Passing large clots, advice? Waiting for OB to call back. NEW UPDATE PAGE 6

maddibayer · January 2015

GirPipley said:
I just wanted to add an another update here, as I realized I never came back to do so.

Tl;Dr
Sent to L&D, MFM believes my auto immune disease and the previa combination is causing the bleeding. On bed rest until viability, then hospital bed rest after that. Babies are doing fine.

****SUPER LONG*****

I was sent to Labor and Delivery last night b/c I have not stopped bleeding, slowed down, or stopped passing clots. There is nothing the ER can do for me at this point, so my MFM pushed L&D a bit, and got me in.

I started the adventure with passing out when they put my IV in, so I was not totally with it the rest of the time. I've never passed out from an IV before, but she put it on the side of my wrist, and I was not expecting that. It hurt so bad my eyes blacked out, and I couldn't hear anything for a minute. It was scary and also a bit embarrassing.

My blood looks okay, which was one of their concerns, my Iron levels are low, but not horrible. The on call MFM came in, and sat down and really focused and listened to me. She went over an in depth medical history, and asked questions and dug for more information. It was really refreshing to have someone take this seriously for what seems like the first time.

I have an IGG3 deficiency, (which is an auto immune issue that causes me to get infections easier) It's very similar to Lupus, which I am under evaluation for now. I've told this to my two previous OBs, and several ER OBs, and nurses. NO ONE has made a connection to the bleeding. My MFM heard this and immediately had a light bulb go off. She said that basically, any little change in the placenta is going to cause my body to over-react to the change, and send more blood cells to fight off the "infection" aka-the placenta. (I'm not sure about the actual science here, I was a little out of it when she was explaining things). Either way, she's not surprised about the amount of blood, because of the IGG3, and the placenta previa combination. There is also a large pool of blood between the placenta and my cervix, which is causing the clotting. It will also cause me to bleed out if my water breaks, which is fucking terrifying.

She did tell me, very frankly, that I will be having very early babies. My body will only be able to tolerate the immune system battle for so long, and the bleeding will progressively get worse. I'm at risk of PPROM, because something about the blood thinning out my cervix? Or thinning out my membranes? I'm not sure which.

Right now, I'm on at home bed rest. My goal is viability...that's so scary, I started bawling when she said "Let's make our goal 23.5w" If I make it to viability, it's likely I'll be in the hospital for the remainder of the pregnancy because of the risk of bleeding out.

I'm terrified that something is going to happen before viability and I wont be taking any babies home. I'm trying to stay positive, but it's hard when I'm seeing all the blood and clots coming out. My bed looks like a murder scene in the morning, it's very scary.

I really appreciate all the support and comments earlier this week, I really hope to finish out this journey on this board.

Oh my gosh I am so sorry!!!! I am glad that this doctor really took the time to find out what's going on! I will be praying for you and those darling babes! You take care of yourself! Get lots of rest and pampering!

AlyLynn07 · January 2015

I'm glad you were able to get some answers, even though it doesn't make your situation any easier. Hoping the bleeding stops or at least slows down and that all three of you stay healthy! Thinking of you!

OMGTree · January 2015

I was on bedrest with DD for 5 weeks. 4 of which was hospital bed rest. It is hard to watch others do things for you but you just have to think of your babies and what's best for them. If you don't have one already I strongly recommend a pregnancy pillow. It was nice to be able to use it to shift around because after 4 or 5 days it gets tough to be in the same position. Also a laptop is your bff now. As is amazon. I spent a ridiculous amount of time "shopping" for our DD. Researching different things. I also recommend the high risk board and the preemie board. Both are amazing resources and full of great women. Just keep looking forward! If it helps I have seen people make paper chains for how many days until certain goals. It can help you focus on the positive and getting closer each day.

hulagrl461 · January 2015

I'm very happy that you got some answers. Sending lots of thoughts, prayers, and hugs to you.

Katerina&Baby · January 2015

Oh my gosh - I'm so sorry that this is happening but thankful that you now know what's going on and they can keep an eye on you and babies. I'll keep you guys in my T&P and FX for the babies cooking for as many weeks as possible!

devyns2nd · January 2015

Thoughts and prayers for you and your sweet babies.

moret07 · January 2015

Happy thoughts for you and precious babies!! Stay strong and good luck!!!

beckynsean11 · January 2015

Oh honey, I'm so sorry for what you're going through. I'll be keeping you in my thoughts. Big hugs!

stinybean · January 2015

I'm so sorry you're experiencing this. My thoughts and prayers are with you and your babies.

notquiteblushing · January 2015

I'm glad you got some answers but I'm sorry that things still look scary. Sending you stay put baby vibes.

GirPipley · January 2015

@mathistm I think a bed rest check in is a great idea! I am happy to start it, but to be completely honest, I am slightly internet dumb, and might not be the best option. I'll post something on Monday or Tuesday and see where it takes us.

I'll be sure to watch out for the 24 hour news cycles, I don't need anymore anxiety right now!

GirPipley · January 2015

@OMGtree I will for sure check out those two boards! The more Bump the better!

awheeler4311 · January 2015

Thinking of you!! This is so scary. Please continue to keep us posted

GirPipley · January 2015

@beckynsean11 I've been thinking about you all week, I hope you are doing the best you can be. Thank you for stopping by, and for your thoughts and support.

mmo2112 · January 2015

Stay, babies, stay! Sending good thoughts your way and hoping to celebrate with you around 24w! (Also very glad to hear you have an MFM who listens and is on top of her shit. Makes such a difference.)

scottstots · January 2015

Thinking of you and the babies and praying you make it to viability and beyond.

