Hello ladies! I'm curious to see if I can find other women with pre existing conditions that put them high risk from day 1. I have an history of DVT (blood clot) + 3 autoimmune diseases. I called the OBGYN office this morning and I'm waiting for a call back to start the blood thinner shots this week. Anyone else's case?
Hi, I am high risk as well. I had a stillborn dd in March so I am automatically high risk. I don't know completely what that entails yet but I do know I will have extra checks all the way through the birth.
I am also high risk...have had 4 c-sections, and the last one ended up with an insisional hernia. Also due to my twins being over 7 lbs, there is concern for a thin uterus.
I have Factor V Leiden, a blood clotting disorder, but no history of clots thankfully. They said they won't put me on blood thinners now, but they will the 6 weeks after giving birth (apparently that's when we're most likely to clot). I'm also AMA and overweight. Trifecta!!! No signs to be concerned about yet, but definitely watching.
I am high risk due to having a congenital heart defect. I've had heart surgery and angioplasty to fix the reoccurring defect. I was on medication, but they took me off of it when they found out I was TTC. I'm still extremely early in the pregnancy (6 weeks + 6 days), so from what I was told they will be performing echo cardiograms on both me and the baby to make sure all is okay. And it hasn't been confirmed yet, but I believe I more then likely will have to have a scheduled c-section. (this is mt first).
I am also high risk. I suffer from crohns disease and have an allergy to elevated body temperature during excersize I also am not sure all that it entails. It's hard to find people in similar situations. I k o that I will be my obgyn first pregnancy that takes remicade a biologic medication that turns off immune system. My specialist is optimistic for a safe pregnancy and birth ":
I am also high risk for a number of reasons. Besides being AMA, I have a history of multiple miscarriages. I carry one strain each of Factor II and MTHFR so I'll be on lovonox too.
Hello all! Glad to see I'm not alone! @bbw72 I can relate to you! (We can pm) I have Crohn's + arthritis and I'm a remicade patient too! We can share our remicade/pregnancy experience together!
Did you already meet with your OBGYN? Are they strict about giving birth in a hospital with a level III NICU ?
I spent most of my life in hospitals (being diagnosed at 14) and I really hope my pregnancy can be "as normal as possible" and for once feel like I'm just another pregnant woman and not a "sick person"
@jolydan AMA- Advanced maternal age. Anyone 35 or older. I also have Crohn's, but it is in remission. I have a long history of small bowel obstruction so that's yet another reason to see the MFM.
I was told by The head of the American G.I. society that getting pregnant can push crohns into remission. So I hope that you have a normal pregnancy too! And possibly some relief from it.
I also have history of DVT and an autoimmune disease (celiac). All I have had so far is my initial prenatal appointment/class... our first appointment and ultra sound is next Monday and I'll be 8w3days.
Not sure if I'll be high risk this pregnancy or not. I had high Bp throughout my last pregnancy which ended in pre-e. I've since gotten my Bp down and gone off my meds...so not sure what this pregnancy will bring
I think I'm high risk due to the bleeding from the tear in the tissue outside my placenta. I still am waiting for my med records to transfer to my new obgyn from the ER... So I hope to learn more this week.
I am high risk due to mitral valve and SVT (heart), borderline diabetes which already put me in the GD category and unicornuate uterus which led to my son being born at 29wks in 2014. The heart has been ok, I am already on insulin and I hope my uterus stretches further this time. My new MFM has a whole different plan of action and I am more comfortable with him than I was with my previous MFM group. Not to mention, I will be a raging, psychotic bitch is someone does not listening or care for my needs knowing what I went through with pregnancy #1.
Apparently my "possibly new ob" doesn't think I'm high risk as they don't want me to come in until dec 17... Ugh... May be ditching this dr before even seeing them
I am high risk due to my age (39 y/o), 1 MC of twins @10 weeks Oct 2014, 1 copy of MTHFR, and inherited skin disorder called Ehlers-Danlos (I have type 1). On lovenox, baby aspirin, extra folic acid. Will see a high risk doctor scheduled at 10 weeks and probably every 2-3 weeks during pregnancy. I have an identical twin sister who has had two successful pregnancy with Ehlers-Danlos. She also has Ulcerative Colitis so I am hopefully my pregnancy will be good too. EDD 7/14/16
Me: 42 Husband: 41 Married 12/2014 DS: 02/2017 MMC @10 weeks 10/2014: Naturally conceived twins at 38 y/o Egg retrieval when I was single and 36 y/o, 17 retrieved, frozen for 3 years, 11 made it through the frost, 3 normal PGS (June 2015) FET #1 10/2015 MC@12/2015, 2 D&C's, very slow hcg fall so monitored for GTN FET #2 06/2016 DS 02/2017 FET #3 08/2017 MC@10/2017 FET #4 02/2018 4, day 3 embryos (untested, retrieved May/Dec 2017) BFP! Beta#1 462 U/S #1 @5w2days two sacs! HCG 5w3days 11,517 HCG 6w0days 22,264 U/S #2 6w2days 1 lovely heartbeat
My first living child was induced due to HELLP. Following pregnancy was high risk and I ended up induced because of pre e. I assume I'll be high risk again since it just seems to be my MO. I'm also already planning on a baby born around 37w just in case since my two have been induced at 37w and 37+4.
