So this whole pregnancy has been a little uncertain--the betas were a little low; the HB showed up a little late...then my second ultrasound last week showed slow growth and an enlarged yolk sac, and my RE was pretty sure it wasn't viable.
Yesterday, after a 5-hour insurance claim nightmare (which I spent a lot of holding in the 32 oz of water they had me drink for the pointless abdominal ultrasound they insist on due to "protocol" before the insurance fuckup got underway) a missed miscarriage was confirmed. I'm OK, because I knew it was coming, but it looks like I'm back.
I have 4 blasts leftover from this cycle, and will be doing two more retrieval/freeze-all cycles, CCS testing of everything, and hopefully an FET in December or January. So I'm here for awhile.
I'm also really not pleased with my RE's handling of this whole thing (or the American medical insurance system in general, but that's another post). I think it might be time to shop around.
So, yeah, hi again.
*****Signature/Ticker Warning******
Me: 41, DH: 45 DD, 6/15/2013 TTC #2 beginning January 2014 AMH 1.05; FSH range 7-11
CTinNV said:I am so sorry. When you feel like sharing, I'd like to hear more about what happened to you. (((Hugs)))
OK. Long story, though!
The RE's office did tell me, before my last visit there, that they were planning on doing my discharge-to-the-OB apt that day. I assumed that was contingent on their finding a viable pregnancy on the ultrasound, and I was pretty sure based on the previous u/s that that wasn't going to happen, so I didn't have an OB lined up (the one who delivered DD had moved on to a different provider group, and I didn't have time to deal with Blue Cross). Actually, though, my insurance cuts off services with an RE after any heartbeat is seen--which they only told me at that last appointment. I understand that they need to get paid, but I have a thick file with them--they've made a lot of money off me, and I don't think one more ultrasound would have broken the bank. Or, if they couldn't have done that, maybe a reference to an OB who was currently seeing patients, with an explanation to that person of the situation, would have been nice. But it was basically just "sorry, good luck with that miscarriage thing, don't let the door hit you." So, I did spend hours on the phone dealing with my insurance, then hours locating an OB who could see me quickly, then hours trying to explain what I needed (a followup ultrasound--this still seems like it should have been a simple request).
So, the appointment rolled around, and despite my many phone calls, the ultrasound had not been scheduled. The OB ordered it himself, but I couldn't get in for a couple of hours. Meanwhile, the OB's office had coded it as "supervision of a normal pregnancy," so my insurance wasn't approving it and they couldn't just do it and bill after the fact. We went back and forth about that for another hour or so, while I was seriously near tears from having to pee so badly (the 32 oz of water they had me drink before finding the insurance error). Finally they took pity on me and recoded, and I got the abdominal ultrasound the water was for (the tech admitted that of course they can't see anything that way at 8 weeks, but it was protocol). The tech refused to tell me anything at all, including whether there was a heartbeat, and didn't even tell the doctor, until he got the report this morning (there wasn't, obvs.) She just passed on (through him) the information that there was no growth. And they kicked DH out of the room for the dildo cam part ("because it's internal"--yes. Wait, what?) even though he'd taken off work to be with me. We'd also had to pick DD up from daycare during the delay so we wouldn't have to pay the late fee, so she was crying because I couldn't hold her, and we all just had a really good time. I was at the hospital from 1:30-6:00 pm.
Then I went home an had cold cuts and buckets of wine (and we considered trying to find unpasteurized cheese, just for the hell of it) for dinner. Uggghhhhh.
tl/dr: I should have been more proactive and asked more questions, but I think my RE was kind of heartless.
*****Signature/Ticker Warning******
Me: 41, DH: 45 DD, 6/15/2013 TTC #2 beginning January 2014 AMH 1.05; FSH range 7-11
OMG I am literally pissed for you!! I can NOT tolerate Drs who are just so business orientated that they forget their patients are real people (who have to pee and even worse the waiting for an u/s limbo). I have had more bad u/s than good ones. Seriously, I would buy us all a machine if we were close enough!! DH even found one on EBay once!
I am so so so very sorry for your loss.
