RP from PAL... T&P Request...

attyalice · March 2010

Ok, so the pediatrician called us this afternoon and told us that Harper failed the newborn screening for Cystic Fibrosis.... we are terrified...

I just got back from taking her to the children's hospital for further testing.

They have told us that sometimes the nurses get in a hurry and do the testing wrong. Thus, there is a significant level of false positives. Of course, this doesn't really help when I am here holding my precious little one worried that she has a long road ahead of her... and not knowing the answers.

It may take us 3 to 4 weeks to know the results of her tests.... but would you please say a prayer for her.... we are just so scared for her.... please give me some strength to not lose my mind with worry.......

vflipo · March 2010

Loads of T&P coming your way. I really hope it was a false positive.

bebeblues · March 2010

Much

, and t&p's coming ur way! ((hugs))

nicobean1 · March 2010

Sending lots of T&Ps for you and little Harper! Are you or DH carriers? Did you have any genetic testing previously?

ladylaurali25 · March 2010

Oh hun, I am so sorry to hear this. I hope the test results are wrong and she is a perfectly healthy little girl. I will be praying for you!

ShellShockedMama · March 2010

You are in my thoughts and prayers, for sure.

kellieok · March 2010

Oh my goodness Alice! You poor thing and Harper too! Sending TONS of T&P your way!!! I hope it was a false positive, please update us as soon as you know the results.

Heidisean · March 2010

Wait! Didn't you have the test to see if you were a carrier when you were pregnant? Why would they test her for it? I think I missed a pp. Is there any problems right now?

I will def say a prayer for her! You will be in my thoughts!

amberdaz · March 2010

Lots of prayers for baby Harper.

attyalice · March 2010

Heidisean:

Wait! Didn't you have the test to see if you were a carrier when you were pregnant? Why would they test her for it? I think I missed a pp. Is there any problems right now?

I will def say a prayer for her! You will be in my thoughts!

We didn't do the CF testing... my doctor didn't recommend it based upon family history.... they are required, in the State of Kentucky to test every newborn. Most states do, they just don't mention it to you unless you get a positive test.

She doesn't seem to have any problems, but it is early and most signs wont occur until after she is 4 - 6 weeks...

erin1205 · March 2010

Hang in there...lots of thoughts and prayers coming your way.

mamaholic · March 2010

I am so sorry. Sending lots of T&P to you and little Harper.

Heidisean · March 2010

abartane:
Heidisean:

Wait! Didn't you have the test to see if you were a carrier when you were pregnant? Why would they test her for it? I think I missed a pp. Is there any problems right now?

I will def say a prayer for her! You will be in my thoughts!

We didn't do the CF testing... my doctor didn't recommend it based upon family history.... they are required, in the State of Kentucky to test every newborn. Most states do, they just don't mention it to you unless you get a positive test.

She doesn't seem to have any problems, but it is early and most signs wont occur until after she is 4 - 6 weeks...

I will def say a prayer. In my practice it is mandatory that is why I asked but I am in PA. I really hope those damn nurses get their act together because if it were one of their kids I am sure it would have been done accurately. The next few weeks are going to be crazy for you but beautiful Harper will keep you busy! Lots of T and P!

dkfitz07 · March 2010

As always, praying for strength for you, Alex, and Harper...Much love.

Peach&Fireworks · March 2010

Oh my goodness, tons of T&P coming your way.

shawn&tony · March 2010

Lots & lots of T&P's coming Harpers way!!!

Jenny086 · March 2010

I will definitely keep your family in my T&Ps. I hope the results come in quicker than expected and that it was a false positive.

abtx · March 2010

How nerve wracking.... she's in my T&P

BrainySmurfette · March 2010

This happened to my sister when my niece was born. Her pedi pushed to get her in at Riley for a sweat test. I think it took a week to get in for the appt, and she had results the next day. I'd see if you (or your pedi) can push to get this resolved faster.

My niece ended up being a carrier for CF, but not having the actual condition. I hope this is your outcome, but I am so sorry that you a going through this. The waiting put my sis through hell. Definitely sending the T&Ps your way.

BlindysWife · March 2010

Oh honey, lots of T&P to you and your little girl.

CoastieWife08 · March 2010

I am saying a mountain of prayers for her. I am so sorry you have to go through any of this.

MaryEllen · March 2010

Lots of T&P for you and Harper, and I'm hoping it was a false positive. Keep us updated.

jennsadye1979 · March 2010

Sending tonnes of positive thoughts & prayers your way, Baby Harper!!

Addicted2thenot · March 2010

Oh Alice I hope that it is a testing error

You will be in my thoughts & prayers (((HUGS)))

soontobemrsvega · March 2010

O no how scary!! I pray the nurse did the test wrong!

Mia07 · March 2010

I'm sorry you're having to go through this Alice!

Sending lots and lots of prayers that it's just a mistake and everything is fine with your precious little girl. ((HUGS))

HElizabethDU · March 2010

Hoping that it is a false positive! Tons of T&Ps your way!!!!

OCIrishBruin · March 2010

Sending lots of T&Ps to you and your precious Harper. (((hugs)))

cintim · March 2010

your little girl's in my prayers. i also pray for strength for you & your DH. i hope it was a false positive

daphne814 · March 2010

Tons of T&P's coming your way...I really hope that it was just some sort of testing error. I'm so sorry you're having to go through this!

katie9136 · March 2010

Oh no Alice! I can imagine how scared and worried you are right now. I will be sending tons and tons of prayers your way that it ends up just being a false positive.

Kelanne · March 2010

oh Alice . .. so sorry for the scare. You are in my T&P's. "please God, keep Harper safe . . . she is so loved"

mlmtgg · March 2010

thinking of you and Harper and your DH - keep us posted.

itsMsAlbin · March 2010

Oh Alice, I'm sorry for the scare and I hope its just that. Big hugs and prayers coming your way!

rcbuko · April 2010

My thoughts and prayers are with you and your family. Hang in there.

JenyM · April 2010

Sending t&p your way Alice! Praying it's just a false positive.

MollyK0222 · April 2010

I'll be thinking about your family and sweet Harper.

LC0479 · April 2010

Oh Alice, I really hope it's just a false positive..will keep all of you in my prayers.

erpetdoc · April 2010

Praying for both strength and peace for you and Alex. Your little girl is blessed, and I will be praying for test results that show she is healthy and perfect! Sending lots of (((hugs))) for you!!!