CDH- Update - Page 2 — The Bump
April 2018 Moms

CDH- Update

2

Re: CDH- Update

  • @sparklingdiamond I’m glad the FL visit went well. I’m sorry you’ll have to go through the amnio. Keeping you in my thoughts ❤️
    sparklingdiamond
  • @sparklingdiamond that is great news to hear.  At least you have a double confirmation on it. 

    Anniversary

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    sparklingdiamond
  • @sparklingdiamond that's great news so far. I know the wait is hard. Thinking of you and thanks for keeping us updated! 


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    sparklingdiamond
  • @sparklingdiamond So glad to hear that your first results are looking good! 
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    sparklingdiamond
  • @sparklingdiamond - good confirmation of what you knew. Prayers for more good news in the coming weeks!
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  • Yaaaay!  Another victory won for your little lady!  
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    sparklingdiamond
  • praying that you receive great news in weeks coming up
    sparklingdiamond
  • Hoping for more good news from the amnio! 
    sparklingdiamond
  • Yay for good news!! FX more good news!

    sparklingdiamond
  • @sparklingdiamond How is everything going? I saw Kelly post something sort of vague on Charly’s CDH FB page (I’m not sure if it was about you and your LO or not) but I’m thinking of you and sendinglots of positive vibes your way!

    Me (33). DH (37). DD (2.2012). MCs x4. After 4 years & 7 months, due 4.2018!


    sparklingdiamond
  • @sparklingdiamond I'm hoping and praying that these remaining weeks pass by quickly, reasonably stress free and that your little girl stays healthy in there. It is wonderful that you have found a supportive team to help you through this.
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    sparklingdiamond
  • @sparklingdiamond thinking of you ❤️ Does this change the plans for the Florida doctor or is it the same?
  • @danjoly My plan is still the same, but I definitely want to talk to Dr. Kays.  I have a call into them but haven't heard back yet.


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  • @sparklingdiamond Not knowing is definitely the hardest part. Hoping and praying for more answers for you and the best possible outcome! 

    Me (33). DH (37). DD (2.2012). MCs x4. After 4 years & 7 months, due 4.2018!


    sparklingdiamond
  • I want to reiterate how lucky jasmine is to have you as her mommy and advocate!  Hugs!!
    sparklingdiamondJJMNO1616
  • @sparklingdiamond ; I can't imagine how hard it is with all this waiting and uncertainty.  I keep thinking about you and your sweet baby girl.  I hope the dr. gets back to you soon today.   <3
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    sparklingdiamond
  • I am still rooting for you all SO hard.  Please let us know what your FL doctor thinks (you mentioned he was unsure about doing the CDH surgery).  The fact your Jasmine is developing on pace and is so far in HAS to mean that she has a really good fighting chance.  
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    kbamomma33sparklingdiamondMattelg_amoss
  • @sparklingdiamond man, seems like tests are good, but sometimes provide too much info that doesnt add up, and you are left with nothing. I would try calling Dr. Kays again today, maybe he will get back to you sooner?  
    sparklingdiamond
  • @sparklingdiamond it sounds like you have a great perspective on these challenges. You are doing a great job as an advocate for your daughter!
    I agree with this 100%
    angiek1sparklingdiamond
  • That is great news!  I did a bit of online reading, and I have seen women post about low percentages like yours and had children go on to show no ill effects.  I am glad Dr Kay wwill take her and help you fight for her :)
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  • Such a great update!! Hoping you are a little energized and more hopeful after talking to him as it sounds like the most positive news you’ve gotten in a while. So glad he is still going to take on your case and you can proceed how you were planning to. I know we’ve all said it a hundred times but Jasmine is so lucky to have you advocating for her every step of the way! Continuing to keep you guys in my thoughts. 
    Me: 31  DH: 32
    Married: 10/3/15 
    TTC: May 2017
    BFP: 7/20/17
    EDD: 3/29/18
    sparklingdiamondftm_ohio
  • I am so happy you got some good news, @sparklingdiamond! I hope this helps put your mind at ease somewhat; I would imagine that this all must be so stressful for you and your family (but especially for you). We are all on your side and will continue to be thinking of you and rooting for you!
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    sparklingdiamond
  • I'm so happy to hear that Dr. Kays will still be taking your case and I'm cheering so hard for both you and Jasmine, @sparklingdiamond. Your grace and strength through all of this is just astounding. Your baby girl is so lucky to have you as a momma.  <3 <3
    sparklingdiamond
  • I'm so glad to hear it's a low percentage! And that the doctor is still going to proceed with your plan. You are doing an absolutely amazing job of doing everything you possibly can for this LO. You are such an incredible mama.
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    sparklingdiamond
  • @sparklingdiamond So glad to hear this news! I'm so glad you are feeling better after speaking to him. Sounds like you got some more insight and answers questioned.. I will continue to think of you and your family! 
    sparklingdiamond
  • fancybelmontfancybelmont
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    edited January 2018
    It sounds like you've got a good doctor you're working with.  You are really amazing.  You're being realistic but full of hope.  That's not an easy tightrope to walk.  You are doing fantastic.  Thank you for keeping us updated.  So many people have your in their thoughts and prayers.  
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    sparklingdiamond
  • So happy for the positive news @sparklingdiamond! And can I just say, you inspire me so much with every post. Your courage and fierce mama love is incredible! 
    sparklingdiamond
  • What a great update! 80% sounds so positive. Glad Dr. Kay is staying on board. 
    sparklingdiamond
  • @sparklingdiamond - so happy Dr Kays is going to stay on Jasmine’s team! My heart is so happy for you all. You’re such a good mama!
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    sparklingdiamond
  • Im so glad you found Dr. Kay. He sounds amazing. Thanks for keeping us updated! When will you go down to fl?


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    sparklingdiamond
  • I'm so glad you got some good news! You're doing great, lady. She's so lucky to have you. 
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    sparklingdiamond
  • @mcb2016. Likely around the last week of March. 


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  • Yay!! You deserve this good news. I know the next few months are going to be hectic, but your doing such an awesome job. 

    sparklingdiamond
  • @sparklingdiamond, I am so relieved you got some good news! We are all rooting for baby Jasmine! 
    sparklingdiamond
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