July 2013 Moms

Baby Vocab

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Re: Baby Vocab

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  • hindihl said:
    mimi4347 said:
    Also - Luke's first word was "gastroschisis," followed closely by "bilirubin." 

    He has recently added "poop" to his vocab list. He is one of those advanced babies who understand that one thing can have many names, however, because from time to time he also calls it "stinky-stink" and "shit."
    This might seem like a stupid question, but is Luke's bilirubin a problem?  This is my DD's main issue that we can't resolve - elevated conjugated bilirubin.  Just curious to know if you have experience with it.
    @hindihl His bilirubin is not a problem, but we have kept a close eye on it all along because TPN and lipids can be very hard on the liver. A lot of gastro/short gut kids have issues with it. We have been lucky so far. 
    FKA mimi4347: diaper rash magician and unofficial expert on excrement
    photo fdcd1f14-730b-4ea3-9fd5-37c8a5575512_zps6b3ccb11.jpgphoto a71807cf-a0c7-4c71-807b-bc4577b61b83_zps4eece2a6.jpg
    This kid may not have a lot of bowel, but he has plenty of guts! 
    DS born at 34 weeks with (surprise!) gastroschisis turned short bowel syndrome.
    131 days in the NICU, 7 trips to the OR, G-button, daily TPN....
    We are impatiently awaiting the day we can say goodbye to his girlfriend Ivy for good.
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