I brought Colby to the GI at our local hospital yesterday (short version: Our Pedi received a copy of the paperwork from when I brought him to Boston (which I did without him knowing) And didn't like what that GI said (heck, I didn't either) So he had me schedule an apt with the local GI.
The doctor we saw yesterday is convinced the issue is a combination of GERD and food intollerance. I had him analyze one of Colby's diapers and there was no blood in it so I'm really not convinced there are still food intollerances going on (aside from Dairy which I have been strictly avoiding for 5ish months now).
He ordered an Upper GI X-ray scheduled for next tuesday, took him off the prevacid and ordered a different Reflux Medication. He said to continue with the Prunes 1x a day to make sure we are keeping him regular, and continue with Gas drops before bed but to discontinue the Hyosyne (this was prescribed by our Pedi a few months ago to help settle his belly before bed)
He suggested I continue to modify my diet to eliminate any source of food intollerance. He blindly told me to stop eating eggs and beef (well, it seemed like it was blindly to me) DH and I sat and talked last night about the whole situation. I really and truly do NOT believe he is suffering from a food intollerance. I saw what he was like before I eliminated Dairy, the poops, the mucous, the fussiness etc. There is none of that going on right now. I have been saying for months now that the issue is his reflux.
Last night was awful. He was up screaming every hour. I'm so exhausted. I hate that my baby is in pain. I really hope that the X-ray shows something so we can figure out how to get this little guy comfortable.
We have a follow up apt with this local GI at the end of the month.
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That's why I'm leaning towards reflux. He is fine when he is upright. Its sleeping that is the issue. He does sleep on his belly now that he is rolling. I tried inclining his crib but he moves too much he ended up with his feet on the incline, so I scratched that idea.
No one has discussed this yet. I am willing to give the other medicine a try, but if it doesn't work I will be suggesting this, I had never even heard of it until now, Thanks!
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Keep pushing for answers Holly. Never settle for something that doesn't sound right to you. I really hope they figure out what's going on. Poor little guy and poor mama!
I can put you in touch with a friend of mine whose son had all sorts of these issues, if you'd like. He had a milk intolerance, allergic to wheat, and GERD.
I bring him to GI because I don't know what else to do. When he wakes up screaming at night he is arching out his back and his belly is really tight, that's why my reaction was to bring him there. I don't even know where else I should bring him? I agree with you 100% that I'm not getting an answer and I do feel like I'm banging my head against a wall, but I don't know what else to do.
He saw a Chiropractor on tuesday. She said his lower back was a little tight, but nothing crazy. She showed me how to do the adjustments myself. I'm not completely confident in what I am doing, but I do massage his back before bed now the way that she showed me.
I'm not trying to dismiss what they say by any means, and I know they are specialists and this is what they went to school for and deal with on a daily basis, but I'm not convinced they can get a clear picture of what is going on after listening to me talk for 20 minutes, ya know.
I am completely open to suggestions, that's why I keep posting, hoping someone will be able to relate and have another idea of what to try.
Holly - YGPM
Big Kid Jan 2010
Littlest Man Sept 2012
Effing WHAT? No. Do not do chiropractic adjustments yourself. No, no, no. My dad is a chiro and would flip the flip out if he saw this. If you mean checking his back or gentle massage, maybe--but NOT actual spinal manipulation. You could severely injure him. If this is the chiro you're seeing, see someone else. I'm actually freaked out right now.
I didn't realize I was coming off this way. Thank you for pointing it out to me, I do appreciate everything the doctor is saying. The GI in Boston was convinced he had bad gas. I didn't agree, but have still been doing the things she suggested (prunes 1x a day, eliminating gassy foods from our diets, suppositories if necessary etc)
DH and I decided that I am going to eliminate beef and eggs on a trial until the apt because like you said, it is minimally invasive, and won't hurt to try.
I also am not a true believer in Chiropractic care, but I did bring him there as well and am doing my best to do what she suggests.
