Infertility

IVF canceled. Looking for Florida RE use human growth hormone. Please help!

bump8bump8 member
edited November 2018 in Infertility
I just had a canceled IVF cycle due to DOR,  then converted to IUI, also failed. 

What made me feel worse is that the doctor I saw in Florida just kicked me to the curb even BEFORE my cycle was finished because they only found 2 follicles during stim (they didn’t even bother to change the dosage during monitoring). When I asked the doctor if we can try another cycle with different protocol. He just shook his head and shrugged. He promised 30% chance at our first consultation but now he basically gave me a death sentence. I am devastated.

I heard about some DOR girls had success with mini-IVF with Human growth hormone protocol, and no birth control pills. I think its what i need because after the birth control pill, my ovary has become "very quiet" according to the nurse. I have been talking to my local RE and none of them use Human growth hormone. I heard about CCRM but i read many horror stories about their financial department (charging services not performed and double charge the customers and the insurance, etc.) Also, my husband had vasectomy, so he had a testicular biopsy done and get his sperm frozen in my local clinic, I am worried the long distance shipping would cause issues for the sperm. I feel i am running out of options...I am desperate. 

If anyone knows a good doctor in Florida use Human growth hormone and no birth control pills, please let me know. Any thoughts are greatly appreciated! 


Protocol used: 

Birth control pill for one week

STIM: Letrozol 50mg (5 days); Gonal-F (300 IU for 10 days) ; Cetrotide ( 2 days) 

Trigger: HCG 



Re: IVF canceled. Looking for Florida RE use human growth hormone. Please help!

  • I’m sorry this has happened to you. I have DOR and recommend Tennessee Reproductive Medicine in Chattanooga. They are a smaller practice. I used HGH during my ivf cycles. They may be able to work it out for you to have local monitoring. They are open to different protocols to try. Good luck. 
    Me:32 DH:36
    Me: DOR, poor egg quality, MTHFR
    DH: MFI
    TTC since 3/2014
    2015: 3 IUI's-BFN
    12/2015: 1st IVF cycle-(9 follicles retrieved, 5 mature, 3 fertilized w/ICSI, transferred 1 excellent and 1 good embryo on day 3)-chemical pregnancy
    3/2016: 2nd IVF cycle- canceled (3 follicles retrieved, 3 mature, all fertilized w/ICSI, 1 fragmented, 2 arrested) 
    3/2016: RE suggested donor eggs- taking an ivf break and to supplement 
    9/2016: 3rd ivf cycle-cancelled due to early ovulation
    Oct./Nov 2016: 4th ivf cycle- EPP-AFC:5, retrieved 10, 10 mature, 8 fertilized with ICSI, 6 blastocysts biopsied and frozen. 3 CCS normal embryos
    1/9/17: transferred 1 embryo-BFP 1/16
    1/18/17: beta #1-104
    1/20/17: beta #2-174
    2/2/17: first u/s, heartbeat of 107 at 6w1d
    7/20/17: baby boy born at 30+3 via emergency c-section 


  • @bump8, how many clinics in Florida have you called to ask about this? Like I said over at TTGP, so sorry. My heart breaks for you. 
    People think we become mothers when we give birth but the truth is we become mothers the moment we start calling our babies to us in our thoughts, dreams and prayers. Some paths are short and some are so long that you can easily forget where you were headed.

    How I feel all of the time.
    My 7 Year Journey ***Tw in spoiler***
    IVF
    IVF #1 - September 2018; Follistim, Menopur, Cetrotide & Lupron/HCG combo trigger; PGS; ICSI
    Back on Levothyroxine
    FET #1 - October 2018; cancelled, all PGS aneuploid
    FET #1 - November 30th, transferred anyway
    Wondfo BFP 5dp5dt, CB Digi 6dpt, 
    1st Beta on 7dpt 93
    2nd Beta on 10dpt 510!

