December 2013 Moms

Jeter weight check again

He's lost more weight. Not only did he lose the weight he gained last week he also lost another .5 a pound. So he's only up 10 oz from birth.

We are seeing a different dr today. I seriously hope she has answers because I'm about to lose my shit.
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Re: Jeter weight check again

  • So sorry that you didn't see a gain. T&P and I hope the new doctor has some answers for you

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  • edited March 2014
    yankee does he spit up alot? Has he been checked for pyloric stenosis?
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  • Yankees0623Yankees0623 member
    edited March 2014
    He does not spit up anymore. He had surgery for pyloric stenosis at 28 days old.

    Edit: spelling
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  • While sitting here waiting for the dr the office called to say his labs were in and I needed to talk to the dr. I'm trying to convince myself that that's not bad news.
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  • Thinking of you today. Keep us posted.
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  • T&Ps for you and your LO. Keep us updated.
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  • Oh no! Thoughts and prayers that you get to the bottom of this. Hang in there mama!
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  • Oh, I can see how worried you must be! Prayers that whatever is going on will be discovered quickly and be an easy fix!

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  • Oh no. :( So sorry to hear. I hope you get some answers soon. Sending you all my T's & P's today. Please update us when you can. ::hugs::
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  • A lot of questions but not a lot of answers yet.

    Elevated thyroid, elevated White blood count, elevated liver numbers, dehydration, possible cealic disease, could be cystic fibrosis.

    More blood work in a week, more weight checks, referral to a GI doctor.
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  • Praying for you and your family.
  • I'm sorry that he's still losing weight and that you don't have an answer about why this is happening.
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  • Thinking of you and your sweet boy.
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  • So sorry to hear all this :( lots of T&Ps headed your way.
  • Prayers for you and lo. Hopefully you get the answers real soon and see an improvement in the weight gain. 
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  • I'm so sorry. :( T&P for you and your little man!
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  • Hugs and prayers
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  • Prayers for you and Jeter. xo
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  • T&P's for you guys!
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  • I'm so sorry. Thinking of you and your LO. Hope you get some answers soon!

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  • Did they test you/dh for cf carrier? Or test DS at birth?

    They didn't test me with him because the previous 4 tests came back negative for me. They didn't test DH
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  • I'm totally ugly crying in my car.

    Friday we get more bloodwork at the hospital. In 2 weeks we come back to the pedi to go over results. I have 3 Rx to fill for him. I have to weigh him at home. They did a urine catch.

    I feel like I'm drowning. I need to go home and pray. It's all I have right now.
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  • manausmommanausmom member
    edited March 2014
    I'm soo sorry! Thinking of u and your LO!
  • Sending T&P! I hope everything works out.

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  • T&P! Stay strong!
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  • I'm so sorry. I'm praying for you guys. They will get it figured out!

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  • Sending thoughts and prayers. I am so sorry you are going through this.
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  • Sending positivity your way!
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  • Hang in there. Hope you get some answers soon.
  • T&P! I'm sorry you have to deal with this.
  • T&Ps to you and Jeter! Hopefully you get some answers soon!

     

  • Ts&Ps to you and LO. I can't imagine what you're going through. Hope you get answers soon.
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  • I'm so sorry you're going through this. Prayers for your sweet boy, hope they find an answer and a solution quickly!
  • I'm with SSS on this one - dehydration is no joke, it can quickly get out of control. I would ask about admitting for IV fluids and speeding up the testing. I'd also consider enteral feeding.

    Have they tested for milk allergy? Have you tried soy formula or elemental formula?
    Have they tested for metabolic disorders?

    Is it possible the surgery was not successful and needs to be redone?

    I would also consider getting a second opinion from another doctor at another practice or hospital. I'd hate to think that doctor(s) may be covering for their own mistakes but it could happen. If you're stuck, try calling your insurance company, they can sometimes set you up with a nurse case worker who can give you some guidance about what to do next, give you referrals, etc.

    That's my 2 cents, but Mom = Boss so you need to do what you think is best.
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    BFP#2 EDD 10/29/13, C/P 2/25/13, Bye little Ish, we barely got to know you.
    BFP#3 EDD 12/21/13, Baby Boots born 11/23/13 My rainbow baby!
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  • I keep thinking about you guys....

    Did the pediatrician mention anything about admitting him for the dehydration or trying to speed up the testing at all?  I'm really worried about the dehydration....he's just soooooo little.


    Not yet, I have to monitor him closely. As for speeding up the testing, his blood work shows he's fighting a viral infection right now. She said give him time to get well before the next blood draw. As long as he keeps peeing as much as he is then they won't admit. If he doesn't wet diapers, or stops eating I have to tak him in right away.
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  • Does anyone know...

    Is it even possible for him to have CF? Wouldn't Mirabella have it too then, since they have the same set of parents?

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  • Does anyone know... Is it even possible for him to have CF? Wouldn't Mirabella have it too then, since they have the same set of parents?
    If you are not a carrier of the gene, which is sounds like you aren't then in theory it is not possible for baby to get it as both parents have to be carriers HOWEVER there are various mutations that can cause CF and it is not possible to test the parents for all of them. So there is a SMALL chance that could still be the issue. The only way to rule it out is to test baby.
    **Warning: Losses and living child mentioned**
    BFP#1 1/31/12, EDD 10/6/12 Harrison Gray born sleeping @ 18w6d. You changed our lives little guy.
    BFP#2 EDD 10/29/13, C/P 2/25/13, Bye little Ish, we barely got to know you.
    BFP#3 EDD 12/21/13, Baby Boots born 11/23/13 My rainbow baby!
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  • I'm so sorry that you are going through all of this.

     

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