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April 2015 Moms
krissykingy
member
cleft lip
krissykingy
member
Ive just been told our baby to be has a 5mm left side cleft got consultant thurs anyone had this or going through it xx
This discussion has been closed.
Re: cleft lip
BFP 3: 10/26/16//EDD: 7/2/17
DH: 29
DS: 18 months 4/2/2015
Baby #2 EDD: 6/1/2017
Edit for spelling
The wait was really stressful for them, and there was nothing in ether parent that would have caused this as neither had genetic markers - mom doesn't drink, smoke, etc. It really helped them to know it was completely out of their control.
My friend found a lot of comfort in online forums for expectant mothers experiencing this sort of thing. They met with a surgical team to plan the initial surgery months before she was born to at least close her lip by the time she was 8 weeks old. Another thing they did was send a mass email to their friends and family 6 weeks before her due date just giving us a heads up to avoid "reactions".. I think that have them peace of mind as well.
Thankfully her palate was mostly unaffected (she will need a bone Graf at age 5ish to fill in her gum line and her nose needs to be reconstructed on hat side). Baby's lip is now closed and she is an adorable 5 month old - super cute, healthy, and super smart beating all of her mile markers.
Also, Joaquin Phoenix had a cleft lift and I had quite the crush on him. It can add a bit of character!
November Siggy Challenge: Selfie Fails
Hidden for the sake of your eyes!
Edit bc typing in bed is near impossible apparently.
Modern medicine is amazing. It's good that you are finding out now instead of having to deal with the shock and surprise when he comes. Treatment can be arranged in advance of his birth and you and your partner will be so much better prepared.
That being said, I can only imagine how difficult this is... It's not fair to have to witness your little baby go through so much from he very start of their precious lives. Take care of yourself and listen to your doctors!
As for amnio, I had it done in October, And came away feeling that it really is not as bad, nor as risky (from all I've read), as we tend to think (based on older data). It's a very personal decision regardless, but if you think that the results of the procedure would be helpful to you, know the facts and read as much as you can before you let the very minimal risk associated with the procedure deter you. The needle feels no more intense than getting your flu shot, and (in my experience anyway) you watch your baby on the screen the whole time, so you get to see firsthand how they insert the needle far away from the baby. You might ask about the details of what to expect if that would help set your mind at ease, and also ask your doc/perinatologist about post-amnio miscarriage rates in their practice. Hope that helps, and best of luck to you no matter what you decide!
Me: 34 DH: 36
Married since 11/11/11
BFP#1 10/5/13 MC 11/11/13 @9wks 3d
BFP#2 7/20/14 EDD 4/4/15