    TTC #1 since 2011. Tried for 5 years before we knew there was a one year rule.
    Diag w/MS 2016; w/PCOS & IF 2017
    New RE 2018; PCOS diagnosis taken away, IF due to ovary adhesions, but prev. RE insists PCOS IF

    IUI
    IUI #1 July 2017 w/100mg Clo+trigger; BFN; benched w/big cysts
    IUI #2 October 2017 w/50mg Clo+trigger; BFN; benched w/big cysts
    IUI #3 February 2018 w/5mg Femara+trigger; low P
    BFP February; mc March; Subclinical hypothyroid started Levothyroxine 
    IUI #4 March 2018 w/7.5mg Femara+trigger; BFN
    Medicated cycle & TI April 2018 w/7.5mg Femara+trigger; BFN
    Tried several cycles on our own; all BFN
     
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  • Thanks! i will definately look it up. much appreciated!
  • Thanks. I have checked a few in central Florida location (Orlando area)  and the doctors all seem old cookie cutter. I will check out TTGP. Thanks so much!
  • We were already on TTGP. That's where you posted the first time. Hopefully now that it's Monday, other ladies will chime in who are much more knowledgeable about that region than I am. 
    People think we become mothers when we give birth but the truth is we become mothers the moment we start calling our babies to us in our thoughts, dreams and prayers. Some paths are short and some are so long that you can easily forget where you were headed.

    How I feel all of the time.
    My 7 Year Journey ***Tw in spoiler***
    IVF
    IVF #1 - September 2018; Follistim, Menopur, Cetrotide & Lupron/HCG combo trigger; PGS; ICSI
    Back on Levothyroxine
    FET #1 - October 2018; cancelled, all PGS aneuploid
    FET #1 - November 30th, transferred anyway
    Wondfo BFP 5dp5dt, CB Digi 6dpt, 
    1st Beta on 7dpt 93
    2nd Beta on 10dpt 510!

    TTC #1 since 2011. Tried for 5 years before we knew there was a one year rule.
    Diag w/MS 2016; w/PCOS & IF 2017
    New RE 2018; PCOS diagnosis taken away, IF due to ovary adhesions, but prev. RE insists PCOS IF

    IUI
    IUI #1 July 2017 w/100mg Clo+trigger; BFN; benched w/big cysts
    IUI #2 October 2017 w/50mg Clo+trigger; BFN; benched w/big cysts
    IUI #3 February 2018 w/5mg Femara+trigger; low P
    BFP February; mc March; Subclinical hypothyroid started Levothyroxine 
    IUI #4 March 2018 w/7.5mg Femara+trigger; BFN
    Medicated cycle & TI April 2018 w/7.5mg Femara+trigger; BFN
    Tried several cycles on our own; all BFN
     
  • mbradfo2mbradfo2 member
    edited November 2018
    I'm in Florida and my RE has a small clinic but I don't know his thoughts on HGH or anything like that. I do know that I had a very good experience with him and he tends to be very pragmatic in his work and has a great team. His lab director is pretty awesome too! I don't know if his office is what you are looking for as I had pretty straightforward treatment luckily but it can't hurt to look into them as we are only a few hours south of you in Palm Beach County --- the clinic is Boca Fertility.

    There are some other clinics around, IVF Florida being the big kahuna, but my experience is with that one. I had a not so good interaction with a clinic near my OB's office in Boynton Beach and found the one I went with far more comfortable for me.
    ~~ Our Story in Spoiler! TW loss/child~~
    Fall 2012 -- started TTC
    Summer 2015 - no BFP yet, labs normal, referred to RE
    Fall 2015 - Summer 2016 - Further testing all normal. 3 IUI's -- BFN. Recommended move to IVF. Planned cycle for fall 2016.
    September 2016 - Surprise natural BFP. MMC @ 8 weeks. RE expressed confidence that we just needed the 'right' embryo.
    Fall 2016 - Spring 2017 -- Break from TTC
    June 2017 - Started IVF; egg retrieval for freeze all cycle. 9 mature eggs retrieved, 5 fertilized. 2 4BB embies on ice.
    August 2017 - FET transfer both embies. BFP.  Twin pregnancy confirmed by ultrasound. EDD 4/28/18
    September 2017 - Twin B stopped developing; Twin A doing perfectly! Graduated from RE @ 10 weeks
    March 2018 - Baby Girl born via C/S due to pre-eclampsia -- strong and healthy!

    TTC #2
    January/Feb 2021 - Freeze-all IVF cycle 
    March 2021 - FET of 1 PGS normal female embryo. BFP! Beta #1 156,  #2 472, #3 1241, #4 5268 EDD 12/5/21 - Christmas baby!


    "When all is lost then all is found."


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