More Bad News

Re: More Bad News

• OctoberCAPA member

  April 2011

  My thoughts and prayers are with you and your family.  

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• amberpro member

  April 2011

  I am so sorry you received this news.  I will continue to hope and pray for your family and your baby.

  
  

  
  

  
  

  
  

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• Roselike

  April 2011

  Oh I am so sorry to hear that. I'll keep you guys in my T&P.

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• germanpickle member

  April 2011

  I am so sorry to read this. You are in my thoughts.
  

     
  

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• allaura member

  April 2011

  T&P to you and your family

  

  
  

  
  

  
  

  
  

  

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• hoppermommy

  April 2011

  I'm so sorry!  I hope that your baby girl is a fighter and defies the odds when she makes her arrival!

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• ShandaB

  April 2011

  I am so so sorry. 

  
  
  

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• mesr

  April 2011

  i'm so sorry to hear this!  i can't imagine what you and your family must be going through.  thank you for sharing though; we will all be sending hopeful thoughts your way!
  

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• foxisoxy128

  April 2011

  I am so sorry to hear that your family is going through this, t&p are going your way.

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• mskolman member

  April 2011

  I am so sorry you are going through this! This sounds similar to what happened to us with my first pregnancy. At first we had the Tetralogy of Fallot Diagnosis, but at our next fetal echo we found out he also had an absent pulmonary valve. This turned out to be the reason that he ended up staying in the hospital for so long and he had so many complications.

  Do you feel comfortable with the surgeons and hospital your son will be receiving his surgeries at? Have you looked up survival rates? I see you live in IA, there is a doctor at Children's Hospital of Wisconsin that has major experience and expertise in HLHS and is known world-wide. His name is Dr. James Tweddle. I would seriously get a second opinion and go wherever you feel your LO will receive the best care. I really can't emphasize this enough. If we didn't have this hospital so close to us, I would have flown out to Boston or Philadelphia to deliver. I have read so many books and listened to so many other stories of heart kiddos and their survival has a lot to do with where their LO received their care. 

  I totally know what you are going through with coming to terms with possibly not bringing your baby home. We finally set up his nursery right before he was due and I just couldn't get into any of my showers and everything else that surrounds having a baby. It is tough. I am glad you have a good support system. We wouldn't be where we are now without our awesome family and friends. Please PM me with any questions. I would be happy to share.

  

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• rainstar752 member

  April 2011

  I am really sorry that you have to go through this. T&Ps for you and your family!

  
  

  
   
  

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• aflowers

  April 2011

  Ladies, thank you so much for all the thoughts and prayers. I will be having ultrasounds every two weeks now until she's born, and at least one or two more echos. I will keep you updated. Thank you again. It means a lot.
  

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• bethandbryan member

  April 2011

  I am so sorry, I truly hope everything works out.  You will be in my thoughts.
  

  
  

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• Pretzel80 member

  April 2011

  I am so sorry to hear this.  I will pray for a miracle for you little girl and for peace of mind for you and your husband.  

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• sideout510

  April 2011

  I'm soo sorry to hear this. Keeping your little family in my thoughts, as well as hoping that you get the answers you want to hear.

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• Melissa2216 member

  April 2011

  I'm so sorry you are going through this.  T&Ps for you, your husband, and Claire.
  

  
  

  
  

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• glezie83

  April 2011

  Wow, you girls are all amazing! I was trying to scroll down to tell you that my thoughts and prayers are with you, the baby and your family, but man it took a long time to scroll down with all the posts.

  I'm not sure words help at this point but I truly hope that God can heal your little girl and make her a miracle to everyone around her.  Hopefully she will outwit the doctor's and their 20% percent talk won't be the case. Thoughts and prayers with everyone!

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• RClaffee

  April 2011

  I am so sorry that your family is going through this. You, your husband, and baby girl will be in my thoughts and prayers.

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• Jaytee501 member

  April 2011

  You and your baby girl are in my thoughts & prayers for all the best.

  A Yankee Fan & A Red Sox Fan...
  
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• HulaPie

  April 2011

  I'm very sorry to hear this.  Adding my good thoughts and prayers for you, your baby girl, and your husband.

  

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• brandx725

  April 2011

  I am so sorry. Sending tons of healthy vibes your daughters way. I know all situations are different but one of my best friends had a heart disease from that was supposed to be incurable and his chances for survival were grim and he got a surgery to correct and is now a healthy happy young adult. Keep your head up

  

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• 3boys=love member

  April 2011

  I am so sorry to hear that you got such bad news.  Hopefully when she is born there is something they can do for her.  You and your husband are in my thoughts and prayers and hope to hear happier updates soon.

  Loving life with two boys who are 10 months apart and can't wait for team green baby to join us and thinking daily about our angel who was with us for a very short time. (CP at 4 weeks and 5 days)

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• cowgirltn member

  April 2011

  Praying for your road ahead and a strong heart.

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• markyslove member

  April 2011

  I'm so sorry.  I'll be thinking of you, your DH, and your little one.  ::hugs::

  
  
  

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• PocaLoca member

  April 2011

  Many good thoughts, prayers and positive vibes to you and your family. I'm so sorry you all are going through this.
  

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• kattyleigh member

  April 2011

  Oh sweetheart, I am so very sorry for you and your family.  I am a pediatric RN on a floor that takes care of a lot of HLHS and other cardiac babies so while I do understand the process you will be going through, I can never understand how hard this must be on you and how you may be feeling.  My heart just breaks for you as it always does for my patients' families.

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• ikissedthecook

  April 2011

  I am so sorry that you are going through this right now. You will be in my T&P. (((hugs)))

  married 09.06.08
  BFP #1 - m/c on 12.22.09 @ 8w3d
  BFP #2 - d&c on 07.22.10 @11w1d
  BFP #3 - DS born on 06.22.11 @41w3d!
  BFP #4 - Due 04.24.13
  

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