Another milk allergy question..(Coreen, Caldwell..)

Nancy_Drew · September 2010

I have asked about my concerns with Rye and a possible milk allergy before. I asked his Dr at his 1 year check up, where I was told to watch him and see basically. No real concern yet, but maybe later blood work etc... I thought I had pinpointed the possible allergy to whey. When he eats cottage cheese, or Mac and cheese he gets the rash on his chin and mouth area. Both have whey. Yogurt too, he gets the rash with kinds that have whey listed and no problems with go-gurt where no whey is listed as an ingriedient. Milk sometimes gives him a rash, but not always. He has been doing better with it lately. Then tonight, he basically dumped an entire zippy of milk on his shirt (by letting it dribble out of his mouth down his chin soaking his shirt down to his belly button). A bit later, I noticed red splotches and took off his soaked shirt to find bright red welts with tiny white bumps all over his torso, in the exact pattern as the wet shirt. ( no welts where the shirt was dry). Worse than I have ever seen. It's got to be something since this pattern keeps popping up! I'm going to call the Dr tomorrow, and I hope to get him in, but who knows. Those of you with milk allergies, what type of milk did you/ do you give to your LO's? Regular soy milk?

Nancy_Drew · September 2010

Sorry for the wonky formatting, the iPad doesn't recognize my paragraphs. Also a note that we give him Costco's Kirkland Signature Organic Whole Milk with DHA. I'm wondering if the fish oil in that could have something to do with it? It's not on regular whole milk. (we are weaning so he only gets breast milk maybe 4x a week for the past week and a half).

CDMay2006 · September 2010

It seems weird that the dr. is unconcerned, given the welts...
It could be from a fish allergy (which is likely more severe than milk, b/c it's so commonly anaphylactic), except that it happens for other dairy products. Unless he has multiple allergies...
I'm not allergic, but i am lactose intolerant, and for flavor i would rec rice milk (trader joes or rice dream, either unsweetened); i can't drink a glass of soy milk, any variety, but rice milk would be tolerable. A lot of people also have concerns about too much soy (isoflavins), but there are soy formulas that lots of people use, so who knows. You'll also need to take into account the nutritional supplementation, specifically for calcium if you are replacing milk as a drink.

Ciaram22 · September 2010

Not allergic to milk but Almond milk, if its allowed, is really tasty. I prefer it to soy or rice milk.

coribecca · September 2010

I give Gavin plain organic soy milk.

Can you self-refer to an allergist? Will your insurance allow it? If so, see if you can get him allergy tested. At least you can get peace of mind if you know one way or the other.

Edit: One more thing--Gavin broke out in hives when Evie accidentally spilled milk on him. Big red welts everywhere the milk touched him. When I told the pedi about it, she immediately referred me to an allergist to have Gavin tested.

Nancy_Drew · September 2010

coribecca:
I give Gavin plain organic soy milk.

Can you self-refer to an allergist? Will your insurance allow it? If so, see if you can get him allergy tested. At least you can get peace of mind if you know one way or the other.

Edit: One more thing--Gavin broke out in hives when Evie accidentally spilled milk on him. Big red welts everywhere the milk touched him. When I told the pedi about it, she immediately referred me to an allergist to have Gavin tested.

I remembered this about Evie spilling on Gavin, same thing tonight with all the welts wherever the milk touched. How long did it take to get an appt with the allergist and what types of testing did they do, then how long to get the results? Our insurance plan does require a referral, so i'll go thru his PCP first, but if I have any problems, I guess come open enrollment for the new year, I will sign up for the no referral plan so I won't have to worry about that.

Seattle_JiLLn · September 2010

My cousin's daughter had a really severe milk allergy (that she has outgrown) and she would get hives if milk touched her skin. But she also had an anaphalactic (sp??) reaction if she drank it. It seems weird that he can drink milk but not have it touch his skin. It really sounds like you need some testing to figure out what exactly he's allergic to. Subsequent reactions tend to get more severe, so you don't want to be messing with it and guessing. If your ped gives you a hard time of blows you off, don't wait for open enrollment - get a new ped who listens to your very valid concerns.

coribecca · September 2010

Nancy_Drew:
coribecca:

I give Gavin plain organic soy milk.

Can you self-refer to an allergist? Will your insurance allow it? If so, see if you can get him allergy tested. At least you can get peace of mind if you know one way or the other.

Edit: One more thing--Gavin broke out in hives when Evie accidentally spilled milk on him. Big red welts everywhere the milk touched him. When I told the pedi about it, she immediately referred me to an allergist to have Gavin tested.

I remembered this about Evie spilling on Gavin, same thing tonight with all the welts wherever the milk touched. How long did it take to get an appt with the allergist and what types of testing did they do, then how long to get the results? Our insurance plan does require a referral, so i'll go thru his PCP first, but if I have any problems, I guess come open enrollment for the new year, I will sign up for the no referral plan so I won't have to worry about that.

I think we got in within a week or so. They did the skin prick test, and they tested him for everything (not just milk). He's also allergic to egg, which was really good to know before we started solid food.

The pedi said that a skin reaction like the one Gavin had was an indicator of a severe allergy, and she wanted us to have him tested to see if we needed an epi pen for him. We ended up getting one (and thankfully have not had to use it yet!).

If it were me, I'd bring him back to the pedi again and tell her about the hives from the milk touching his skin. Really push for an referral. Even though we suspected the milk allergy already, I felt so much better once we had Gavin tested and I knew for sure. Plus it's nice having the epi pen on hand, just in case.

cmcmillan · September 2010

Sounds like what M had too, but he has since outgrown. We had him on regular soy milk, I didn't want him to get used to the flavored and he didn't have a problem drinking the regular. But he wouldn't drink my parents unsweetened. He also had to do soy yogurt and ice cream until he was 2.

C already gave great doctor advice, we never did an allergy test since once we pulled milk it didn't come up again. My advice is to take a picture next time, if it happens before your doctor appt. I did this with his 1st outbreak, which was nice since the benadryl kicked in before we were seen 2 hours later at the walkin.

Nancy_Drew · September 2010

cmcmillan:
Sounds like what M had too, but he has since outgrown. We had him on regular soy milk, I didn't want him to get used to the flavored and he didn't have a problem drinking the regular. But he wouldn't drink my parents unsweetened. He also had to do soy yogurt and ice cream until he was 2.

C already gave great doctor advice, we never did an allergy test since once we pulled milk it didn't come up again. My advice is to take a picture next time, if it happens before your doctor appt. I did this with his 1st outbreak, which was nice since the benadryl kicked in before we were seen 2 hours later at the walkin.

I did take a pic, although I could not get him stay still, he was running away from me so they are not the best, but at least you can see the red blotches all over his torso.

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