I am high risk due to my age (39 y/o), 1 MC of twins @10 weeks Oct 2014, 1 copy of MTHFR, and inherited skin disorder called Ehlers-Danlos (I have type 1). On lovenox, baby aspirin, extra folic acid. Will see a high risk doctor scheduled at 10 weeks and probably every 2-3 weeks during pregnancy. I have an identical twin sister who has had two successful pregnancy with Ehlers-Danlos. She also has Ulcerative Colitis so I am hopefully my pregnancy will be good too. EDD 7/14/16
I like you, so can you please change your name so that I can remember that I like you? Knottie#s is impossible to remember. You can change it through the knot. High five for AMA/twin history/MTHFR/Lovonox/Folguard. I have POTS so I feel for the EDS.
@BostonBaby1 I feel you for the lovonox.... Have you been on it before? I have some good tricks if you need some
I was on it during my last pregnancy but unfortunately not for very long. So far we're doing really well, but I will definitely let you know if I need any tips. How are you doing on it?
I'm 35 and have Crohn's disease, expecting my first baby, but am not considered high risk by my healthcare team.
Ironically, my digestive system has never been better (no more diarrhoea or pain) and I've been able to come off my biological medication (weekly Humira shots), cautiously, but successfully!
I'm only 8 weeks though and a newbie at this in general, so I feel like it's a very delicate thing and I am quite nervous. When I get my next scan at 11 weeks and updated bloods etc, I'll hopefully feel more confident.
Hi @Kannerush welcome! I have Crohn's as well! I was on Humira for 4 years but now I'm on remicade! So your doctor was part of the team "stop medication during pregnancy" (I've read there's really 2 clans regarding meds and IBD in pregnancy) or you decided to stop by yourself? Good luck with everything!
@BostonBaby1 I haven't started the shots yet, but was on them for 6 months after my Thrombosis. Once they confirmed the pregnancy with the ultrasound Tuesday, they'll start the shots. They need to confirm its not an ectopic because it can be very bad. I was giving myself the shot in the belly and I'm a little afraid what will happened with a 6+ months belly. We'll see!
I am high risk because of a unicornuate uterus. It comes along with a higher risk of miscarriage, pre-term labor, cervical incompetence, and intrauterine growth restriction.
My DD was complete breech and born at 37w6d, so I had a C-Section with her. I'll likely have another C-Section this time around, and will be seeing both the OB and the MFM.
@jolydan if use the search function to check D15 you can find a thread that is titled "Lovonox." It will give you a lot of different injection sites and even some photos. I have a lot of area to pinch on my upper arms so DH typically will give me the shot back there. I find it to be less painful.
*ETA- I wish I could link it for you, but I'm mobile.
Hey all you other high risk mamas! I'm high risk d/t liver problems during pregnancy related to hormones! When I was 17 I started taking bc pills and developed autoimmune hepatitis, i was randomly cured after about 3 months and no Drs could figure out why.
I get pregnant with ds last year and around 21 weeks I began developing similar symptoms (extreme itching at night, esp on hands and feet) turns out I developed intrahepatic cholestasis of pregnancy. It's scary cuz there is risk for sudden stillbirth in late pregnancy so I was induced at 36.5.
Normally with cholestasis there is a 70% chance of reoccurrence with subsequent pregnancies but he thinks i will absolutely have it again! So I'm already back with the high risk group! At least they know me this time around and I know what to expect too. After 30 weeks I had an nst twice a week, a dr appt and labs drawn weekly and an ultrasound weekly with ds.
I'm joining the ranks of a high risk pregnancy. I have a long history of M/C prior to having my first live delivery (have 3 children now). Never identified a specific reason. My first baby was born 8 weeks premature as an emergency C-section and my 2 births following were also c-section. I took the "p-17" shot on a weekly basis from 20 + weeks forward on my 2 last deliveries. It's a former of progesterone to help sustain the later part of pregnancy. I also had gestational diabetes with last 2. Due to these factors, I do require close observation and visits with specialists. Amazing what we do for the love of our unborn children!
