Passing large clots, advice? Waiting for OB to call back. NEW UPDATE PAGE 6

esampson1983 · January 2015

I hope everything is okay! Sending positive thoughts to you!

angielayne926 · January 2015

Hoping all is well!

OohSparkly13 · January 2015

Sending positive thoughts!

walshbunnie · January 2015

FX that everything will turn out okay.

GirPipley · January 2015

Finally getting around to update this.

We ended up in the ER, not L&D, since they really can not do anything for me at L&D yet, but my MFM was hopeful they would let me in there instead of the ER. No such luck. We were there for several hours and got home sometime between 5 and 6am. I slept basically all day.

We have no more information now than I did yesterday morning. They can not find a source for bleeding other than the previa, which they are not sure would be causing this much bleeding. I have instructions for return if I'm bleeding through a pad an hour, which I am, and was when I went in, and was when I got discharged. This is so frustrating.

I have an appointment with my MFM tomorrow, so I'm hoping to get more information and guidance. The most frustrating thing is that I don't know when to react to the bleeding and when to not.

The babies are doing just fine, so that's what I'm trying to focus on. They were measuring 6 days behind at 12 weeks, but it looks like they are only 3 days behind now, which is great. The U/S tech offered to tell us the sex, which I thought was sweet.

Thank you very much for all the support. I really appreciate all the love, thoughts and prayers.

turtletyme · January 2015

Glad to hear from you. Take it easy and hope you get more answers tomorrow.

leenziepops · January 2015

GirPipley said:

Finally getting around to update this.

We ended up in the ER, not L&D, since they really can not do anything for me at L&D yet, but my MFM was hopeful they would let me in there instead of the ER. No such luck. We were there for several hours and got home sometime between 5 and 6am. I slept basically all day.

We have no more information now than I did yesterday morning. They can not find a source for bleeding other than the previa, which they are not sure would be causing this much bleeding. I have instructions for return if I'm bleeding through a pad an hour, which I am, and was when I went in, and was when I got discharged. This is so frustrating.

I have an appointment with my MFM tomorrow, so I'm hoping to get more information and guidance. The most frustrating thing is that I don't know when to react to the bleeding and when to not.

The babies are doing just fine, so that's what I'm trying to focus on. They were measuring 6 days behind at 12 weeks, but it looks like they are only 3 days behind now, which is great. The U/S tech offered to tell us the sex, which I thought was sweet.

Thank you very much for all the support. I really appreciate all the love, thoughts and prayers.

Good to hear from you and that the babies are fine. But how frustrating that you had the exact bleeding symptom yet they still sent you home. I don't understand.

You're right though, let's focus on the well being of your babies. Must've been exciting to see them growing so well after that U/S. I hope the bleeding stops soon so you can enjoy your pregnancy.

Sunny B · January 2015

I am glad your babies are doing well. Hoping you get some further information from your MFM tomorrow. Praying all is ok.

KJKNAJ · January 2015

Hmm doesn't seem like you got much in the way of answers. Hang in there, and keep us posted!

thay33 · January 2015

Glad to hear from you again! I hope all goes well at your MFM tomorrow, you are in my thoughts

erbear84 · January 2015

I'm glad your babies are doing well!

MrsMonogrammed · January 2015

So happy to hear those babies are doing ok! FX you get some answers soon and the bleeding stops!

tiffbot1985 · January 2015

Glad to hear from you, hope you can learn anything to at least give you some answers and hopefully make you feel better!

LadySif · January 2015

Rest rest rest, still sending T&P your way. Glad babies are going strong. GL tomorrow!

Emilywooddesign · January 2015

I hope you get some answers soon but I'm so happy that the babies are okay! Hopefully the bleeding stops soon xoxo positive vibes to you!

cnoelle92 · January 2015

I'm glad babies are doing well. Hope you get more answers tomorrow!!

jellyfishpuff · January 2015

Glad to hear the babies are ok. Hope you get some answers tomorrow!

hazeldublin · January 2015

Happy to hear babies are well. Hopefully your next appointment will give you some answers and reassurance

effthisnoise · January 2015

I'm glad that the babies are doing well and I hope that you get some answers today!

kls6382 · January 2015

Agree with the rest, rest, rest sentiment. Glad babies are doing okay! Frustrating that they couldn't give you more information

Belle0720 · January 2015

Very glad to hear that the babies are okay. I hope that you are able to find some answers very soon!