I was a little freaked out when she was telling me how to do it, I just do gentle massage on his back. I KNOW I am not a trained chiro, and I wouldn't even try to manipulate him myself, no worries
responded
Okay this is just my experience here with DS1. DS1 screamed non-stop. I cannot even exaggerate. He would wake up screaming all night long. If his eyes were open during the day, he was screaming. People would poo-poo it until they would see him in action--then it was all "OMG take him to the doctors there's something really wrong with this kid." No kidding.
So he was diagnosed with a milk/soy intolerance at 12 weeks due to blood in his stool. I was BF-ing at the time so I cut it out. He continued to scream. The doctors then said he might have silent reflux. He continued to scream after taking the meds. So finally they concluded that he had an intolerance to EVERYTHING. Nuts, beef, dairy, soy, gluten, etc etc. They said that those intolerances won't necessarily be evident in bowel movements (convenient, but I do believe that is what the problem was). I was so emotionally drained at this point that we put him on Neocate and in a few days he was 100% better. I was sad to stop BFing but I couldn't personally take it anymore.
Now, he is a perfectly healthy almost 3 year old and can eat anything. I feel your pain though. It is terrible to have a baby in pain, but it is also overwhelming for your mental psyche. Good luck and I hope you figure something out!
This is exactly what I was thinking...why wouldn't they suggest formula? Also I hope things get better. Keep at it mama! Someone has to have an answer for you!
This is exactly what I was thinking! It is worth a try....
Glad you got him to a new GI doc. Hopefully they can figure something out soon to make him start feeling better!
He pushed formula SO hard in the beginning, I think he knows that I will ask for it when I am ready. DH and I decided we will see if this last Reflux medicine does anything and what the X-ray reveals, but if nothing is better after that then we will be trying formula. As much as I am determined to BF, I am MORE determined to have a happy healthy baby. I just want to rule everything out first before I try formula.
I don't think so. I was GBS+ So I was on antibiotics during labor. And there was meconium once my water broke, but he was suctioned pretty well and didn't end up needing the antibiotics IIRC
your poor littly guy, that sounds so heartbreaking. That's what is confusing me, he is a generally happy baby, just miserable when laying down/ sleeping!
I was GBS as well and my LO has had problems with reflux since about 8 weeks. I wonder if there is a connection?
We finally attributed it to a MPI and I stopped doing dairy. He was doing better but not 100 so I think there were more things he was sensitive to. We finally realized a happy baby was better than my want to breast feed. He's on similac sensitive and he's a totally different baby.
You need to get over your wants and give your LO formula.
I will say I could not live with myself if formula takes care of the issue and my child suffered for 8 months because I wasn't ready.
I starved G for a week and felt guilty.
Uh really? GTFO if you're going to come into my thread and be unsupportive. Obviously I want what is best for my son. in MY opinion Breastmilk is better than formula. If I can figure out what is upsetting him (and it has nothing to do with breastmilk/ formula) then why wouldn't I do that? by "when I am ready" I meant "when I have exhausted all other options and truly know that the only possible way to correct what is wrong with him is to give him formula"
He is NOT starving. He is growing and thriving. He just doesn't do well sleeping. I don't need to be guilted into giving him formula. Thanks
I can't bold on mobile but the last paragraph is exactly what I am thinking.
BOOM.
It took me 2 months to realize that with Reid {andplusalso, projectile vomit everywhere}. Not sure why it's taken Holly 8 months.
Not that you ever consider any opinions/suggestions other than your own, but Holly, why can't you try formula and continue to pump as to not affect your supply. If the formula helps, AMAZING. If not, then you can go back to BFing.
This is exactly what I did and the formula made A WORLD of difference for Reid. Once I knew it was working, I quit pumping.
Carter Robert 7.18.08 | Brynn Sophia 5.24.10 | Reid Joseph 9.10.12 | Emerson Mae 1.27.14
It's not difficult to give him formula for a week or two while you pump to see if that is an issue. But you won't do it. That is just insane.