TTC#1: 14 months on our own (did HSG, b/w, SA);
BFP on Cycle 14--TWINS! Identical twin boys stillborn at 19wks(1/9/10)
3 break cycles; took clomid 50mg, BFP #2 Beta #1 35, Beta #2 338!!! Owen was born 2/11/11! TTC#2: 4 cycles on clomid: BFNs
BFP #3: Cycle #5 100mg clomid; beta #1 21; beta #2 6=CP Cycle #6 break cycle TTC no meds=BFN
Cycle #7: 150 clomid+ovidril+IUI=BFN (switched to RE) Cycle #8: follistem+ovidril+TI=BFN
Cycle #9 Forced break due to cyst
Cycle #10 follistem+ovidril+TI=BFN
Cycle #11 follistem+ovidril+TI=BFN
Cycle#12 Forced break due to cyst, went on BCP; did repeat HSG, Saline U/S
Cycle #13 IVF: Follistim/Menapur ER 11-30 11 eggs, 5 mature, 4 fertilized and 3dt on 12-3; BFN
Cycle #14: IVF#2 lupron/follistim/menopur ER 1-22, 19 eggs, 14 fertilized, 5dt on 1-27, BFP!! beta 1: 63, beta 2: 119; EDD 10-15-13; 1 frozen embie
Miracle Surprise BFP, EDD 10-1-15; saw HB great Betas, 11weeks lost baby MC at home
Moved forward with FET transfered solo frostie on 6-4-15, beta 1: 315, beta 2: 738, u/s showed one baby on track EDD 2-21-16
IVF #1, Stimmed for 12 days, ER 8/22/14, 9 retrieved, 7M, 7F!! Freeze all due to fluid in uterus.
FET end of October 2014 cancelled due to fluid in uterus due to possible c-scar defect
Surgery scheduled 12/12/14 to fix possible isthmocele
3/26/15 transferred one 8 cell grade 4 embryo and one 6 cell grade 3 embryo = slow rising betas for 2+ weeks = ectopic MTX shot 4/29/15
Repeat c-scar surgery June 2015
2nd and last IVF cycle August 2015, stimmed for 12 days, 2 egg retrieved, both mature and both fertilized. Transferred both 8-cell embryos on Day 3, beta 9/5/15 = BFFN
Oh sweetie, I'm so sorry for your loss and to see you back here. (hugs) And a big F U to your RE and insurance company. I have Blue Cross too and they suck.
BFP #4 2/18/14. EDD 10/30/14... Ruptured ectopic with L tube removed & D&C 3/7/14.
BFP #5 7/27/14. EDD 4/9/15... m/c @ 5w4d.
IVF #1 Oct 2014 - antagonist protocol: 9R, 7M, 5F. 3dt of 3 Grade 2 embies. BFN.
IVF #2 Jan 2015 cancelled due to dominant follicle. Converted to IUI #1. BFFN
IVF #2.1 March 2015 cancelled due to dominant follicle.
BFP #6 (SUPRISE!) 3/19/15. EDD 11/30/15... CP at 4w2d.
IUI #2: Clomid + Follistim = 3 follies. BFN.
IVF #2.2 May 2015 - horrible response to micro lupron flare protocol: 3R, 3M, 3F. 3dt of 2 Grade 3 embies. BFFN.
BFP #7 (beyond surprised again!) 4/26/16. EDD 1/5/17. beautiful betas!!!! and then near-fatal hemorrhagic corpus luteum. turns out baby was ectopic after all; another lap 5/6 (@24dpo).
the universe can fuck off.
"You are
overly paranoid and delusional that every one is out to get you."
-lastsliverofhope
Thank you for sharing the whole story. I am speechless. That is absolutely totally crappy. I'm glad you are ready to kick your RE to the curb. I would question everything about that practice after something like this. I hope you have more options in your area.
So are you going to have a D&E so you can get testing? What comes next?
Please keep us updated. We are here for you.
