Ok Ok my wait is almost over now I am scared.....go figure. I most definitely want to know if my baby boy has Down Syndrome, but boy am I nervous. Has anyone had one?
I had one after I found out I had an elevated risk of serious issues. I didn't have a lot of time to think about it as the doctor scheduled it for the day after he told me my baby was high risk for certain issues.
I was terrified something would go wrong but they are safer than most peope think. (You could even ask for their stats, the most experienced doctor etc) It was scary. It was not painful but it felt really odd. My husband was beside me and watched on the screen as they did it. (I was lying down and trying be as still as possible) The actual procedure was over fairly quickly. They called with the FISH results very quickly. (Around 24 hours) The full results took longer.
@timelesslove, I meant to comment last time you talked about this. I just wanted to say I'm hoping for you that everything turns out to be okay and that even if not, I'm here if you need someone to talk to. My DS does not have Down Syndrome, but he has Autism so I can sympathize with the difficulties of raising and caring for a significantly disabled child. I had a friendship back where I used to live that I really miss that was with a mom of a boy with Downs Syndrome and my DS is missing his friendship with this boy as well. Please know that I truly hope it turns out that yours doesn't have it, but that if he does, I'm here if you need someone to talk to.
Also, please try not to let anyone make you feel guilty for being worried about the possibility of him having it or even for being really disappointed and devastated if it turns out he does. Having a kid with special needs is no joke and while the child will always a blessing no matter what, it doesn't erase the fact that it's incredibly difficult and can be extremely isolating. Is it the end of the world? Absolutely not. However, I highly doubt anyone dreams about their future child(ren) being delayed in any way. Its heart wrenching to have to watch your child struggle with things that come so easily to other children or to see that they have the inability to cope with life like other children do. And, like so many things in life, until someone has walked down this path themselves, they will never understand what it's really like. No one has the right to cast judgement on you for not wanting this quality of life for your child or for yourself.
I had a CVS done a week and a half ago, with normal preliminary results. Regardless of the final results, I plan on also having an amnio. The procedure itself really doesn't scare me much...it's the waiting on the results that's awful for me!
I found the CVS to be uncomfortable, not necessarily painful. It was also nerve racking, of course.
It was not bad. The procedure itself took about 3 mins. The needle going into my belly felt like a shot but it going into the uterus was i very surprising "oh" and pressure, but it was tolerable. Praying for good results.
@timelesslove I am glad things went well. I found the sensation really odd as it went in to the uterus as well, as they withdrew it felt so strange. I hope you get answers very soon. My thoughts and prayers are with you right now.
I believe this thread was posted before she posted her results and her little boy is confirmed to have Downs but they are waiting to find out if there are any other issues because he may also have a heart complication. @timelesslove, I hope it's okay that I share that I just remembered that you already had results and this post had been bumped.
I had wanted to check in and see how you were doing anyway and I wondered what the next steps were so we could keep you in our thoughts and prayers.
Married - 7/29/06 Ben and Maggie - 4/10/09 Mia - 6/16/11 Surprise! due 2/23/17
It's ok I just needed some time away our little has a confirmed heart condition and we are scheduled to terminate in 3 days. I wouldn't wish these feelings on anyone. We are beyond devasted but refused to bring a child in this world who may suffer pain. It's been extremely hard as we said we would not terminate until the final culture came back and we got those results today. My little guy is moving all about and with every movement the tears fall down my face. I wish there was a way for me to change things but there isn't. This is by far the hardest and most painful decision I have EVER had to make, but I know it's best. Good luck ladies!
im so sorry to hear this. That must have been the hardest decision to have to make & i cant even begin to imagine how difficult this is for you. Please take care of yourself & know that you will be in all our thoughts & prayers. Xxx
I'm so sorry @timelesslove. That is an incredibly difficult decision to make. I pray for your strength over the next few days, and for your internal peace as you heal.
I'm so sorry you're going through this. I hope you receive all the support you need and deserve during this very difficult time. I'll be praying for you.
************* First BFP: 12/16/13 EDD: 08/23/14 Baby BOY born: 08/29/14
I am devastated for you @timelesslove, I'm so sorry you were faced with this decision. I know there's not a lot of words that could ever help your pain, but just know there's an awful lot of love and support being sent to you right now. Please let us know if you need anything (((hugs)))
@timelesslove I sent you a PM. I am so sorry to hear about your little one. You sound like a great mom making a difficult parenting choice, but the right one for your little. I hope you have the support you need, if not, we are here. *hugs*
Re: amniocentesis 4 days away.... BOY my nerves on on edge..........
Big Bro 7/14/13
Little Bro 2/6/17
I was terrified something would go wrong but they are safer than most peope think. (You could even ask for their stats, the most experienced doctor etc) It was scary. It was not painful but it felt really odd. My husband was beside me and watched on the screen as they did it. (I was lying down and trying be as still as possible) The actual procedure was over fairly quickly. They called with the FISH results very quickly. (Around 24 hours) The full results took longer.
I hope everything goes well.
Also, please try not to let anyone make you feel guilty for being worried about the possibility of him having it or even for being really disappointed and devastated if it turns out he does. Having a kid with special needs is no joke and while the child will always a blessing no matter what, it doesn't erase the fact that it's incredibly difficult and can be extremely isolating. Is it the end of the world? Absolutely not. However, I highly doubt anyone dreams about their future child(ren) being delayed in any way. Its heart wrenching to have to watch your child struggle with things that come so easily to other children or to see that they have the inability to cope with life like other children do. And, like so many things in life, until someone has walked down this path themselves, they will never understand what it's really like. No one has the right to cast judgement on you for not wanting this quality of life for your child or for yourself.
Just wanted you to know that I'm sending you love your in my thoughts.
I had a CVS done a week and a half ago, with normal preliminary results. Regardless of the final results, I plan on also having an amnio. The procedure itself really doesn't scare me much...it's the waiting on the results that's awful for me!
I found the CVS to be uncomfortable, not necessarily painful. It was also nerve racking, of course.
** December BMB Siggy Challenge - Animals in Pools **
Me: 31+ H: 32
TTC Since 11/2015
#1 - MMC 6.5 weeks (2/16); #2 - MC due to cystic hygroma at 20 weeks (10/16); #3 CP (2/17); #4 - Due 12.16.17
I had wanted to check in and see how you were doing anyway and I wondered what the next steps were so we could keep you in our thoughts and prayers.
Ben and Maggie - 4/10/09
Mia - 6/16/11
Surprise! due 2/23/17
@timelesslove I hope you are doing okay, you're in my thoughts.
My hope is that you will receive support from those around you as you go through this.
When you've been married this long, you need a ticker to remind you.
Baby Boy M - 08/01/2013
Expecting Baby Bean February 2017
First BFP: 12/16/13
EDD: 08/23/14
Baby BOY born: 08/29/14
Me: 37 - H: 39
TTC#1: 01/2016
BFP: 06/18/2016 - EDD: 02/20/2017 - Born: 01/27/2017
Big Bro 7/14/13
Little Bro 2/6/17
TTC since January 2016
BFP - 3/12/16 - MC 4/5/16
BFP - 6/11/16