Today’s appointment wasn’t necessarily good. They confirmed all the findings that were discovered on Tuesday at my MFM. I was hoping we would know if baby A is growing on their own growth curve but apparently we need close to two weeks time to determine growth rather than a few days. Baby A is 37-40% discordance to baby B, who is on track. Baby As cord is velamentous which is also not the greatest. This biggest concern is that there is some reverse flow in the baby’s umbilical cord. The doctor didnan educated guessing that baby A only has 10-20% placenta share.
We now have an appointment on Monday and after they do the same exam (by different staff for a non biased view) we will have two options depending on findings. 1: expectant management - go in twice a week (I might push for 3 times) and as long as things don’t become worse, continue on to see if baby A is growing on their own growth curve and see if things improve. Risks associated with this option. Baby A could die in between monitoring cashing a 50% risk in baby B of either dying or getting brain damage. I have seen many success stories with this approach but I’m not sure how many were in my same combination of situations or this early on in pregnancy (currently 16+5). 2: surgery to separate the placenta from the two babies. Risks associated: its giving baby A a very low chance of survival (maybe 10%) but almost garuntees the safety of baby B although there is a small risk baby B can die too (5%).
What makes my case more more interesting is how early I am, making the decisions harder to make, whereas expectant management would probably be the quick choice if nearing viability which seems so far away at the moment (approx. 26 weeks).
What I am hoping for and would love prayer/good vibes from all who are willing is that at the very least baby A doesn’t show any reverse flow in the umbilical cord come our Monday appointment. BabyA is proportionate for their size currently, seems fairly active in utero (we saw him sucking his fingers) and had a good heartbeat (135)- all these things make it very hard for me to choose the second option. Obviously if the doctor strongly urged the surgery on Monday, that may be different, but at this point he was willing to do either option.
This journey will be long and extremely emotional. I feel guilty telling you guys this and getting all your support when I feel I haven’t been very active in the community like I should be.
For those that that want to follow the journey, I’ll continue to update this thread so it doesn’t take over other threads. Again, thank you everyone for such kind words and prayers! You all are amazing.
One thing we want to do is have a name for baby A by Monday so that if things go badly at least he has a name and it would then become the middle name of baby B in honor of him. If anyone has suggestions my husband would like the name to have meaning relative to warrior, fighter, strong, etc. Feel free to share suggestions.
And for those that want to pray for us by name, I’m Katie and my husband is Evan.
Me (29) + DH (30) | Dating 2003 | Married 2008 DS - 02/21/2016
Hi love, thank you for the update. I’m sorry you weren’t able to learn more. Does this mean you’ll be going back to the specialist in two weeks? What is a venra cord? I tried googling it but couldn’t find anything. *hugs* to you lady!
@SkilledSailor I’ll be going this coming Monday and if we choose expectant management would be seen 2-3 times a week - ongoing till either having to choose surgery, making it to viability where I will then be continuously monitored in a hospital, or worst case death. The placement of the cord is slightly hard to explain. If the placenta is the ceiling, baby As umbilical cord meets at the wall and then smaller connections make their way to the ceiling (aka placentia) if that makes any sort of sense. That’s how they explained it to me.
Me (29) + DH (30) | Dating 2003 | Married 2008 DS - 02/21/2016
@xxkberxx I think I get it. Baby As umbilical cord grew in a way that’s making it need to work harder? How’s your support system? Please tell me to shut up if you’re tired of questions!
@xxkberxx thank you for updating us and please keep us updated as you few up to it and want to share. I am sorry this wasn’t clearer news, but it sounds the provider you met today is open to whatever you feel is best at this point. I will keep you, your husband and those sweet boys in my prayers.
@SkilledSailor yeah, pretty much. Baby A has to work much harder for nutrients and even has some restricted/reverse flow in the umbilical cord. Much like 2 steps forward, one step back idea. The flow of the umbilical cord can improve and that’s what we hope we (my husband and I) will see on Monday. To help (not that I can do much) I’m eating as close to 175g of protein a day, taking baby asprin, and warm full body baths as suggested by the doctor to aid in blood flow.
Me (29) + DH (30) | Dating 2003 | Married 2008 DS - 02/21/2016
I am so sorry you are going through this. Both are tough options. I hope the blood flow improves on Monday and you hopefully get a clearer answer. My thoughts are with you and your boys.