Me: 35 DOR - AMH 1.1 FSH 5.6
DH: 39
09/01/10 - First pregnancy - my sweet son was born
04/25/14 - Miscarriage at 9 weeks - Turner Syndrome
08/01/14 - Miscarriage at 8 weeks - Trisomy 9
October 2014 - Unsuccessful IUI
November 2014 - IUI month skipped due to cyst
December 2014 - Unsuccessful IUI
January/February 2015 - Failed IVF (standard long protocol) - 7 eggs, 6 mature, 4 fertilized (ICSI), 0 made it to blast, 0 for testing
March/April 2015 - Microflare IVF protocol with HGH - 6 eggs, 6 mature, 5 fertilized (ICSI), 2 blasts for biopsy!
May/June 2015 - Microflare IVF protocol with HGH - 9 eggs, 6 mature, 5 fertilized (ICSI), 3 blasts for biopsy!
06/18/15 - Two healthy embies based on PGS testing by Natera!
June/July 2015 - FET cycle with estradiol & PIO shots, a Neupogen treatment, and accupuncture
Diagnosed with Severe Ashermans Hysteroscopy #10 - scar tissue grew back reblocking my right tube #11 or IVF with scarring still inside? 1 lone embryo from September 2016 retreival, dx with Trisomy 16, starting fresh
Re: I'm back (loss mentioned)
Me: 35 DOR - AMH 1.1 FSH 5.6
DH: 39
09/01/10 - First pregnancy - my sweet son was born
04/25/14 - Miscarriage at 9 weeks - Turner Syndrome
08/01/14 - Miscarriage at 8 weeks - Trisomy 9
October 2014 - Unsuccessful IUI
November 2014 - IUI month skipped due to cyst
December 2014 - Unsuccessful IUI
January/February 2015 - Failed IVF (standard long protocol) - 7 eggs, 6 mature, 4 fertilized (ICSI), 0 made it to blast, 0 for testing
March/April 2015 - Microflare IVF protocol with HGH - 6 eggs, 6 mature, 5 fertilized (ICSI), 2 blasts for biopsy!
May/June 2015 - Microflare IVF protocol with HGH - 9 eggs, 6 mature, 5 fertilized (ICSI), 3 blasts for biopsy!
06/18/15 - Two healthy embies based on PGS testing by Natera!
June/July 2015 - FET cycle with estradiol & PIO shots, a Neupogen treatment, and accupuncture
07/08/2015 - Transferred one lovely embie
07/17/2015 - Beta #1 136
07/20/2015 - Beta #2 529 -- BFP!!!
OK. Long story, though!
Me: 41, DH: 45
DD, 6/15/2013
TTC #2 beginning January 2014
AMH 1.05; FSH range 7-11
July 2014: IUI #1. Follistim + Pregnyl. 2 follicles--BFN
September 2014: IUI #2. Follistim + Pregnyl + Ganirelix + Crinone. 4(?) follicles--BFN
October 2014: IUI #3. More Follistim + More Ganirelix + Pregnyl + Crinone. 4 follicles--BFP! Beta #1=10 Beta #2=33 Beta #3=97 Beta #4=158. M/C 11/1/14
December 2014: IVF #1. Microdose Lupron protocol. 9R, 9M, 9F. 3 5-day blasts transferred 12/15. BFFN.
August 2015: IVF #3. 14R, 13M, 11F. Froze 5 blasts for CCS testing. 3 normals. FET planned for 10/2015.
My Ovulation Chart
I am so so so very sorry for your loss.
BFP on Cycle 14--TWINS! Identical twin boys stillborn at 19wks(1/9/10)
3 break cycles; took clomid 50mg, BFP #2 Beta #1 35, Beta #2 338!!! Owen was born 2/11/11!