Hahaha love it! I agree Anita! The first thing I thought of a long time ago when I'd read about this is PUT HIM ON FORMULA! Try it and see if things change. Isn't that what you've been doing all along Holly is try and see if things work? Why not try formula? I'm not trying to guilt you into it but for god sake give it a try!
And you can totally only comment if you are supportive. And if your advice, including advice from the dr, contradicts what I think, then GTGO.
You can pull the whole, "I think BM is better so I'm going to give this a serious go"... for a while. Not for 8 months.
Have you tried a TED consisting of ONLY turkey, brown rice, zucchini/yellow squash and pears? No coffee (caffeinated or decaf). No alcohol. No sugar. Nothing. If not. You should do this. Without question. Until you have, you can't say you've tried everything. I know you're a picky eater, but you can't have everything you want (to BF, to eat shi*t, your son to get better).
Have you tried EPing and bottle feeding your BM? The magic combo for us seemed to be off soy, dairy and egg, EPing and bottle feeding.
Reflux is most often food based. If you think it's reflux, why on earth would you not try a TED? Intolerances and food based reflux are two different things.
And if you aren't willing to do either or both of these things (not that what worked for me is the best ever for everyone, but it's one solution as we started this out with babes with identical symptoms), and you aren't willing to give formula... then what are you looking for? A magic pill?!
ETA: so my cuss words would not get censored
Personally, I would try formula FIRST. I would much rather have my LO on formula than a ton of meds.
I'm with Kristy here. I wouldn't just cut out beef and eggs (or whatever was suggested) I would cut out nearly everything. Then slowly reintroduce.
Personally though, just try formula. It is not the devil and while breast may be best, that is not the case for all babies. You are being selfish just for the sake of proving that you can BF.
Kid #1 - 09/03/12
Hysteroscopy #10 - scar tissue grew back reblocking my right tube
#11 or IVF with scarring still inside?
1 lone embryo from September 2016 retreival, dx with Trisomy 16, starting fresh
I am a big proponent of supporting mothers who want to BF. With that being said, it's been 8 months. Your baby is miserable at night. Something's got to change . 8 months is an excessive amount of time to have these issues. I also would recommend formula for 1 to 2 weeks, while pumping, to see if you notice a difference. I would use a sensitive formula to start.
BFing is great for most kids, but not for all. Unless you want to go down to the diet Kristy described for at least 2 to 4 weeks, it seems like you are at the end of the road.
I feel bad for what you've gone through. It sounds miserable, but at this point it's time to go big or go home.
https://www.fda.gov/safety/recalls/ucm226885.htm
This is why I am against formula. Keagan was on this when it was recalled. There were fuckiiing beetles and larvae IN HIS FORMULA.
No thanks.
Also, neither of the GI's that I saw (that have no idea how dedicated I am to BFing suggested trying formula.
No, I don't agree with everything both of the GI's have said, but I am still taking their advice and doing what they are suggesting. I asked the GI yesterday if I would be better off doing a TED, or bringing him to an allergist, he said no, eliminate eggs and beef, and we will do the x-ray and go from there.
I don't need y'all to make me feel like a shiity mom. I am doing my best and what I think is right for my child. I appreciate the support, and the opinions, but you can leave the negativity at the door. I have my reasons for doing what I am doing, and have the help of doctors to try to figure out what is going on.
What don't you believe? the FDA link? Why do you think I re-lactated when he was 9 months old?? I have mentioned this before when I talked about my re-lactation. Regardless, it grosses me out to no end. I have not spat in anyones face. I have taken all the solutions presented to me, here, and from the doctors and although I may not agree that they are the solution, I am still willing to try them. (as I have stated multiple times in this thread) I am not here looking for attention, I am updating the people that are curious (not curious, don't open the thread!) and I am also looking for advice from others that may have gone through something similar.
I have not picked "not" to do something, that's why I am bringing him to doctors, and working on my diet to make him better.