Stormy61 · January 2015

My prayers are with you! I'm glad someone finally connected the dots and FX for you and the little ones over the next few weeks. Stay strong!

beckynsean11 · January 2015

GirPipley said:

@beckynsean11 I've been thinking about you all week, I hope you are doing the best you can be. Thank you for stopping by, and for your thoughts and support.

Meh, I'm doing. One day at a time.

darvo · January 2015

I hope everything ends up okay. I feel so burdened for you. Praying!

LadySif · January 2015

Oh golly. So sorry you have to go through this! Will keep you in my thoughts and don't lift a finger more than necessary. Looking forward to celebrating you making it to viability day and beyond!

McBaby19 · January 2015

Thoughts and prayers that the time passes quickly and you and your babies stay safe and healthy! I'm glad you're alright! >:D<
Eta- smiley fail

esampson1983 · January 2015

So sorry you are going through this! Many positive thoughts for you and your babies!

ahershe · January 2015

Praying for the you!!! I believe that healing happens and that's what I'm praying for!

hazeltrois · January 2015

Oh so scary! Sending T&Ps your way.

Sunny B · January 2015

I'm so so sorry you're going through this. I'll be praying for you and your babies.

DolphinLover2002 · January 2015

Wow, I will be keeping you in my prayers. Us June mommas have to stick together! I'm having twins too, but I can't even imagine what you're going through. Stay strong. Let's get those babies to stay in there as long as possible!

ktpatter · January 2015

Thoughts and prayers are with you!

Shutterbug&17 · January 2015

GirPipley said:

@mathistm Thank you, I will definitely be needing some bed rest ideas. I'm on day one and I'm driving myself crazy. I suck at watching people do things for me, I feel like a big lump asking people to bring me a bottle of water. I know I will get more used to it, and my mom and Fiance are great, but still....I feel like a lazy bum. I just had to have FI go buy more pads...poor guy.

I asked if he was shy at check out, and he said "Nope, I felt like I was going home to my lady who is taking care of my babies"
:x

I'm so so sorry you are going through this! Sending lots of thoughts and prayers for you and your sweet babies. Love your fiancé's comment. He sounds like a great, supportive guy!

Ravenclaw314 · January 2015

What a scary situation; I'm so sorry. I'll be thinking of, and praying for you and your babies!

blu-eyedwife · January 2015

I've been pretty worried about you and the babes since your original post. I'm really glad the MFM figured it out, even though it's still a scary scenario for you. And bedrest is certainly no fun. I also know that even though we're all just a few short weeks away from viability, that deadline looming over your head is going to make it seem like years.

I'm so sorry about this additional stress. Lots of good thoughts for you. And when we get closer to the date, I'll tell you all these amazing preemie stories I have. I even know someone whose water broke, and they were able to keep the baby inside for an additional 2 weeks.

Twinteriscoming · January 2015

Wow, well this has to be the most terrifying thing you've had to go through. You poor thing! I'm so sorry. I will keep you and your little twins in my prayers. Stay put, little ones! Leave viability in your dust! I recommend the good tv series on HBO go to keep you busy - namely, six feet under and game of thrones. And Netflix for breaking bad, walking dead, American horror story, Orange is the new black and, if you get really desperate, the secret life of the American teenager. I voluntarily gave up months of my life (gladly) to watch those shows. Hang in there, honey!

NEENT10 · January 2015

T&P for you and your babies!

hazeldublin · January 2015

I'm glad they figured out the problem. Try to not stress out and take it one day at a time. Sending loads of positive vibes that those babies stay put and you all stay healthy.

nye373 · January 2015

I don't know how I missed this thread and all of the updates, but I'm feeling for you. This is incredibly scary. It sounds like you're handling it like a champ. I am praying and thinking of you and your babies. I hope you are able to make it well into the viability zone.

thay33 · January 2015

My T&Ps are with you. I really hope you end up having healthy babies and things go well for you. I'm so sorry you have to go through this

erbear84 · January 2015

I'm glad to hear they figured things out. Stay, babies! Thoughts and prayers your way!

walshbunnie · January 2015

My thoughts and prayers are with you and your twins.

catmagick · January 2015

Oh my gosh @GirPipley‌ I am so sorry you are going through this. It sounds terrifying and all too familiar. I also had a massive bleed at 13 weeks where I lost a ton of blood, was passing golf ball sized clots and used the words "murder scene" to describe the bathroom afterwards. Thankfully baby boy is just fine. I hope you have the same outcome. I can only imagine how scared you must be right now waiting for 24 weeks to come. I'm hoping you can watch lots of Netflix and distract yourself enough to help the time pass quickly. Please keep is updated!!

taboullio84 · January 2015

Wow. You have been going through a bunch. I'm pulling for you. Try to relax, stay positive . it will be fine.

GirPipley · January 2015

Awwwww, you guise....I'm so happy and thankful to be a part of this community. I was just telling Fi that I wish I could give TB a hug.

I started my day today with a meltdown of all the what ifs, we are going to run out of money, what did we get ourselves into...how is Fi going to handle the house and our two other kids etc... it was ugly...like, snot running down my face ugly. After calming down, taking my anxiety meds (Drugs are real kids...) and taking a shower... I logged in here and read through the responses. Thank you all so much for all your kinds words and thoughts and prayers. I can not tell you how much it means right now.

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Passing large clots, advice? Waiting for OB to call back. NEW UPDATE PAGE 6

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