Thanks for the update, I'm sorry it wasn't happier news. Hoping Monday gives more clarity, but I know your options just aren't awesome at the moment. Sending best wishes and good thoughts for all of you in this hard time.
_______________________________________________
Me: 33 DH: 32 Married 7/18/15 1st born at 35+4 on 6/6/16 Team green turned BLUE! 2nd born at 38+6 on 8/30/18 Team green turned PINK! Due with #3 on 6/6/20 Team Green
I have a friend who was faced with similar choices for her twins (different diagnosis.) These are such tough decisions, I will definitely be thinking of you and Evan and hoping for Baby A to hang tough! Thank you for sharing, I hope you find this to be a safe, supportive place to turn when you need advice or just to vent or whatever. Big creepy internet hugs!
Thank you for the update. I'm sending lots of positive thoughts to you and your family. Please lean on us as much as you need. We'd love to be able to offer any comfort that we can. Hugs to you and yours
Thank you for the update - I’ve been thinking of you, and I’ll continue thinking of you. Wishing you positivity and strength to get through the road ahead and these tough decisions
Thank you for the update, I'm sure this is a very vulnerable and difficult spot for you and your husband to be in right now. I'll keep you and your husband and both babies in my thoughts and prayers. Please continue to lean on us as much as you need.
****TW- one of my cousins had a stillbirth and named the baby boy Wyatt, so although I'm biased, I love the idea of using that name in some capacity. End TW.****
Oh honey. That is such a hard appointment and so much to take in. My love tits are huge hugs. Thanks for the update. I’ll look forward to hearing more on Monday. Sending love to you and your family.
Thank you for the update. Im sorry you didn’t get better news, but I’m praying for you, your DH, those two sweet boys, and all of the doctors guiding your care. I hope that Baby A lives up to whatever name you choose, and that you have peace in whatever path you eventually choose. I hope your next exams show improvement for Baby A.
Thank you for coming here to update us. Don't worry at all about not keeping up with posts. You're going through a difficult time and we completely understand if you're not around as much. Feel free to update here and seek as much support as you need. We're here for you.
I'll be thinking of you and your family and hoping you get some better news on Monday. It sounds like you have a really good medical team. So many hugs.
Me: 34 | DH: 33 Married Aug. 2013 TTC #1 Sep. 2016 ***TW***
BFP Jan. 15, 2017; MMC Mar. 4, 2017 at 10w6d BFP Jun. 5, 2017; MMC Aug. 2, 2017 at 11w6d BFP Nov. 20, 2017; ended in CP All the tests. Everything normal except treated for ureaplasma and DH potentially has high DNAF. BFP Dec. 25, 2017; EDD Sep. 5, 2018; DD arrived Aug. 26th My chart: https://www.fertilityfriend.com/home/63f71d
Thanks so much for the update. I am sorry that you didn't receive better news yesterday, and I very much hope that the flow in Baby A's umbilical cord improves by Monday. I will be keeping Baby A (and baby B ), you, and your husband in my prayers.
Some of my favorite warrior/fighter names are Owen, Sloan(e), Keane, and Alec.
Oh I’m so sorry the news wasn’t better. Thank you for taking the time to update us all, and please lean on us as much or as little as is healthy and helpful for you. We’re all here! I will Certainly praying for you and the little ones.
I'm sorry to hear the news wasn't better. You have some difficult decisions ahead of you and the greatest wish I can make for you is that the right decision becomes clear. You will find a way to make the right decision for your family as you gain new information and see how things progress. Please lean on us in any way that is helpful.
I love @businesswife's name suggestions! If you are Christian or Jewish, here are some Biblical warrior names you might like:
David (something really poetic about this one, since he has to overcome such odds) Joshua Gideon Saul
@xxkberxx My heart goes out to you and your family. I'm so sorry you're having to face this and the difficult decisions that go along with it. Hopefully the answer becomes more apparent, and the stress of having to make it is lifted.
With my first pregnancy, my H and I made a list of baby boy names and my husband said it sounded like we were starting a warrior army, so hopefully these names help.
For twins Rorke and Ryker. (I knew twins with these names actually and they were badass) Hunter Wyatt Fitzgerald (Fitz) Atticus
I will keep you and your family in my prayers! I also am carrying twins and I can not imagine the decisions that you are facing and you may have to deal with. I hope and pray baby A's cord improves and things shift toward the better. We had a rough journey conceiving and during my pregnancy with our son and named him Owen at the last minute because it meant little warrior.