GirPipley · January 2015

brennazesquire said:

When I went to the ER they couldn't figure it out, either--but I wasn't passing a TON of blood or clots, so I let it go when I saw baby was fine. By the time I got to my OB a few days of bed rest later, she couldn't find the source of the bleeding either, but it had almost entirely stopped. She said sometimes bleeding doesn't show internal signs, but she wasn't concerned since baby still looked good and bleeding had all but stopped. I'm still restricted in activity, but it is also partly due to blood pressure stuff, so I don't know how much of the restriction is due to the bleeding itself. Anyway just wanted to say I get the frustration of not getting answers, but at least babies are okay, which is the biggest concern, right? Hopefully it gets straightened out soon!

Yes, very frustrating. Thank you for your reply. I hope you continue to have a smooth pregnancy!

Unknown · January 2015

This content has been removed.

Ana0927 · January 2015

Happy to hear your babies are ok. Hope you get some answers from you MFM. Praying everything is ok.

GirPipley · January 2015

I just wanted to add an another update here, as I realized I never came back to do so.

Tl;Dr
Sent to L&D, MFM believes my auto immune disease and the previa combination is causing the bleeding. On bed rest until viability, then hospital bed rest after that. Babies are doing fine.

****SUPER LONG*****

I was sent to Labor and Delivery last night b/c I have not stopped bleeding, slowed down, or stopped passing clots. There is nothing the ER can do for me at this point, so my MFM pushed L&D a bit, and got me in.

I started the adventure with passing out when they put my IV in, so I was not totally with it the rest of the time. I've never passed out from an IV before, but she put it on the side of my wrist, and I was not expecting that. It hurt so bad my eyes blacked out, and I couldn't hear anything for a minute. It was scary and also a bit embarrassing.

My blood looks okay, which was one of their concerns, my Iron levels are low, but not horrible. The on call MFM came in, and sat down and really focused and listened to me. She went over an in depth medical history, and asked questions and dug for more information. It was really refreshing to have someone take this seriously for what seems like the first time.

I have an IGG3 deficiency, (which is an auto immune issue that causes me to get infections easier) It's very similar to Lupus, which I am under evaluation for now. I've told this to my two previous OBs, and several ER OBs, and nurses. NO ONE has made a connection to the bleeding. My MFM heard this and immediately had a light bulb go off. She said that basically, any little change in the placenta is going to cause my body to over-react to the change, and send more blood cells to fight off the "infection" aka-the placenta. (I'm not sure about the actual science here, I was a little out of it when she was explaining things). Either way, she's not surprised about the amount of blood, because of the IGG3, and the placenta previa combination. There is also a large pool of blood between the placenta and my cervix, which is causing the clotting. It will also cause me to bleed out if my water breaks, which is fucking terrifying.

She did tell me, very frankly, that I will be having very early babies. My body will only be able to tolerate the immune system battle for so long, and the bleeding will progressively get worse. I'm at risk of PPROM, because something about the blood thinning out my cervix? Or thinning out my membranes? I'm not sure which.

Right now, I'm on at home bed rest. My goal is viability...that's so scary, I started bawling when she said "Let's make our goal 23.5w" If I make it to viability, it's likely I'll be in the hospital for the remainder of the pregnancy because of the risk of bleeding out.

I'm terrified that something is going to happen before viability and I wont be taking any babies home. I'm trying to stay positive, but it's hard when I'm seeing all the blood and clots coming out. My bed looks like a murder scene in the morning, it's very scary.

I really appreciate all the support and comments earlier this week, I really hope to finish out this journey on this board.

leenziepops · January 2015

GirPipley said:
I just wanted to add an another update here, as I realized I never came back to do so.

Tl;Dr
Sent to L&D, MFM believes my auto immune disease and the previa combination is causing the bleeding. On bed rest until viability, then hospital bed rest after that. Babies are doing fine.

****SUPER LONG*****

I was sent to Labor and Delivery last night b/c I have not stopped bleeding, slowed down, or stopped passing clots. There is nothing the ER can do for me at this point, so my MFM pushed L&D a bit, and got me in.

I started the adventure with passing out when they put my IV in, so I was not totally with it the rest of the time. I've never passed out from an IV before, but she put it on the side of my wrist, and I was not expecting that. It hurt so bad my eyes blacked out, and I couldn't hear anything for a minute. It was scary and also a bit embarrassing.

My blood looks okay, which was one of their concerns, my Iron levels are low, but not horrible. The on call MFM came in, and sat down and really focused and listened to me. She went over an in depth medical history, and asked questions and dug for more information. It was really refreshing to have someone take this seriously for what seems like the first time.

