We finally heard back from the geneticist.
DS2 has the same XLID that DS1 does. It causes mental retardation, tone problems, seizures, hearing loss, vision loss, microcephaly (although right now DS2 has a normal head circumference), nystagmus, agenisis of the corpus callosum and cerebellum.
This svcks.
I thought knowing the odds ahead of time would make it hurt a lot less to hear.
Re: Bad News
DD1, 1/5/2008 ~~~ DD2, 3/17/2010
I was so hoping you'd hear otherwise. I am sorry.
I so much wish I had the words to heal the hurt. We are here for you. ((hugs))
Bronx Zoo: Summer 2013
To read my blog, click on the giraffe pic below!
I'm sorry to hear this. I've been following your story and was really hoping the news would be what you wanted.
You are strong. You will handle this with grace and your boys will reach their full potential with you by their side.
Hugs. If we could change it for you, and make it easier, i'm sure we all would.
Ugh. My heart is broken for you.
I'm so sorry that this was the news you received.
I am so sorry you are going through all of this.....again. You just can't catch a break. ((hugs)).
I know this doesn't even compare apples to apples....but when we were dealing with DS1's food allergies at first (before knowing any other issues)--- and knowing the severity of them, how our lives would change, etc. there was obviously a lot to learn, we had to change our lives, how I cooked, etc. We did it. He did it, etc. Then came #2. He seems to not have as serious of allergies but there seems to be some--and I had to say to myself "you can do this....you KNOW this....you've DONE this....."...even though I didn't want to.
Again-not even apples to apples here--but knowing that you know what to expect..and knowing that you ARE strong....and that you ARE the most awesome mom ever.....that will get you through this.
My new "mom" blog: http://realityofamommy.blogspot.com
[img]
[url=http://www.TickerFactory.com/]
Notes: