Pregnant after trisomy 18

deneekoncz

I'm 22 years old and in June of this year I found out I was pregnant for the first time. When I went for my 12 week scan in August they told me that the baby showed signs of trisomy 18. I went through all the testing to confirm and spoke to genetic counselors. I chose to medically terminate my pregnancy on August 27th at 15 weeks, the hardest decision of my life. I currently just found out I am pregnant again!! But I am terrified something is going to happen again. I was just wondering if anyone else here has gone through this or something similar? 

Jodiggity

Hi! I just wanted to say I'm sorry for your loss and Congratulations on your great news! I've had no experience but am wishing you all the good vibes and luck in the world! X

LilLambie

I also had a termination for medical reasons (tfmr) in July 2015. My son was diagnosed with a Lower Urinary Tract Obstruction (LUTO) at my 12 week scan. His urethra hadn't formed correctly so even though his kidneys were producing urine there was nowhere for it to go. The urine was backwashing over his kidneys and causing kidney damage. It was the worst case the specialist had ever seen. We waited until 15 weeks to see if he would be eligible for experimental treatment, however his bladder had burst from the pressure. We were advised that through the kidney damage, the bladder damage and the fact that urine is the amniotic fluid from about 16 weeks, he would run out of amniotic fluid in approximately 2 weeks and then miscarry by the latest 6 weeks.

We decided to have a tfmr at 16 weeks. The thought of just sitting around waiting to miscarry terrified me. It was a terrible position to be in and I wouldn't wish it on anyone.

The anxiety of this occurring again is hard to explain. Even though I've been assured by every doctor I've seen that it was just a random mutation, I can't stop thinking that it was caused by the medication I am for my epilepsy. I've been told that the chance of this pregnancy having the same ending is very slim. Fingers crossed.

There's a board called Pregnant after a loss. There are more of us over there.