When DS rolled over, I didn't feel a lot of joy, just relief.
I felt the same way about sitting up, and probably will feel the same about walking and talking.
We me with DS's neurologist last week, and he asked if DS was talking yet. I said he babbles, but doesn't really say "mama" or "dada" or anything. The Dr. was like, "hmmmmm". And I thought, "Geez, one more thing to worry about, and isn't it a little early anyway?"
Ugh, just a vent. I know this is stupid, and there are people on this board dealing with a lot more than me but I have no outlet right now and just needed to get this off my chest.
Re: Vent: I am beginning to hate "milestones".
Nora Judith 7/2/06 Miles Chauncey 4/20/09 born with Trisomy 21 - Down syndrome
Milestones are like little golden nuggets of yumminess for SN mommies. You live off the high for way longer than you should. And when they are far between, you feel like a starving man until another nugget is tossed your way.
I go through waves of this emotion. Most recently I went through, "why can't you just leave my baby alone" vent after a therapy session. It gets so overwhelming to me that people have to come into my house to help my son do the things he should be doing on his own. I just want to have an appointment where the doc/therapist says, "yep, everything is great...see you in a few months!" Instead we get, "ok, so now you have to work on/watch for this, that, and the other thing, plus go see these specialists, and test for these things...."
It's just too much sometimes. And yes, I know we have it better than a lot of other parents, but when I get frustrated, all I can think of is us and our son, and how his disability is affecting our lives.
Sorry.....your vent made me want to vent......I kind of feel better!
It feels so lonely sometimes and coming here makes me feel so much better. We hate the "M" word, and we hate hearing about how all our friends' kids are knocking them out of the park, to be honest. It gets old.
By the way, our neurologist refuses to acknowledge DS's adjusted age (he was 5 weeks early). Our physiatrist told us yesterday that, if DS had not had a flurry of seizures, he probably would only be in PT, OT and a helmet, and people would leave us alone. But because of the seizures everyone is "excited" to find a diagnosis, so they send us to specialist on top of specialist.
Another doctor told us that, of all doctors, neurologists have the worst bed side manner. I would agree with that.
I hate the way I dwell on every "hmmm" and forget every "that's good". UGH!
Hugs to each of you.
It is interesting that several of you find the neurologists be the ones with the least empathy. I think I am beginning to see this as well.
I almost unfriended a couple of the Mom's on FB that I know from a Mommy-and-Me class I took when DS was a few months old. I just didn't want to hear sometimes how their DC are progressing.
Thanks for letting me vent. I feel a bit better today.
LOL!
Love me some bitter bus travel! We can do puppies and rainbows next week....
LOL!
Love me some bitter bus travel! We can do puppies and rainbows next week....