Pregnant after IF

A/S - Scared and Worried *UPDATE*

MJC1116MJC1116 member
edited December 2013 in Pregnant after IF
I just got home from a 3 hour appointment which included the a/s, meeting with the genetic counselor and extra blood work.

Baby measured fine in all areas except the nuchal fold. The doctor said it was thicker than normal which can be a sign of down syndrome. He had us meet with the genetic counselor who went over so much information. I asked how this could go undetected when my risk of downs came back negative in my 1st and 2nd trimester screenings and ultrasound. I guess that test is only 85% accurate. I could have fallen into the 15% "undetected" range.

My head is swimming with information and I'm terrified. DH broke down and cried right after the doctor left. I held it together until I got to the car. I opted out of the amnio because of the miscarriage rate but did the non-invasive blood work instead. It has a 99% accuracy rate of detecting down syndrome and trisomy 13/18, so I figured I can go without testing for all other genetic abnormalities. If the blood work comes back positive, I'll have to do the amnio to rule out a false positive. If the baby has trisomy 13 or 18, the survival rate beyond 1 year is less than 5%. 

I'm so scared. I feel angry and and cheated out of a normal, happy pregnancy. I feel like I'm being punished for wanting another baby when we already have a great daughter. We've worked so hard to get to this point that I thought I could start to relax and now I don't think I will until the baby gets here. How am I going to survive the 10 day wait for my test results? And then what if they're bad? How will I get through Christmas?

I'm sorry to dump all of this on you, but I know this is a safe place. Thanks for listening.

Update: I have spoken with my RE and my OB about the results. My RE reassured me that there's nothing wrong with me to indicate a higher risk of DS (egg quality, diagnosis, etc.) Then, my OB's nurse said that they typically don't send patients to the doctor I saw because "he always finds something that scares a lot of our patients when it's nothing." I only went to him because I saw him with DD 5 years ago and didn't have a problem with him although I have read a lot of reviews that he always finds something and orders a LOT of extra tests, amnio, blood work, etc. My ob's office said that I could go get a second opinion. I think we will do this while we wait for the results. Thank you for the prayers!
DH & I: 29
TTC #1 4/2009 -  DD 2/5/10
TTC #2 since October 2011
2IF issues
7/2013 - IUI #1: 50 units Follistim +  Ovidrel  = BFN
8/2013 - IUI #2: 50 units Follistim +  Ovidrel  = BFP! Beta #1 (12 dpiui) 8/21: 45  Beta #2 (16 dpiui) 8/26: 301 Beta #3 (21 dpiui) 8/30: 1,929. 1st Ultrasound 9/4 - One perfect sac. 2nd Ultrasound 9/13 - Heartbeat at 124 bpm! Anniversary  

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Re: A/S - Scared and Worried *UPDATE*

  • Sending you so many Ts+Ps. You have every right to want more children there is no punishment for that and please don't feel guilty.
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  • MJC- I know that hoping for the best is tough given such news and nothing I say will make it better. Know that we are all putting as much positivity into the universe as we can and are praying that everything turns out well for you, DH, and baby. Allow yourself the leniency to feel angry, sad, and robbed but know no one deserves what IF makes you feel. Praying for you. Keep us updated.
    Actively TTC since 01/11
    Me: 06/12 Dx w/ IR PCOS (rx 2000 metformin) DH: SA all clear; looking good
    06/12-10/12- Clomid/Femara + trigger + TI + P4 = 3 BFNs, hysteroscopy, polypectomy, D&C
    11/12 - 7.5 mg Femara + trigger + IUI + P4 = BFN
    12/12 - Surprise BFP ectopic (MTX 01/13)
    04/13 - Off the Bench! 7.5 mg Femara + trigger + IUI #2 + estradiol + P4 = BFN
    05/13 Clear HSG-5 mg Femara + Menopur + trigger + IUI #3 + P4 = BFP ectopic (MTX 07/03 & 07/11)
    07/23 emergency lap to remove ectopic mass and left tube
    10/13 5mg Femara + Menopur + trigger + TI(follie on left/no IUI)=BFN
    11/13 Same as above but BFP!
    Beta #1 12dpo-51     Beta #2 15dpo-178
    12/5- There's something in my ute!!
    Keaton Alexander is here 07/24/2014 !!
  • MJC, I'm so sorry your A/S turned out to be so stressful. There are so many instances in which one or two markers show up, and turn out to be just a false positive. I hope that is the case. I hope you don't have too long of a wait for the blood test results. I'll be thinking of you and keeping FX that all is well with your LO. (Hugs)

    Me: 42. DH: 46.

