What I need and I'm hoping the clinic will provide when we go for the CP assessment is the prioritized list of treatments and therapies: these are proven to be effective, the jury is still out on this stuff, and this is utter woo. I'm vulnerable, damn it. I need a cheat sheet.
I haven't been on this board in a long time, but I think that is what every CP parent wants. And as best as I can tell, 5 years in, it doesn't exist.
We did use a SPIO suit for a few months when DS was younger (2.5) and found it somewhat helpful for his core hypotonia, but way too hot in the summer. He has Theratogs now that are more complicated, but I think do a better job of addressing specific alignment needs. We use them intermittently. In retrospect, I wish at 7 months we had done a ton of core work with him - back play reaching up, reaching for his feet on his back, sitting on an exercise ball, rolling, etc. I think it would have eliminated or at least significantly reduced his need for core support now. His low tone core is significant, but not severe. I think a lot depends on how significant the tone is.