnea. But we fail our pulse ox tests every other week. We can't bring up his levels. They don't have an anwser for that

  • Have they already referred you to a pediatric cardiologist? Could be symptomatic of a congenital heart defect.

    Sorry you guys are going through this, my LO had surgery this past week (it was comparatively minor) but damn, medical issues with a baby are terrifying. Prayers for both of you.
    7425caitMommaswizzalcrimmins
  • I don't have any experience with this but wanted to say my thoughts & prayers are with you. I hope things get better
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  • I don't have experience with this but my thoughts are with you and your family.
  • No experience or helpful advice either but wanted to send our thoughts and prayers that everything resolves and turns out okay for you and your sweet little guy!!
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    janat1717
  • I have no experience either but, like others, wanted you to know my thoughts and prayers are with you!
  • A friend of mine has a son who dealt with this the first 4-7 months of his life. The Drs kept telling them not to worry and it was nothing. She finally took him to another hospital in another town (childrens hospital) and they were able to diagnose it pretty quickly. It was very stressful for them as in sure you know. He's a healthy 1 year old now! Keeping you in my thoughts!
    KaLikeAWindcbrtncanadian
  • So sorry you are not getting answers. I agree it would be worth going to a children's hospital even if you have to travel a bit to get there. It's hard having any medical problem but I can only imagine when it's a problem with your baby and you don't know exactly what's going on & what to expect in the future. Thoughts & prayers to you & LO.
  • This must be so frustrating for you, I'm so sorry. I wish I had some experience but I just want you to know we're here for support/venting/anything. Your LO is beautiful by the way! Hope you get some answers soon, mama. Hang in there.
    TTC: 1/2014 BFP: 9/24 EDD: 6/8/2015 Sorry for the poor man's siggy...ticker won't load regardless of how many tips I read.
    aj1327KaLikeAWind
  • I'll be honest, I've always wanted to know what was going on and I was afraid to tell you I think about your poor LO sometimes. I hope you guys get some answers soon! I'm with melly on that hug. <3
    KaLikeAWind
  • @magono20 have the drs mentioned removing adenoids and tonsils?
    Our little guys OSA improved six fold by having that done (he also needed something done to voice box/ windpipe)
  • magono20magono20
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    edited December 2015
    @sarahairsair one specialist talked about it but they would prefer to wait to see what happens when he is a little older. At 11 months did you make the decision or did your Drs say it had to be done then?

  • Our drs conferred and agreed it had to be done - but only after he didn't grow for five months and we had the sleep study results, I'm glad they made it easier by saying the risk of not doing the surgery far outweighs the risk of doing it- I kept repeating that in my head when I got worried about it.

    Not gonna lie- it was hard (hard doesn't even cover it) but he is thriving now
    If there's anything you want to know feel free to pm me- the process might be a bit different as I'm in Australia but I'm happy to answer anything
    Oh and insist on a hearing test when it can be done - one of our pedi kept pushing and I fought against it because I was adamant my son could hear me just fine and daycare said no way has he got hearing issues.... Well moderate hearing loss in both ears to the point where it would have impacted on speech and development- so I'm thankful that dr insisted, we were able to have that fixed during the same surgery
    - sorry long rambling post
    lovethatcolosunjanat1717devyns2nd
  • Praying that ya'll figure out the best course of action for your precious LO. Also praying for wisdom for his health care providers. Hugs!
    cbrtncanadianKaLikeAWindvirginiaunicorn11
  • @magono20

    I thought this would be the best spot to put this but I always think of you and your LO.

    I'm super excited to hear about the oxygen being reduced.. Does that mean the doctors have figured out what was causing him the issues?
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    aj1327
  • I was also thinking about you the other day @magono20. How is your LO?
    Baby Birthday Ticker Ticker
    beemaya83
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