My baby was born at 38 weeks, and it looked like he had a heart problem from an ultrasound so the NICU was standing by. His heart is fine, but he would desat when taking full feeds so he was checked in. He has been in the NICU for 10 days and the ENT says he has laryngomalacia and that it won't be better for a year or so, but told me he could go home with an oxygen monitor because if he desats, he goes right back up when you give him a feeding break. The NICU doctor overseeing my baby's case will not let him go. He says he has to do the feeds without desating, but that is seriously not expected for a year. Plus, he says I need to be there 3x/day to breastfeed, which is nearly impossible for me since I am recovering from a c-section. Now he says I need to check into the mother and baby room and prove I can breastfeed without desating for 24 hours, and that room isn't available until next week. I don't think he will pass anyway, because he has a physiological problem that prevents him from being able to eat without desating occasionally. I cannot jump through more hoops just to be told he needs to get better when no improvement is expected. The NICU is filled far past capacity and no one ever cares for my baby because he is not actually sick. He has terrible diaper rash, wore the same outfit for 4 days and wasn't given a bath, the other babies around him scream full time, and he has a portable monitor for another child who has no actual spot in the room about 6 inches from his head the blares constantly. He is in a room with babies who have infectious diseases and cannot be held without gowns. I don't know if I should call a lawyer or if that will even help. I just don't see any end to this.
Re: Do I have any way to get my baby released from the NICU?
yes. (and another laryngomalacia case here)
We were prepared to have to bring my LO home on nasal cannula because he just couldn't seem to get over that milestone, and we'd already been in the nicu 10 weeks. The day before we were discharged he managed to make it through 24 hours without desats so we didn't have to go that route. But I have other NICU mom friends who did have to go home on O2 cannula.