We found out on June 25th that our sweet baby boy has Trisomy 18. We chose not to do the amnio, since the MaterniT21 results were 99.6% accurate and our little guy has a Choroid Plexus Cyst and clenched hands in ultrasound. I am currently 26wks and he's doing really well We have chosen to love him and enjoy every day that we have left with him, knowing that our time is limited. We play him music, read books, and try to celebrate his life as best we can. Has anyone out there been through this?
I'm so sorry. I lost my first pregnancy to trisomy 13, but didn't know why until after the fact. Praying for you and your family. It's heartbreaking news, but it sounds like you're doing everything you can to enjoy your pregnancy and I'm sure he feels happy and loved in there. Thinking of you.
Thank you PlainJane8350! I'm sorry to hear of your loss I feel very thankful that we found out about his condition so we could prepare ourselves and our daughter (8yrs). It's one day at a time but he is our little blessing and we're still so happy that he is a part of our family!
Thank you all for your encouraging words! It's very comforting and makes me feel like we're making the right decisions for him. He's doing great and he makes me smile every time he kicks (which is quite often!)
PlainJane8350 - I play him lullabies and my husband plays him classic rock...I think he prefers mine
I just wanted to post an update that our baby boy is still doing great! I am 32 weeks and he is developing beautifully. We are hopeful that I will carry to 37 weeks and have some time with him once he is born. God is good and we are so grateful for our son!
I just wanted to post an update that our baby boy is still doing great! I am 32 weeks and he is developing beautifully. We are hopeful that I will carry to 37 weeks and have some time with him once he is born. God is good and we are so grateful for our son!
You're very inspiring. I truly wish you & your family the best.
He's adorable! There's a wonderful family on Facebook- Emma's trisomy 18 journey- if you're in a place you want to check it out I recommend it. We had a T18 scare and I looked to her page a lot for comfort.
I've been wondering about my little friend, congratulations! He is handsome although...you didn't tell me that he was an LSU fan. Looks like we'll have some rivalry come Thanksgiving.
That little stinker. Well, he and Gwen can be friends until Thanksgiving. She's a gracious loser, thanks to Alabama and Ole Miss I've had a chance to find that out. What's his name anyway?!
Our sweet baby boy passed away on Saturday, but his story is a beautiful one and I'm so thankful to have been a part of it. We have so many amazing memories with him since pregnancy up to his 33rd day of life that I will cherish forever. Thank you all for your love and support. Best wishes to all of you in your journeys...you never know where life will take you but be positive and have hope. xoxo
You are a wonderful and inspiring parents. I'm so sorry for your loss, but so happy you were able to make the most of your time together. Julian was a beautiful boy. Prayers to your family.
The picture you posted of you holding your little one is so touching and beautiful. I am so sorry Julian passed. He has the greatest gift in having you as his mother @fostermomma and I am amazed by your strength and resiliency since finding out the challenges you would face. I am thankful you had your brief but meaningful time with him and that his short stay on this earth was with someone as wonderful as you. You are truly one of a kind, as is little Julian. I hope that you and your family will always cherish this and, in time, heal from his passing. Your story is incredibly inspiring and I wish you peace and comfort during this difficult time.
I am so deeply sorry for your loss. Your little boy is perfect and I know the days you had with him were such a treasure. I cannot imagine the pain that is left behind after an experience like that. Praying for you and your family.
Julian was beautiful, and so are you for loving every second of his existence. God bless you and yours!
Dec 2014 - CP
Feb 2015 - No hb 8wks
July 2015 - CP
Aug 2015 - CP
RPL Tests: PAI-1 4g/4g, Heterozygous MTHFR C677T, Vit D Deficiency, Chromosome 9 inversion January 1, 2016 - CP. Heartbroken and feeling helpless. July 2017 - Finally!! FINALLY!! Our GORGEOUS baby girl was born on 7-15-17. Miracles do happen!!
@kickassi78 - Thank you for your kind words, and know that you are on my heart today. I will pray for answers and peace. There was an 8 year gap between my daughter and Julian...8 years of feeling that conception was impossible. But God had other plans and after fostering two little boys for over a year, I became pregnant. I have no idea what He has planned for me in the future, but I know that I have to trust Him to carry me to/through it. Every one of the babies you carried will hug your neck one day, I promise Don't give up hope!
Our sweet Julian has sent us another little miracle. We are expecting his brother or sister the same week that he was born, 1 year later. God is good y'all, God is good.
@cmillar36 I am so very sorry to hear of your loss. I know that your little princess is made whole and perfect, but it doesn't take the pain away. I'll be thinking about you and your baby girl. What is her name?
Re: Trisomy 18 - Confirmed
I think that you've made an amazing decision. Bless you and your baby boy. He's got some amazing parents
[color=pink]First Monkey July 2015[/color]
[color=green]Baby No2 March 2018
~Team Green~[/color]
Who am I kidding, his team's gonna win.
January 1, 2016 - CP. Heartbroken and feeling helpless.
July 2017 - Finally!! FINALLY!! Our GORGEOUS baby girl was born on 7-15-17. Miracles do happen!!
Me: 25 | DH: 25
DD: Aug. 15