I happened to be lurking and wanted to offer my prayers. What an extremely difficult situation to be put in! I hope Monday has good news and will definitely be praying. As far as names go: Thomas means "twin" I think it would be a nice nod to what they are. Also if baby A doesn't make it, it will always be a reminder to baby B that he was in fact a twin.
First of all, I am so sorry for the bad news at your appointment. My son was severe IUGR as well. It was discovered at 20 weeks, and he was born at 34 weeks after we found reverse umbilical cord flow. We’ve spent 7 of the last 9 months in the hospital due to myriad of health issues. But guess what - he’s still here fighting each and every day. I know this road is scary and unpredictable. You live and die with each ultrasound. If you ever need someone to talk to or ask questions or vent or whatever, please PM me. I will keep you and your family in my thoughts
Me: 31 DH: 31 DS born 6/2017, became a heart angel 8/2018 CP 3/2019
I’m so sorry to read this update. I can imagine the stress and uncertainty is weighing heavily on you. Sending prayers to your family and the babies. I hope your next appointment shows baby A to be on his own growth curve. (Hugs)
Please keep us updated. Sending you strength and all the good thoughts and vibes for you and your LOs. I hope the next scan shows good growth with Baby A.
_______________________________________________________________________________________________ MMC 8/5/15 at 8 weeks DS born 9/13/16 BFP 1/13/18 - EDD 9/20/18 - It's a boy!
BFP #2 4/3/15= ectopic treated with methotrexate 5/1, YET ruptured 5/18/15= One Tube Wonder!
2 Cycles of Femara, Ovidrel, & Progesterone= BFP #3 DS born 5/17/16 TTC #2 March 2017 (initially med free) BFP #4 8/14/17 *natural cycle* EDD= 4/25/18, MC @5-6w D&C 9/22/17 BFP #5 12/29/17 w/ Femara/Ovidrel/Progesterone/Synthroid, EDD= 9/11/18 found out 1/18 ITS di/di TWINS!!! DS and DD born 8/21/18
1st clomid cycle June 2012- No response :: HSG August 2012- Left tube blocked, right tube clear :: 2nd clomid cycle Aug. 2012 BFN :: 3rd clomid cycle Sept. 2012 :: BFP Sept 30th :: DS born 6/15/13 :: BFP #2 7/29/14 M/C 8/5/14 :: BFP#3 10/20/14 DD born 7/1/2015 :: Applied to be surrogate April '17 :: Transferred 1 Embryo for IFs Dec. '17 :: Surro Babe born 9/11/18 :: Started 2nd Journey May '19 :: Transferred 1 Embryo for new IFs 9/24/19 :: HB 138 at 6w6d
Thank you everyone! While not enough of a difference for the doctor to say there has been improvement, Baby A’s blood flow had some intermittent absent and reversed rather than just reversed (like the previous appointment) so we will take that as a good sign. At this point our main goal is to get to the 2 week growth scan without having to intervene with surgery so we can determine how well baby A is growing. That appointment is April 5th and we have 3 other appointments (expectant management) until then. With each appointment we will have to decide if it’s safe enough to wait till the next appointment. This Sunday my husband will go back home and return to work, 5 hours away. I will be living with my sister in the Seattle, Wa area and my son will have to live with my parents, 1 hour away, whom I’ll visit/live with on weekends. At this point we feel this is our best option to see if we can give both babies the best chance. We are hopeful but know that the road ahead will be tough, especially with having our family divided. Thank you again for all the kind words, well wishes and prayers.
Me (29) + DH (30) | Dating 2003 | Married 2008 DS - 02/21/2016
So glad that it was OK news so far, crossing fingers that baby A will continue to get enough blood flow to hold off on surgery.
_______________________________________________
Me: 33 DH: 32 Married 7/18/15 1st born at 35+4 on 6/6/16 Team green turned BLUE! 2nd born at 38+6 on 8/30/18 Team green turned PINK! Due with #3 on 6/6/20 Team Green
Re: sIUGR Journey - Trigger Warning
DS - 02/21/2016
DS - 02/21/2016
DS - 02/21/2016
bfp#1-10/29/12,EDD: 7/3/13. nothing found @ 1st u/s, natural mc 12/10/12. "Bean"
bfp#2-5/10/13! EDD: 1/18/14. "Peanut" Arrived 1/13/14. Diagnosed with Cystic Fibrosis
bfp#3- 9/26/14. EDD: 5/7/15. no heartbeat found @ 1st u/s, natural mc 10/23/14. "Little Bug"
**Psalm 139:16**
Just some ideas for you...
