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mrs_tacos
member
My Family Needs Your T&P.
mrs_tacos
member
I feel like I'm being such a PW these last few days, but shit you guys, this is so hard.
After 5 years of waiting to adopt their second child (and almost giving up), my aunt and uncle adopted Baby L in August, and our whole family was overjoyed. They're older parents, and they got the call literally a week before they were going to take their names off the adoption list for good. It was a miracle.
Fast forward six and a half months. We've known something was up with L for a few months: she isn't rolling over or grabbing for toys, her vision doesn't track, and her eyes move seemingly at random. When you hold her, you can tell she's in there and she wants to respond, but she just can't. She spent all day Monday and Tuesday going through a battery of vision and hearing tests, as well as an MRI. We expected she was probably blind, and the doctors thought she might have a neurological problem.
No such luck. Part of her brain is missing. It's just not there, it never developed. We're all stunned. I think I will probably cry later, but i still cant even believe this is real. Most babies with this condition don't make it a year. There's a lot of hope- unlike most babies with her condition, L is eating and growing normally, and was never labeled failure to thrive. She's 6 1/2 months old, and many kids wouldn't have even made it this far. But now we're in a waiting game. She goes to see a neurologist on the 25th, and an ophthalmologist soon after, to see what therapies they can do to help her, but the doctors have told our family to prepare themselves for the worst. We know the brain is trainable, but the doctor they saw said he just isn't qualified enough to tell them more at this point. We do know that she'll probably never walk, and talking is unlikely as well, though to this point her speech has seemed to progress normally- she babbles and laughs like a normal baby.
Please keep my family in your thoughts and prayers. We're all stunned and heartbroken. Her parents are good, loving people, who can thankfully take care of any needs she might have. She also has a 7 year-old brother who is really struggling to adjust to not being an only child, let alone understand everything that's happening right now. Also, her biological father (who is a real piece of work), has been trying to gain custody of L, but he doesn't have the resources to care for her needs (among a million other reasons he's not fit to be a parent), so please pray that the courts are smart enough to kick him to the curb.
Thank you in advance for your T&P. Despite what some outsiders may say, I know you're all so caring, and I can't even describe what your support means. I'll keep you updated in the weeks ahead as we learn more.
ETA: Sorry, I didn't realize how long this got. Tl:dr version- my baby cousin is missing part of her brain, and we're all stunned. We need some serious T&Ps over here.
This discussion has been closed.
Re: My Family Needs Your T&P.
TTC since August 2011, Me = 40, DH = 38
Unexplained IF. Tried Clomid for 3 cycles. All BFNs. BFP 1/6/13. Chemical pregnancy.
Moving on to IVF#1. ER 11/26/13, 16 eggs retreived, 12 mature and all fertilized. 2 blasts transferred on 12/1. All other embies arrested so nothing left to freeze. Beta 12/10 = BFN. IVF #2 March 2014. BFP!!! TEAM BLUE!!!
TTC #1
Married
July 20, 2013
Off BC since 10/2013
TTGP JANUARY SIGGY CHALLENGE: WORKOUT FAILS
!*All Welcome**!
Me 28 The Tower Climber 27
NTNP Since January 2014
BFP #1- Nov 10, 2014 EDD July 19, 2015 MC Nov 20, 2014 (5wk 4d)
Married September 2010
TTC August 2013
BFP #1 05/12/2014 - EDD 01/11/2015
Team Purple!!!!
LFAF Summer 2016 Awards:
Mom to 4 wonderful children: T(8), B(6) ,M(3), and A(1)
EDD- 06/13/2017
**Stinkerbelle-8-27-10 * Mr.P's 2nd Mama 7-27-07**
"Meet me in St. Louis"
TTC#1 since May 2012. Low AMH, High FSH.
Factor II (Prothrombin) Mutation
TTGP Award Best PIP 2013 & 2014
My Chart
ME: 30 DH: 35 DS: 2 years
BFP#1 - DS Born 2~15~2012
BFP #2 - MMC @9 wk
BFP #3 - Sleeping Baby Girl at 5 1/2 months
BFP #4: Due Date 11/21/14
My Age - 41, DH's Age - 42
Dx: Endometriosis, Stenosis of the Cervix, Uterine Polyp, Hostile CM and Borderline PCOS
Stage 1 Endo and Uterine Polyp removed and Cervix widened on July 9, 2012.
IUI #1 Clomid 50 mg - 3/6/13 BFN
IUI #2 Clomid 50 mg - 4/3/13 BFN
IUI #3 Clomid 50 mg - 10/4/13 BFN
IUI #4 Clomid 100 mg + HCG trigger - 11/2/13 BFN
Cycle #28 - Clomid 100 mg + HCG trigger + TI (IUI #5 cancelled) - 2/5/14 BFN
IUI #5 Clomid 100 mg + HCG trigger - 3/5/14 BFN
TTC 10.01.2012
BFP 06.04.2014 EDD 02.13.2015 D&C 07.25.2014
RE Consult Results
Me: 32, PCOS, Hypothyroid, HSG All Clear
DH: 33, Low Morph (2.5%)
11.2014 (Letrozole+IUI+Progesterone)=?
I'm so sorry your family is going through this. T&Ps sent your way.
Formerly Aaren91011