I have an IGG3 deficiency, (which is an auto immune issue that causes me to get infections easier) It's very similar to Lupus, which I am under evaluation for now. I've told this to my two previous OBs, and several ER OBs, and nurses. NO ONE has made a connection to the bleeding. My MFM heard this and immediately had a light bulb go off. She said that basically, any little change in the placenta is going to cause my body to over-react to the change, and send more blood cells to fight off the "infection" aka-the placenta. (I'm not sure about the actual science here, I was a little out of it when she was explaining things). Either way, she's not surprised about the amount of blood, because of the IGG3, and the placenta previa combination. There is also a large pool of blood between the placenta and my cervix, which is causing the clotting. It will also cause me to bleed out if my water breaks, which is fucking terrifying.

She did tell me, very frankly, that I will be having very early babies. My body will only be able to tolerate the immune system battle for so long, and the bleeding will progressively get worse. I'm at risk of PPROM, because something about the blood thinning out my cervix? Or thinning out my membranes? I'm not sure which.

Right now, I'm on at home bed rest. My goal is viability...that's so scary, I started bawling when she said "Let's make our goal 23.5w" If I make it to viability, it's likely I'll be in the hospital for the remainder of the pregnancy because of the risk of bleeding out.

I'm terrified that something is going to happen before viability and I wont be taking any babies home. I'm trying to stay positive, but it's hard when I'm seeing all the blood and clots coming out. My bed looks like a murder scene in the morning, it's very scary.

I really appreciate all the support and comments earlier this week, I really hope to finish out this journey on this board.

Many T&P's for you. We're all supporting you to finish the journey to June. So sorry you are going through so much but upside is that right now your bubs are safe.

bruunk · January 2015

@GirPipley‌ oh man, I'm sorry you are going through this. Sending you good vibes, and hugs. I'm really glad you got a medical professional who was finally able to figure this out! I'll be thinking about you, please keep us updated, if you can.

littlegrapey · January 2015

I'm sorry you are going through this. T&Ps are with you.

Knottie20244554 · January 2015

That sounds absolutely terrifying! I will be thinking of you and praying that you make it to June! At least you and the babies are safe and resting. Hopefully the bleeding stops soon so you can have some peace. Please please please update if anything changes! Sending good vibes your way!

Trampslikeus · January 2015

So sorry to hear this

Hopefully all of us sending our "stay in there, little ones!" energy to the three of you will help a bit.

Thinking of you...

mathistm · January 2015

I'm so sorry you are going through all of this. You and your babes have been on my mind a lot the last couple of days-positive thoughts can't hurt! I hope the best for you and them! Please continue to take care of yourself and let us know if there is anything we can do-idk come up with some bed rest ideas so you aren't completely bored. I'm so hoping and praying that you make it as long as possible and bring home 2 amazing babies.

elbowpasta · January 2015

Thinking of you and your babies! Stay strong.

Bednarova · January 2015

oh @GirPipley‌. Hugs and prayers and grow babies grow vibes for you.

I am so sorry that you have to go through this!

housewifebecomesher · January 2015

Thinking of you! Take care of yourself.

tiffbot1985 · January 2015

Good luck to a long pregnancy!! I'm sorry it's all going to be so scary every day for you. I really hope babies stay strong and healthy!

wegrowsheep · January 2015

I'm so glad that you got seen in L&D, and that you have answers. Super scary for sure, but at least you have a diagnosis and a goal! Prayers to you and your little ones!

disney815 · January 2015

Prayers for you and your little babies!!!

GirPipley · January 2015

@mathistm Thank you, I will definitely be needing some bed rest ideas. I'm on day one and I'm driving myself crazy. I suck at watching people do things for me, I feel like a big lump asking people to bring me a bottle of water. I know I will get more used to it, and my mom and Fiance are great, but still....I feel like a lazy bum. I just had to have FI go buy more pads...poor guy.

I asked if he was shy at check out, and he said "Nope, I felt like I was going home to my lady who is taking care of my babies"
:x

sammyca · January 2015

Oh @GirPipley‌ thinking of you and your precious babies.

mathistm · January 2015

@GirPipley‌ I understand. I was only on bed rest for about a week when I got my cerclage put in and I almost lost it! It can feel very helpless-just remember that you are doing the absolutely best thing for your babies and that the people who are helping out truly don't mind or else they wouldn't volunteer! I kept a journal which helped get some of my thoughts out and I actually took up learning to meditate on YouTube because I figured being calmer couldn't hurt.

also Netflix was my best friend and I got the chance to catch up with a lot of old friends and family over the phone. I also crocheted 3 blankets for the soon to be new bundle-learning from scratch haha. I would not recommend getting sucked into the 24 hour news cycle-I found that it made me anxious and feel a little crazy! I know there are a few ladies here on bed rest and who may end unfortunately end up on bed rest before our births. Maybe we should start a thread with ideas to keep occupied.

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Passing large clots, advice? Waiting for OB to call back. NEW UPDATE PAGE 6

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