    1st Pregnancy: MC, 11/19/00.

    2nd Pregnancy: DS born 04/10/06.

    3rd Pregnancy: CP, 03/11.

    4th Pregnancy: MMC, D&C 11/30/11, Genetic testing revealed Trisomy 4.

    5th Pregnancy: Ectopic, 2 doses of Methotrexate unsuccessful, surgery 4/10/12, right tube removed.

    Tried Letrozole January 2013-July 2013 (including 2 IUIs), all BFN.  After 2 1/2 years of trying for child #2, decided to "give up" after July cycle, based on AMA.

    August 16, 2013:  BFP our first month of "not trying!"  Still in shock.  Beta #1 (14dpo): 183.  Beta #2 (17dpo):  611.  Ultrasound 8/30/13: baby measured 6 weeks, 1 day, heart rate of 118 bpm! 
    Ultrasound 9/13/13:  8 weeks, heart rate of 176!
    Baby is due 4/26/14

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  • I hope the time passes fairly quickly til you have answers and can move forward from there.  I am sending T&P your way for a healthy little one.  I know saying "try not to worry" won't do any good so I will just send you big (((HUGS))) instead.  

    TTC since July 2009. Dx MFI & LPD. 
    IUI#1&2&3 (2011 & 2012) BFN
    IUI#4 1/23/13 on 75iu x9 Follistim = BFP then chem preg m/c (Feb 2013)
    IUI#5 BFN (April 2013)
    IVF w/ICSI Oct. 2, 2012 - 13R, 11M, 7F, 1 frozen blast 4BB grade - - - FET Nov 15, 2013
    BFP! Beta 1:104 @ 10dp6dt, Beta 2:178 @ 12dp6dt,  beta 3:366 @ 14dp6dt
    Saw heartbeat twice before missed M/C at 8w3d on 12/27/13, missing my little angel boy
    JUNE 2014 IVF#2;  5R, 2M, 1F Three day transfer 6/7.  Beta 6/18 - BFN
    Child Free Now?
    S/PAIFW , S/PALW

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  • Thoughts and prayers coming your way.  I'm so sorry you're having to deal with this.  Whatever happens, you are not being punished and it is not your fault.
  • I am so sorry you are going through this. I hope you get good news and quickly. Sending positive thoughts to you and your family.

    DS born Jan 2010

    TTC#2 since Nov 2010 with breaks for DH cancer tx (remission!)

    Tube with hydro removed Feb 2013

    BFP 11/11/13 IUI#2 clomid+trigger+prometrium

    Beta #1 14dpIUI=106; Beta #2 16dpIUI=287; Beta #3 20dpIUI=1158

    5w6d 1 hb 109 and 2nd smaller sac; 7w0d 1 hb 125 and confirmed vanishing twin

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  • ((((big hugs))))