TTC#2: 4 cycles on clomid: BFNs
BFP #3: Cycle #5 100mg clomid; beta #1 21; beta #2 6=CP
Cycle #6 break cycle TTC no meds=BFN
Cycle #7: 150 clomid+ovidril+IUI=BFN (switched to RE)
Cycle #8: follistem+ovidril+TI=BFN
Cycle #9 Forced break due to cyst
Cycle #10 follistem+ovidril+TI=BFN
Cycle #11 follistem+ovidril+TI=BFN
Cycle#12 Forced break due to cyst, went on BCP; did repeat HSG, Saline U/S
Cycle #13 IVF: Follistim/Menapur ER 11-30 11 eggs, 5 mature, 4 fertilized and 3dt on 12-3; BFN
Cycle #14: IVF#2 lupron/follistim/menopur ER 1-22, 19 eggs, 14 fertilized, 5dt on 1-27, BFP!! beta 1: 63, beta 2: 119; EDD 10-15-13; 1 frozen embie
TTC #3 since June 2013
BFP #1 7/21/2013--EDD 3/30/14--D&C 9/24/13
BFP #2 1/28/14--MC 2/7/14
IUI #1 5mg Femara + trigger = BFN
IUI #2 5mg Femara + trigger = BFN
IUI #3 5mg Femara + trigger = BFN
Dx: Me: Recurrent Pregnancy Loss; DH: Low Morphology (2%)
BFP#1: MC 3/1/11 at 6w1d - EDD 10/21/11
BFP#3: MC 2/8/14 at 4w5d - EDD 10/13/14
BFP#6: CP 11/6/14 at 4w2d - EDD 7/14/15
IVF #1 with ICSI & PGS: May/June 2015, ER 6/3/15, 17R/17M/15F
IVF #2 with ICSI & PGS: July 2015, ER 7/16/15, 16R/11M/9F
PGS results = 6 normal embryos (4 boys, 2 girls)
FET 9/23/15 = BFFN
BFP #7 (beyond surprised again!) 4/26/16. EDD 1/5/17. beautiful betas!!!! and then near-fatal hemorrhagic corpus luteum. turns out baby was ectopic after all; another lap 5/6 (@24dpo).
the universe can fuck off.
"You are overly paranoid and delusional that every one is out to get you." -lastsliverofhope
So are you going to have a D&E so you can get testing? What comes next?
Please keep us updated. We are here for you.
Me: 35 DOR - AMH 1.1 FSH 5.6
DH: 39
09/01/10 - First pregnancy - my sweet son was born
04/25/14 - Miscarriage at 9 weeks - Turner Syndrome
08/01/14 - Miscarriage at 8 weeks - Trisomy 9
October 2014 - Unsuccessful IUI
November 2014 - IUI month skipped due to cyst
December 2014 - Unsuccessful IUI
January/February 2015 - Failed IVF (standard long protocol) - 7 eggs, 6 mature, 4 fertilized (ICSI), 0 made it to blast, 0 for testing
March/April 2015 - Microflare IVF protocol with HGH - 6 eggs, 6 mature, 5 fertilized (ICSI), 2 blasts for biopsy!
May/June 2015 - Microflare IVF protocol with HGH - 9 eggs, 6 mature, 5 fertilized (ICSI), 3 blasts for biopsy!
06/18/15 - Two healthy embies based on PGS testing by Natera!
June/July 2015 - FET cycle with estradiol & PIO shots, a Neupogen treatment, and accupuncture
07/08/2015 - Transferred one lovely embie
07/17/2015 - Beta #1 136
07/20/2015 - Beta #2 529 -- BFP!!!
ME: 35 DH: 39
Married July 2011
DD Born 8/12
TTC #2 since 11/13
ME: Submucosal Fibroid Surgery Date APRIL 14th 2015 -Left Tube is blocked by Fibroid~Surgeon removed 26 Fibroids from my Ute and Unblocked my Tube
DH:Azoospermia...Thank God we have 12 vials of frozen swimmers
July 15-Check to see if Ute is all healed
IUI #1 8/3/15...BFN
IUI #2 9/5/15...BFP on 9/17/15
Beta #1-344
Beta #2-809
Beta #3 8,390
1st u/s 8/8/15 1 bean HB 135 @ 6w5d
Kid #1 - 09/03/12
Hysteroscopy #10 - scar tissue grew back reblocking my right tube
#11 or IVF with scarring still inside?
1 lone embryo from September 2016 retreival, dx with Trisomy 16, starting fresh