So....Miles has Down Syndrome

cooker71

OK, deep breath here.....

Just wanted to get that out in the open to everyone. I've only told a few friends and obviously our families so far....it's been a hard week but things are getting better.

We had no idea until they handed him to us and I just knew. He has the Down Syndrome eyes and his ears were small and lower set. No cleft palate, but I could just tell. We got the official test results back yesterday, which confirmed Trisomy 21, or Down Syndrome.

We were pretty devastated initially. I cried a lot Monday, but the good news just keeps rolling in about him. No heart defects, which Down babies have a 50 percent chance of, he passed his hearing test with flying colors and has great muscle strength for a Down baby. He also has a great latch and sucking reflex, so nursing is going OK with him so far.

And, obviously, he's beautiful and just the sweetest being on earth. He's already brought our family closer together and I think he'll bring us so much joy in other areas of our lives as well.

Just wanted everyone on here to know as I start posting more photos of him. I also may need to vent/cry/etc. as we start dealing with the challenges of raising a special needs child.

And thanks again to everyone for your congrats and well wishes. I appreciated them so much!!?

Jodi&Joe

At the risk of saying something that might not be right, I'm just going to say that if you need ANYTHING from me, you say the word!!!!

LinzDavid

(((((((((((((HUGS)))))))))))))

Cry/vent/whatever you need as much as you want.  Please post pics, he's beautiful!  I'm so glad he has no heart defects and passed his hearing test!! 

femmegem

(((hugs))) My mom used to be a special ed teacher. One of her Down Syndrome kids was one of the sweetest and funniest little girls I've ever met.

You know you can always cry, vent, scream, brag, or whatever you need to do on here. We're all here for you!

DesignerMama

Ditto Jodi.?I'm close. Let me know if you guys need anything.

And know I'm thinking about you.

Makinroom4baby

My heart just sank for you, as I know the feeling of hearing the news that something is not 100% right with your child. I'll be praying for you and your family, and I'm glad to hear that he is otherwise healthy. (((hugs)))

npeacock

You nailed it - he's beautiful and sweet.  You have so much to be thankful for.  I am certain you and your family will do a fabulous job with him.

mauceddie

I am sure he will touch your lives in ways you can't even imagine.

Good luck with everything.

kevschickee2

you know what?  As long as he is happy and healthy it doesn't matter( I know technically it does but you kwim).  With you as his mom I know he has a great advocate(sp) on his side and will do great things in his life.  Vent all you want

rach&jay

I cannot imagine the roller coaster of emotions that you and your family are dealing with at this time.  That is good news that there are no heart problems, and also that he is doing so well. 

Post some pictures of that new beautiful baby soon.

 

mlm1128

You do whatever you need to do here.  He is a beautiful little boy, and you're right...he will bring you more joy than you can imagine.

jennieliz

He is beautiful and you guys are going to do great!  I know it's got to be hard getting that kind of news but it sounds like right now he's got a milder form and that's very positive.  I know you can get through this and that his life is going to be perfect.  If you need ANYTHING do not hesitate to ask.  Lots of hugs!

crazynervous

My thoughts are with you! Stay strong!

katie277s

He is healthy and happy and that is all that matters.  He is beautiful and you know we are all here if you need to vent/cry/whatever. 

springmom

We're here for you, whatever you need. ?((((hugs))))?

mamarazzi

((hugs))  I'm not going to say anything trite or cliche'.  Just know we're all here for you.

thesmiths

My thoughts and prayers are with you.  What a beutiful baby boy!!!

CleoKitty

Cooker, I haven't had a chance to congratulate you yet- I wasn't online when you posted his birth announcement. Congratulations! He's gorgeous. This might sound odd, but babies with Down's often are breathtakingly beautiful.

I work with adults who have Down's. The two men I currently work with have very happy, fulfilled lives: they have girlfriends, they have jobs, they have their own apartments, belong to a bowling league, take vacations, have their own friends, interests and hobbies. I'm certain that Miles will grow up to be just as happy and fulfilled with his life. 

