It's so good to have someone here that has been through some of this!
has to go through many dilations because his TEF repair was so
tight he hasn't been able to swallow. There is only a very small
area now that is tight so the surgeon is really pleased. I was so
surprised to see that
Tucker has always been eating! That's awesome! You really
hope! I put this in my update below but we are going to try some
oral stimulation with Cheetos! I'm pretty excited!
We have to get a bronch done fairly regularly because his airway was so floppy.
And, no, these things never get easier!
However, we got so lucky today with the OR nurse that came to get him. She is the first to actually take some time to play with him and earn some trust instead of ripping him out of our arms and taking him away crying! He played peek-a-boo with her a little then she put her arms out and he cautiously went to her then put his head on her shoulder and they walked in to surgery! It was amazing! That is usually the hardest part for all of us so I was sure to thank her afterwards!
Does Tucker only get
dilations when there is an issue? I can't wait for those
days! I understand the frustration with the not-so-common cold.
For a while, every time Drake gets sick he will probably end up in the
hospital. At least, that's been our experience so far. It
sounds like Tucker has the same problem my husband does. His
colds always turn into chest infections! No fun!