    T&Ps your way sweets xo

  • I could imagine how scary this is for you. T&P for you and DH during this time. I pray that your blood test comes back normal and hopefully you don't need n amnio. May god watch over you and lead you thru this difficult time. Hugs!
    TTC Since 112010 Naturally. Diagnose:PCOS(ME) + Low Motility(HIM). Started IVF+ICSI Cycle 12312. ER 27 & ET 210 two embies transferred. *BFN 1ST IVF CYCLE.* **Getting as healthy as possible and will try IVFICSI#2 again hopefully in April.** -- HAVE FAITH; LET GO & LET GOD --
  • I am sorry you are going through this. I also got a scare at my a/s yesterday and have to get the same testing you mentioned. Lets hope they both come out negative! I think it's a good sign that every bring else looked normal.
    Thoughts and prayers are coming your way!
    Me 36/DH 46 Me: Low AMH (.21) DOR, mild endo; Started seeing RE 11/12
    Jan-March '13 3 IUIs Clomid + Trigger = BFN
    April '13 IVF 1 MDLF converted to 4th IUI due to 3 runaway follicles! BFN
    July/Aug '13 IVF 1.2 Long Lupron = 7R, 6F, 2T= BFP!!!
    Beta 1=512, Beta 2=1,368 Beta 3= 4,128
    It's a boy!!!!
    SUA, GD
    EDD 4/26/14

    He's Here! Arrived 4/15/14!!!!

    September 2015 - FET with remaining embryos
    Twins! EDD: 6/14/15

    PAIF/SAIF Everyone welcome!
  • I am so sorry. This really sucks to have to deal with. I have known people who had positive markers as well and everything turned out ok. Sendings lots of positive thoughts your way. I hope the 10 days go by quickly.

     

    IF, 5 losses, 1 son, 1 on the way.
    fall in love with someone Pictures Images and Photos  photo turtlejpg
       

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  • I love your attitude! You are being so strong! I hope you get your results back and it's all clear. I've known several couples who had some signs and it ended up not being downs, too. Hang in there.
    | Married since 2008 | DH and I: Both 30 | Me: Endometriosis and Carrier of an X-Linked Dominant Genetic Disorder | DH: Low Morph | Planning IVF with PGD and PGS in 2013 | Freeze-All IVF #1: March 2013 ER 3/26. 29R, 12M, 11F. 4 5AA frozen blasts. Freeze-All IVF#2: May 2013 ER 5/15. 31R, 21M, 20F. 6 5AA frozen blasts. Our PGD probe was completed in late June (total of 20 weeks to develop). PGD and PGS Results came on 6/19: 3 healthy embryos (normal chromosomes and unaffected by my family's genetic disorder). FET #1: July 2013 Natural Cycle - Cancelled due to insufficient lining (only got to 7.5mm). FET #1.2: August 2013 - Medicated Cycle with Lupron & Estrogen Patches to build up lining. Single embryo transfer was 8/23. Beta #1: 240! Beta #2: 578! U/S on 9/19 at 6w4d: We saw the heart beating at 131bpm. Second U/S on 10/4 at 8w5d: We saw the heart beating at 178bpm. EDD 5/11/2014
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    PAIF/SAIF/Everyone Welcome! 


  • (((Hugs)))
    Sounds like you and your H are handling this the best way possible and I will have you all in my T&P!
    Me: 37, DH: 35 :: TCC since 2/11 SA: Perfect! CD3  HSG = Blocked Right Tube
    April- Femara 2.5mg + Trigger + IUI = BFN   May- Femara 5mg = CX - No Response on Left = BFN
    June- Femara 7.5mg + Trigger + IUI = BFN  August- Lap & Hysteroscopy = Blocked & Partially Blocked Tubes
    September- Femara 5mg = CX - No Response on Left = BFN  October- 100mg Clomid + Trigger + TI = BFN
    IVF # 1: Stims 11/30 ER 12/12/12! (10R, 10M, 8F, 2T, 6 F) :: Beta #1- 176  c/p @ 4w4d
    FET #1 February 26th :: Lost 4 to Thaw, Transferred 2 = BFFN
    IVF # 2 Stims 5/10 ER 5/21 (15R, 13M, 13F, 2T, 7F- 6d3 & 1d5) :: Beta # 1- 15 c/p @ 4w
    FET #2 Cancelled, Right Tube Developed a Hydro  8/28 Hydro & Scar Tissue Removed  Cleared for FET
    FET #2.2 Scheduled for September 20th
    2 Thawed, 2 Transferred! Beta #1- 96, Beta #2 906! :: EDD June 10th
    2015- 2 failed FET. We are done
    SURPRISE! BFP 8/8/16   EDD 4/1/17

     
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  • I'm so sorry you have to go through this. T&P for good results from the blood test. 

