Positive Verifi Test

Re: Positive Verifi Test

• be888 member

  November 2014

  I'm keeping you in my thoughts. Hugs.

  
  

  

  16 Ch. du Barrage, Lac-Beauport
  

  
  

  
  

  
  

  
  

  Report1 Reply
• Loading the player...
• JJBoden member

  November 2014

  I'm a little slow... Just saw your update and that this thread is a little older. I can ask my friend what support group she joined if that would help you. I know it helped her so much! Maybe some of the kids have the same form as your DD? I am so sorry you are having to travel this road. I know your heart will be filled with love when you hold your daughter even through all this struggle. Wish I could help some way.

  Report1 Reply
• hillbillywife member

  November 2014

  T&P for you. Sorry to hear this.

  Report1 Reply
• GingerDS02 member

  November 2014

  @lbw1977, I'm sure you're reeling from this news and I know the internet can be so overwhelming.  The thing about mosaicism is that, like you said, the range of developmental delay is so broad.  Believe it or not, I have a friend whose son was diagnosed with Mosaic Trisomy 2 and he's 2 yrs old and has shown no sign of a delay and has no known health problems at this point.  I also have a work connection who has a now 6 yr old daughter with Trisomy 18 (not mosaic).  She has challenges but brings joy to her family.  

  As I've mentioned several times, I have a son with Down Syndrome (Trisomy 21) and although his diagnosis was overwhelming at birth, we're at a point of total joy now.  I hope the same comes for you.  Obviously our situations are different but please feel free to PM me if you have any questions.

  

  Report4 Reply
• yarnymommy member

  November 2014

  FX for you.

  Married September 2005 - TEAM PINK x2 this time around

  
  

  
  

  
  

  
  

  Report1 Reply
• AshleighK305 member

  November 2014

  Many thoughts and prayers to you and your family.
  

  

  Report1 Reply
• LowTalker23 member

  November 2014

  Big hugs and prayers, mama.

  

   

  

  Report1 Reply
• lilann2011 member

  November 2014

  FX...waits are so hard!!

  Report1 Reply
• angelfish628 member

  November 2014

  I'm so sorry. You're in my thoughts and prayers.

  Report1 Reply
• lbw1977 member

  November 2014

  Yes, those sites have been so helpful! Do you know if your family member is mosaic? I've been trying to find some mosaic T18 families to connect with, but haven't had much luck.

  Report0 Reply