I have Arnold Chiari malformation type 1 and pseudotumor cerebri along with a host of other smaller issues. These two brain and spinal disorders cause me to have high inter cranial pressure. I'm 5w3d and have been having cramping and left sided pain for a week. I've had an ultrasound and blood every other day for a week. My hcg is 2000 but they still haven't seen a sac. When I go in Friday morning the dr told me to come in prepared for surgery since he is suspicious of an ectopic. Being high risk sucks. I want this pregnancy so bad, keeping fingers crossed and praying a lot that everything goes well.
I have Arnold Chiari malformation type 1 and pseudotumor cerebri along with a host of other smaller issues. These two brain and spinal disorders cause me to have high inter cranial pressure. I'm 5w3d and have been having cramping and left sided pain for a week. I've had an ultrasound and blood every other day for a week. My hcg is 2000 but they still haven't seen a sac. When I go in Friday morning the dr told me to come in prepared for surgery since he is suspicious of an ectopic. Being high risk sucks. I want this pregnancy so bad, keeping fingers crossed and praying a lot that everything goes well.
Sending tons of thoughts and prayers your way. Were you charting and tempting to confirm O? Hoping that you just ovulated or implanted a little bit later. (((Hugs)))
I don't have confirmation I am high risk, but suspect I am. I'm 36, will be 37 when I deliver. I have a history of previous loss & have a prolactin secreting pituitary tumor (benign adenoma) so my reproductive hormones are tricky!
Hi everyone! I am also a high risk. I have Addison's Disease and Hypothyroidism and am expecting our 1st child. To make it worse, I'll be 35 by the time I deliver so that puts me at even more high risk. But, both my doctor's are on board and I feel like I have everyone's full support. I go for my first ultrasound Dec. 3rd so I'm really excited to make sure everything is okay.
I'm high risk due to me having epilepsy and because my son had a condition called LUTO which resulted in him being stillborn. I have to go through maternal fetal medicine, but they were supposed to send some instructions to my gp about how to refer me but they didn't. So I will be on the phone to them Monday.
I am waiting to find out if I have factor v leiden -- my mother has it but I've never been tested. My doctor put me on baby aspirin until my appt with the hematologist (which sadly isn't until late January -- I'll be into my second trimester by then).
Hi. I'm high risk. I have an Incompetent Cervix. My first baby was a micropreemie. Then I had another preemie after bed rest. And finally my last pregnancy, I had a cerclage.
question for my high risk peeps, are you seeing a regular OB in addition to your high risk center/OB? I'm in the process of getting a referral for the high risk center I'll be using but the nurse mentioned Id be seeing a reg OB as well as they may or may not be the ones to deliver. This is on top of my specialty Doctor wanting to see me every two months instead of every three. It's starting to feel like a money grab for copay visits when most of this could be consolidated. Feeling a little overwhelmed/flustered. I know it's to make sure baby and I are healthy but damn! What's everyone else experience this far?????
question for my high risk peeps, are you seeing a regular OB in addition to your high risk center/OB? I'm in the process of getting a referral for the high risk center I'll be using but the nurse mentioned Id be seeing a reg OB as well as they may or may not be the ones to deliver. This is on top of my specialty Doctor wanting to see me every two months instead of every three. It's starting to feel like a money grab for copay visits when most of this could be consolidated. Feeling a little overwhelmed/flustered. I know it's to make sure baby and I are healthy but damn! What's everyone else experience this far?????
Yes. I try to book my OB for the same day as my MFM because they are in the same building. I don't feel like it's a moneygrubbing issue because under my insurance, once you pay your initial co-pay for pregnancy, you're covered for the rest of your pregnancy.
My regular OB said she will probably do the follow up + a couple of visits with the Maternal Fetal specialist if all goes well. If some problems happens, the MFS will be doing the follow up.
As of my specialty doctor, I usually see my GI doctor every 3 months but she told me she'll be seeing me every month which I think is a bit crazy but I won't argue. As of my other specialist doctor I don't know yet what kind of follow up they will do.
I predict my deductible will be reach by february at that pace!
I'm in a bit of a different boat because I'm in Australia. In australia the public system is all paid for by the government. Downside of thay is that you have no option to pick a doctor or midwife. You just get whoevers on whenever you have an appointment or give birth. I think I'll be followed pretty closely by mfm so I'm not even sure I will get an ob gyn just the doctors from mfm. Im hoping I'll get the same midwife through mfm as my last birth because she was great. She did all my follow up including my d&c so I think I might get her.
Re: Any other "high risks" bumpie in July?
Hi, I am high risk as well. I had a stillborn dd in March so I am automatically high risk. I don't know completely what that entails yet but I do know I will have extra checks all the way through the birth.
Good luck to you!
I suffer from crohns disease and have an allergy to elevated body temperature during excersize
I also am not sure all that it entails. It's hard to find people in similar situations. I k o that I will be my obgyn first pregnancy that takes remicade a biologic medication that turns off immune system.