Congratulations again. 

Heidisean

Cooker, I am praying all is well. I work with kids with DS and they are the most pleasant, fun and loving kids EVER!!!! I am sure he will bring your family much love, smiles and happiness throughout your lives. Let me know if you need any help or references on anything for development. (((((HUGS))))) He is adorable!

xbrooklyngrl

Oh my love. I can't imagine how hard it must be to hear that news but I know that seeing him, holding him...etc, you don't care. He's yours and he's perfect. Whatever challenges you may face, you will get through. 

I want to keep seeing him and Nora and both of their beautiful faces and nothing will take away from that.

We are always here for whatever you need and its ok to vent, cry, etc.

 

 

cooker71

OK, y'all are making me cry again!! Your words of support and encouragement mean so much.....

EMT

Oh honey, *hugs*.  I bet that was hard to learn but he is absolutely perfect and will be a huge joy.  He is lucky to have you for mom and Nora as a big sister.

Was this a total shock?  Was it discussed at all when he was in utero?

sooosie

Makinroom4baby:

My heart just sank for you, as I know the feeling of hearing the news that something is not 100% right with your child. I'll be praying for you and your family, and I'm glad to hear that he is otherwise healthy. (((hugs)))

 I couldn't have said it better than this.  ((HUGS))

eclaires

Hugs, thoughts and prayers for y'all.  Know that we're always here for you, no matter what you need - don't hesitate to ask, post, email, or whatever.

MarchMom06

Big hugs to you and your family.

lizlemon77

(((((hugs))))))

During this very difficult time it sounds like you've got the right attitude.  You realize that he is a happy and sweet baby and he will bring unfathomable joy to your life.  But you also have every right to cry, vent, mourn and ask why. 

I can't wait to see more pictures of your beautiful son!

stacynikki

Hugs - He's going to end up being one of the best parts of your life. 

r9stedt

(((hugs)))

DaiLyght

I'm am glad beyond words to hear how healthy and well he's doing. I couldn't imagine this child being born to a better family. ((((((HUGS))))))

neesernicole

Yep, we're right here for you girl!  Big hugs.

hikerbeth

Wow, what a rollercoaster week for you.  He is beautiful--I love the pictures you've posted.

You are amazing and you have my (and our) support.

pincushions

mlm1128:

You do whatever you need to do here.  He is a beautiful little boy, and you're right...he will bring you more joy than you can imagine.

 

this. hugs and a free tittoo smother.

RCH151

He's beautiful and you guys will be great parents to him, just as you've been for your daughter. 

Zenya

I'm sure you feel very shocked.  I'm glad he is healthy and I can't wait to see pics.

zacook

You have just been gifted one of the most amazing challenges of life.. this will make you and your family so much stronger.. You will see...

Congrats on your new baby boy!!! 

lsufan

Can't think of much that hasn't already been said. ?He is gorgeous, and you're right that like any baby, he'll be such a blessing to your family. ?It sounds like he's a very lucky little boy to have you for a mom.

mommynow

DaiLyght:

I'm am glad beyond words to hear how healthy and well he's doing. I couldn't imagine this child being born to a better family. ((((((HUGS))))))

This.  And a late congrats!!

excitedtobemrs

Big hugs.  This must have been one trying week for you...but your strength and determination & positive attitude are things to be admired.

We are here for you...whatever you need. 

MrsStubbs

You are such an amazing mom and we are all here for you.

buffalo_buckeye

(HUGS!) I'm sure getting the news was really hard. Feel free to vent, cry and complain whenever necessary!

Shmar

I wish I had a gift with words in situations like this, but I just don't, so ((((HUGS)))) and just know that we are all here for you, thinking of you and your family and praying for continued health and happiness for your beautiful baby boy.  I know you will become an even more amazing mom for it.