    Did the nuchal fold not measure abnormal at the NT scan at all? I think that is a good sign if it's the only marker. Hang in there .

    Me: 33 DH: 32 SA#1 low count (6mil) SA#2- now in IUI range!(30mil) Dx:MFI
    11/1- IUI#1,12/1- IUI#2, 1/2- IUI#3 all BFFN
    IVF#1. Long Lupron.ER 3/8 10R,4M,5F. ET 3/3-one 1AB, 2 frosties 5dp5dt-BFP!! Beta 3/25-794 Beta 3/27- 1794
    First u/s 4/8 saw hb. 4/22 missed mc 8w3d. d&c 4/26
    FET #1- bcp start 6/9. ET 7/12. 2 perfect blasts.5dpt-BFP!! 
    Beta 7/24 -1,239!! Beta 7/26- 2569 Beta 7/29- 7120.  U/S 8/7 hb 118! U/S 8/14 hb 143! U/S 8/20 hb 170. Graduated!! Stick baby stick! 


  • MJC1116MJC1116 member
    edited December 2013
    No, everything measured normal. And the screening came back as 1 in 1000 for ds and 1 in 100,000 for trisomies. I'm hoping that's worth something.
    DH & I: 29
    TTC #1 4/2009 -  DD 2/5/10
    TTC #2 since October 2011
    2IF issues
    7/2013 - IUI #1: 50 units Follistim +  Ovidrel  = BFN
    8/2013 - IUI #2: 50 units Follistim +  Ovidrel  = BFP! Beta #1 (12 dpiui) 8/21: 45  Beta #2 (16 dpiui) 8/26: 301 Beta #3 (21 dpiui) 8/30: 1,929. 1st Ultrasound 9/4 - One perfect sac. 2nd Ultrasound 9/13 - Heartbeat at 124 bpm! Anniversary  

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  • :( i'm so sorry you have to go through this. i hope all the testing turns out okay for you.  happy thoughts and prayers your way.

    TTC#2
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    Our little IVF miracle born 5/7/2014
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  • I'm so sorry you are going through this. I hope the testing comes back quickly. Sounds like you and your DH are leaning on each other. Many prayers headed your way.
    Me: 33 DH: 36 Unexplained IF
    First pregnancy - DS 01-Apr-09;
    3rd cycle Clomid/IUI after 2 years TTC
    TTC #2 since ~June 2010
    IUI #1 & 2 - Clomid/IUI - BFN
    IUI #3 &4 - Gonal-F/Ovidrel and IUI -- BFN
    IUI #5 - Gonal-F/Ovidrel and IUI -- BFP!!
    EDD: March 22, 2013
    It's triplets!!


  • I'm so sorry you're going through this stress. Sending good thoughts your way!

    **Siggy/Ticker Warning**   

             image
                  TTC #1 since May 2012

                  May 2013: First R.E. appointment

                  DH: SA is good

                   May 2013: CD3 Blood work-normal
               June 2013: Hsg-Right tube blocked

                   July 26, 2013: Starting Follistim for IVF #1

                  August 2013: IVF #1 Cancelled- Abnormal embryos

             October/November 2013: IVF #2 w/ICSI

                        November 8, 2013: Transferred two early blasts (no frosties) 

    November 18, 2013: First EVER BFP! 

    Beta#1: 91  Beta#2: 288

    1st U/S- 5w2d Saw yolk sac!

    3rd U/S- 7w4d HB of 157bpm!

    TEAM BLUE!

           http://movingtolight.blogspot.com/

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  • Sending you lots of love and prayers. What an emotional roller coaster. Hopefully you can find some good distractions these next 10 days. 
    DX: Ovulatory Disorder/ Anovulation (possible PCOS)
    DD (2 yrs) conceived 2nd IUI w/ Gonal F

    TTC#2: IUI #1 and 2: BFN; IUI #3 CP; IUI #4 BFN; IUI #5 CP 
    Sept/Oct 2013 IVF#1: Antagonist: 27 R, 27 M, 22 F (7 frozen)
    5dt of one AA blast
    Beta #1: 12dp5dt: 1,093 Beta #2: 14dp5dt: 2,497
    Due date: 6/22/14 :)
    It's a Boy!

    **Everyone welcome**

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  • Sending lots of T&P your way.
    TTC with PCOS since November 2009
    IUI#1 Femara/Ovidrel (cd 3-7) = BFP, m/c
    IUI#2 Femara/Ovidrel (cd 5-9) = BFN
    IUI#3 Femara/Ovidrel (cd 3-7) = BFP!
    beta #1 11/23 = 270, P4 = 75
    beta #2 11/28 = 2055
    Our daughter E was born 7/29/2012!
    Surprise, our 2nd daughter P was born 5/22/14!
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  • Thinking of you
    Me:35,  DH: 39   
    TTC since March 2011. All bloodword, SA & HSG are normal.  
    8/12: Clomid & TI - BFN 
    10/12: Colmid & TI - BFN 
    3/13:  Clomid, Trigger & IUI - BFN 
    4/13: Gonal F, Trigger & IUI: BFN  
    6/13: IVF #1 (1AA blast & 1BB blast) = BFN 
    8/13: FET #1= BFN
    10/13: FET #2= BFP!!!

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  • Saw your update, and that sounds very encouraging.  So frustrating to have a doctor who scares you like that, but better to be too conservative than not conservative enough, I guess.  I hope you will keep us updated.  I'm thinking about you and your LO, and hope all turns out just fine!

    Me: 42. DH: 46.

    1st Pregnancy: MC, 11/19/00.

    2nd Pregnancy: DS born 04/10/06.

    3rd Pregnancy: CP, 03/11.

    4th Pregnancy: MMC, D&C 11/30/11, Genetic testing revealed Trisomy 4.

    5th Pregnancy: Ectopic, 2 doses of Methotrexate unsuccessful, surgery 4/10/12, right tube removed.

    Tried Letrozole January 2013-July 2013 (including 2 IUIs), all BFN.  After 2 1/2 years of trying for child #2, decided to "give up" after July cycle, based on AMA.

    August 16, 2013:  BFP our first month of "not trying!"  Still in shock.  Beta #1 (14dpo): 183.  Beta #2 (17dpo):  611.  Ultrasound 8/30/13: baby measured 6 weeks, 1 day, heart rate of 118 bpm! 
    Ultrasound 9/13/13:  8 weeks, heart rate of 176!
    Baby is due 4/26/14

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  • Hugs mama. Hope you can get in for a second opinion soon. What scary news. Hope it all turns out ok.
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  • Just read your thread and wanted you to know I'm sending lots of T&P'S your way!!
    Me: 29 DH: 32 Married: 10.25.07 Been dealing with amenorrheoa since I was young. (Literally go years w/o AF) Unexpected and very surprising BFP in Feb 2007. M/C April 2007. :( TTC since 2008 Metformin- Didn't help. :( Clomid 50mg/Provera cycle #1 7/2009 - BFN Clomid 50mg/Provera cycle #2- 8/2009- BFN Clomid 100mg/Provera cycle #3- 1/2010- BFN ...Took a break... 2012- Met with RE 09/12- Day 3 Labs- FSH 2.5, Estradiol 47, TSH 4.5 (Doc re-ordering Day 3 labs) DH sperm analysis- all good 11/12- Day 3 Labs- FSH 4.3, estradiol 38, TSH 2.51 Prescribed Synthroid 11/12- HSG all clear 1/13- IUI with Femara and trigger shot on 1/31- BFN 2/13-IUI #2- cancelled due to low response 3/13- planning IUI with injectables
  • Lurking--/
    Hugs... I never intro here during my pregnancy because I was too scared too, but I had to comment... I hope it's ok...We also had a nuchal fold measurement that indicated downs along with an echogenic bowel... Turns out he did not have Downs... Hang in there!
    DS#1 born 9/23/06 
    Twins DS#2 and 3 born at 31 weeks, 3 days due to a short cervix on 8/2/13.
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