More Bad News

aflowers

We had a follow-up appointment yesterday for another ultrasound and fetal echo. After the echo we sat down with the pediatric cardiologist who dropped another ton of bricks on us. Our daughter has two other problems with her heart which puts her at very high risk. He said this is one of the most serious cases of HLHS that he's seen. As of right now she may not even qualify to have the first surgery, and if she is able to have it, her chances of survival are around 20% as opposed to 80-90%.

We went in knowing things weren't going to be any better, but we definitely weren't expecting to get the news that we got. I think it's still sinking in that we may never get to bring our baby home. We have amazing support though and know we will get through whatever happens. 

cvl105

I am so sorry you got bad news today. I hope everything goes fine when you have her and they are able to do whatever they need to do!

kmv68

I am so very sorry and will keep you, your husband and your daughter in my thoughts.

soontobe05

Oh I'm so sorry! I hope that some miracle occurs for you and you can bring your dd home with you and it will all be okay. Do you go back for any more scans soon to see if it's changed? Keeping you in my thoughts. 

MammaBear81

So sorry for the bad news... hopefully they can reevaluate when your LO is born and she will qualify for the surgery she needs. Sending T&P to your and your family!

Sazhrah

All of my love for all of you. I keep you in my prayers every day. May God's Angels watch over all of you and protect you. HUGS.

SarahP15

I am so so sorry that you got bad news.  I will keep your family in my prayers. 

pbj10

im really sorry that you are having to go through this. t&p your way. 

IdigDirt

I am so sorry you got this news, you are all in my thoughts. 

MrsSC9

I'm really sorry to hear about your bad news.  I will definitely keep you in my prayers and hope that your little one can defy all odds.

JuneBugsMommy

I am so sorry for what you are going through! I have actually been thinking about you and wondering how your daughter was doing, so thanks for the update. I will be praying for your baby girl as well as you and your husband.

jgengo0

I will be praying for strength for both you and your husband. It sounds like you have a great attitude thus far, which I know will have a positive affect on your LO. I know how scary it is not having a definite answer. They can't tell us that our Baby A is safe or not. So In a sense I know how you are feeling. Keep telling yourself you are strong and that your LO is strong. I truly believe in the power of the brain. Wishing you all the best. I will be thinking of you and your family!

Luckywe1

So sorry to hear this. I am very thankful that you have great support around you. T&P's for you and your family.

jcappelluti

I am very sorry to hear your news. I will keep you in my thoughts and pray for the best. Keep your head up

JuneBug0611

I'm so sorry to hear this.  I have a friend whose daughter was born with a congenital heart defect, but fortunately the procedure they did for her was successful and, after a few weeks at the NICU, they were able to bring her home.  She is still on medication and needs regular doctor's visits, and may need further surgeries in the future, but she is a happy, lively little girl and is doing great.  I am hoping the best for your daughter as well, and saying a prayer for you guys!

mharison

I am so verry sorry you got bad news today. T&P's heading your way.

folkfemme

I am so sorry that you are going through this. All my love and prayers for you and your family. 

MommaA117

I am so so very sorry. I am praying for you guys and your LO.

sunflowr0803

I am so sorry for your bad news. I will keep you & your family in my thoughts. Sending healthy vibes to your LO!

SarahAndBen09

So sorry to hear you got more bad news.    I hope things get better and your baby is able to have the surgery.

Birdies08

I'm so sorry. Wishing all the best to you and your family, especially your baby girl!

slensic

I am so sorry! I will be keeping you guys in my prayers. 

Turtle143

I'm so sorry to hear about this and I'm glad you've got the support you need getting through whatever happens in the end. I will keep you and your little one in my thoughts and prayers. Please keep us updated! (((hugs)))

muriel & eder

I am really sorry you received those news. T&P heading your way.

susieandmarty

i am so sorry to read this.  i truly hope that your daughter is able to overcome these difficulties

Phlenin

Words fail to express how sorry I am that you're experiencing this.  Thank you so much for having the courage to share with us and I'm SO thankful that you have good support.  

No one knows what will happen but try to keep belief and strength in your heart and your spirit.  Miracles DO happen and even when they don't, I believe God sends us the strength and support we need to get through.

Remember you are her mother forever, no matter how long she is with you in this life.  Keeping you in my T&P's.  God bless. 

paula81rosenthal

I am so sorry. I will be praying for your family and especially your little girl. 

gymnst1013

Oh sweetie, I'm so sorry   I can't even imagine what you're going through.  I truly hope things turn out ok for you.  (((hugs)))

DowagerCountessofNJ

I'm very sorry you got such terrible news.  I'll be thinking of you and your family.

kbel424

I'm so sorry, that is terrifying news to deal with. T&P

nirern626

I am so very sorry. You are in my prayers.

MommaG123

Oh, I am so so sorry.  Your family will be in my thoughts and prayers.

breezy79

I am really sorry to hear that.
Hoping for the best

Nickiechan

I am so sorry you received this bad news today. I will be praying for you, your DH and your LO. ((hugs))

kate05

I am so sorry this is happening.  T&Ps to you and your family.

bookkitten

I am so sorry you received this news and am sending prayers and good thoughts to you, your husband and your little one.

kimbo1216

So sorry to hear that.  Prayers going up now.  Who knows, maybe it won't be as bad as they are predicting. Sometimes they get it wrong, and sometimes, miracles do happen.

I don't know if this helps or not, but I had a friend who was recommended to get a late term abortion due to the problems they "thought" her daughter would have.  She ended up being perfectly healthy and my friend was glad she didn't listen to them.

alm0309

I am so sorry that you are going through this.  My T&P are with you and your family!!

runnergrl6675

I am so sorry to hear this news.  I hope for the best for you and your family

Tellyb0228

I hope you and your family find strength throughout these hard times. I have hope that your daughter will make it through. The human body is so so resilient. Thoughts and prayers are with you.

KrysmarieG10

I am so sorry you guys are going through this   It breaks my heart to read it... I hope as a pp said that a miracle happens..