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MummyGruetzie
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f/u about big appt with neurosurgeon/spinal team
MummyGruetzie
member
We had our big appt yesterday and got some very clear answers that DD does def. need her surgery. Basically, there are two bones, squishing into her spinal cord and the degree to which they're pushing in is really dangerous, but also has a high-risk for operating on, because its in a specific hard to reach area at the top of the spinal cord, which controls all the important stuff. We're waiting to hear back after he consults with some other dr.'s to tell us his plan for HOW he wants to do the surgery.
I actually feel relieved now that we have a clear idea of what we need to do. No promises I'll feel that way on surgery day. But the back and forth of wondering what to do wasn't good for anyone.
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Re: f/u about big appt with neurosurgeon/spinal team
Good luck w/ surgery, I know it's not fun; my kids condition is one that the only thing for a fix and to save their life is for surgery. With our condition there are a few different way to do the surgery so it's kind of a luck of the draw of which one ya get all depending on what surgeon you see. (but our surgery is not particularly dangerous like what y'all will have to face)
I am happy that now you at least know what direction you should be heading.
Max 4-08-08 and Michael 2-03-91 (19 years olds)