Ethan means strong, firm. Wyatt means little warrior. Kaiden also means warrior.
Hope you will find continued courage and some peace as you await your next appointment... ❤❤❤
DH: 32
Married 7/18/15
1st born at 35+4 on 6/6/16
Team green turned BLUE!
2nd born at 38+6 on 8/30/18
Team green turned PINK!
Due with #3 on 6/6/20 Team Green
****TW- one of my cousins had a stillbirth and named the baby boy Wyatt, so although I'm biased, I love the idea of using that name in some capacity. End TW.****
I'll be thinking of you and your family and hoping you get some better news on Monday. It sounds like you have a really good medical team. So many hugs.
Married Aug. 2013
TTC #1 Sep. 2016
***TW***
BFP Jun. 5, 2017; MMC Aug. 2, 2017 at 11w6d
BFP Nov. 20, 2017; ended in CP
All the tests. Everything normal except treated for ureaplasma and DH potentially has high DNAF.
BFP Dec. 25, 2017; EDD Sep. 5, 2018; DD arrived Aug. 26th
My chart: https://www.fertilityfriend.com/home/63f71d
Some of my favorite warrior/fighter names are Owen, Sloan(e), Keane, and Alec.
ETA: text that created an emoji
BFP #1: 1/23/2012 DD: Born 9/20/2012
BFP #2: 12/30/2017 DS: Due 9/10/2018
I love @businesswife's name suggestions! If you are Christian or Jewish, here are some Biblical warrior names you might like:
David (something really poetic about this one, since he has to overcome such odds)
Joshua
Gideon
Saul
With my first pregnancy, my H and I made a list of baby boy names and my husband said it sounded like we were starting a warrior army, so hopefully these names help.
For twins Rorke and Ryker. (I knew twins with these names actually and they were badass)
Hunter
Wyatt
Fitzgerald (Fitz)
Atticus
prayers and i will be thinking of you!
First of all, I am so sorry for the bad news at your appointment. My son was severe IUGR as well. It was discovered at 20 weeks, and he was born at 34 weeks after we found reverse umbilical cord flow. We’ve spent 7 of the last 9 months in the hospital due to myriad of health issues. But guess what - he’s still here fighting each and every day. I know this road is scary and unpredictable. You live and die with each ultrasound. If you ever need someone to talk to or ask questions or vent or whatever, please PM me. I will keep you and your family in my thoughts
DS born 6/2017, became a heart angel 8/2018
CP 3/2019
MMC 8/5/15 at 8 weeks
DS born 9/13/16
BFP 1/13/18 - EDD 9/20/18 - It's a boy!
TTC #2 March 2017 (initially med free)
BFP #4 8/14/17 *natural cycle* EDD= 4/25/18, MC @5-6w D&C 9/22/17
BFP #5 12/29/17 w/ Femara/Ovidrel/Progesterone/Synthroid, EDD= 9/11/18 found out 1/18 ITS di/di TWINS!!!
DS and DD born 8/21/18
Started TTC Nov. 2011
1st clomid cycle June 2012- No response :: HSG August 2012- Left tube blocked, right tube clear :: 2nd clomid cycle Aug. 2012 BFN :: 3rd clomid cycle Sept. 2012 :: BFP Sept 30th :: DS born 6/15/13 :: BFP #2 7/29/14 M/C 8/5/14 :: BFP#3 10/20/14 DD born 7/1/2015 :: Applied to be surrogate April '17 :: Transferred 1 Embryo for IFs Dec. '17 :: Surro Babe born 9/11/18 :: Started 2nd Journey May '19 :: Transferred 1 Embryo for new IFs 9/24/19 :: HB 138 at 6w6d
DS - 02/21/2016
DH: 32
Married 7/18/15
1st born at 35+4 on 6/6/16
Team green turned BLUE!
2nd born at 38+6 on 8/30/18
Team green turned PINK!
Due with #3 on 6/6/20 Team Green