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? for those with Helmet experience
So Grace's head is looking much better just by her being able to sit up and get off her head and us doing the things the Dr suggested. I should say, the back of her head looks a lot better. But her face is still really much flatter on one side and fuller on the other. It's not always noticeable, but it's there and when you look at her in the mirror it's really obvious. It is really bothering me. Our pedi however just keeps saying that it will get better on its own as she grows and whatnot. I am not so sure and really want to talk with someone about a possible helmet. I am wondering if you just got referrals from your pedi or did you just go someplace and meet with someone, and if so, who? What kind of Dr should I be looking for? I really don't want to wait until it's too late to fix the problem. Any advice would be helpful. TIA!
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Re: ? for those with Helmet experience
Hi there. I responded below to someone who asked about placiocephaly so you can read our details about how we came to a helmet or by clicking on my reilly twins blog link. We see a group called cranial technologies. They aren't doctor's but physical therapists and clinicians. We were referred there by our pedi. I think if there is any concern that the flatness is caused by a neurological abnormality, they send you to a neurologist. In our case, we knew that the flatness was caused inutero and by how he laid on it after birth.
DS has been in his helmet 13 weeks now and we go for an evaluation in 2 weeks to determine if he needs another helmet. His flatness was considered severe so we knew it was a possibility when we started the process. The back of his head looks fabulous and when we sent out some face pictures of him to friends before and after the helmet, they were really shocked on how much it changed his face.
If you want more info, just send me a message on the comments section of my blog and I will get back to you.
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I actually saw a specialist at our childrens hospital who took one look at Ava and said she needed a helmet. He then referred us to the helmet people. We found one in our area and they did everything for us. Three months later we went back to the specialist and he said she looked good. She wore it one more month and that was it. Only needed the one helmet but we took her every other week for adjustments.
She too had facial asymmetry. I never really noticed it until the dr pointed out things to us. Her one cheek was bigger and her ears were not really aligned. We were very pleased with the progress from the helmet.
thank you. I just called Childrens Hospital Oakland. They have a whole clinic, but they want a Dr referral. I'm curious to see what they will say, as I want to self refer just to have them see her and evaluate her. If they say she is okay then fine, but i have a feeling they will say she needs a helmet. Did either of your LO's have what I am talking about where when you look at them in a mirror it just doesn't look even/symmetrical?