My specialist is optimistic for a safe pregnancy and birth ":
I am also high risk for a number of reasons. Besides being AMA, I have a history of multiple miscarriages. I carry one strain each of Factor II and MTHFR so I'll be on lovonox too.
@bbw72 I can relate to you! (We can pm) I have Crohn's + arthritis and I'm a remicade patient too! We can share our remicade/pregnancy experience together!
@MamaBish I miss your BFP announcement!!! Congrats!!
@BostonBaby1 & @LinzerBinzer what is AMA?
Did you already meet with your OBGYN? Are they strict about giving birth in a hospital with a level III NICU ?
I spent most of my life in hospitals (being diagnosed at 14) and I really hope my pregnancy can be "as normal as possible" and for once feel like I'm just another pregnant woman and not a "sick person"
I was told by The head of the American G.I. society that getting pregnant can push crohns into remission. So I hope that you have a normal pregnancy too! And possibly some relief from it.
I will be meeting with MFM (maternal fetal medicine) in the next couple weeks and will start meeting with them bi-weekly until delivery
MMC @10 weeks 10/2014: Naturally conceived twins at 38 y/o
Egg retrieval when I was single and 36 y/o, 17 retrieved, frozen for 3 years, 11 made it through the frost, 3 normal PGS (June 2015)
FET #1 10/2015 MC@12/2015, 2 D&C's, very slow hcg fall so monitored for GTN
FET #2 06/2016 DS 02/2017
FET #3 08/2017 MC@10/2017
FET #4 02/2018 4, day 3 embryos (untested, retrieved May/Dec 2017) BFP! Beta#1 462 U/S #1 @5w2days two sacs! HCG 5w3days 11,517 HCG 6w0days 22,264 U/S #2 6w2days 1 lovely heartbeat
Started my Lovonox tonight.
*typo
I'm 35 and have Crohn's disease, expecting my first baby, but am not considered high risk by my healthcare team.
Ironically, my digestive system has never been better (no more diarrhoea or pain) and I've been able to come off my biological medication (weekly Humira shots), cautiously, but successfully!
I'm only 8 weeks though and a newbie at this in general, so I feel like it's a very delicate thing and I am quite nervous. When I get my next scan at 11 weeks and updated bloods etc, I'll hopefully feel more confident.
Good luck everyone!
I have Crohn's as well! I was on Humira for 4 years but now I'm on remicade! So your doctor was part of the team "stop medication during pregnancy" (I've read there's really 2 clans regarding meds and IBD in pregnancy) or you decided to stop by yourself?
Good luck with everything!
@BostonBaby1 I haven't started the shots yet, but was on them for 6 months after my Thrombosis. Once they confirmed the pregnancy with the ultrasound Tuesday, they'll start the shots. They need to confirm its not an ectopic because it can be very bad. I was giving myself the shot in the belly and I'm a little afraid what will happened with a 6+ months belly. We'll see!
I am high risk because of a unicornuate uterus. It comes along with a higher risk of miscarriage, pre-term labor, cervical incompetence, and intrauterine growth restriction.
My DD was complete breech and born at 37w6d, so I had a C-Section with her. I'll likely have another C-Section this time around, and will be seeing both the OB and the MFM.
*ETA- I wish I could link it for you, but I'm mobile.
I get pregnant with ds last year and around 21 weeks I began developing similar symptoms (extreme itching at night, esp on hands and feet) turns out I developed intrahepatic cholestasis of pregnancy. It's scary cuz there is risk for sudden stillbirth in late pregnancy so I was induced at 36.5.
Normally with cholestasis there is a 70% chance of reoccurrence with subsequent pregnancies but he thinks i will absolutely have it again! So I'm already back with the high risk group! At least they know me this time around and I know what to expect too. After 30 weeks I had an nst twice a week, a dr appt and labs drawn weekly and an ultrasound weekly with ds.
Me: 39 DH: 40
Married: 12/6/2014
BFP#2: 10/28/15 MC: 11/24/15
BFP#3: 3/20/16 MC: 4/26/16
BFP#4: 7/15/16 DD: 3/18/17
BFP#5: 5/1/18 EDD: 1/12/19
Little boy due July 31st 2016
I'm in the process of getting a referral for the high risk center I'll be using but the nurse mentioned Id be seeing a reg OB as well as they may or may not be the ones to deliver. This is on top of my specialty Doctor wanting to see me every two months instead of every three. It's starting to feel like a money grab for copay visits when most of this could be consolidated. Feeling a little overwhelmed/flustered. I know it's to make sure baby and I are healthy but damn! What's everyone else experience this far?????
Little boy due July 31st 2016